So many questions!

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Mom2Sarah
Mom2Sarah Member Posts: 35

I was just diagnosed last week and so far I've only met with my surgeon. I've opted for a double mastectomy right off the bat. My family history is too much and I just lost an aunt in August to breast cancer. As I prepare for surgery, I know I'm going to need comfortable clothing for my recovery at home. But what? And when I search online, there are SO many options. I'm not a button up shirt person, but I may have to be. This is all so new and SO overwhelming.


Thanks!

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2019

    Mom2Sarah,

    We're so very sorry to hear about your diagnosis, and for the loss of your aunt. We're sure you've got a lot running through your mind, but you can rest assured that this Community will prove to be a very helpful resource for you!

    While you wait for the support from others here, you may be interested in checking out the thread Shopping/Packing/To-Do List for Surgery+Recovery, which offers lots of practical solutions and advice for your upcoming surgery.

    We look forward to helping you along your treatment journey. Come back often, ask lots of questions, and get the support you need -- we're all here for you!

    --The Mods

  • Mom2Sarah
    Mom2Sarah Member Posts: 35
    edited January 2019

    Thank you! I'm obviously still trying to navigate this sight, but I will definitely check it out!

  • Dani444
    Dani444 Member Posts: 522
    edited January 2019

    So sorry for your diagnosis, and I wish you the best on your upcoming surgery. I had an UMX with direct to implant. The list the mods provided is what I helped to get ready for surgery. Lots of pillows is definetly something I needed. The hospital provided a seatbelt pillow for me but bring a small soft pillow for the ride home. I used face cloths, bath wipes, and dry shampoo until I was allowed to shower. I did use a lanyard for my drains when I showered. I had two post op bras and one camisole that had velcro pockets for my drain, so I just used those. If you are going to have to open your pill bottles yourself, get easy open lids. Even with just having a UMX I could not open my pill bottles. I did try to put on a tshirt a few days post op and for me that was a mistake. It didn't go so well in trying to get it off :) comfy pants that are easy to pull up and button up shirts is what I used until I got good range of motion back. I would say overall the recovery was easier than I expected. I needed a lot of help at home those first days though.

    I know it does all seem overwhelming, but that does get better. I was so anxious leading up to my surgery but I had an odd sense of calm the day of the procedure. It also helped to join the thread for the month I was having my surgery. It was comforting to follow along and learn from others experiences and get support when I needed it. This community is amazing and I am glad you have found it. Ask as many questions as you need, or if you just need to vent we are here for you.

  • hapa
    hapa Member Posts: 920
    edited January 2019

    My surgery was in the summer and I pretty much lived in pajamas a week. Short sleeved, button up top and boxer-type shorts. Very soft fabric. My sister got me some from Victorias Secret and I got a second set from Target. When I left the house it was in a button up long sleeve shirt, one that was a little baggy so my drain apron would fit underneath without showing. I had BMX with pre-pec implants so I wasn't in as rough of shape as women who have their implants placed subpec. I did have full ALND though so my right arm was hurting and tight. I stuck with button up shirts until I had PT and the therapist got my range of motion almost back to normal on the first visit. From that point I was able to change in and out of normal t-shirts with no problem. I got some soft cotton front close bras from Walmart.

    I was allowed to take showers from 24 hours after surgery. The hospital gave me a care package when I was discharged with the drain apron, a seat belt pillow, two underarm pillows (which I never used) and a mesh bag on a lanyard to put my drains in and put around my neck for showers.

    I slept somewhat upright on several pillows, with one of those back wedges behind them. It worked well enough. Everyone told me to get an electric recliner but that would have been completely unnecessary.

    Good luck! Surgery wasn't nearly as hard as I expected it to be. None of my treatment was.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited January 2019

    I lived in a zip up terrycloth mumu that I found at Macy's. If it is cold weather, zip front hoodies and sweatpants (remember pulling on pants will challenge you as well so nothing like tight jeans you would have to tug). And button front large shirts that hid my drains which were attached to a drain belt around my waist.

    Oh and I had my underarms waxed 4 days before my surgery. (check with your BS on timing)

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2019

    I wore yoga/track pants that were pull on and stretchy, or loose fitting drawstring lightweight sweats and mostly lightweight zip up hoodies. Underneath the hoodies I wore men's tank style undershirts that I could step into and pull up and then put my arms into. I pinned my drains to the side seams with large safety pins, or used a fabric tool apron from Home Depot that was given to me after one surgery at the hospital - which I thought was kind of funny, lol! I mostly wore mule type slippers at home or flip flops, and pull on sneaks like Sketchers for leaving the house because bending over to tie shoes was a little uncomfortable at times. I am fortunate that I live in a warm climate - finding clothes for colder areas is a little harder.

  • SuQu31
    SuQu31 Member Posts: 160
    edited January 2019

    Mom2Sarah, you've got this! I am still mostly resting at home- my 2nd surgery, for re-excision of a close margin, has held me back some with swelling that refuses to go down. I too am not a button up shirt person, but I bought a button front nightshirt and a button front pajama top, both of which I'm wearing with sweat pants or leggings. I bought 2 button up shirts on sale to wear when I had to go out. For drains, women at a local church make the cutest aprons with fun fabrics, and I received one at PS and one at the hospital. They were my “dressy" drain holders. I bought a couple of waitress aprons that I wore all the time otherwise. The best thing I bought was a nylon mesh pouch with waist ties for the shower. Not sure if it is ok to provide a link on here or not,but it was an amazing help for showering. My husband and I would have struggled with safety pins. Remember that the drains are temporary and that will help! If anyone can direct me to hints for work clothing during this time of tissue expanders and odd shaped upper body, I would appreciate it. I don't want to buy a new wardrobe.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2019

    For the shower I just strung the drains on a clean shoelace through the little plastic tabs, knotted the shoelace and wore it around my neck like a necklace. I have also seen some who tore off a sheet of plastic wrap, rolled or scrunched into a long strand, string the drains, tie in a knot, and then discard when the shower is done.

    SuQu - I had a myriad assortment of expander, no expander, implant and expander, implant and prosthetic - I found that loose looped or tied scarves, ruffles, prints, and ruched fabric were helpful.

  • conscorner
    conscorner Member Posts: 23
    edited January 2019

    I'm also sorry for your diagnosis. I had a double mastectomy in 2007. It came right after my mom passed away and I was not quite "myself" yet. I opted for using the lats for reconstruction with implants because it was a one-time deal of sorts. I'm sure you can research everything, but I would not recommend using the lats at all. It's been 11 years and I still have that "iron bra" feeling and a very tight back. As I have gotten older, I'm 64 now, my traps are very fatigued because I don't have those two big muscles in my back, helping me to stay erect. If I could do it over again, I would opt for the tissue expanders. It's a hard decision for sure, but this is my opinion 11 years after surgery. I wish you all the very best.

  • alto
    alto Member Posts: 233
    edited January 2019

    For indoor and night wear, these are great. Buttons all the way. And great price (less than $15). I'm a size 10 and bought an XL so I'd have lots of room.

    https://www.kohls.com/product/prd-3339801/womens-s...

    I paired them with Eddie Bauer sleep pants when it was cold:

    https://www.eddiebauer.com/product/womens-stines-k...

    For going outdoors, I bought LL Bean ultrasoft sweatpants and zip-up jackets. Be sure to get these a little roomy.

    Zip jacket: https://www.llbean.com/llb/shop/115968?page=ultras...

    Sweatpants: https://www.llbean.com/llb/shop/92443?page=ultraso...

    I also recently stocked up on a bunch of button-up flannel tops from Old Navy. They are about $15 each. They're not all pretty (although some are), but they'll get the job done for a good price.

    Before my first surgery, my mom got me a mastectomy kit from Etsy, and I found all the items helpful (snap-front tops with drain pockets, the great pillow for the car - and it includes a hooded sweatshirt with drains):

    Mastectomy kit: https://www.etsy.com/listing/635901049/3-item-gift...

    Have at least three of everything, so you don't have to be washing things all the time.

  • SuQu31
    SuQu31 Member Posts: 160
    edited January 2019

    SpecialK, thanks for the ideas for work clothing, I mostly wear solid colors in tops and resses, so scarves will be great and will allow me to continue to wear some of my clothes. Had not thought of ruching and ruffles, so that will be great, and will add some prints too. Maybe I will find a new “look" that I love!

  • SuQu31
    SuQu31 Member Posts: 160
    edited January 2019

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