INSOMNIACS place to talk in the wee hours

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited August 2018

    SO sorry I haven’t been on here for a week. Been kind of busy in the house.

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2018

    Mags, I can relate. DH is in the hospital and the first few days our cat was very affectionate with me and slept on the bed. Now he doesn't want much to do with me. We wonder if he was trying to bribe me to bring DH home, or what? Hope against hope he'll make it home tomorrow (day 10). Rose is probably punishing you for being gone. I hope she relents soon - it's sad when your cat won't cuddle.

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Hello All,

    The Granix did its job. My ANC went from .82 to 5.46. But I am suffering severely with level 10 bone pain. I've been given Fentanyl & Oxychodone, but with little to no effect. I have also been given Norco w/ Claritin and this helped for about 3 hours. The Claritin is given only once a day. I received a Fentanyl injection about a half hour ago. No help at all. I was told that this pain could last a few days. I am at my wits end.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited August 2018

    Oh Junie so sorry to her. Please God you can get some relief ASAP.

    I will be away from today on hols and no internet access so please don't think I have forgotten you. XXX

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2018

    Junie, Hope your pain goes away fast! It sounds extreme. Sympathies.

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Thank you Wren & Feline!

    Feline - I hope you enjoy your holiday!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2018

    Mags- good to hear from you. I think Rose is a cat if I remember correctly. Cats hold grudges for the weirdest reasons. Maybe she is trying to not disturb you too? I hope she comes to hang out with you soon. I can tell you miss her closeness.

    Junie- oh hugs sister, this is awful. I have you on the prayer thread.

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Well I am happy to report that the nurses I had yesterday were amazing. Wracking their brains on how to relieve my pain. One called the Oncology Unit and they told him to try heat along with the pain meds. Hallelujah!!! It worked. I took Oxychodone about every 3-4 hours and had a heating pad against my back & neck. By this morning I was greatly improved and able to walk and move. So very thankful.

    I was discharged from the hospital around 2 p.m. today and was rather loopy, so I layed down and slept in my own bed for about 4 hours. I feel like new person.

    I have a PICC line in now and will go to the outpatient infusion clinic everyday for the next 9 days, then I leave for the Mayo Clinic in Rodchester. The PICC will stay in so that Mayo Clinic, if needed, can access my veins. I am so tired of getting stuck 5-7 times to get an I.V. in. So now that I have the PICC in my left arm, blood clots in my left leg and lymph edema in my right arm, my BP now has to be taken on my right lower leg. I've just about run out of limbs for access here.

    Jazzygirl - Rest assured I was praying to God for relief, and he provided!

    Well now it is 11:44 p.m. and I want to get up to go to Church in the morning. My Church is having its service in one of our local parks. They do this one time per year and I missed last year. Also, anyone who is at the park is welcome to join for the service & lunch. They're serving burrito's this year.

    Good night to all, and I hope everyone rests well!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2018

    Junie- glad they got your pain under control and you are home and resting.

    Take good care sister and wishing you a speedy recovery

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2018

    Junie, Great news on the pain. I love nurses who come up with solutions.

  • jaymeb
    jaymeb Member Posts: 276
    edited August 2018
    Hi Junie

    I’ve been reading all you have went through the past several days. I’m sorry you had to go through that awful pain. Good idea using the heating pad in addition with the pain meds. Heating pads and cold packs have been my saving grace. Also glad you got some good sleep. You are one strong woman, and have a positive attitude. That goes a long way. Did you make it to church? How’s Kirby?
  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    jaymeb - I did make it to church and it was amazing. Kirby has spent the last week with his trainer being boarded and she is bringing him home today around 11 a.m. We will get to be together for the week, then he goes back to the trainers while I am in Minnesota. I am hoping they will be able to just do the surgery this time instead of me having to fly home then back again. But I won't know until I see the Neurosurgeon next week.

  • TaRenee
    TaRenee Member Posts: 464
    edited August 2018

    JunieB glad you finally got to go home. Daily infusions can’t be fun tho. Glad you have the picc line in. I hate it when I have infusions. I have tiny veins and they ALWAYS blow out. Thankfully I haven’t had to go often enough to have a line put in. (No complaints from me on that). But hopefully they get you better quickly!

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Thanks TaRenee!

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2018

    Junie, We're all rooting for good news from the neurosurgeon.

  • susan3
    susan3 Member Posts: 3,728
    edited August 2018

    hey guys....I am about a year behind. Just popping in to say hi.

    Living life and having fun. Still feel great. I will have to read a bunch to catch up !,!

  • Eeyore07
    Eeyore07 Member Posts: 113
    edited August 2018

    Susan, glad to see you back. I don’t post often , but I am following the thread. How is your grand daughter doing? She must be a big girl now!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2018

    Susan- I am not here as much either (try to swing by BCO once a week to at least read). Glad to hear you are doing well!

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited August 2018

    Susan: glad to see you come back, if only for a brief passthrough.

  • Smaarty
    Smaarty Member Posts: 2,951
    edited August 2018

    OMD, it’s old home week. HELLLLOOOOOO!! Susan, so glad you posted, think about you often. Just caught up on everyone. Lover, you need to post a pic of your niece, Susan needs to post a pic of Elena and heres Evie, 2-1/2 now.

    image


  • Micmel
    Micmel Member Posts: 9,450
    edited August 2018

    absolutely perfectly adorable. Such a cute outfit. Picture perfect angel! ~M~

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    OMG! I haven't posted here for at least a week and here I find Susan3 and Smaarty! Yeah!!!! So glad to see you back.

    Smaarty - Evie has grown leaps and bounds!

    Susan3 - Glad your doing & feeling well!

    I fly out to the Mayo Clinic in Rodchester on Monday, so I'll let you know what the Neurosurgeon says after I see her. I sure hope that my having been in the hospital last week won't cause her to refuse to do my surgery. The infectious disease doctor told me today that my last blood cultures wear all clear. I finish the I.V. antibiotics on Sunday.

    Well goodnight for now.

  • Smaarty
    Smaarty Member Posts: 2,951
    edited August 2018

    keeping my fingers crossed for you JunieB.

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Thanks Smaarty.

  • CeliaC
    CeliaC Member Posts: 1,320
    edited August 2018

    In your pocket, JunieB. Hope all goes well.

  • JunieB
    JunieB Member Posts: 1,023
    edited August 2018

    Thank you Celia!

  • susan3
    susan3 Member Posts: 3,728
    edited August 2018

    imageElena and my dog baile

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2018

    Susan- that photo is just the best!

    Smarty- love your photos too of the little one!

    JunieB- in your pocket sister

  • Smaarty
    Smaarty Member Posts: 2,951
    edited August 2018

    Susan, she’s definitely a keeper, so cute.

    And congrats to Sas on soon to be a grandma!


  • jaymeb
    jaymeb Member Posts: 276
    edited August 2018
    Junie,

    Not sure if you flew to the Mayo Clinic yet? How are you doing? Please keep us updated. Prayers🙏🙏

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