CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

Just like my onco very carefully explained to me that grade three DCIS is not cancer. Thirty-two degrees F. is not freezing. Do you want to go out without a coat in thirty-two degrees for two hours? Judges know all about semantics, as do doctors. And we know that RBG is not terminally ill, and is more healthy than most 85-year-olds. Sixty-three words to explore a simple concept.

Given the 10cm's of dcis I had, if they wouldn't have found 3mm invasive, or if they would have dismissed it as microinvasion, I would have been very nervous.

I am sure RBG is also concerned. But Wa Post is saying that the prez's teachers are giving up, and the Trump family is filling the gap. He will eventually go too far, and suffer the consequences.

Glad you had a good visit Iris!

I too wish all of the Crazies and everyone lurking here a very Merry Christmas! and let's hope for peace and happiness for all of us in the New Year! Thank you for being here, I count you all among the blessings in my life!

Hugs, Octogirl

I turned out to be one of the 30 or so percent of dcis folks that have gone on to have reoccurance with an invasive cancer, lucky me.

So today i get together with my neighbors, hope all here have a .lovely day

Sandy, you are so funny!!!

And peace to you, Molly....

Amen to that!

Ditto, jo

Jo, right on! I have my one year mammo/us coming up in a couple of weeks. Does the pretest anxiety/concern ever end?

Thanks, Lucy. At the moment I have family visiting for the holidays and have been feeding 14 of us this week, so I haven't had time to dwell on it, thank goodness. But 7 will leave Saturday (after we celebrate a 13th birthday 🎂), 3 on Jan 2, and the two oldest granddaughters will go back to college by the 11th. The mammo is scheduled for Jan 7 and the radiologist has been very good about sharing her findings with me before I leave the facility so I should (hoping) have relief before seeing my BS the next week.

Beaverntx: no, the test anxiety never truly ends....it may fade somewhat for those of us lucky enough to get a couple of (years of) clear results, but there's always the expectation of the other shoe dropping, the coming to grips with "this is how you spend the rest of your life"

Actually, the peak time for recurrence of triple-neg or "HER2-type," i.e., hormone-neg/HER2+, is the first 3-5 yrs. After that, espec. with triple-neg, the recurrence risk falls to "population risk:" the original chance of getting breast cancer in the first place. For us Luminal A (ER+/PR+/HER2-) gals, it's more like 8+ yrs, sometimes as late as 20-25.

Hi all! I think I found the tunnel system under CrazyTown. 5 years out and scan anxiety still persists for me. I have to go every 3 months as we are following lung nodules and lesions on my spine. Everything too small to biopsy and I was told, if I never had breast cancer these things would not be followed up on. I am now at CTscans without contrast, MRI on remaining breast has been removed from scans. I have no more usable veins on my non-lymphedema side and have been told I will need an IJ(Intrajugular) or PICC line going forward. They will attempt to draw blood from arm but even that was a no go last visit. The visit prior they blew 3 veins, infiltrated saline on one and contrast on another. As far as recurrence, ILC tends to show up after the 5 year mark and has a different spread pattern than IDC. There is a very informative Facebook group with all the latest medical information on ILC.

Love you all, I read often but have been in lurker mode. April will be one year of living in the new house and that is finally going well. If you ever want to buy a fixer....run....unless you are DIY master. I have done renovations before but everything caused my lymphedema to flare and it didn’t help that the house needed to be gutted. Luckily we had completed everything and were able to refi all of the construction cost back into the mortgage with enough equity to get approved by last September. August was one year of ownership, 7 months of which the house uninhabitable so we stayed in the detached workshop/garage. Thankfully heated and coole

Wow Robin: I don't think I could deal with a renovation of that scale; I admire you!

Octogirl

Hi Lucy: we may have found the right place this time! In contracts and inspections Monday, so knock on wood they go well! It is in. great area and on a lot of land, but its a small house (has a guest room and bath though :-)). Beautiful mountain views. Fingers crossed, we can move in late February or early March, just in time for my birthday!!

I know what you mean, though, moving can be exhausting...you will love being in the new place though...

Hugs and Happy New Year to all!

Octogirl