When does it get better?
I was diagnosed in December of 2017 and now a year later I am cancer free but still have a few issues to get worked out...I had a full hysterectomy in August and sex is still a bitpainful. Not sure how long that lasts. I have been taking Exemestane for almost a month and still feel a bit achy but better than the anastrozole. I also quit smoking in August and have gained about 12 lbs. I want to start exercising again but just still feel so tired. I only had radiation but between that and the 2 surgeries and all the meds - I just want to hang out in bed. I did just start taking gabbapentin for my hot flashes and so I am sleeping better than before. 😊. I want to do more to celebrate living but my body seems like it's not there yet. Anyone else feel that way? if anyone is managing better - I'd love to get some support and hear about it.
Comments
-
Hi there. You are definitely not alone. Many of us struggle with side effects of treatment. Treatment puts are bodies through hell. Please do not think that someone else may be managing better. Hopefully you can work with your doctor on reducing side effects. You also might want to check out the individual threads on the forum. Good luck and keep us posted.
-
My best advice is to exercise. Even if that's just a stroll around the block on a rotten day. I also feel like sitting in bed sometimes, but when I do get up and get moving, I feel better. It can be a brief walk if that's all you have energy for. People who exercise 3-6 hours a week have the lowest recurrence rate so that's a great motivation!
-
thank you so much for your reply. It makes it better to not feel so alone
-
I think I may try some Yoga to ease myself back i
-
I agree with the exercise. I used to run a ton. I walk more than run now, but even walking helps a lot. Walking with a friend is even better. The fresh air (even when bitter cold) and the walk help me both mentally and physically.
-
I'm a couch potato, but starting with the lumpectomy, I got out and started walking. Not power walking, but short hikes on flat trails in parks. I think it helped a lot, mentally and physically, when I had to recover from more surgery. It's awful now that the weather is rotten - I'm not a winter person and with one hip replacement and osteoporosis, I can't afford to fall. But I can pace inside and do leg pumps while sitting here at home.
-
Hi bethiemb,
Agree with the other responses to your note.
I was also initially flagged for an abnormal mammogram in late December 2017. After a real struggle to get a diagnosis I was ultimately diagnosed with both invasive and DCIS. 2018 was dominated by lumpectomy, radiation, and now hormone therapy to get to my current cancer free state.
I stepped up to a daily exercise program right after my lumpectomy, and except for a few days taken off to deal with family members’ illness and a severe cold of my own. I continue to exercise.
There are several ways you can help yourself to get going:
- find a friend who is willing to exercise with you, and meet him/her on a regular basis. I met one of my good friends weekly at a health club, and we would go out for coffee or a cold drink and a chat afterward. It helped me to look forward to it, and my friend also became a regular exerciser.
- volunteer to walk dogs at a shelter. You are helping to socialize an animal in need, and you’ll feel good about yourself
- call your hospital, see if they are offering yoga, Pilates, or other group exercise programs (usually free) for breast cancer patients. Offers you supervised exercise with others who’ve “been there”
- build a reward program for yourself with regular goals. Get a facial, a mani/pedi, or something else to make you look and feel good after x number of miles walked, etc. Doing good for yourself in multiple ways.
You know what motivates you best. Set yourself up for success. Know we understand and care. We are here for you.
You did all the hard stuff-you can get to this new reality and feel good about yourself.
You can do it!
-
I am right there with you sister! We've been through a lot and now that the treatment part is over you're left wondering if your body is ever going to feel better. I was diagnosed in June so I wasn't far behind you. I didn't have chemo but did have 34 radiation treatments which ended November 28. I am feeling just like you, I would be totally happy to hang out in bed all day. Typically, I am a very active person and have a side business selling things on etsy. I have lost all interest in doing anything. I am taking arimidex currently and beginning to wonder if that is part of my problem. I thought it was fatigue from the radiation but that should be gone by now. I am going to take a good look at what the arimidex is actually doing for me. At this point I feel like I need to take a break from it until I can see what my new normal feels like without it.
Great job by the way quitting smoking. That was a hurdle and the best thing you could have done for your health! There is an emotional response to that too. I think you were wise to wait until all the treatments were over. You've been through a lot so be sure to give yourself a break. Your body has been through hell and will needs lots of time to get back to good. It helps to talk it out too. This morning I called my sister for a pep talk and felt so much better afterward.
-
I am so there as well! I was just thinking about how it feels like cancer treatment postpartum phase. Where you feel like you want nothing more than to feel well and vital again, but it's elusive. I'm trying to give myself six months to be patient, focus on self care, follow up with all sorts of doctors about all the side effects, and see if I can turn this ship around. It's a combination of refusing to get used to feeling this way and also accepting that this is how I am right now.
I second the walking if you can. A good mind trick I played on myself during chemo was to say I would take a 10 minute walk. 10 minutes felt like I couldn't say no. Some days, that's all I would do. Some days, that would turn into a 45 minute walk! And I always felt proud of myself for trying, and exercise does help energy and sleep both.
Hang in there.
-
Hi
I finished treatment (lumpectomy, taxol chemo, rads) in August 2017 and am now on tamoxifen. I was lucky and don’t have much neoropathy but aargh fatigue. I’m doing 3 hours a week exercise and am eating mainly veggie at the moment but just recently clobbered by fatigue again. I’m having early nights and tried to cut right down on alcohol. Wrote to onc to ask if they’d checked my thyroid recently. I know fatigue is common but was expecting less by now.
-
yes side effects are real but can be manage and I am proof. This yr will be a 25yr Survivor. Praise God. Feeling good each day.msphil idc stage2 0/3 nodes 3mo chemo before and after Lmast got married then 7wks rads 5 yrs on Tamoxifen. Faith Hope And Positive thinking(I Will get thru this).
-
I’m going through the same thing. This is great motivation to get back moving again.
-
thanks so much for sharing everyone.I am starting with some spring cleaning and hope that motivates me to do more. I have friends here but no family and that is sometimes hard for me. Best of luck to all you wonderful ladies! #warrior.
-
beth one thing to just think about, if you are having trouble getting up each day...that can be anxiety and depression, which is a side effect of our meds. you may want to discuss with either your primary or a mental health specialist if an antidepressant might help...just a thought based on your description above...
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team