Why majority choose mastectomy not lumpectomy??

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Anonymous
Anonymous Member Posts: 1,376
Why majority choose mastectomy not lumpectomy??

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  • Danaqtr
    Danaqtr Member Posts: 48
    edited September 2018

    Hi,

    I noticed majority whatever the size of their tumor, they go for mastectomy. I read alot here and found only few who done lumpectomy. However doctors mostly recommend that both are the same. Mastectomy will not reduce the risk of reacurrance if it will happen.


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  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited September 2018

    My tumor was just behind the nipple. I have very small breasts. If I had a lumpectomy, I would have lost my nipple and most of my breast so I would have been really deformed. A mastectomy gave me a 'better' result. I also wanted to avoid radiation and by having the mastectomy I was able to do so (cause I didn't have lymph node involvement and my tumor wasn't too close to the chest wall.) My tumor was on the left side and I was afraid of future damage to my heart because of radiation. I know radiation is supposed to be safe, but I wanted to avoid it if possible cause a technician who does echo cardiograms warned me about the possibility of heart damage years later due to radiation.

  • pupmom
    pupmom Member Posts: 5,068
    edited September 2018

    I've never heard that majorities choose mastectomies over lumpectomies. Do you have a research link?

  • WC3
    WC3 Member Posts: 1,540
    edited September 2018

    If I have a lumpectomy I will have to have radiation, which I don't want for a number of reasons. Delicate skin, potential heart damage, the fact that I have been exposed to non negligible levels of radiation already due to a set of circumstance s. I also have a family history of bilateral breast cancer and I have very dense breasts...in fact my cancer was misdiagnosed for two years. By not removing the other breast I am taking a chance of getting cancer in it and having it missed again.


  • DebAL
    DebAL Member Posts: 877
    edited September 2018

    Danaqtr, it's an individual decision of course. My breasts were very dense ( 50% each breast at final surgical pathology) so mammograms would not do me much good and I did not want the extra worry. My cancer had most likely been there 2 years or so by the time it was detected on mammograms due to density. Did not want the chance of fighting insurance for MRI's. Cancer on the left side and I did not want radiation due to potential for heart damage. My understanding is that mastectomy could decrease local recurrence chances but not distant metastasis. So many more decisions to make than I ever imagined, none of which are easy.

  • Shellsatthebeach
    Shellsatthebeach Member Posts: 316
    edited September 2018

    I had several tumors (four) in different locations in my left breast. A lumpectomy would have left me deformed and my margins may not have been clear.

  • Danaqtr
    Danaqtr Member Posts: 48
    edited September 2018

    If there is any potential heart damage from radiation I think doctors will mention that and will more advise on mastectomy Howard the reality is not. Doctors mostly saying it is safe on heart. Why we don’t believe them?

  • Lula73
    Lula73 Member Posts: 1,824
    edited September 2018

    overall survival rates are the same lx vs mx but mx has less risk of recurrence. I want my risk to be as little as possible. Prefer not to deal with this b*tch again in any form if I don't have to. Mx is no picnic but rads are no picnic either. Both can be disfiguring, however skin/nipple sparing mx with recon is typically the least disfiguring and in many cases you can't tell anything was done and skin quality is good as it hasn’t been compromised by rads

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited September 2018

    danaqtr: The technician I talked to who does echo cardiograms sees heart damage years after radiation. So it does happen. It just doesn't happen to most. Doctors don't mention every single possible SE of treatment.

  • crawfish
    crawfish Member Posts: 286
    edited September 2018

    Radiation isn't without risks and long term difficulties. I had no desire to put my body through that. In addition, I saw no reason to "save" my breast. A lumpectomy would have resulted in a weird (to me) looking breast. As I had no reason to save my breast (i.e. future breastfeeding), I had no motivation to keep them.

    Also, no more need for mammograms.

    Biggest issue for me was radiation.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited September 2018

    I'm not sure the majority choose mastectomy, either. Those who post on this board are not a randomized sample.

    I would have chosen lumpectomies if I could have, I was very fond of my breasts and wanted to keep them. I was told to have a BMX due to having bilateral BC at a relatively young age, many areas of concern (turned out to be multifocal cancer on one side, which is an indication for a mastectomy) and connective tissue disease with skin involvement that made me a poor candidate for radiation.

  • gb2115
    gb2115 Member Posts: 1,894
    edited September 2018

    I feel like a lot of us on here have chosen lumpectomy.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2018

    https://www.health.harvard.edu/blog/for-early-breast-cancer-lumpectomy-is-at-least-as-good-as-mastectomy-201301295838


    The most recent data tells us that 55% choose lumpectomy with radiation and 45% choose mastectomy...

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited September 2018

    I wasn't really given a choice, because my left side DCIS was so large. I mean I could have said, No....but the treatment for me was a DMX. I think, I have met more women choosing a lumpectomy since my diagnosis. I know on these boards I feel there is good split of women with lump vs MX.

  • NancyHB
    NancyHB Member Posts: 1,512
    edited September 2018

    The risk of damage on the left side is real, danaqtr - my doctor never said it was safe, and I wouldn’t have believed her if she had, it would make no sense. The first time around I chose lumpectomy with radiation on the left side, directly above my heart and lung, knowing the potential risks. We used a breath-hold technique to minimize the damage to both, but I was told it was still a possibility. After my recurrence my surgeons refused to do a lumpectomy because I couldn’t have radiation again, so I had a unilateral mastectomy. I have radiation fibrosis in my left lung, and a fun little “heart-skip” that may or may not be due to rads. It’s all about risk-vs-benefit; we each have to make a personal choice that’s best for us.
  • pupmom
    pupmom Member Posts: 5,068
    edited September 2018

    Whenever possible, doctors usually go with the most conservative surgery, in the case of bc that would be lumpectomy. Obviously it is not always possible, but as VR pointed out, more often than not it is. Fortunately we're not in the bad old days any more, when docs took every bit of tissue and muscle regardless of pathology.

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2018

    I had no choice given the tumor placements.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2018

    I wasn't given a choice since I have two tumors.

  • Kimmy_nl
    Kimmy_nl Member Posts: 21
    edited September 2018

    I had 2 lumpectomies of my left breast this past spring for DCIS and was anticipating doing radiation in July. However after my consult with the rad onc in June I decided to have a mastectomy with immediate reconstruction. The rad onc explained the risks to the heart and lungs and my margins were very close to the chest muscle (<0.9mm), so he actually recommended to do mastectomy and no rads. I totally agreed. I just had a consult this morning with the surgeon and I am a candidate for the nipple/skin sparring mastectomy direct to implants (no tissue expanders needed). I'm looking forward to having the mx done and putting this all behind me :)

  • Bagsharon
    Bagsharon Member Posts: 200
    edited September 2018

    It probably seems like more women choose mastectomy because they're likely to post more. The surgery is more extensive and if they choose reconstruction there is that to discuss as well. Though my doctors told me I could have a mastectomy, they really pushed for the lumpectomy with radiation and I went with their recommendations. The location of my tumor combined with the effects of the radiation mutilated my breast. I am currently going through fat grafting to fill the area out and it is turning out nicely. I just had a mammogram last week and they could hardly tell anything had been done.

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