Lymphangetic spread (carcinoma)

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tessrachele
tessrachele Member Posts: 2
edited June 2018 in Stage IV/Metastatic Breast Cancer ONLY

Recent PET scan showed lymphangetic spread in both lungs while waiting two months for a response to Ibrance (which never happened). Prognosis and drug response is not good for breast cancer in lymph system of lungs. Has anyone experienced any successes? I just started a chemo regimen of Paxlitaxol and Gemzar this past Friday. Am on O2 all of the time. Only 44 with a 7 year old son, and determined to figure this out! Have found a few successful studies with lymphangitic spread and other cancers being treated with success but nothing related to BC. Thanks for any advice! Please feel free to message me personally.

(Edited by Mods to delete member's personal email address. We strongly recommend not posting personal information on a public forum, for your own privacy and security. Please exchange contact information using the Private Message feature.)

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  • wam
    wam Member Posts: 168
    edited June 2018

    Tess: Don't feel alone. I am coming up on two years with this diagnosis. I also have heart involvement but I am here and I am well. PM me if you want. There is hope. I am triple positive. I am on Herceptin, Perjeta and Navelbine.

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited June 2018

    Tess. I have lymphatic spread to chest and lung area. I also have mets to lung and liver. So I'm not sure if that's what you have. Mine have responded to IF. On recent PET they are showing much less uptake than at the beginning 18months ago. I am ERPR+ HER-. What are you? Where do you live? Is there a big Cancer Center near you? A Nationally accredited one, if so go there.

    We have some super smart ladies here. I hope you can find some help. You might look at the Lung Mets thread.

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  • tessrachele
    tessrachele Member Posts: 2
    edited June 2018

    Thanks for your reply! I am relatively new here. What is IF?

    Yes I am also ER/PR+, HER2- I am in Boulder, CO so I go to the oncology center here in town - Rocky Mountain Cancer Center.

    I began a course of Paclitaxol and Gemzar a week ago. It is rough but I would really like to get my lungs back. I am on oxygen full time and trying to be patient!

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited June 2018

    Tess IF is Ibrance and Femara. That didn't work for you, I see. Evidently, what I have is different than what you have. Have you been on any other treatments? Yes, I would want to get my lungs back too. You might want to get a second opinion at at a NCI accredited facility. I don't know where the closest one to you. I live in Dallas, so I went to MDAnderson. You don't have to get your treatment there but it's always a good idea to get their opinion. Most Cancer Centers work with them and are not offended by getting second opinions. Especially, for unusual cancers and so young.

    Have you been on the Mets to Lung thread? The ladies might know more about your DX.

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