Possible bone met

Hi Fritz,

My “2 cents” would be to have every scan available, my 6/2011 dx was IDC Stage 1, after lumpectomy, I was told I didn't need Chemo, I had rads & 5 yrs of Tamoxifen, which ended 8/2016; my back and hip began hurting 8/2018 . . . X-rays normal, 3 wks of PT and the pain was still there. Had an a Lumbar MRI 10/11 . . . the darn thing must of lit up like a Christmas tree cuz they were calling w/ my results while I was still in the dressing room Multiple & Extensive Suspicious for Metastatic Disease If a scan is offered and available do it. My PET/CT is tomorrow morning

Best of Luck and my fingers are crossed youare in that 90% it's a benign hemangioma.

If you are doing chemo anyway couldn’t you just ask for a rescan at the conclusion of chemo. That is what they suggested for me when my adrenal gland was slightly outside their normal parameters but they didn’t believe it to be anything suspicious

It seems you went quickly from dx to chemo, how is your chemo so far? I am still going through tests, I have a PET scan tomorrow that I am so nervous about. I’m so glad we can all be here for each other. These days are so emotional, as I’m writing this I just had 2 calls from doctors to follow up with cardiologist for more testing before chemo

Hi everyone, I haven't been on the site for a while. I celebrated 9 years out at the beginning of September, just prior to my yearly mammogram. shortly after my annual onc visit. I began to have pain on (what seemed to be) a rib on the right side, same side as my original IDC stage 1 in 2009. I reported it when I checked in for my mammogram, and they changed the code to a diagnostic mammogram rather than a routine yearly screening. It was normal, but I was told I should have an MRI since I was complaining of pain. The MRI was also normal. I saw my oncologist today who ordered a bone scan, after determining for certain that the pain was on a rib, not my breast. I asked her if I should be worried, and she said "maybe a little". I asked her what is the percent of recurrence for those who were stage 1 with negative nodes. Right off the bat, she said 2%, and laughed because she said she only knew that because she is currently writing a paper... After that, she spoke openly and honestly with me about what if it turns out that I have bone mets. She said there is a specific type of bone mets with BC, which involves only one location, and even though you are considered stage 4 at that point, that it is completely curable. Of course if there are more spots, thats a different story...I haven't shared any of this with anyone. I have been divorced for just over 4 years, and don't want to concern anyone in my family prematurely. I am concerned, but not overly worried, but that's why I'm here...Anyone with a similar story or situation?

Astrid, Thanks for your reply and the thoughts :>) You've got me thinking as to why a rib/bone met might not show up on an MRI. The only thing I can think of is that they weren't specifically looking for anything other than what might be in my breast...

Hey Randyrat1, I really did want to hear this, which is one of the reasons why I posted. I am so sorry for your bone mets after 7 years of NED. Who knows how long this stuff is going on before it's discovered. Perhaps longer than I care to think about. At times it irks me that they don't routinely check certain things to look for recurrence, but it would probably be the patients like us that they wouldn't check because our risk is so low. Did you have the Oncotype test? It's been so long now that I don't know if that's exactly what the name of the test is. I call that my recurrence number was pretty low, maybe 14, I don't know if that sounds right or not. Thanks for the "clear and negative vibes". I'll let you know about my outcome, but I'd like to stay in touch regardless. Best...

Lee, first you said no mets, then you talked about having a 1.6 cm tumor. I'm confused!

Astrid, yes. An impinged nerve can cause prolonged pain and other sensations. Spinal stenosis causes similar sensations. An MRI will detect stenosis straight away. Prayers to you tonight.

My best to you Astrid. Please let us know the results of your MRI tonight.

Good Morning All,

Yesterday's biopsy wasn't as bad as I feared, I was able to trick or treat with my little Ghouls , I thought I might regret that this morning but I'm not feeling any worse then I have been so yay! Now just waiting for the results, I meet with Med/Rads Oncs first thing Tuesday to go over the plan to Kick cancer's A$ again, cuz I'm not done with all the nagging & yelling I've got to do

Pup- I think the tumor Lee referred to is the recurrence in the Breast

Astrid- thanks for the well wishes, sending you the best as well

Wen- I do not believe that the OncType Text was performed, I don't recall that ever being mentioned, I will ask my current Onc on Tuesday if she came across it in my file, it's my plan that she consults/confers with my original Medical Onc. The more Brains working on this the better for everybody! Id be more then happy to be the Poster Boobs for the 1st 'Cured Boney Mets'.

Fritz - hope you are feeling well and handling the chemo w/o too many SE's

(((HUGS))) TO ALL, I might have to 'move' boards/topic but I'll keep the thread posted

RandyRat1, Yay that your biopsy went well for you. Now lets hope that the results do to! Thinking of you!

Hoping you get answers!

well Looks like I'm moving Forums! Path report is in and Positive for Maligant cells; Metastatic Adenocarcinoma, consistent w/breast primary (Gata-3 Positive, appropriate reactive control).

ER+ (80% of tumor cells w/intermediate to strong nuclear staining) [OT * was >95% ALLRED 8]

PR- (<1% of tumor cells w/weak nuclear staining) [OT was 75% ALLRED 7]

HER2- by IHC 1+, not over expressed [OT was also <1%, score of 1+ by IHC]

*Original Tumor

Best Wishes and Outcomes to Al

RandyRat1, I am so sorry to hear your new I wish you the best on this difficult journey.

wenweb, great news!

Randyrat, I am sorry for the devastating news. Hoping the treatment plan gets you to NED for years and years.