Bone Marrow mets

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azs40
azs40 Member Posts: 99
edited September 2018 in Stage IV/Metastatic Breast Cancer ONLY

Hi everyone.

I was on carbo/gemzar and then just carbo, but my white blood cells and platelets haven't been cooperating. They're both too low to receive treatment. Onc sent me to hematologist. Long story short - there may be cancer cells in my bone marrow. Tiny biopsy tomorrow.

I'm really hoping for a reprieve. I know i haven't had the biopsy yet but I tend to jump ahead.

I came on here and saw that some of you have had marrow mets and are still here. Can you tell me your experience? How do they treat it? With more chemo? Is there success with treatment?

I'm scared witless and could use some support.

Thanks.

A


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  • grrifff
    grrifff Member Posts: 104
    edited September 2018

    I was diagnosed with marrow mets in March, had biopsy. Put on Taxol but it didn't work, moved to A/C chemo which is working well. White blood cells and platelets can be affected by the chemo itself not necessarily mets. Now done with chemo they've been steadily rising. I think a lot of ladies here may have experienced the same on chemo. Sending positive energy-Jill

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  • ScienceGirl
    ScienceGirl Member Posts: 207
    edited September 2018

    Hello,

    I have bone marrow mets confirmed by biopsy in November of 2016. My white cells and platelets seem to hang in there pretty well, it's the red cells that are most effected. I've been taking Xeloda and Tamoxifen since NOV2016, a low dose of 1000mg twice a day one week on one week off. In the spring of this year I started having more serious anemia that required red cells transfusion about every 8 weeks or so. My tumor marker has been stable (CA2729 hanging around 280-320). My onc and I decided to try two weeks on and one week off with the Xeloda keeping the same low dose (which has given me only the mildest of side effects). So coming up on 2 years on the Xeloda, if I can stay on it and just get transfusion once in awhile, I'm fine with that. I also have been on Xgeva which I am convinced has kept my cancer just in the bones and marrow and not spread to any other organs

    Bottom line is that the bone marrow mets can be managed and I'm a big fan of Xeloda. Good luck with biopsy and hoping that this is a little bump in the road of a very long journey.

    Kim

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  • azs40
    azs40 Member Posts: 99
    edited September 2018

    Thank you Kim for your reply...it gives me hope. I immediately went to bone marrow transplant.

    -A


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