34 and recently diagnosed with L breast IDC Stage IIA grade 3

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DKissinger
DKissinger Member Posts: 3

Hello!

I have been lurking for a few days now and I finally have the courage to post.  

I am 34 years old and was diagnosed on August 17th with stage IIA, grade 3 IDC of the left breast.  I am ER/PR Neg and HER2 pos.  Tumor estimated at 2.3 cm.  Biggest shock of my life.  I am undergoing a myriad of emotions from sad, self pity, hopefulness and positivity.  

Current treatment plan is to undergo 1 year of Chemo (Herceptin/Perjeta- every three weeks).  After the first four months of chemo I will undergo a left breast mastectomy with reconstruction.  

I have a bilateral breast MRI scheduled today and my first appointment with my Medical Oncologist is tomorrow.  Then I have fertility appointment next week to look into freezing my eggs as my husband and I have no children but want them in the future.  I can not tell you have comforted I am to have found this website and forums.   

I am scared about chemotherapy and mastectomy with reconstruction.  Any words of advice for me?  What to expect?   

Anyone have the specific chemo combination of Herceptin/Perjeta?  How did you feel?  What were the major side effects your experience? 

Also have any other women experienced fertility issues after their chemotherapy treatments?  Is it worth the precaution to freeze my eggs in the event fertility is lost?  

So confused and scared. 

Thank you so much in advance!!  

Comments

  • Shellsatthebeach
    Shellsatthebeach Member Posts: 316
    edited August 2018

    Welcome DKissinger,

    I know how unsettling it is to be diagnosed with BC and you are at the beginning of this adventure. I also was Her2positive and am finishing up with my Herceptin Perjeta treatments at the end of this month. The good news is that when you are done with the first 8 rounds of chemo, the Herceptin and Perjeta are easy as far as side effects. I did not have any and didn't even need any pre-meds prior, during or after infusions. The doctor will need to monitor your heart while on it. I'm assuming your first 8 rounds of chemo will be AC/T. There is a thread dedicated to chemo which you may want to join. They usually have one for whatever month you start. If it hasn't been started yet, you could always start the thread. That will be a safe place to share any concerns, side effects, etc....with people going through it at the same time. I can tell you that I was able to go through those treatments rather easily. I was not able to work because of my job (teacher of young students) and also because my white blood cell count was inconsistent (up high and/or drop way down) even on the Nuelastra. That was a good thing though because I was very fatigued and wouldn't have been able to be very effective at my job. The Taxol was easier for me. It didn't make me feel as nauseous. It did make my bones feel a little more achy but that was easy compared to the queasy feeling I had on the AC. The key is to stay on top of the meds they give you for nausea before you even feel the queasy feeling and it is much more easy to contain. You will learn all kinds of tricks etc...if you visit past threads about chemo. Feel free to ask any questions. I know this seems overwhelming but things do get easier.

    I wish you luck!

  • Lula73
    Lula73 Member Posts: 1,824
    edited August 2018

    So sorry for your diagnosis. Sounds like you have a good plan in place. Yes it’s worth it to freeze the eggs if you want biological children in the future. There is no way of predicting who will and who won’t maintain fertility. We got pregnant quick and by accident after the docs said it wouldn’t happen; then it took another 10 years of trying for another child before we were successful. Have you incesurufatex the different types of recon available to you (natural tissue and implants)? At 34, many women opt for natural tissue as they won’t need to replace implants 2-3 times in the years ahead. And they look and feel like the real deal. If you only want a umx (provided MRI and genetic testing comes back clear), natural tissue recon typically offers better chance of matching remaining breast.

  • sammi2006
    sammi2006 Member Posts: 74
    edited August 2018

    I am so sorry you get to join us. :( Its a club that no one should have to join. I was diagnosed in June 2017 at 29 years old with stage 2 breast cancer. Mine was weakly er positive, pr and her2 negative so I never had herceptin/perjecta. I had AC/T. I also didn't freeze my eggs. Part of me wishes that I did though. The only real reason why I didn't was because it meant delaying chemo by at least 3 weeks, and I was scared that my tumor was going to grow during that time. My dr did give me Zoladex injections once a month while getting chemo to help protect my ovaries though. He told me that it shuts down your ovaries and kinda sheilds them from the harmful effects of chemo. I am 6 1/2 months out from chemo, and I wont know for awhile if my fertility is okay or not. My husband and I don't have any kids but would like to someday. As for the surgery, I was going to do a double mastectomy to reduce my risk of recurrence, but chemo shrunk my 3 cm tumor to nothing so I had a lumpectomy and radiation.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2018

    Hi DKissinger, and welcome to Breastcancer.org,

    We're so very sorry for the reasons that bring you here, but we're really glad you found us, and that you decided to post! As you can already see, our Community is a wonderful source of support from our other members, as well as great advice, sharing of experiences, and lots of good info.

    In addition to the helpful responses above, you may want to check out a few pages from the main Breastcancer.org site, which can give you some more info on what to expect ahead:

    We know this might be a lot of info to take in right now, so only read up on what you can handle at a time. We are all here for you, and please ask as many questions as you can!

    --The Mods

  • Anx789
    Anx789 Member Posts: 168
    edited September 2018

    DKissinger, I also have been diagnosed with IDC, 2cm Grade 3. I am 48 years old. My surgeon recommended surgery and no treatment plan until after the final staging. May I ask why do you need chemo before surgery? I am trying get as much info on how deal with this

  • DKissinger
    DKissinger Member Posts: 3
    edited September 2018

    Hello Anxiouslady,

    So sorry that you have to join us but glad you found us! My surgical Oncologist informed me that the chemotherapy will reduce the size of the tumor therefore making the surgery much easier for her and on me for recovery. I can say that after 1 round of chemo the surrounding tissue that has been affected by the tumor has shrunk from 13 cm to 10 cm so the chemo is working as expected! Had my 2nd round of chemo this past Wednesday and will go back for the 3rd in 3 weeks.


    Wishing you the best of luck!!!

  • Anx789
    Anx789 Member Posts: 168
    edited September 2018

    Hi DKissinger,

    Thank you for your response. You have 2.3 cm tumor but the affected tissue is 13 cm? I don't have this info on my biopsy, is this a special testing done by your Oncologist? I don't have Oncologist yet.

    Good luck to you too, we can fight this !

  • DKissinger
    DKissinger Member Posts: 3
    edited September 2018

    Hi Anxiouslady,

    The information in regards to the affected surrounding tissue was confirmed via mammogram, ultrasound, MRI and CT scan that I had to have before my treatment began. These tests were ordered by my Medical and Surgical Oncologists. I would assume that you will be referred to a surgical oncologist in the near future to discuss your upcoming treatment plan

    Yes, we will fight this and win!!!

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited September 2018

    Sending hugs and well wishes as you begin this journey. I started radiation two weeks ago. So far so good. I have found that once the aches and pains of surgery subside life feels a tad more normal.

    Best wishes!

  • Kimm992
    Kimm992 Member Posts: 135
    edited October 2018

    I had the same diagnosis as you at 35 years old (3 years ago). I had multiple tumors (all under 2cm) so I did not qualify for Perjeta but I did the Herceptin.

    It is all so very scary when you start out...but before you know it, you will be done and 3 years out like me. Life is pretty much back to normal for me (new normal). I feel good, and am just enjoying life.

    I can't weigh in on the fertility stuff because when I was diagnosed I already had 2 kids (and didn't plan to have more) so I wasn't concerned with fertility. There are a number of people on the boards who have dealt with fertility stuff who I'm sure will chime in.

    Hang in...you got this!

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