Does the bell ringing in your cancer center bother you?
Just curious of the opinions of my fellow Stage IV’ers.
I read an article today that talked about how some cancer centers are doing away with the ceremonial bell ringing at the end of treatment (chemo and/or radiation) as to not to be insensitive to those of us who will never reach that milestone who might be within an earshot
To be honest, I’ve never really given it any thought until now. Thankfully, it’s never happened when I’ve been in my cancer center. I think that I would feel happy for that person, but also feel a twinge of jealousy knowing that the only way my treatment will “end” is when I either say enough or I die.
I probably shouldn’t have read them, but some of the comments people left were right down cruel. I guess it’s true that you really don’t know what it’s like to be a stage iv patient until you hear those words and actually live it.
I’m really not trying to start a debate, I’m generally curious how others feel about it.
Thoughts?
Comments
-
It does make me sad while I'm getting my infusion and I hear all the bell ringing celebration...I just fake it and smile or zone out...
-
I think I heard one bell in the infusion room, and that was fine, although it did cause me a moment of sadness for myself. What I really dreaded was the possibility of enthusiastic nurses offering me the bell at my “final” infusion. Like if they did not see my diagnosis on their computer. But since I stopped a cycle earlier than planned, nobody knew at the time of my last taxol infusion that it was the last one. (For now.) I was relieved that the question therefore did not come up.
Lab nurses and other medical types routinely ask me if I am “done with treatment” because, as the saying goes, I look good. I usually say something like, “Well, there is no done for me, but I am doing well.” Nod nod, wink wink.
-
I don't know how they have done it, but I've only heard the bell once or twice in the 6 years that I've been doing chemo. I wouldn't put it past my fabulous nurses to carefully plan on bell ringing for when there are no Stage 4s around.
When I do hear it, it makes me sad. Not just for me. The bell ringing indicates that treatment is over; cancer is never coming back. And we all know that just isn't true.
-
Some of the responses to the article were things like “people are too sensitive” and “life sucks sometimes”. They hurt. We aren’t talking about hurt feelings.. we are taking about living with a terminal diagnosis. A tad different.
I’ll be really honest.. when I was still a stage 2 person, I didn’t get it. I just truly hope that during that time I didn’t say or do anything that causedanyone else any pain. It was truly unintentional.
-
I was offered the bell at the end of radiation after my stage iv diagnosis. The tech asked me and I remember my exact response which was “absolutely not”. Why would I?
-
I was offered the bell after I finished a very difficult course of radiation and I started to cry. However I don't begrudge anyone a moment of happiness in this nightmare. I pray it is finally over for the person.
-
Neither hospital that has treated me for breast cancer has had a bell, or anything else to acknowledge the end of early stage breast cancer treatment beyond a good luck from the nursing staff, and perhaps a hug. Ringing bells is right up there with dancing with boas and dressing up in pink costumes, "celebrating" breast cancer.
*susan*
-
Mary lark,
I’m with you on that. I wish those folks every moment of happiness regardless of what the future holds. My future may be limited, but I have no problem with celebrating the good fortune of others
-
No bells or ceremonies at my center. I like it that way
-
My chemo was Abraxane with Herceptin and Perjeta and on 5/29 was my last abraxane which I had looked forward to so much. I was feeling celebratory and asked a nurse if I ring a bell when it’s over (like I’d seen on tv), she said “no dear, you’ll keep coming to treatment every 3 weeks for the H&P” (she wasn’t mean but I found the stark reality a real letdown). A few months later, and after many discussions with other lifers and a more thorough understanding of stage IV, treatments, stats and losing bco members, I heard those bells again. This time I shed a few tears for myself (feeling sad and a little sour) and for them because I realized many of them really think they won, it’s over but WE know how quickly it can change.
-
By the time I was finished all I wanted to do was ring someone’s neck for having to have chemo.
)))))
-
Yes, when I heard that bell I also felt something along the lines of, “And may you never have to find yourself back here.” I wondered if that person knew the real state of things in cancerland
-
I was offered to ring the bell after I finished whole brain radiation, and I took it! (I was so glad to be done!) Even though I'll never be done with treatment, it did feel like a little victory to finish WBRT.
-
No bells at my hospital either but I wouldn't object to them. If it makes someone feel good, or that they've accomplished something, more power to them! I LIKE for other people to feel happy. Just because we know they might be back in the chair someday is no reason to rain on their parade.
Twinklecat, I'm all for your ringing the bell finishing WBR. You accomplished something difficult! Illimae, they should have let you ring the bell. Grrrr.
I feel sorry for the people who spend a lot of time worrying the cancer will come back. If it does, it does. Worrying isn't going to prevent it. I'd rather they rang the bell and went on with their lives. Can you tell I'm a fatalist?
I try hard not to be resentful of the people who are doing better than I, or who never find themselves in the chair again. Mostly I'm successful. Mostly.
-
pajim,
👍👍
-
I rang the bell for my last chest radiation last month - why not? I know I've got many more treatments ahead of me, but at least that one is over
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team