Cytoreductive surgery and HIPEC

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evelym
evelym Member Posts: 17
edited January 2019 in Stage IV/Metastatic Breast Cancer ONLY

Has anyone had this procedure?

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  • leggo
    leggo Member Posts: 3,293
    edited December 2015

    Evelym, I wanted to have the HIPEC procedure but there was no chance my cancer center could accommodate me....no surgeons there were familiar, nor would they, even if there were (not covered or recommended through our healthcare system). I did track down a clinic in the US and one in Germany that does it but not for metastatic bc, only primary abdominal cancers. Do you have a lead on a place you can have this done for abdominal bc mets? If so, would you mind sharing the info? I understand completely if you don't want to, or that you might only want to through pm. Please pm me if you choose to. I would very much appreciate the info. Best wishes to you.

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  • evelym
    evelym Member Posts: 17
    edited December 2015

    Will be happy to share the information I have. Dr. Sardi at Mercy Hospital in Baltimore does the procedure. He said he has only done 4 other breast cancer patients, but has done many for primary peritoneal and appendiceal cancers. I was just evaluated by him and he said he would operate on me if I wanted it done because I am otherwise healthy and have no other sites of metastasis. He does a laproscopic exam before the cytoreductive surgery to see whether it is feasible or not. I have had multiple abdominal surgeries and probably lots of adhesions which may prevent me from having it done, but will probably have him do the laprascope procedure after the first of the year to see whether he thinks it is possible. If you want his contact number I will gladly share it.

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  • leggo
    leggo Member Posts: 3,293
    edited December 2015

    Thank you Evelym. Reading your post, I suspect I probably have too much disease to make use of the procedure, but I'd still like to give it a shot knowing somebody out there might be willing. If you wouldn't mind, I'll take the contact info. Again, thank you. If it turns out after your consult that you go ahead with it, I offer my sincere hope that it's successful for you. Read and heard so many good things and the good definitely seems to outweigh any temporary pain and discomfort.

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  • evelym
    evelym Member Posts: 17
    edited December 2015

    Yolanda is the person who set me up with an appointment. She is wonderful and was so helpful. She put me in touch with a couple of gals who had the surgery and am much less afraid of having the surgery done after talking to them. I wish you the best. Dr. Sardi does about 2 HIPEC surgeries a week, (probably mostly for appendices and colon cancer)and has been doing them for a long time so his experience is encouraging. Keep me posted on how it goes.


    Yolanda Brockington

    Institute for Cancer Care

    HIPEC Coordinator for

    Dr. Sardi & Dr. Gushchin


    227 St. Paul Place

    Weinberg Building, 4th Floor

    Baltimore, MD 21202

    Tel: 410-332-9348

    Fax: 410-332-9731

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  • leggo
    leggo Member Posts: 3,293
    edited December 2015

    Evelym, I am so sorry! I just realized I didn't thank you for providing this info. Thank you so very much!

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  • evelym
    evelym Member Posts: 17
    edited January 2016

    Let me know what happens after you talk with them. Good luck!

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  • kathrich
    kathrich Member Posts: 2
    edited March 2016

    Evelyn


    I am reading your posts with great interest. I have metastatic breast cancer that has landed in my peritoneum. I have met with Dr Sardi and plan to have HIPEC done there next month but I am in dire need of case precedence to battle the insurance company. I am looking for anyone that is willing to share who had the HIPEC and had breast cancer metastisized in this manner. I would need some info from them so we can build a case precedence. Did you have the procedure done at Mercy? Would you be willing to assist me? Do you know of others?

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited March 2016

    kathrich, below from my MBC Guide is information about HIPEC that may possibly be of help when dealing with your insurance. As an aside, you (and others) are welcome to request a complimentary copy of the 116 page booklet by visiting the top of this page:https://community.breastcancer.org/forum/8/topics/...

    Good luck and best wishes!

    Peritoneal metastasis (metastasis to the thin tissue lining the abdomen) is a bit difficult to treat, but recently a new procedure called Hyperthermic IntraPeritoneal Chemotherapy (HIPEC) has been developed and appears promising.This is a highly concentrated, heated chemotherapy treatment that is delivered directly to the abdomen during surgery.Of five patients treated in one study, one patient died of disease at 56 months, and 4 are alive and disease-free at 13, 45, 74 and 128 months.These encouraging outcomes suggest that cytoreduction (surgical removal of visible tumors) and HIPEC may be a viable approach to offer to highly selected patients with peritoneal carcinomatosis from breast cancer.From: http://www.ncbi.nlm.nih.gov/pubmed/23523180
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  • notagain1965
    notagain1965 Member Posts: 2
    edited August 2018

    I am wondering if you had this surgery?

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  • notagain1965
    notagain1965 Member Posts: 2
    edited August 2018

    Did anybody here have hipec for breast cancer mets to the peritoneum? If so could you share your experience. Did insurance cover? Any information you could share would be helpful.

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  • KPW3
    KPW3 Member Posts: 147
    edited January 2019

    Bump

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  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited January 2019

    My mom had this procedure for her weird appendix cancer. She recovered well from the procedure, but later passed from C-diff.

    She was a tough patient. Very obese, and had about 18 months of treatment before they realized that she had appendix cancer. Apparently, it is a thin film of cancerous tissue in the bowel that is hard to image unless you know what you are looking for.

    So, procedure good. Cancer, bad.

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  • EV11
    EV11 Member Posts: 127
    edited January 2019

    I'm creating a file regarding this procedure for future consideration...If anyone has done this for their MBC, please post your expereince here if you are willing to share that particulars (when, who did it, where, results, etc....)

    I have few articles and the names of two surgeons who may be willing to consider performing HIPEC for MBC, although neither does it for MBC patients as a rule....I'm happy to share what little info I have with anyone who wants it....

    Many thanks in advance.

    Elizabeth

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  • KPW3
    KPW3 Member Posts: 147
    edited January 2019

    I just had a scan show new places in my abdominal “soft tissue", planning biopsy next week. I'm a bit surprised with history of ducal not lobular and immunotherapy that is resolving a liver met. Very disappointed. But I'm just looking this procedure up to find out options. It doesn't appear that they this in breast cancer anymore....but if you have names I'd love to get them from you EV11.

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  • EV11
    EV11 Member Posts: 127
    edited January 2019

    KPW3--

    There is a website called HIPECTreatment.com that lists a number of sites and surgeons that perform HIPEC-- this site is geared primarily towards GI/Ovarian/primary peritoneal cancers, but you can send a request for an email/phone consult with a surgeon at various sites...I've sent messages to see if they will do it for MBC with peritoneal mets...most are reluctant to give much info without reviewing my scans (which are completely unable to detect my mets....) I'm perversely hoping that in the future I have enough progression that something shows up on scans...'til then I'm pretty much out of luck.

    Where do you live??

    Elizabeth


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  • KPW3
    KPW3 Member Posts: 147
    edited January 2019

    Thanks Elizabeth! I’m in NH but would be willing to travel.

    Will check out the web site.

    .KP


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