Tightening in chest - able to return to full activity with it?

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JennieKeaton
JennieKeaton Member Posts: 80

Hi All -

I'm two weeks out of bilateral mastectomy, and hating the tightness in my torso! My plastic surgeon says it's normal, and I will have even more of it while going through the expansion process for implants (which I will be doing while also doing chemo). From what I'm reading, it MAY get better over the next several weeks/months (or may not). It MAY be with me in a year (or may not). What I'm trying to do is figure out my worst case outcome. Prior to surgery, I was very active - I had (have) an job that was active and outdoors, I worked out several days a week (weights and kickboxing), am very active with boating, fishing, etc. IF the tightness stays with me, will I be able to resume all of those activities and just "deal with it"? Or will I be unable to return to these activities? For example, right now I can't even imagine lifting or kickboxing, and would be afraid to help my SO try to dock the boat. If the tightness remains, do you just work through it? Or does it permanently limit activities?

In terms of the oils and massage, I'd love some more detail here. Are we talking about regular massage, or something specialized? I have been receiving regular massage for years now, but can't even think about laying still for one right now. I'm also curious as to how (why) the oil works.

I know there has been A LOT of discussion about tightness, which tells me it's super common, and hopefully temporary for me. But I have to be honest and say I'm really struggling right now.

Jennie

Comments

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    Hi Jenny! Have no fear, you WILL be able to resume all your former activities. Im a former fitness trainer, I work out every day, don't do kickboxing, but weight training, kayaking, stand up paddle board, cycling ,dancing. I've had 4 surgeries in 2 years, the mastectomy was the first one. I only had left side done, a tissue expander placement same time. At first I could barely raise my arm, but kept doing the post surgical stretches,and eventually got the ok to weight train again. Keep working at the stretches, i think after 6 weeks i was allowed to hit the gym. Dont overdo the weight training at first, there are sutures and things going on under the skin, even when it looks healed on the surface. I had to have that forcefully explained to me by my surgeon, who knew what a gym fanatic i am. I even worked out during chemo, very light for beginning of cycle, more like normal towards end of cycle. My chemo was every 3 wks. 1st week, flu like, 2nd week tired but better 3rd week felt fine, then all over again. You will get back to normal! Keep at it, it gets better, Stretch,Stretch, Stretch! P.S. love fishing!

  • JennieKeaton
    JennieKeaton Member Posts: 80
    edited November 2018

    Thanks CaliKelly! I don't have a lot of patience, and I have a bit of an issue with control, so this is really hard for me! I still have two drains, so PS won't let me shower or exercise yet. I'm hopeful that the last two drains (I had 5 to begin) will come out tomorrow and my PS gives me exercises to do. I've heard over and over that the exercises are key, but she hasn't really talked about any yet. I'm just hopeful that once the drains come out, she takes the concern seriously and gives exercises to do. I really like her, and have no reason to doubt her - but I am just so anxious. My oncologist wants me to get to the gym as soon as I feel able, but I simply can't imagine doing that yet. Even four weeks from now seems impossible based on how I feel right now. I guess I just need to realize that a lot can (and hopefully will) change in the next several weeks to get me started back on the active, physical path. I need to push for exercises and make sure I get them. I don't want to overdo, but I am ready to start stretching as it is safe for me to do so!

    I do appreciate your support - I can't imagine not being able to do all the things I did before! That thought is worse for me than any of the treatment experience/side effects. I can get through any of it, so long as on the other end I can do all that I did before!

    Jennie

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    I'll just tell you how it went for me. I had chemo first, and mastectomy only left side. I imagine both sides at the same time is way more diffecult.So I was told to start certain "exercises " right away, even with drains (HATED DRAINS!) The exercises consisted of raising my arm above my heart level, and down. That was hard! Once the drains were out, I got a printout of series of stretches to do multiple times a day. I did them religiously, slowly got less painful and easier. When I say I was back in the gym,after 6 weeks, actually i went back after 4, but only to do recumbent bike, very easy, some leg machines, no upper body work but stretches. The stretches have to be gradual, deliberate, no sudden pulling, nice and slow. Little more each day, With double mx probably be more of a challenge, but you'll be surprised if you stick with it, and you definitely sound like the type of gal to stick with it. Takes awhile and we impatient, active types may want to push faster, but don't. Look at American Cancer Society web for basic stretches for right after surgery.Basic stuff, but you'll be challenged. Damn drains, I hated them with a passion, youll be so happy when they're out! If I can help you with any advice send a private message, I've had everything on the"menu"

  • JennieKeaton
    JennieKeaton Member Posts: 80
    edited November 2018

    For an update, my PS told me she doesn't have any exercises to give me. She told me to just look some up. I called PT on my own, and they don't want to see me until 6 weeks post op. They said they will work with me on soft tissue massage, scar tissue massage, and ROM exercises. It's a start......but hard to wait!

    I tried to drive today and barely made it around the block before the tightness was uncomfortable.

    I also had a bad night - I was restless and didn't sleep well.

    I'm just so ready for this to be over.

    I chose double mastectomy and reconstruction because I didn't want to worry about a recurrence in the future. I am triple negative, so wanted to have best shot at living out my normal life span. I was offered lumpectomy and radiation, but I honestly just wanted this done. I'm second guessing that a bit right now. I hope when it's all over that I feel this was/is the right choice for me.

    I know in the big scheme of things, I'm lucky. While I'm triple negative, it was 8 mm, and did not spread to the nodes. From what I understand, my prognosis at this point is pretty good. But still.......hard right now. Day by day.......

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    Hi Jennie, I hope you got the HATED DRAINS out! My outlook improved after that😉American Cancer Society has good basic post mastectomy stretches online. Do them now, if you can, but know your limit. Gentle stretch, not painful. Its so hard to wait it out to get to work on rehabbing yourself. I was so impatient, every Dr appt I'm arguing and negotiating with my surgeons. They finally beat it into my hard head, if I do too much too soon, it will take longer to get back in shape! I had to take their advice, but couldn't stand lying around, once the pain subsided. I chose to get back to the gym, but not elevate the heart rate, and not strain any muscles even lower body, that strains circulatory system . But i felt like i was doing something! In a few more weeks, you will be able to do more. Hang in there!

  • JennieKeaton
    JennieKeaton Member Posts: 80
    edited November 2018

    @CaliKelly -

    I got the drains out! I do feel better that way, but it's really my back that is struggling the most. I tried very, very small exercises, but they made my back angry. So I'm doing nothing now except tiny bits of walking. Tried to drive and barely made it around the block. My back simply tightened up too much! That's where I need to figure out how to focus.

    Jennie

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    I can imagine, you had a lot of trauma to the front, so the back is affected. Put pillows under your knees when you're in bed to keep strain off your lower back.Did the Docs give you any muscle relaxers? That helped me with muscle pain and spasms.Cant believe you could drive so soon! Are you sleeping semi upright? Try the pillow under the knees trick . Might help.The muscle relaxer that works for me is called Soma. the others didn't help. Good for short term. It'll get better, you're nearing the crest of the hill, pretty soon all downhill, picking up speed to your goal of BACK TO NORMAL.

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