how about drinking?
Comments
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I'm here right behind Ingerp at Pupmom's suggestion...thanks Pupmom! Ingerp in reply to the Viking comment, I'm half Scottish so I'll be giving you a run for your money...my Odin lassie, what a combo!
The strongest I drank today was Perrier...am I banished?
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Good Morning, Loungettes!Happy Thirsty Thursday! I've got three appointments for estimates for installing a heat pump for a week from Friday. The second office Clinical Manager has had a nurse give notice and has asked me to work 2 days a week for her for a while. CM#1 at the main office wants me to commit to 2 days a week through the summer. CM#4 and one of the other Per Diem nurses are still playing games. I am not making any long term commitments, especially through the summer. Got some thinking to do this weekend, I can see. 4 days of work a week would put me in a really good place financially, but cut into my time off. If I give in and admit I need some help and hire some housekeeping help that won't be an issue. Ah, decisions, decisions! Started talking it over with Sadie last night. Her only comment was that she doesn't care what I do as long as I get her a wading pool for the yard and take her swimming at least once a week. She drives such a hard bargain!
Goldie--"end stage" COPD means the disease has progressed to the point where preventing infections like pneumonia and bronchitis is not possible, and that recovery from those infections is a 50/50 proposition at best, and the patient's lifestyle is severely limited. People who choose to aggressivelytreat every infection and keep up with the ongoing breathing treatments and oxygen supplementationcan exist with end stage COPD for years. Eventually a bout of pneumonia will not respond to any treatment and the patient will not recover. One option for end stage COPD management is comfort based care (Hospice or Palliative care), with careful thought given to the use of antibiotics and advanced breathing treatments like CPAP or intubation and breathing machine support each time pneumonia comes around. The big trick is to keep looking one step beyond where the person is now. A person with end stage COPD who gets pneumonia and needs more oxygen than just the little under the nose cannula can be put on anoxygen mask, but if that doesn't work then CPAP is next, which requires hospitalization. If CPAP (a mask held tightly to the face that provides oxygen under pressure) doesn't work then putting in a breathing tube and putting the person on a breathing machine is next. Most people with end stage COPD will not be able to come off the breathing machine once it's started, and spend the rest of their life (usually days to weeks, sometimes a few months) in Intensive Care and sedated so they aren't gagging on the breathing tube. When comfort care is the focus the patient and family often choose not to go as far as putting in the breathing tube and using the breathing machine. You'll hear this referred to as a "Do Not Intubate" order. Whether to go to the hospital and try CPAP or not is a decision point, too. Many families choose to try antibiotics to see if they will work, increase the oxygen from the under the nose cannula to a face mask, but not to send the person to thehospital any more. You'll hear this referred to as a "Do Not Hospitalize" order. The focus then becomes giving the person medication, usually morphine and lorazepam (Ativan) to the point that the person's breathing does not feel uncomfortable, and maintaining that comfort until death comes peacefully. Hospice works closely with the Nursing Home staff to make that happen. It sounds like your Mom's COPD has progressed to the point that she needs a bit of morphine to make her breathing feel comfortable even when she doesn't have an infection--this is very common. People can go along at this level for weeks or months, occasionally longer. The combination of morphine and slightly low blood oxygen levels is interfering with her ability to think clearly, so her mind is creating all kinds of entertaining thoughts. When this kind of thing is going on I warn family members that the likelihood of the person surviving the next bout of pneumonia is very small even with very aggressive treatment and talk with them about how far they want medical care to go, starting with talking about doing CPR when the breathing and heart stop. The chances of CPR working--meaning getting the heart beating again--is almost zero, and when it does happen there is almost a 100% chance of brain damage, and the person will live the rest of their life on a breathing machine, and that life expectancy is hours to days. A "Do Not Resuscitate" (DNR) or "Allow Natural Death" order will prevent that scenario, if that is not wanted. I'd recommend that you make an appointment to talk withyour Mom's doctor while you are home and ask about these kinds of things. There may be something totally different going on, something that can be treated successfully, but these things will need to be talked about sometime, and it's much easier for everyone involved to talk about them before the person is ill and declining rapidly and decisions and choices need to be made very quickly. The Nursing Home Social Worker can help you with setting that up if you want to do that. In the meantime, enjoy being married to a Prince of Egypt and all your Ladies in Waiting!
Chi--The hand problem sounds miserable! Which is the better scenario for you, a surgically fixable problem or the OT/PT route? I've been giving some serious thought to hiring a housekeeper. The daughter of a friend of mine has started her own cleaning business, and has grown it to the point of hiring another person. I'm thinking of talking to her to find out what she is charging and if she will help with decluttering projects, too. I know she loves to organize things, and that may be just the boost I need right now. Even if she only cleans, that will be someone coming in regularly and that will give me accountability, which I need badly. Funny about the Tempur-Pedic not dying and not comfortable. It seems like 16 years is a long time to expect ANY mattress to work! I bet the split king would be absolutely heavenly for you.
Ingerp and Egads007--Welcome!Yes, we do talk about drinking, and about a lot of other things. We also don't always remember things super well and repeat things, so going back and playing ketchup, as we call it, isn't necessarily helpful. Jump in here and join us!Pull up a bar stool, check out the pool with the swim up bar and huge screen TV and tell us about yourselves!Egads--drinking Perrier does not get you banished, not everyone here is imbibing alcohol all the time, sometimes we just talk about it!
Countess Bunty Rothchild's DOTD:
The Welcome Home Cocktail
Ingredients
- 1 oz. gin
- ½ oz. lemon juice
- 4 oz. champagne
- 1 oz. simple syrup
- Ice
- 1 brandied cherry
Instructions
- Combine the gin, lemon juice, simple syrup and ice into a shaker and shake well for ten seconds
- Pour champagne into old fashioned glass
- Add mixture to champagne
- Add cherry
- Drink!
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(1) Egads this is gonna be fun.
(2) I don't like ketchup.
(3) That Welcome Home Cocktail is pretty much the French 75s my family started drinking on our annual family ski trip this past year! It's been our go-to, to the point it was one of the pre-mixed drinks at youngest's college graduation a couple of weeks ago. :-)
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(1) Ingerp, yes indeedy-do
(2) not a fan of ketchup either
(3) waves & thank yous to Native, cool tour of the thread, love what you’ve all done with the place!
(4) On Gin - my half prude/half swears-like-a-drunken-sailor mother used to say *cue high pitched prudish voice* “only women if loose morals drinks gin” How she equates a liquor of choice to a woman’s honour is anyone’s guess. Think I’ll mix up a batch of Natives Welcome Home, give mom a call and say “hey ma’, no morals!!!” I won’t completely break her heart by waiting till noon
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Sandy, I don't have time to write a book, nor would I want to! Hoping your wrist and hand will be ok.
Welcome ladies, come in, imbibe and have some fun!
Egads, we don't banish anyone. Not everyone here drinks, but may pretend. We are a small group, as many have left, but we still have fun and at the same time support our sisters.
NM, I thought Sadie would have some better advice than that! I'm sure you will make the right decision. Just remember to stick to your guns. My mom did have a CPAP, but it's not being used now that she is in the nursing home. And as for breathing tubes and such, she doesn't want any of that and I believe she has a DNR in her files as well. They up her o2 a notch. LOL at the Prince of Egypt and Ladies in Waiting.
My 2 brothers, and one of their partners and my mom's long time best friend, who is also in a wheel chair, went to see my mom yesterday and we were able to do some facetime. Eventually they got her out of bed and to the dining room. She did not like that at all. Just looked so scared and constantly was looking around, she hardly even looked at me during the facetime. She started getting watery eyed and wanted to leave, as this is where somebody raped her! She also told me her room mate has been hitting her with a grab stick. It's so very sad to see, but I remind myself, she has done this to herself. Continuing to smoke after being told almost 10 years ago she had COPD.
ChEeRZ, ma dears!
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Morning ladies (gents if you're lurking) Funny how things work, I went to chat with my GP yesterday about my left ovary cyst - not 1, but 4
, 3 on left and 1 on right ovary...and she assures me they are simple cysts to be followed up with in a year. She then checked my chest as I had been in emergency Sunday and was told infection in chest wall or plugged mucus or some such, prescribed penicillin and doxycycline, so no alcohol (or Ibrance) for me till done. She went through the chest xray and it states mild COPD!! When I read above I figured wow - here is a wealth of COPD information (NM
) Seriously COPD! cysts! What next??!! DH figures cancer in lungs etc so I have not told him I am having a brain scan done (I will let him know at some point)...sheesh, I am sure the copd is nothing to fuss about - right??!
I am having a retirement/birthday bash for DH Sunday. Today is his last day after 36+ years, and Monday his birthday - I will be done penicillins so Happy Hour (s) can begin!!! Double Cheers!!
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If I thought my wrist pain was bad enough, I just returned from my wrist MRI--which was the longest half-hour of my life. (Yes, worse than active back labor. Worse than my C-section incision being sutured after the epidural began to wear off). 30 minutes of my life I can never get back...nor would I want to.
I had thought, "pfft, it's just my wrist, seat me on a chair and stick my arm in the MRI tube, and I can sit still for half an hour." Hahaha...first uh-oh was that I had to lie on my stomach (which I haven't done since I was pregnant 34 years ago). They propped me up with pillows, but my boobs got squashed and my face smushed into the pillow anyway. Then they extended my L arm all the way 180 degrees from my shoulder, propped my hand palm down in the "cradle" and taped it in place so I wouldn't twitch or tremble.
I didn't mind the noise--been there, done that, since I've had five prior MRIs and one each nuclear heart and full-body bone scan. (No, not the DEXA). They gave me headphones and I chose "classic rock," thinking I would get the usual mixtape I had for other MRIs. Nope--they had to use YouTube (!) because the hospital would have had to pay ASCAP & BMI to play a freakin' tape or CD even if they owned it outright (and a streaming service or satellite radio--both of which have the royalties built-in--would have cost them a subscription fee). That meant $%^&*() commercials (one in Spanish, for pity's sake) in between songs...six songs I will never ever again be able to listen to without breaking out into tremors and cold sweat.
You see--after one minute, my L shoulder began to hurt... then hurt worse & worse, like I was being suspended from the ceiling by my arm, which was being pulled out of its socket. "So this is what 'enhanced interrogation' feels like," I thought. The only things that got me through the experience without screaming or moving was singing along in my mind's ear with the lyrics of the songs I recognized...and thoughts of rewarding myself afterward with the most delicious and worst-for-me treat I could possibly find (hopefully, reaallly gooood chocolate cream pie). When it was over, I could not turn over and get up by myself. I wasn't dizzy but I couldn't move my arm at all! The techs had to walk me back to the locker room...where the combination I'd picked didn't work (thank heaven they had an emergency unlock code). I picked up my bra, expecting my L wrist to hurt--as always--when fastening it. I had so little strength and ROM in that arm that I had to call for the nurse to scoop "Thelma & Louise" into their respective cups and fasten the bra (on the loosest hooks). Only half an hour with an ice pack and then slow "wall-walking" with my fingers enabled me to finish dressing and get to the coffee shop--where there was no pie but there was a big handcrafted yeast-raised Oreo-crumb-glazed donut with my name on it.
My doc will get the report tomorrow or Monday, and he will let me know what's up (my hope & guess is just OA & inflammation, and my slow healing is due to letrozole & aging) and what's next. I will make my PT/OT appointments right away--same PTs who took care of my LE--because that might give me enough grip strength to play without people noticing I'm messing up chords too badly. And if something is really, really so wrong that therapy &/or playing might further injure my wrist until after surgery, we'll jump off that bridge when we come to it.
Y'know, if I weren't a guitarist and/or didn't have contracted gigs coming up (and a singing partner depending on the income), I could just put up with the slow healing.
DOTD--whatever is open and will go with dinner.
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Good Morning, Loungettes!Happy TGIF day! June is coming in with true summer weather (finally) complete with humidity and the possibility of thunderbumpers this afternoon. Got a shipment of rose wines in yesterday, got several in the fridge, can't wait to try them. Got a couple of favorites, too. Lovely to sit out on the back deck with acool drink of rose, listening to an audiobook, and petting or fetching with Sadie in the evenings, as long as the bug spray is handy as the mosquitos have come out in force. Love this time of year!
Ingerp--must be a pretty good drink, to be pre-mixed at graduation!
Egads--LOL, your Mom sounds like quite the character!
Goldie--Oh my goodness, your poor Mom. That is so hard to see. She's in the best place possible for her safety and care. Does her roommate have a TV on much of the time? I have found that many confused people hear things on TV and incorporate that into their mental ramblings. Now that Law and Order: Special Victims Unit is on during the daytime regularly I've been hearing a lot more confused people talking about being raped or attacked. Even the morning and noontime news reports are full of stuff like that these days. Hang in there. This is what years of smoking does to people. I wish more young smokers could see this kind of thing.
Janky--Mild COPD may not be anything to fuss about but is something that needs to be taken into account, like asthma. Happy Birthday and Happy Retirement to DH!Have a good celebration!
Chi--oh my Lord, what a torture session! I'm not sure I would have gotten through that, and I am amazed that you could! I'd have needed a lot more than a yeast-raised Oreo-crumb-glazed donut after that. Like a milligram of Xanax and a glass of wine with the donut!
Countess Bunty Rothschild's DOTD:
Lime and ginger Monkey Shoulder cocktail
Ingredients
50ml Monkey Shoulder Whiskey
80ml Ginger Ale
1 fresh lime wedge
Method
Add all the ingredients to a mixing glass. Stir gently with a bar spoon, a long teaspoon or a chopstick, until the glass feels nice and cold.
Carefully fill a long glass with ice and pour in your cocktail.
Garnish with the lime wedge and enjoy!
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I'm going on an overnight trip with my sisters and I am so looking forward to it. It sounds kinda mean, but it will feel so good to get away from work, home, husband, kids, grandchildren. It's only for a wedding and only for 1 night,, but I will feel light and free from responsibility. I don't even care if I get to the wedding. Its for a cousin and they have been living together for 9 years and I am not that close to them anyway.
Chi- maybe the FBI should get in on some of these torture tactics, I think that they could make you talk if you had any secrets to tell. LOL
Goldie, it is so hard to see someone you love in pain.
NM- I am glad that your weather is nice now to sit outside with a glass of Rose' and Sadie.
Janky- hope you feel better and that the party for DH was great.
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Good morning, Loungettes!Happy Saturday! We got our first really good thunderstorm yesterday evening, was great fun to watch and listen to. Got a solid quarter inch of rain in about an hour. I've got 3 people coming next Friday to do estimates for installing a heat pump, so I MUST get the living room and kitchen picked up this weekend,cuz I'm working 4 days next week.The Clinical Manager at the second office wants to go with me to the October workshop in Orlando, and has family in Orlando, and has offered to let me stay with her and her family! She has said I can have as much work time as I want to be sure to be able to go, cuz she wants to go but really does not like going to things like that by herself.There's a pretty inexpensive direct flight from here to Orlando, so I think I'm even going to be able to stay a couple extra days to play at Disney and get a mini vacay along with the workshop. I am pretty excited!Sadie won't be quite so happy, but I've got a line on a really good Doggy Hotel where she'll get lots of extra attention and I think she'll forgive me eventually.
Misty--I don't think it's mean to be looking forward to a get away with the sisters. I think everyone enjoys time apart occasionally. Or at least comes to appreciate the other more for a brief absence. I say go and ENJOY!
Countess Bunty Rothschild's DOTD:
The Vacation Cocktail
Ingredients
- 1 Teaspoon(s) Peeled and chopped fresh ginger
- 3/4 Ounce(s) Fresh Lime Juice
- 1/2 Ounce(s) Simple Syrup
- 1/2 Ounce(s) Light Rum
- 1/2 Ounce(s) Dark rum
- 1 Ounce(s) Mango juice
- 1/2 Ounce(s) Cranberry Juice
- 1/2 Ounce(s) Orange juice
- 1/2 Ounce(s) Spiced rum
- Mango slice
Directions
Muddle ginger, lime juice, and syrup in mixing glass. Add all but spiced rum. Shake with ice. Strain into chilled cocktail glass and float spiced rum on top. Garnish with mango. Serve in a Cocktail Glass.
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Morning - super Saturday- yayyyy! Bright and sunny here in Innisfail!
Misty - enjoy your mini vacay, yesterday I had a mini meltdown and was thinking similar thoughts of escape!!
DH's Party is tomorrow, so today I prepare, though not much to do as it is in the backyard and friends and family will bring the fixings, I am doing pulled pork today for the crockpot tomorrow!
NM - As my family has lived in Florida for 40 years+ I am familiar with Orlando and it is a great place to have a couple of extra days to yourself (sorry Sadie)! The time will fly by!
Enjoy a happy weekend everyone - cheers!!
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I got my summer highlights today. What do you think?
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Jazzygirl - the hair looks fabulous!! I am just trying to decide whether or not to color/highlight or stay 'gray' au naturel
If it wasn't for the roots I would go for color!!
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Gorgeous, Jazzy! Great 'do, too.
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Wow Janky, you are going through alot. Do think you have mets to the brain? I would not be happy about having to wait a year to get things checked. My onc wanted to release me to annually after I reached my 5 years. I said I wanted to do every 6 months until I reach 10 years and I wanted to continue labs as well. Good thing, as mets were found in year 6.
Sandy, your wrist is really giving you problems!
NM, I don't miss the mosquitos at all, however we do have gnats, and you can't feel those little buggers bite like you can a skeeter. And when you do find the bite, it's like a teeny tiny snake bite, with 2 marks. Scratch it and then it starts to ooze before it heals. Going to FL for a work shop, I think work should pay for your air fare. Do you think you will see JulieT? Moms room mate does watch TV, but I don't know what nor if it is on during the night. My mom always had her tv on, on the Animal Planet. I don't think it's been on since she's been there.
Misty, did you go on your trip this weekend?
Janky, you live in FL? I could not let my hair go gray, nuh uh, no way!
Jazzy, love it!
Been getting stuff done around the house and out in the garden before I leave. Have to do the garden in the morning as it has been getting into the mid 90's. Was talking with my mom the other night when they came in with her meds. She asked what they were...Melatonin, pain meds and 2 xanax. She refused the Melatonin as she thinks that is what is making her think crazy things. I thought for pain meds she was getting liquid morphine, so I don't know what the pain meds were.
Won't be here in the morning and maybe not for a few days, as I get settled in.
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Goldie0827 - A year does seem long, so I will push for a check in 6 months! I don't really think I have brain mets, though the headaches don't leave, vision blurry (SE prob), so I guess one more scan is not gonna do harm at this point
. To top off my woes I had a chest xray done and it indicates COPD rearing its ugly head. I was being treated with Penicillin for the travel 'bug', but I still have the cough, so I go back to my GP Wednesday to discuss options - sheesh!!! The cough is quite wearing...we lived in Florida many years ago but left shortly after the birth of twin boys (already had a 1 year old), so we moved to Alberta, where I live now, though originally from Quebec. Another long story
To all of us a Sunday Toast - Healing, health, happiness along with the bevvy of choice - Cheers!
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Good Morning, Loungettes!Happy Sunday Funday! Sadie and I had a totally lazy day yesterday. I never even got dressed. Called my Mom and told her I was pooped out and did not want to get in the car and go anywhere so I was skipping the bean suppah. There was a big crowd of them going, so I wasn't missed anyway. Got more energy today, already got the dishwasher emptied and a load of laundry ready to hang out. It was chilly when I first got up but warming up nicely now. Sadie has beengoing back and forth between lying in the sun on the deck and lying on the cooler living room floor right under the ceiling fan. And supervising the neighborhood activities.
Janky--I really am looking forward to the workshop and a couple of vacay days. I'm sure Sadie will survive, she always has, and she even, eventually, talks to me again after I get home!
Jazzy--NICE!!!!
Goldie--Work won't cover any of the workshop costs 1: because I am not full time, 2: I am not in management, and 3: it isn't required. Which is why I will be charging for my services once I get the Approved Educator rating, even to the hospice I work for. I know they would charge other agencies to have their nurses come to the educational sessions and get continuing education units, and I won't be used for the advantage of the company. I'm hoping to connect with Julie T while I'm there. We talk on Fb from time to time. Try having your brothers turn on your Mom's TV to Animal Planet when they are leaving after a visit, and ask the staff to offer. She might do well with something familiar like that on. She may be getting morphine in pill form, if she gets it regularly that's often easier for everyone. I wonder about the 2 xanax, like what is the strength of each tablet? How much is she getting at once? Too much can make people very loopy, I know from experience! Good luck with the garden work, watch out for the heat. How's the humidity there?
Countess Bunty Rothschild's DOTD:
Lazy Daze Cocktail Recipe
Ingredients :
- 1 oz vodka
- 1 oz melon liqueur
- 1/3 oz green creme de menthe
- 1 1/4 oz whipping cream
- 2 oz lemonade
Use a "Shaker" for Lazy Daze drink recipe
Shake and strain into an ice-filled highball glass. Add lemonade and float cream on top. Garnish with a cherry and mint sprig, and serve.
Serve in "Highball Glass"
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Wow Janky, from FL to Quebec, a little bit of a difference there! But if that is where you are from originally, then you knew what to expect. Wishing you luck and cheers on your upcoming doc and scans.
NM, nothing wrong with havine a lazy day! As for humidity, we are pretty much nil. I will find out what moms meds are when I get there. Brothers are not concerned and I think females are just more caring and concerned than men. Hoping you get to meet up with our DW, Disney Whore for our newbies. And if you do, give her a hug for me.
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Again i'm so far behind---this job is consuming me.
I skimmed <and I really don't like doing that> cuz I get all mixed up--so if I'm way off I'm sorry.
Misty never, ever feel guilty about any time u take for urself. It's a good thing to do that. LOL about not being that close to her.
Janky u've got a lot going on now, I pray u do better and things go OK. Holy chit back to Canada, ur a brave woman.
Lori ur leaving tomorrow and I truly hope things go better than u anticipate and when u come home u know everythings going in the right direction. and PLEASE try to take care of urself.
Kim ur going away??? That'll be quite a trip for you...safe travels.
Sandy OMG all u went thru and just a donut??? u just settled. But I never thought u'd have all that tho.
Jazzy u hair is gorgeous, BUT u do have great hair, I tried one of the styles u showed once, on u great on me Oy vey. I used to have super thick hair but grew back thick in the back thin on the sides and top especially.
I just thought I thought Id go gray but oh no, after a while it was horrible, not a pretty gray another oy vey.
One of my BFF passed away, <not cancer> she was older than me, but during all these yrs. she looked and acted much younger. My BIL and my dad just loved her as did I, it's so sad when people we love leave us. I've really been thinking of so many many times we had together some very sad but some fantastic and funny.
BTW I was here a couple of times but never submitted the posts LOL I don't know where they went.
LUBS U ALL
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Cami, I'm sorry for the loss of your BFF. It's hard losing someone. When my mom passes over, which I hope is soon, I will be sad, but only for myself, cuz I will miss her. She has no quality of life, whatsoever. I will be fine, and I will be fine when I come home. Going to take that time to take a break from my FU pills. A friend of my son's is going to help with the sale. I've never had a garage/estate sale before.
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Good morning and greetings from the hot southwest!
I am long overdue to write a longer note, been on the go with a few things but told myself this am, I need to write to my goils. I do lurk sometimes more than I post these days.
The hot springs last weekend were really fabulous. I stayed at a nearby inn owned by friends and also where they have jazz on fri and sat nights. This year I brought my flute and sat in to jam at the end, and played four songs total. I always get a bit nervous with standing up to perform, and these guys are so good. One of the guys who is a top jazz performer out of Santa Fe and I talked about the fact the all musicians, regardless of how long they have been performing, get some level of angst with performing/solo-ing. Anyways, I did just fine and got some nice compliments. I have been doing more of these public jam sessions and been well received so I need to keep it going as I can. Bringing me to the next level with my playing!
I spent one day at the springs on Sunday, and it was busy as they tend to be on a holiday weekend. Got over to grab a nice space on a lawn chair and soaked, got a facial and enjoyed some nice detoxing time. The only problem was I came home with a bit of a sore throat Monday that seems to have evolved into a bit of a late spring cold. Working through that mostly, and sometimes the springs does that to a person.
Short and busy week and interviewing for some new work with an org here in town. Second interview tomorrow and preparing for that today (they gave me some things they plan to review in advance of the call). I like that, it will help me to be best prepared!
I am not sure if any of you had oncotype dx as part of your testing process, but heard on NPR today they finally have published the TaylorX trial results for the "intermediate scores". I was in that category and my docs said there was no real data to support whether chemo would benefit me or not, but no one said "you really need to do chemo" so I did not. Sounds like the new data suggests there is no benefit for those in the intermediate zone either. Hope this helps some folks who may be in the process of
https://www.npr.org/sections/health-shots/2018/06/...
Cami- I hope you are doing okay with work, home and family. You sound busy sister. When does Joey finish school?
ChiSandy- did you get the results of the wrist MRI? Your last post says probably tomorrow.......
NM- how cool that you are going to get to do a conference in FL and a couple extra days there for fun. Miss Sadie will miss you and sure she is very attached to you with being home more, but no doubt she will get good care wherever you leave her. You deserve a break sister!
Goldie- thinking of you and your mom. I hope your DH is doing better and have safe travels. I am behind on the reading and scrolled back but will loose this if I go back another page and figure out where you are going. I just hope it is for fun?
Janky- you are entitled to a melt down. This stuff is hard, and sometimes it is all too much. We are always here for you sister, vent away! And my hair is completely grey these days, I dye the base color myself and just have her do highlights twice a year. I plan to let my hair go grey when I hit 60 (coming up quickly too!)
Mistyeyes- I hope you had a fun weekend away!
Lots of people here I am probably missing and hoping everyone is doing okay on this first weekend of June. There are storms rumbling outside today and rain falling again. We will take it! Until next weekend, be well and be safe my people.
Sending love out to all our sista's in treatment right now
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Hi girls,
Just popping in to say hello and that I miss you goils. Things here are still bad, no job. I am going to a job fair on Wednesday, hoping and praying that something happens.
I see a lot of new goils here in the lounge, welcome, muah muah muah. I love this place, jest been lurking here and there to see how mese goils are doing.
Cammy, sending love and hugs, sorry over the loss of your BFF.
NM, have a nice trip. Hope it is relaxing and loads of FUN!
Lori, prayers for you and your mama too. and some huggles as well!
Miss you all, take care. Until next time,
ChEeRs!
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Having a glass - I mean bottle of wine and reading a Nicholas Sparks book tonight. Just what I need.
I just wish I could do it without feeling guilty.
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Sorry about losing your BFF, cami. May her memory be for a blessing.
I would love to be able to try your haircut, Jazzy, but for three things: first, my hair is baby-fine, though porous when I sweat--then when it dries it looks & feels like old carpet if I don't flatiron it or hadn't gotten a keratin tx w/in the past 3 mos...which I haven't. I have to clip it up when I sleep or exercise to keep the neck sweat from frizzing it up, and when it's the slightest bit windy out (or cabdrivers refuse to roll up the windows and turn up the AC), because it tangles easily--and tangles=breakage when I try to brush or comb it (unless I painstakingly separate the knots strand by strand with my fingers). It's thinnest on top, and if I wear it anyway but long or up, it looks unbalanced. Back in the '70s I tried a Dorothy Hamill wedge cut--looked great at the salon but it was a bear to blow out properly without it waving the wrong way.
Second, unless & until I lose a considerable amount of weight, I need the length and volume to balance out my bodily bulk. Third, Bob is change-averse. When he met me, I had auburn hair (lightened from brown); several years into our marriage when money was tight and I couldn't afford root touch-ups, he took a long time to get used to dark hair on me (and never did get used to my wearing it mid-neck-to-short). In my early 30s, I was sort of strawberry-blonde, which was another shock. Been blonde since 1986, and it took him awhile to get used to that--once I'd grown it long again he said that's how he prefers it.
We went to brunch atop the Hancock today. Had champagne--and the waiter recognized me from having hosted a large group at Easter, so a mimosa magically appeared as well. With dessert, I had Inniskillin ice wine, from ON. Teetotaling the rest of today & tomorrow.
My singing partner & I will figure out tonight (either by phone or Skype) what songs to do with the "guitar-dulcimer duets" workshop we're co-teaching at the dulcimer fest next weekend. Others in the past have just demonstrated songs to which they strum their dulcimers very simply while the guitar does the heavy lifting. We're going to show how it goes both ways--and in some songs, both instruments swap solos. He will also be teaching yodeling and storytelling workshops; I will do a "beyond folk music" workshop (wish I'd thought to title it "I Can Do That Diatonically?"), and a demonstration of my Dulcimer Petting Zoo--will play a song on each of my different sizes of dulcimer, and then turn people loose to try them out for the rest of the hour. We also will play a main stage concert set. The dulcimer stuff shouldn't hurt (much, if at all), but for the main stage set I will have to soak my wrist in warm water beforehand and ice & elevate after. Our main stage set is Sunday night, so we needn't resort to Skype or Face Time (which can buffer & delay) during the week to rehearse.
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Chi- believe it or not, my hair is super fine too. I am amazed that my stylist can get my hair to look thicker. She is quite the master with her sheers and her color. The humidity right now helps my hair look better too (got a big storm today with lots of rain, whoot!) My hair is still thinner on top but see more growth.
Are you taking the AIs for 5 or 10 years? Your hair will change when you come off of them. Mine is much thicker after 3 months off them.
Cami- did I miss that you lost your BFF? I am so sorry friend. Sending much love
Dara- good luck Wednesday. Wear your snappiest outfit, bolster up that resume and you go girl.
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My hair had started to thin a bit even before the letrozole (my stylist hinted at perhaps temporary extensions if I had a big formal occasion coming up). I am nearly halfway through my 5 years. Not sure if my MO will want me to do 10, or will order the BCI test as I get closer to the 5-yr mark. It'll depend on how bad my side effects are by then, too. I'd be nearly 70.
I spoke too soon--my MRI results just came in. Not horrible but not as benign (in the generic sense) as I'd hoped. Good news: no fracture or dislocation, carpal tunnel syndrome, knuckle arthritis, ulnar tendon tear or tenosynovitis. Not-so-hot news: I didn't just strain the the TFCC (triangular fibro-cartilagenous complex) disc--I tore it, along with part of the "volar distal radial ulnar" ligament. (Hey, I don't do anything halfway). There's edema & synovitis of the wrist joint--and there's a little teeny chunk of either the disc or ligament floating around in the synovial fluid. There is "degenerative disease" (hello, osteoarthritis, my old friend) at the basilar and triscaphal joint, with mild bone-spurring. There is some edema in the "pronator quadratus muscle belly," which explains why it hurts like an m.f. to turn my hand inward. And that clicking I first had when supinating (turning outward) that seems to have healed is not my tendon flopping around, but that little chunk of disk or ligament getting in the way.
At least I know it's not wearing the AppleWatch that is causing this (there is some tinfoil-hat cuckoo-nutso theory going around the Apple message boards that the emissions from the pulse sensors on the back of the watch--and radio waves from the cellular version, which I don't have--are causing people's wrists to hurt)--I actually injured my wrist when I fell (and likely aggravated it trying to open that stupid Tylenol bottle to boot). If anything, my watchband is acting sort of like a wrist support.
Unfortunately, the report in my portal doesn't include the pix. Will ask Dr. Gray if he can e-mail them to me. And it's a good thing I held off on scheduling PT/OT--I need to find out what he wants me to do. If surgery is indicated, I might as well go ahead and try to play my gigs, since the same injury would have to be repaired either way. (June is a $1000 month for us--which also is AFM pension-eligible).
Not gonna tell my singing partner the results yet till I speak with Dr. Gray--no point in worrying him needlessly. We have a couple of Skype rehearsals Wed. & Thurs. afternoon, so I should know before then. Worst comes to absolute worst, I can still sing.
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Just read the NEJM article about the TAILORx trial--reinforces my and my MO's decision to skip chemo. I notice that while Genomic Health (OncotypeDX's developer/mfr) defined "intermediate risk" as 18-25, the study refers to 11-25 as "mid-range," aka "Arm B & Arm C--endocrine-only, and chemo-endocrine, respectively. It further splits the 11-25 group into 11-15, 16-20 and 20-25. (The only cohort among the 11-25'ers for whom chemo is beneficial is those under age 50 scoring 16-25).
Interestingly, there was no difference in disease-free survival, recurrence or all-cause mortality between Grades 1, 2, & 3, tumor size (1.1-5cm), or low vs. high clinical risk (the combo of menopausal status, grade, and tumor size) or even other genomic test risk groups (MammaPrint, Prosigna).
Except for the under-50 crowd scoring 16-20, there is no statistical difference between "Arms B & C" when it comes to local (ipsilateral) recurrence or new primary tumors, contralateral primary tumors, regional (chest wall, clavicle, new axillary nodes) recurrence or even mets. (The difference gives a tiny, tiny edge to "Arm C," but only a few fractions of a percent. When it comes to all-cause mortality, it flips: "Arm B" outlives "Arm C" by one decimal point).
The next arm of the study will be about women with one, two or three positive nodes, of all ages 18-75, and any Oncotype DX scores--which could take several years, perhaps a decade, because until a couple of years ago the test was offered to only node-negative women.
One of the authors of the study was Loyola's Kathy Albain--who was a resident at UIC along with Bob back in the day.
I wonder whether, given these results, Genomic Health will reassign its low, intermediate, and high risk groups...or maybe even ditch "intermediate" in favor of very low, low and high risk.
There will probably be a lot of very, very angry women who scored 18-25 over the years and had to endure chemo, possibly with permanent hair loss, neuropathy, and cardiac disease--just as there were women in the pre-lumpectomy days who were subjected to going under anesthesia for biopsies and waking up without a breast and all the axillary nodes on that side; and doubtless, 20 years from now, women who will find out if they could have safely stopped endocrine therapy after 5 years or skipped it entirely.
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Good Morning, Loungettes!Happy Monday Monkey Day! What a beautiful day we had here yesterday. I got the raised bed garden planted AND got 3 out of 4 sections across the fence done. Need to buy some more hostas and plant some sunflower seeds to finish the last section. Didn't think I could get that much done in one day! Got a bit of sun color to show for my work, too. Sadie likes it when I work along the fence, she can sit across from me and supervise from inside. Should be an interesting day at work, got an appointment with a family in the afternoon to discuss the ongoing care of a person with end-stage Parkinson's Disease that has developed the paranoid form of Parkinson's Dementia. Going to be a difficult discussion, but one that has to happen. Prayers would be appreciated.
Goldie--I think females are more detail oriented when it comes to health care stuff. I will certainly give DW a hug for you if I can!
Cammy--I'm not going away until October, but am looking forward to it! I imagine work is pretty busy for you these days, just make sure you take care of yourself. So sorry your BFF passed on, it is sad when someone we know moves on. And at our age it's happening more and more often. Hugs.
Goldie--Glad you've got help with the garage/estate sale. They can be a lot of work. Praying for peace for you and your Mom.
Jazzy--Wow, the jamming sessions sound like they were a lot of fun for you! So good to have something like that in your life. I wonder if the TaylorX results were behind the report I just heard on the news that most women with the most common form of bc (hormone positive, her2 negative, node negative) do not need chemotherapy. The report said surgery and hormone therapy alone was just as good as surgery, hormone therapy and chemotherapy. Just looked at the article, yup, this is based on the TaylorX results. I am really looking forward to the conference and a couple days of vacay in October. Sadie will be fine, and it's actually kind of funny how she tries to ignore me and still get tummy tickles when I get home from a trip.
Dara--Good to hear from you, I've been wondering what's going on with you. Sorry things are not going well. Still praying for you.
Readytorock--Welcome to the HTL! What kind of wine are you drinking?
Chi--the dulcimer fest sounds like a real blast!Love the idea of the Dulcimer Petting Zoo. Do take care of your wrist, though. Ooh, that MRI report sounds painful and complicated. You really do not do things halfway! Well said about the possible future effects of the TaylorX study results.
Countess Bunty Rothschild's DOTD:
Paranoia Cocktail
Ingredients:
- 1 part Malibu
- 1/2 part Peach schnapps
- 2 parts 7-up
- 1 part Assorted fruits
- 1 part Ice (crushed)
Pour the ice into a mixing glass and pour the Peach schnapps glazing them. Add malibu and transfer to a cocktail glass. Fill up with 7-up, and depending on individual taste, mixed fruit can be added to the top.
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Good morning- quick message before I get to my day.
Chi- I agree that the ranges will likely change now with the intermediate range going away and more of the "if you are over this, you should do chemo". When I was given my scores in 2012, the upper range was 31 so things have evolved there as well. Interesting about younger women and the intermediate ranges having a different recommendation, but given some of the challenges for younger women face with more aggressive cancers, chemo does make sense. My score was 23 for the IDC and the docs were really clear they had no data to support the decision. So it was up to me to decide if I want to do chemo or not. I said not. I was 52 at age of dx.
And I know people who were in that range and did do chemo, but it was also posed to them as a choice too. Many women choose more aggressive treatment, especially if there are young children at home (some women here on this thread are int hat situation, as we know). But to me, you make the best decisions at the time with the data available.
Cancer tests and treatment options are evolving all the time. When I did brachytherapy rads in 2012, it was cutting edge and now many places due in situ types of radiation vs. external beam. I just saw an ad today on the local channel for a new type of internal rads done during surgery. I was put in to a Harvard study by my BS for the internal rads study. The guy who did my rads in AZ was the expert in the world on this technique and he, my BS and the imaging center here teach on this all over the world!
Kind of cool one of the authors of the TaylorX trial is a colleague's of Bobs too?
NM- yes, this does relate to what you are hearing on the news. I was only familiar with the TaylorX trial because I fell in that intermediate zone. I had kept tabs on that for awhile but never heard the trial had finished. Until this weekend.
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Still trying to figure out who y'all are individually but I must ask--you have a Disney Whore?? Because my friends know all too well that I'm a little obsessed with that place. Really not majorly, but my endorphins definitely kick in when I even think about it. (Quick back story--hubs wouldn't be caught dead in an amusement park, so when my kids got older and started asking when they could go, I made the executive decision to take them each individually the summer after fifth grade. There just is nothing better than a mom and one 11-year-old boy doing the parks. Those were some of the best days of my life. So yes--I've been back a couple of times on my own. DO NOT TRY TO MAKE ME FEEL BAD ABOUT THAT.)
Other than that, the evening of Taxol #3 I finally got the first handful of hair. :-( The good news is it hung on through the weekend for my 40th college reunion. Besides that, we got a new dog yesterday. So yeah--SEs? Ain't got no time for any of that BS. . . (And after indulging quite a bit starting early May with my son's graduation right through this past weekend, trying to put down the bottle until a big fun Pig Roast on the 16th. ;-) )
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