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Thicket
Thicket Member Posts: 5
edited December 2018 in Stage IV/Metastatic Breast Cancer ONLY

I became a member during my 9/9/16 de novo triple positive IDC, left, liver, bone and lung dx. I went on to Facebook groups and I don't feel comfortable anymore. I need something more.

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited December 2018

    Hi thicket,

    I become dx'ed de nova in April 2017 and realized by September 2017 that I could no longer be on FB. I deleted my account and never looked back. One of the best decisions I have ever made. Welcome to BC.org. I hope you find a supportive community for you here. My best advice is, if there is a thread that upsets or triggers you, or someone who upsets you, just block the person and don't look at the thread. On FB it is harder to not see the upsetting stuff. Hugs! Philly

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  • Thicket
    Thicket Member Posts: 5
    edited December 2018

    Thank you so very much. This is where I will stay. Things get nasty ( undertones) and I don't enjoy reading the post anymore. I have a few concerns with brain mets. I've been all clear and they popped up in March and October with no growth anywhere else. I will post a question soon after I learn to navigate this forum. Much love.

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  • Goodie16
    Goodie16 Member Posts: 446
    edited December 2018

    Thicket,

    If you are dealing with brain mets too, pop over to the Brain Mets Sisters thread on this forum. There's tons of great info and support there. I'm sorry you find yourself here but I'm sure you'll find it welcoming and supportive.


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  • pajim
    pajim Member Posts: 2,785
    edited December 2018

    Welcome! Sorry you have to be here. I hope you can find some friends and supportive threads.

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  • KatyK
    KatyK Member Posts: 248
    edited December 2018

    Hi Thicket. I totally agree that FB not the place to be to discuss cancer concerns. You will find good support here with folks who understand what you are going through - and I’m sorry you are going through this. I do find caringbridge.org helpful to keep many people updated on what is going on. I usually post on that site every theee months after my scans. Hugs to you and I wish you well

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  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    Hi and welcome!

    Pop on over to brain mets 😀. Also, there are many others, I generally stick to the stage IV ones myself as my home threads but enjoys others.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2018

    Thicket, one thing thats nice is this forum has moderators. If things get out of hand, they intervene and help keep things right. It’s been quite awhile since they’ve had to do that, at least on the threads I read, but nice to know they are there. And all the moderators are medical professionals who take this site very seriously. It is good to know we are in competent hands. Dealing with mbc is already horrible and no one needs to put up with extra garbage on social media.

    I think Facebook has intentional trolls, people who get their entertainment by creating chaos and discord. I use FB to keep on touch with family and friends but never for any bc related stuff. You are smart to steer clear of it and I hope you find support among us.


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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2018

    Exactly what DivineMrsM said

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  • JFL
    JFL Member Posts: 1,947
    edited December 2018

    Thicket, welcome here. I find that the threads that are the most active are the general threads based on disease location or type (liver, lung, bones, brain, etc.) and treatment type (Ibrance, Faslodex, Xeloda, Abraxane, Doxil, Halaven, etc). You may want to start there. I am a member of a few BC Facebook groups but have ultimately limited my interaction to social interactions with people that I have met over the years. It is a much easier place to share/post here and find people in your exact same circumstances.

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  • Iwrite
    Iwrite Member Posts: 870
    edited December 2018

    Welcome Thicket! Another de novo MBC person here. I find excellent information here without drama Divine is absolutely right!

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