All That Radiation!

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Roxanne218
Roxanne218 Member Posts: 9
edited August 2018 in Not Diagnosed But Worried

I had a PET/CT scan in March for something unrelated to breast issues, which showed slight uptake in my right breast (a surprise!). I went on to do a regular mammogram, ultrasound, and breast mri. It was concluded by the mri radiologist that yet another test was needed - a 3d mammogram. Finished that last test today, and all turned out good. Wow, all that radiation this year! I got good news today but I can't help but worry about the damage that was done to my body, especially from the 2 mammograms and scan and having them be so close together this year. I know the percentage of cancer likelihood goes up with each dose, but not sure how much in my situation. I even read that mammograms may soon be a thing of the past in Europe because of its radiation that stays in your body for many years. I hope I didn't accumulate too much of it in me, however I had no choice but to get all these tests for a final diagnosis. Anyone else worried about this?

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  • Sara536
    Sara536 Member Posts: 7,032
    edited August 2018

    The ultrasound and MRI don’t involve radiation. It would be a good idea to keep a running list of all of the x-rays, CAT scans, sestamibis, etc. that do use radiation that you are exposed to. Include time and place and if you are asked to repeat any for some reason, try to have it done on the same machine- it makes for a better comparison. No one else will be keeping track. Also, I hate to say it but facilities that own the machines love to use them (think $) especially emergency rooms. Once you have a scan that finds something incidentally that they weren’t looking for (like an asymptomatic benign lung nodule which many people have) they will want to follow it for 2 or 3 years to see if it grows. That happened to me and after the third one, the radiologist wanted a fourth because she said it was done on a different machine. (of course no one bothers to ask where your last one was taken- I could easily have returned to the last facility. At that point I said, “Hell no!” One doctor told me that if you have had three and nothing has changed, then it is time to stop. Luckily, newer machines apparently use less radiation.

    It’s interesting to hear that mammos may become a thing of the past in Europe. Are they planning to do MRIs instead?


  • djmammo
    djmammo Member Posts: 2,939
    edited August 2018

    Roxanne218

    "...because of its radiation that stays in your body for many years. I hope I didn't accumulate too much of it in me..."

    I'd be curious to know where you read this if you can supply a link to the article.

  • moth
    moth Member Posts: 4,800
    edited August 2018

    There's a nifty calculator here: http://www.xrayrisk.com/calculator/calculator-norm...

    you enter the scan you had (note mammograms are unilateral so if you had both sides done, make sure to indicate 2 in number of exams, then click calculate, then click Add this to your report. You can get a tally of what you were likely exposed to & a calculation of risk.

    I also find the 4th page of this pdf useful - it's a chart comparing the dosages of radiation from various procedures https://www.arpansa.gov.au/sites/g/files/net3086/f...


  • oxygen18
    oxygen18 Member Posts: 164
    edited August 2018

    Roxanne, if it is a necessary test then I do not worry because doing nothing involves a far greater risk. Though the radiation does not actually stay in, the effects are cumulative over a lifetime. I have been wishing, for years, for personal medical exposure tracking devices, as in:


    Radiat Prot Dosimetry. 2011 Sep;147(1-2):314-6.
    Patient exposure tracking: the IAEA smart card project.
    Rehani MM1, Frush DP.
    Abstract .The existing approach of radiation protection is largely based on the collective dose to the population with provisions for protection at an individual level through justification and optimisation. With the individual patient dose now exceeding the life-long occupational dose to a worker in a typical radiology practice, there is a need to establish approaches based on the protection of an individual patient. Radiation exposure tracking seems a way forward in this respect. Technological advances in recent years have provided opportunities for tracking to becoming a reality. The IAEA project on Smart Card/SmartRadTrack is described in this paper. The tracking is now a reality in a few dozen centres in many countries connected by picture archiving and communication systems, and there is hope that this will extend to cover other countries and continents.

    ----------

    To be noted, at the same time, is that the BENEFITS from a truly indicated test involving some radiation exposure, are also usually cumulative over an entire lifetime. Best wishes.

  • Roxanne218
    Roxanne218 Member Posts: 9
    edited August 2018

    Djmammo, I have read so much in the past month that I have no way to pinpoint where I saw this information, but it was mentioned in several sources. (If I happen to see an article(s) again, I'll post the links here.) It seems to be a given that radiation accumulates over time in the body. It can take a long time to change DNA and possibly help start cancer if a patient gets too much exposure over their lifetime. From now on, if a medical provider suggests imaging with radiation for me, I'm going to keep in mind "Is it really necessary and would mri or ultrasound be okay instead?"

  • JaBoo
    JaBoo Member Posts: 520
    edited August 2018

    Well, I think Europe is in no way leaving mammograms. We do get them here. In fact, it's almost unheard of to get a breast MRI in my country - too expensive, apparently.

  • Polly413
    Polly413 Member Posts: 124
    edited August 2018

    This thread is interesting to me because I have been participating in a related thread called "Is Ignorance Bliss" or something close to that and there are posters on there complaining because they are not getting regular CTs and PET scans to screen for mets. There doesn't seem to be awareness in those arguments for the dangers of these scans and why current guidelines do not allow for them to screen for mets. CTs are harmful beyond radiation of course because the dyes used are dangerous. The kidney blood test required immediately prior to a scan no matter how recently you already had that test illustrates quite clearly what a hit your kidneys are going to take. My first MO did not follow the guidelines and after surgery but before chemo ordered a CT which found a minute lung nodule and tiny spots in the liver. Very common in people my age but MO wanted another CT in 3 months. I refused. But because radiologist wanted one in 6 months I had another CT in Feb. No change. Protocol was to have one more in 6 months which would be this month. Last week I discussed this with my new MO and he agreed with me that there was no need for a followup as I have no clinical signs and even the radiologist did not call for a recheck. I totally agree with everyone who is concerned about too many tests with too much risk. What do you gain if you survive breast cancer but your kidneys fail or you get other cancers from the radiation. Polly

  • djmammo
    djmammo Member Posts: 2,939
    edited August 2018

    Roxanne218

    The effects of the radiation from x-rays (mammo, CT, etc) may be cumulative but the radiation itself does not stay in your body.

    Nuclear medicine diagnositc studies are different as they inject radioactive materials IV that do stay in the body for a period of time but most frequently have a half life around 6 hours and do not emit damaging particles.

    From Mayo Clinic: https://www.mayo.edu/research/documents/radiation-exposure-during-imaging-examspdf/DOC-10027821

  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    Hi Roxanne:

    tl:dr I wouldn't worry but read on if you want to know why.

    The radiation from mammograms does not stay in your body at all. You can think of X-Rays from an external source like an X-Ray machine like light from a light bulb. It's emitted when the machine is on and goes away when the machine is off. The difference between X-Rays and light from a light bulb is that we are kind of translucent/transparent to X-Ray photons...the "light" that is the X-Rays can shine through us, but some of the photons "collide" with the molecules in our DNA and are high enough energy to knock some of the atoms off and damage it. This type of radiation is called "ionizing radiation".

    We are exposed to ionizing radiation in small amounts on a regular basis in the form of UV light from the sun, gamma rays from things in outer space, and various forms of ionizing radiation from small particles of radioactive minerals and elements in the environment from naturally occuring sources and nuclear testing and accidents. These sources of radiation contribute to what is called "background radiation".

    In most instances, when cells are damaged by radiation, they self destruct or are destroyed by the body. This is how radiation is used to treat cancer. But in some rare instances the damage constitues a mutation that causes the cell to become cancerous or sets it up for it or it's prodigeny to become cancers down the road. This is how radiation causes cancer. It should be noted that anything that damages a cell at the level of the DNA can result in cancer. The more often ionizing radiation cells are bombarded by, the greater the chance of a cancer causing event.

    The odds of cancer from one or even a few annual x-rays or mammogram are very low, especially today because technology enables them to use very little radiation. You are more likely to end up with cancer from sun exposure.

    The PET/CT is a different story.

    The CT part of the PET/CT is just like getting an X-Ray only you are getting a lot of them at once. The more of your body that is being imaged, the more the more X-Ray images have to be taken. How dangerous is this? The amount of radiation a CT scanner emits varies a lot between scanners and facilities but in the U.S., the risk of cancer is calculated to be 1 in 2000 from a typical CT which is not "full body". It puts it in the "limit use" category.

    The PET part of a PET/CT uses radioactive isotopes that are injected in to you. They are attached to a substance that hypermetabolic cells such as cancer cells uptake quickly an in large quantity, concentrating the radioactive isotopes and causing the radiation to be emitted from that spot at levels the detectors in the scanner can detect. That shows up on the images as a glow. The radiation from this substance dies off after a few hours.

    A PET and CT can be done separately but are often done together when looking for cancer.

    The radiation exposure from a whole body PET/CT is considered to be significant compared to how hoe much radiation we are exposed to on a regular basis. A whole body PET/CT in the U.S. exposes a person to about 8 years worth of background radiation and that puts them in the "not for routine use" category. But it's important to understand what is meant by "significant" with respect to cancer risk.

    Your risk of getting cancer from a single whole body CT or PET/CT in the U.S. is thought to be around 1 in 200 when you are 20 and declines with age.

    While the risk of cancer from a whole body PET/CT for any one individual is relatively small, the medical community has too look at it in terms of how it translates to incident among the populations.

    If 200 20 year olds have whole body PET/CTs they figure 1 will get cancer from it. If 1 million 20 year olds get whole body PET/CT they figure 5,000 will get cancer from it. Around 2 million PET and PET/CTs are done per year in the U.S.

    I would not worry about a few mammograms or conventional x-rays used in regular screen or for diagnostic purposes.

    I would not worry about a single full body CT or single full body PET/CT as they are typically only done when it is thought there is a more significant threat to your life or QOL from something else.











  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    Here’s a nice link to get the whole story on radiation. One thing I don’t understand is the difference between breast radiation and scan radiation...


    https://www.consumerreports.org/cro/magazine/2015/...


  • oxygen18
    oxygen18 Member Posts: 164
    edited August 2018

    Lots of great info in this thread.

    Marijen, I wish everyone would read that consumerreports.org article. It beautifully summarizes many key points.

    I love that they also explain that we should not assume all doctors know the amount of radiation exposure involved in a particular test; and that we should tell them we want to minimize exposure, because most patients are not that concerned, even though they should be.

    If I get your question: radiation dose to a body region, say, breast, depends on the test used, so, ultrasound involves no radiation, a mammogram involves some, a CT scan involves more radiation. If this is not what you are asking, let us know.

  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    No, oxygen. I’m wondering how radiation therapy is supposed to be good for us, but CT scans and Pets are not. I don’t worry about mammos and ultrasounds and dental xrays though. I do think it is correct they are not all informed on the amount of exposure.


  • moth
    moth Member Posts: 4,800
    edited August 2018

    radiation is not really 'good' for us, no more than surgery or chemo are. It's just that in certain cases the benefits outweigh the risks. Radiation treatment for cancer is targetted to cancer cells & healthy tissue is supposed to have limited exposure. But radiation treatment itself does have a small risk of triggering a cancer later. So does chemotherapy.

    Again, it's like most medicines & treatments: benefit v risk

  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    Well it’s just that I’m trying to figure out why the radiation treatments kill cancer cells supposedly but the scans do not??


  • moth
    moth Member Posts: 4,800
    edited August 2018

    Ahhh, well, it's the old saying "the dose makes the poison"

    Radiation for cancer is MUCH more powerful than the radiation from scan. For example, I'm getting a total of 42.5 Gy (in 16 fractions, ie spread in 16 doses) + 10 Gy boost to the tumor bed (in 4 fractions).

    1 Gy (short for gray) = 1,000 mSv (millisievert)

    for comparison sake, a mammogram is 0.3 mSv so I'll be getting 175,000 times as much radiation to my breast as you would from a mammo

    Strong radiation can kill cells - hence its usefulness in treating malignancies.

    lifetime cumulative exposure to very weak radiation can cause some cells to mutate while replicating - hence its risk in triggering a malignancy.

    Does that help?

  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    Yes moth, now I get it. Thanks!


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