Anyone ER+/PR- HER2+? Just diagnosed 10/17/18, age 55.

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MissouriCatLady
MissouriCatLady Member Posts: 977
edited October 2018 in IDC (Invasive Ductal Carcinoma)

I did find a post with this topic, but it has not been updated recently. I have been reading a lot and trying to understand everything - there is so much to understand. Meeting with my doctor tomorrow. He called last night after my CT and bone scans yesterday to tell me he is going to start me on medication first. I did have something light up on the CT scan, but he said it was a "bone island" and he was not concerned about it. I have two masses on the left (one positive and one negative) and at least one lymph node positive. Thank you for any advice and for all the hopeful responses I have been reading. I am very thankful for my age and my children that are grown. My mother died of colon cancer at age 54 and I have now lived longer than she did, but I would not like to give up just yet.

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  • illimae
    illimae Member Posts: 5,710
    edited October 2018

    I am 🙂

    Congrats on the good CT scan results!

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  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited October 2018

    Thank you, Illimae. My husband grew up in League City. I added you as a friend, hope you don't mind. Thank you and hugs to you.

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  • JaBoo
    JaBoo Member Posts: 520
    edited October 2018

    Go to the her2 positive forum and find the "tripple positive group" - amazing group of ladies all with 3 +++

    editing to add a link Tripple positive group

    There are literary hundreds of pages of useful information

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  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited October 2018

    I have added, and thank you! I really appreciate this, hugs and thank you so much! Lisa

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  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited October 2018

    I met with my doctor today. He did another punch biopsy, just because my breast was red was the reason I went to him to begin with, to check again for inflammatory breast cancer. I will see an oncologist in about a week and have a port placed. My surgeon would like me to start on Perjeta every 2 weeks for 3 months. He said it gives an 80% chance of eliminating the cancer.


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  • waterdog
    waterdog Member Posts: 46
    edited October 2018

    You pretty much have my stats including age at diagnosis. I just had my checkup with my MO and so far so good. You're in a tough stage where you may ne thinking the worst. I know I did. It's a longer process when you're her+ but it eventually passes.

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  • FosterKittenMum
    FosterKittenMum Member Posts: 16
    edited October 2018

    I also share your diagnosis only mine was de novo metastatic. Had Taxol and am now on herceptin and perjeta indefinitely. 51 when diagnosed, now 52 and no evidence of active disease with normal bloods and tumour markers

    Very happy to see your scan results are good and may they stay that way forever 🙂

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  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited October 2018

    Waterdog and Foster Kitten, thank you so much for your replies. It is good to know a little bit about what to expect. I am trying to be strong, but I have moments where it is rough. So many things I am just learning, and I appreciate so much your support and your advice, thank you. Many hugs and my best wishes to you and thank you!

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