Need new medical team! Please help. Thanks

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Anonymous
Anonymous Member Posts: 1,376
edited October 2018 in Stage IV/Metastatic Breast Cancer ONLY
Need new medical team! Please help. Thanks
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  • Ihopeg
    Ihopeg Member Posts: 399
    edited October 2018

    hi my name is Ilene and I I’ve outside suburbs of western Philly. I have leptomengeal disease and extexsive spine mets and pelvis. My onc isn’t not helping me at all at Paoli Ho does anyone use PENn? Thank you in advance.




    HAVING PRobs with typing on her

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  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2018

    Have you looked into md anderson? They claim to have expertise in leptomengeal disease treatment.

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  • star2017
    star2017 Member Posts: 827
    edited October 2018

    would you be willing to travel to Hopkins or Georgetown?


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  • Ihopeg
    Ihopeg Member Posts: 399
    edited October 2018

    yes! First I am going to penn med tomorrow! Thanks

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  • Partyoffive
    Partyoffive Member Posts: 188
    edited October 2018

    hi

    I sent you a message a week ago I live in pa as well and saw dr Fox at Penn who is very good and switched to Hopkins because I was able to participate in a immunotherapy vaccine trial with dr emens. If u would like any more info about either dr just pm me

    Kristin

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  • Ihopeg
    Ihopeg Member Posts: 399
    edited October 2018
    Hi Kristin,
    Thank you for your reply. It was a crazy horrible week and now I think I can think straight. Please dm me so we can talk. It’s been 12 years since I have been active on here and forget. I really appreciate your post. Thanks again, Ilene
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  • Ihopeg
    Ihopeg Member Posts: 399
    edited October 2018

    Thanks for the replies. Have to get bone biopsy next week to confirm BC diagnosis then I’m going Dr. Fox at Penn. Wish I would have already gone there. Anyway, I’ll go anywhere to beat this! Thanks

    Ps Kristin , can you Dm me about your experience there? I really would appreciate it. Thank you
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