July 2018 surgery

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  • Winnie437
    Winnie437 Member Posts: 3
    edited July 2018

    Hi, Good morning everyone! I am new here and this is my first post.

    I am 68 years old and still work full timely, and in general in good health (other than those bilateral breast Cancer ;-)). A routine mammogram screening initially found the cancer. I do not feel any thing unusual. No lump felt.

    I was diagnosed DCIS on my right breast in early May, 1.7CM. ER+/PR+. And before the scheduled June 1st lumpectomy, the MRI/biopsy revealed the left breast of IDC , 0.6CM, Stage 1, ER+/PR+/HER -. The Surgeon postponed the surgery and ordered me genetic /DRCA test which turned out all negative.

    I have a bilateral lumpectomy surgery scheduled on 07/23/2018. The decision to pick which way to go ( lumpectomy +radiation, or mastectomy +implant reconstruction) was a difficult process- and I eventually decide to go lumpectomy plus radiation. Hopefully I have made the right decision.

    Being diagnosed as a cancer patient was a shocking to me. And I have gone through the stages of scared, worried, feel uncertainty, ,... many emotions. But during the process of testing I came into encountered so many different doctors and medical professionals., I was always being treated warmly and professionally. I am gradually becoming calm and starting accept the reality and I have cancer and I have to actively work with doctors to fight it.

    I am glad that I have found this forum. Other cancer survivors' posts definitely help my fight with my cancer. Thank you all!


  • Moderators
    Moderators Member Posts: 25,912
    edited July 2018

    Winnie437, welcome and we too are pleased you found this forum. We all here understand that it takes a long while to digest the news. We're all here for you, and appreciate you sharing your experience.

  • Debsmisto
    Debsmisto Member Posts: 171
    edited July 2018

    Hi all, hope you are all healing well Welcome Winnie and all other newbies here 🙂 OMG, had my first shower in 2 weeks today, boy did that feel good. Still having pain and tenderness in the top part off my te's the PS and nurses look at me like huh, I can't be the only one that has pain with these damm things lol

  • Cindymb
    Cindymb Member Posts: 206
    edited July 2018

    Hi ladies 🤗

    Had my lumpectomy with reconstruction on both sides yesterday. I am thankful that my pain has been minimal. I cant sleep for some reason, feels like its adrenaline or something. So relieved to have the tumor out of my body. I go to the surgeons office on Friday to get the drain out and bandages off.

    Welcome Winnie and other newbies ❤

  • Inigo
    Inigo Member Posts: 4
    edited July 2018

    Hi all. I've been following along, but haven't posted since my first post. I'm two weeks out from prophylactic bilateral nipple sparing mastectomy with pre-pectoral direct to implant reconstruction. Knock on wood, everything's been good so far - well, now that the drains are out. Except I'm super exhausted. In fact, I think this is the latest I've been awake in two weeks (and it's only 8 PM!)

    I saw some comments about bras and irritation, and wanted to mention that I found a sports bra that so far offers just the right amount of support, has a front zip, and the bottom band is wider and doesn't irritate my incisions. It's called Copper Fit, and no joke I found it at Bed, Bath & Beyond (guess that's the Beyond part!) I went back today and picked up two more.

    Pathology report came back with all benign changes, but with the BRCA2 mutation my breast surgeon said if I had and doubt about whether this was the right decision, it definitely was. I know the surgery and healing has been easier without having to deal with an actual cancer diagnosis on top of it all.

  • shawkin11
    shawkin11 Member Posts: 1
    edited July 2018

    Hello

    I am a newbie.I just need to talk to people who has been through this. I had surgery on June 25th, left Breast removed, 10/14 lymph nodes positive. Went to doctors today for post op visit . I was told by surgeon that my cancer is now a stage 3 and She recommended that I get chemo and radiation. I have to get a port inserted.. for chemo. I am so nervous. Can anyone share insight on what’s going on .


    Thank you

    Stacy


  • Debsmisto
    Debsmisto Member Posts: 171
    edited July 2018

    Hi Stacy, sorry we have to meet this way. Do you have details on your diagnosis like ER PR her2 status? Hang in there, once you get started on your treatment regimen you will feel better just knowing things are moving along and you are fighting this terrible disease, this is the place to come to with your questions and once you start your chemo, radiation etc try going over to that section here and you'll have others to talk to as you go thru each part of your treatment, best of luck and hope your side effects are managable

  • Oneof7
    Oneof7 Member Posts: 59
    edited July 2018

    inigo tx for the bra suggestion

    Stacy welcome. And big hug. Unfortunately i dont have helpful guidance but i do have open ears.

    Cindymb. My surgery was on the 18th. I also have minimal pain. I barely slept the first night. Might be from steroids they use to keep swelling down, im told.


    Winnie437. Good luck with surgery on the 23rd. My doctor presented me with the same two options you considered and said the outcomes are the same. That gave me confidence to choose what i was most comfortable with.


  • MarlaM
    MarlaM Member Posts: 29
    edited July 2018

    Hi all, I had my skin and nipple sparing BMX with reconstruction with tissue expanders on 7/10. They also removed a packet of lymph nodes. I had chemo before surgery in hopes that they wouldn't have to remove the nodes, but no luck there. One of my nipples was a little bit gray, so my surgeon ordered hyperbaric treatments, which really seem to have helped. They didn't give me any bras, so I've been going braless. I still have a lot of swelling, and terrible tightness across my chest. Feels like a big rubber band being pulled tighter and tighter. So uncomfortable. It sounds like I need one of those breathing thingeess recommended earlier.

    Thank you all for being here. If we have to go through something like this, it's nice to have someone who is going through it too.

  • Debsmisto
    Debsmisto Member Posts: 171
    edited July 2018

    So this has been a down week for me, meaning I've had no Dr's Appts etc since Monday but next week is another story, Monday echocardiagram, Tues nothing, Wed 2 contrast abdominal CT and whole body bone scan, Thurs radiation consult, Fri PS Dr ugh sounds like a fun week. So I'm so nervous about the upcoming scans since my chemo was not very successful, I'm afraid I will have a spread which will change everything making me strage 4, if you can say a prayer, send good vibes whatever for me on Wed, I'm pretty scared.

  • Fairchild
    Fairchild Member Posts: 206
    edited July 2018

    Hey, ladies, I need some advice. I'm having bilateral mastectomies on July 26th. ILC on left side and IDC on the right, both small, L 4mm, R 1.6 CM. They found cancer in an intramammary lymph node so mastectomy mandated on the R and I choose it on the L. Planning on TE after the surgery for reconstruction. Will be in hospital 1 night, God willing. My brothers offered to come be with me for a couple of weeks, which has been most welcome, since I'm divorced, 61, and my kids live away from here. But yesterday brothers started sounding like they aren't planning to stay as long as they said. The one who will be with me for surgery is planning on sleeping at my house that night and going some place during the day after surgery, which might interfere with my discharge from hospital. Also, he's only staying a few days, and then brother #2 will arrive for a few days. I'm not sure anymore how long they will be here. They are vague no matter how much I ask them. So I need to know how much can I manage this on my own, if they aren't here very long or very much? My doctor had said to have someone with me for 2 weeks. Is that really needed? When will I be able to cook, lift laundry, work on the computer, make phone calls again? Having my brothers get vague now is pretty upsetting, when I really believed they would step up for me, but they sound scared now, asking if I can arrange a nurse to stay with me. I don't have that kind of money! Any other advice for getting through this? How bad is the pain? So many thanks!

  • Fairchild
    Fairchild Member Posts: 206
    edited July 2018

    Ladies, OK, I should have said this, too: I'm getting really afraid now, and I've been the calmest patient they've ever seen. I don't know what's happening, except that my children (young adults) are both going through very stressful situations right now, I'm up for promotion at work and preparing the necessary paperwork, trying to finish before the mastectomies (I started the promotion path before I knew about the cancer), and the situation with my brothers has thrown me. It feels really bad to be unmarried and going through this without a partner. There's nothing I or anyone can do about that, but it's there, in my head. We can't do anything about that. But the things I worry about...can you tell me if maybe they aren't true? Like is it really do-able to go home the day after surgery? How much pain (uncomfortable pain or frankly yelling pain?). When will I feel like taking a bath? When will I feel like cooking? Any information, no matter how small, will be helpful. Right now my imagination is working overtime, and I don't want that!

  • Debsmisto
    Debsmisto Member Posts: 171
    edited July 2018

    Fairchild, I stayed 2 days in the hospital, don't let them send you home until you're ready, then my husband did everything for me for about 1 week and I could have been on my own after that, even the first week he was gone 3 days for like 4 hrs and I was fine

  • Oneof7
    Oneof7 Member Posts: 59
    edited July 2018

    debmisto. I am here. I remember well the day you posted that the chemo didn't work. I have also seen how wonderful and supportive you are. Prayers and positive thoughts coming from this corner several times a day.

    Fairchild. To your brothers I write. "I know youre scared. So am I. Please be here for me. I cannot afford a nurse. More importantly, I want you two. My family. The ones who have the pulse of how we were raised...our ways of doing things. Just your being in the house will be perfect. My needs are quite simple... helping to lift things. Maybe grocery shopping. Not looking for gourmet meals. Your company is the best medicine I can get."

  • goodwit
    goodwit Member Posts: 3
    edited July 2018

    Fairchild: I was diagnosed with BC 20 years ago and had a mastectomy and underarm lymph nodes removed. I stayed in the hospital one night and then was discharged the next morning. The BS originally offered the mastectomy as an out patient surgery but I opted to stay the night. After 20 years, I was recently diagnosed with a IDC in my remaining breast and will have a mastectomy on July 31. As I remember it the surgery was not really that bad, that's a clinical term for lay people. If you can I would prep some meals ahead of time, or have lots of frozen dinners that can be microwaved; laundry I think will be questionable for the 2 weeks. 20 years has erased a lot of the memory of the original mastectomy. The 6 months of chemo, and the tissue expander surgery and inflation when I decided 5 years later to get reconstruction are much more vivid in my memory for the pain and impact on daily living.

    Best of luck, I am hoping your brothers will come through as needed once the time comes,

  • Lavenderlee
    Lavenderlee Member Posts: 27
    edited July 2018

    Just checking in - had my direct to implant nipple sparing BMX on July 18th. I have been in some pretty constant pain, but it’s all been very manageable with some sharper pains when sitting or standing and if my drain tubes start to clog. Everything looks pretty good, or so I’m told. It’s hard to look at my new breasts objectively even though they resemble my original set. I really appreciate my recliner and reclining bed so very much. I am still backed up, I hope that release is found soon. We are waiting on the node results as some atypical cells and discolorations were noted. Overall I’m feeling pretty lucky.

    Hoping everyone else is having as good a week!

  • Vermonster
    Vermonster Member Posts: 44
    edited July 2018

    What a week: morning of 7/16 I had my BMX (nipple sparing, direct to implant), sentinel node (l) and the oophorectomy. Day started off with a bang with me passing out after the sentinel node injection (it didn't hurt much and I don't know why I fainted!). That caused a bit of a delay with surgery itself. They gave me the happy juice shot and next thing, I came to and first thing I remember is my husband's face coming in to kiss my forehead. Last peaceful moment for a while. Barfed that night when they got me up to use the commode, had low blood pressure, didn't get asked to walk until next morning. Was sent home that evening (Tuesday). Getting in/out of the car was a nightmare. 90 minute drive, last fifteen on washboard/rutted dirt road. Made the mistake of sleeping in my own bed - with plenty of wedge pillows, was as comfortable as might be expected, but the bed is too high and I couldn't get out in the morning. I was in such pain. Wish I'd thought to have my husband set an alarm for middle of the night pain meds (we both slept straight through). Only took the narcotic pain meds (5mg oxy) on Tuesday night and Wednesday morning. Since then it's alternating tylenol and ibuprofen. I still have four drains, but two of them will be removed later today! One is almost ready to go, but the 4th (on left side) is still pretty active. I got the call from the BS yesterday that my surgical pathology report is in: no node involvement, very wide, clear margins all around the three tumors on the left and all the ovary/abdomen stuff and right breast were clear. BS is optimistic that with my oncotype score (19) and path results that it's possible I won't need to do chemo!! I am feeling very peaceful.

    What did I wish I knew beforehand? That it was possible my drains would be set so far back in my armpits that I can't reach them and so I can't strip them myself. That I would feel like a t-rex (short stubby arms!!). That at first my range of motion would be so limited I couldn't wipe myself after peeing (made me very glad I didn't poop until Saturday!) the first two days. That I would be blown up like a beachball for most of this first week (and am still very round) - cheap nursing scrub pants from WalMart ($5.84/pair) are my friends right now. All I can say is that I am so very glad I have such a wonderful husband. He's made it possible to smile and even laugh through all this so far.

    Thank you also to this group for being here - alleviated a lot of my fears, provided a lot of information and generally reminds me daily that this too shall pass.

  • Lavenderlee
    Lavenderlee Member Posts: 27
    edited July 2018

    One thing I forgot to mention was I that I asked to receive my sentinel node injection after I was given the happy juice. My team agreed and waited until I was under to do anything. I think it was because my surgery was so delayed that they felt bad for me - almost 20 hours no food or water.

    Today is one week out and I shaved my legs this morning and stripped my own drains. I think I do too much in the mornings and by early evening am wiped, but I feel too antsy to sit still for so long.

    Starting the Handmaid’s Tale today - hope it’s a good watch. Shark week was getting to be a bit (get it?) much.

    Vermonster, you and I are beach ball twins, it looks more uncomfortable than it is. I drink as much black coffee as I do water to try and help. Not much luck, but overall I feel pretty good. Praying for positive news soon on the pathology.

    Hope all is well with each of you.

  • Aussie-Cat
    Aussie-Cat Member Posts: 5,168
    edited July 2018

    Debsmisto, please let us know how all your appointments and test results go. I'm praying for you that the results are good.

  • Vermonster
    Vermonster Member Posts: 44
    edited July 2018

    Ok, I got a full night's sleep last night - first sound sleep in a long time - and woke up feeling full of piss & vinegar - call me crankypants. Why, oh why, would the designers of the damned post-surgical bra put skritchy lace on?? And WHY are the armpits of it so freaking high?? Does anyone have suggestions for removal of the sticky residue off my chest? I've tried alcohol wiping (3x) and gently rubbing with fingers and applying Aquaphor (in excess) and STILL the blasted bra sticks to my foobs and has to be peeled off to swap for the daytime compression bra. At least that bra has no lace, but oh, man, does it squish! Thanks for letting me vent!!

  • Robinda2970
    Robinda2970 Member Posts: 51
    edited July 2018

    curious...Am I the only one who went home from DMX with no bandages and no surgical bra?

  • Vermonster
    Vermonster Member Posts: 44
    edited July 2018

    Did you get direct-to-implants? I did. I may be wrong, but I think from what I recall reading before my surgery that the folks with TE are the ones who are bra-free post-surgery... but I also know from the commentary of the nursing staff at my plastic surgeon's office on Tuesday that each surgeon has her/his own "art" to how patients are sent off after surgery, some using more or less taping to help "shape" things and/or hold them in place. It wouldn't surprise me to learn that to-bra or not-to-bra is a similar preference by the surgeon...

  • Robinda2970
    Robinda2970 Member Posts: 51
    edited July 2018

    I had expanders put in. I guess every surgeon is different..

  • Debsmisto
    Debsmisto Member Posts: 171
    edited July 2018

    My scans were all clear, hooray, now they have to figure out what they're doing surgery wise then radiation and herceptin infusions every 3 weeks for 1yr so I still have a ways to go.

  • Cindymb
    Cindymb Member Posts: 206
    edited July 2018

    Hi everyone 🤗

    My surgery recovery is going very well. Next appts are the Medical Radiology and Medical Oncology, both next week. I am praying i wont be needing chemo as I was made grade 3 because of the tumor size. No oncotype was done yet either.

    Debsmisto, I am happy that your scans were clear. Ive been praying for you.


  • flag6818
    flag6818 Member Posts: 52
    edited July 2018

    cindymb- we are on a similar path. I'm going to see medical oncology and radiation this Wednesday. BS says oncology will send sample off for oncotype. Hoping for a low score!! Best wishes to you in your recovery!

    Debsmisto- good news on the clear scans!!!

    Anyone know how long I should keep the incisions (lumpectomy and snb) covered with gauze? Both of mine are glued and I'm wearing a sports bra 24/7. Tired of the gauze but don't want an infection either.

    Today is also the first day that I feel pretty good, so I'm thankful for a fairly easy recovery so far.

  • Aussie-Cat
    Aussie-Cat Member Posts: 5,168
    edited July 2018

    Debsmisto, I'm so glad that your scans are clear!! I pray that the rest of your treatment goes well.

    Cindymb, I'm glad your recovery is going well. I pray you don't need chemo.

    flag6818, I don't know how long your incisions need to be covered with gauze for. At least 4 days but probably longer. My incisions were covered with waterproof dressings for 2 weeks.

  • Bostoniangal25
    Bostoniangal25 Member Posts: 263
    edited July 2018

    Hello, beautiful ladies! Update on me: 3 weeks post op. Feeling good, better . Started occupational therapy.

    Went to Boston for second opinion on oncology and met with radiology and oncology docs. Since I’m grade 3 and oncotype 29- ughh, I have to have CT chemo for 4 times rvery 3 weeks and possibly radiation for 5 weeks . What sucks that they can’t give less rads for smaller tumor, it should be the same for patients with big or small tumors.

    Will have chemo teaching staff on August 1, and port placement on 6, my veins are sooo bad!

    I m happy for Debsmisto- a small , not, actually big victory!!!

    Cindy, praying for you for not going for chemo !!!🙏🙏🙏

    Flag, I removed tapes and gauze 2 weeks post op. Not wearing any bra and enjoying it!!!

    If you don’t have infection- you can let incision to heal ! Hope you ll have good treatment plan less invasive!!

  • Robinda2970
    Robinda2970 Member Posts: 51
    edited July 2018

    Anyone get a burning/itchy feeling?? I’m 3 weeks post op.

  • Aussie-Cat
    Aussie-Cat Member Posts: 5,168
    edited July 2018

    Robinda, I'm sorry you're struggling with a burning/itching feeling. I started getting a burning feeling after two weeks and it's called nerve pain. It sounds like you may have that too. I would talk to your doctor about it as there's medication for it and menthol gel may make it feel a bit better too. There are a few threads on this forum about it.

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