This wait feels like an eternity.

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Sita26
Sita26 Member Posts: 44
edited August 2018 in Waiting for Test Results


Hi, first off I'd like to say I think this forum/website is a great resource and support for many types of people!

I'm 30 and have no kids. I have no symptoms in my breasts, other than a palpable lump lower left quadrant of my left breast. I have no BC history in my family, but my dad had, and died of, multiple types of cancer.

In February my partner found a lump in my breast. I panicked but didn't get it checked out until about a week ago. I have no idea how long it's been there-I'm bad and never checked my breasts. My PCP said it's probably nothing but go get an ultrasound. I was hoping to hear it was a cyst or something easy and be on my way.

I finished the exam, the US tech walked me to the door, told me the front desk was making me a CD of images and that the radiologist wants me to get a biopsy. No further explanation or input. I was like....uhhhhh okayyyy. This was Thursday.

My PCP calls me and tells me she has a breast surgeon she wants me to see. But this dr is on vacation and the soonest appt is June 5th. And this is just for a consult, she wouldn't biopsy the same day (as far as I know).

This is only day 3 since my ultrasound and I have about 12 to go. I'm super nervous but remaining hopefully that it's b9. I'm not afraid of the biopsy, I'm not afraid of a lumpectomy, I'm afraid to hear bad news. I know the odds are low but there's still fear in my mind.

Thanks for reading.

I tried to link my report but I was unable to:

Right breast unremarkable. Axillary unremarkable. Left breast 5:00, 5cm posterior to the nipple is a lobulated 1.6 x 1.7 x 1.2 cm lesion with a small amount of internal Doppler flow and some heterogeneity of the internal echo texture including an area that may represent fluid as well as several hyperechoic regions.

Impression

1.6cm Hypoechoic nodule with some variability of the echotexture and small amount of vascularity at the area of the palpable finding for this 30 year old patient

BIRAD 4 suspicious

Ultrasound guided biopsy reccomended

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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Hi Sita26,

    Welcome to the boards.

    We're bumping your topic here so it goes into 'active topics'. The boards can be slow on weekends but we're sure others will be along to offer their experiences and advice.

    Waiting is always the hardest part so please do come back here again and be sure to post in other threads if you're not getting responses here.

    Fingers crossed for a benign result for you.

    Warm wishes,

    From the Mods.



  • JerZGirl71
    JerZGirl71 Member Posts: 2
    edited May 2018


    Hi Sita26 - I’m waiting and going out of my mind too. Found 2 painful lumps in my left breast about a week and a half ago. On a Friday which meant I had to wait the weekend to make an appt with my doc. Luckily got an appt the Monday after and my GP confirmed my findings and ordered an US and mammo. Had the US and mammo done last Wednesday and radiologist told me I have 3 cysts. Two appear simple but one is complex and he recommended a biopsy. He gave me a BIRADS rating of 4B.


    The day after the US and mammo I had an appt with my gyno who already had my radiology report. She said that she wasn’t overly concerned and told me to just breath. Easy for her to say. She also recommended a biopsy and scheduled me with a breast doc today for the biopsy. However when I saw the breast surgeon she told me it can’t be done today and scheduled me for another week out. Then a week after that for the results.


    I completely understand your anxiety. I keep trying not to think about all this because after all I’m at the mercy of the doctors schedules. But I can’t keep the thoughts of BC out of my head even though I know the chances of it being cancer are low. I’m 46 yo and never ever thought I’d be worrying about this. At times I feel like my life is passing before my eyes. I’ll be praying for you and myself that good news comes our way

  • Sita26
    Sita26 Member Posts: 44
    edited May 2018

    thank you for your reply! Waiting is the worst part. I feel like my life has been on hold since last Thursday, and it’ll be week until I even get the biopsy done! I wish you nothing but good news, please let me know :)

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    A week later & ....

    -crying every other day

    -obsessively googling

    -cheated on my diet

    Is it Tuesday yet??!? 😩😩😩😩☹️ And that's not even my guaranteed biopsy day, just meeting the BS. I honestly am a mess.

    Also, I called the imaging center and they don’t rate birad 4 with the a, b, c system. Why? So annoyed.

  • kmartin3243
    kmartin3243 Member Posts: 108
    edited June 2018

    I am so sorry..the waiting is truly excruciating. There is no other way to put it. Thinking about you during this time...I hope that you get some benign results. Please keep us updated.


  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    thank you. I see the breast surgeon this afternoon and will schedule biopsy hopefully ASAP.

    So. Damn. Nervous

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    update ; biopsy scheduled for next Thursday. Hoping to get a sooner appointment. Breast surgeon was confident it's a fibroadenoma and said she would rate me a 4a based on the image, since my radiologists just rated it a 4. She looked at the images For 10 seconds and said it was pretty standard looking fibroadenoma (even tho lobulated)...I wish my pcp or the radiologist or the rad tech would have told me this. I was so shocked because my report seemed so bad. I am not in the clear yet, but I am feeling much more relieved and less anxiety. She told me “what's common is common". Meaning to not look too deep into cancer, at least for now. It's more common for someone my age to NOT have it. However, again, I am still not in the clear, but meeting her helped me a lot. I'm looking @ at least ANOTHER almost 2 weeks to get results. A month of dealing with this? I'll have gray hair & wrinkles soon 😩😩😩😩😞😞😞😞😑

  • Lif8ntez1970
    Lif8ntez1970 Member Posts: 5
    edited June 2018

    I know how you feel....the waiting is horrible. I had triple biopsy yesterday, core needle. Said they would be calling on Wednesday......one day seems like weeks. Hope everything goes ok with you.


  • Shellshell69
    Shellshell69 Member Posts: 44
    edited June 2018

    hi sita I have my biopsy on Monday very scared only cuz when tech was doing US she got a concerned look on her face said hold on and went and got radiologist and he came in and talked to me told me I needed biopsy

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Praying for good news to all of you. I know the waiting is horrible. When I was first told to get a biopsy, they couldn't get me in immediately, so I just looked for another breast center that could do it ASAP. I was going out of town for spring break and I didn't want this lingering on. Good luck and we will be praying for you. Hang in there.

    Mimi

  • kmartin3243
    kmartin3243 Member Posts: 108
    edited June 2018

    Sita26,

    That may not be as definite as you would like, but that is great news. Breast surgeons are highly trained, and can identify something very quickly. I have 5 fibroadenomas and have had three biopsies. The other two are on a watch and wait 6 month schedule. I've learned to trust the radiologists at this point because they just tend to pop up. Everything is highly in your favor. Hang in there!


  • JerZGirl71
    JerZGirl71 Member Posts: 2
    edited June 2018

    Had my biopsy done this past Tuesday (needle and tissue). Procedure wasn’t bad. Felt a little whoozie afterwards but other than that ok. I went expecting to have 2 areas biopsied but on the US they couldn’t see the less concerning of the 2 spots. However, the spot that was concerning got bigger in just 2 weeks. BS said from what came out (blood and debris) her first thought is a benign papilloma but only pathology couldn’t confirm that. I go back next Tuesday (June 12th) to discuss results and “next steps”. Trying to remain positive and go inn with my normal daily routine but feel like im walking around in a fog at times. I go to work and it all seems so stupid and pointlessnow.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    JerZgirl, I will be praying for you. Hang in there!

  • RobinJ3024
    RobinJ3024 Member Posts: 48
    edited June 2018

    Waiting is the worse guys! So many of us have been there. One day/minute you hold it all together and the next day/minute you fall apart. Whatever you are feeling, I can assure that someone else felt it before you.

    Some things that helped me --

    1) I learned to meditate with two phone apps -- Calm and Headspace. Both are free.

    2) Sleep may be difficult during this waiting game, so make sure you get some exercise in so you are physically tired. And then, go to bed when you get sleepy. You may not sleep well, so take every opportunity to sleep when you feel sleepy. It's easier to control your emotions if you are rested.

    3) Don't google too much. It will just get you MORE scared and nervous. A little is fine, but don't go overboard.

    4) Remember that cancer treatments have come a long ways. Even if you are positive for breast cancer, there are so many treatment options out there.

    5) Know you have a huge community of people here (and in the public) who will support you.

    I started this journey back in April and am scheduled for a lumpectomy in 2 weeks. Every step of the way involved waiting of some sort. Each appointment and test gave more answers, but also required more waiting. I tried to remember that I was moving FORWARD to the final answer, but I still rode that emotional rollercoaster (sometimes several times an hour). But, I make it through and so will you. AND ....I was so relieved just to have answers at the end of it. It may not have been the answer I wanted, but it was a relief to have an answer!

    Prayers to you all. Private message me if you need to vent more!

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    ♥️thank you to everyone who has replied. 6 days until biopsy day. Finally. Scared but optimistic!

  • Egads007
    Egads007 Member Posts: 1,603
    edited June 2018

    Sita, I've been following along your thread in the background, and thought it was time to jump out of the shadows. Robin is correct. The whole process is 'hurry up and wait'. I remember how difficult the wait was, so I sympathize. It took me a long time to realize that no matter how much I worried, that the end result wouldn't change. It's going to be, what it's going to be in the end. At that point I decided I would try as best I could not to waste time sweating it. The whole thing would just drive me nuts...I got sick of worry and managed to let things roll for at least a couple of hours a day. I would do things I loved and scream at the dark thoughts to go away, I told 'it' that this was my time and 'it' couldn't intrude for that moment. I did the marathon Netflix thing (helped big time) did a lot of home mani/pedis (concentration on it took my mind off things) and ate ice cream (not good for the waistline, but is for the soul). I tried not to hang out here too much, reading scary stuff, and tried my best to avoid Google...except for fun things. I know there isn't anything I can say that will stop your worry, but I hope you can find an hour or two a day to yourself, and be selfish with that time. This wait will end, all the worry won't make that happen any faster, so be kind to yourself. Big hugs and lots of positives your way.

  • MimiesMommy
    MimiesMommy Member Posts: 3
    edited June 2018

    Hi!! I am thankful for this forum. Being able to share my thoughts makes me feel a little better...although....I am crying as I type this.

    I am 41 and have been told that my breasts are dense which I don't think is uncommon. A large lump on the lower part of my left breast popped up out of no where last Wednesday. My initial thought was that it may be due to the fertility meds I recently started taking. I was able to see the OB Friday, shared with her that I recently started fertility drugs because we were having difficulty expanding our family and she thought it was a fibroadenoma but referred me for a diagnostic Mammo and US. I was so relieved when she said she thought it was a fibroadenoma. This past Wednesday, I went for the Mammo and US. The radiologist sat down and said there was a large mass and 2 other spots one was extremely small and I would not have felt it and the other was on the lymph node. She shared that she thought it was breast cancer and I needed to come back for biopsies. I was able to get scheduled for the biopsy yesterday. The radiologist that conducted the biopsies shared they won't know anything until they get the pathology report. However, I don't think a 30+ year radiologist would have said it looks like breast cancer if she wasn't fairly confident that's what it is. To make matters worse, I am constantly googling things. Every horrible thing that comes up, I swear is a symptom of mine. I have pretty much diagnosed myself which is absolutely ridiculous.

    Everything seems to be moving so fast when it comes to the testing but so slow when it comes to receiving the results. While I know I'm supposed to have positive thoughts, it is extremely hard. Instead of focusing on expanding my family, I am now focusing on what I need to do to be here for my little girl. The thoughts that come in my mind are scary and heartbreaking. All I can think about is my toddler. She turns 2 in July. I feel like my throat is closing but the doctor says it's just anxiety. I am usually so strong but I don't think I am handling this very well. I am thankful that my husband has been so supportive and has been there to hold me during most of my breakdowns. I get my results on Tuesday and we'll go from there.

    Anyway, thanks for listening. Praying for those going through similar situations.

  • MimiesMommy
    MimiesMommy Member Posts: 3
    edited June 2018

    Thank you. This is very helpful. I can't exercise because I just had my biopsies; however, I already downloaded the apps you recommended.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    Mimiesmommy do you have the report? What was your birad score?

  • MimiesMommy
    MimiesMommy Member Posts: 3
    edited June 2018

    Totally understand. I get my results the same day. I wish you the very best!

  • Mucki1991
    Mucki1991 Member Posts: 294
    edited June 2018

    MimiesMommy

    Reach out to your referring DR and get something for the anxiety lots of us have done it myself included. I have always thought of myself as a emotionally strong person but I needed a little help getting through the beginning phase. I was 42 when DX although my kids were grown so def different situations. I know it's hard to wait for answers but in the beginning its always hurry up and wait. Try to make fun times while your waiting because if you do join the club your going to wish you felt good enough to have fun during treatment. There will be plenty of time for bad thoughts and research days later.

    Best Wishes for you

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Mimiesmommy,

    I don't think there is anything we can say to make you feel better. Just know we have all been in your place and have gotten through it. What made me feel better was knowing that modern medicine has made so much progress that there will be treatments and options out there for you if you need it. I will be praying for you. Be strong.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    had my biopsy today. It didn’t hurt at all. Very quick. Worst part was being told they dont give results over the phone and my follow up appt is in ten days. I cant believe it :

  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2018

    I am so sorry for all you guys suffering through the anxiety and waiting game. It’s brutal. We truly know how all of you feel.

    There really isn’t anything we can say except we have been through it and all of you will make it through the process too. Is it easy? No it’s not but it’s doable. It’s a kick in the teeth to be sure. We all drew the unlucky card.

    You are in the early phases which is the hardest. All the uncertainty until a plan is in place. I think I went through it in a fog. The process moves very quickly - at least it did for me - once a DX is confirmed and treatments planned.

    I am 7 years out in August God willing. I had a tumor that was early stage IDC and low grade.

    They have come a long way even since my DX in 2011 so keep the faith and keep us posted.

    Diane

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Sita

    I am sorry they can't give it to you over the phone. Maybe you can make up an excuse and try to find out if it's at least B9 or not next week. Use some excuse about travel plans in the summer needs to be cancelled if it is not B9, etc. You have nothing to lose. I got my results over the phone, and went back to get copies of the results and mammogram/ultrasounds because my ultimate onco team was at a different hospital. Make sure you get copies of everything.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    I called to see if my results were in sooner & they are. I don’t have to wait until Monday. Going in two hours. Anxietyyyyy.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Good luck Sita! My results are in as well & I don’t want to wait until Monday either. Who would? Waiting to see if my PCM will be able to call & give me the results now.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    b9 results but must remove. Dr thought simple Fibroadenoma...it seems to be more complex, partly phyllodes. Needed to be removed.

    Report reads:

    Fibrocystic disease with areas of adenoids, Fibroadenomatoid hyperplasia, focal stromal fibrosis and fobroepithelial lesion with tubular areas. Negative for malignancy.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Congrats Sita! I hope it remains b9 once it’s been removed. My results appt have now been moved up to tomorrow at 11:15. Fingers crossed that I also have b9 results.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    I wish the best for you <

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