Am I crazy for trying an alternative treatment?

Shockedat29 - I'm just chiming in that I hope you will at least do surgery.

I was also diagnosed young, and it's true that our cancers tend to be more aggressive and faster growing. Anyway, surgery remains the most important component of curing early stage breast cancer.

I appreciate you starting this thread - it's been interesting!

Personally at your age I'd be too scared to not have the surgery. You can get a lumpectomy and continue with alternative therapy to kill off any stray leftover cancer cells. I'm not even jazzed about keeping my tumor until the end of neoadjuvant chemo (though it's nice to be able to tell that the chemo is working). Keep in mind that just because they don't see any other tumors doesn't mean there aren't any in there. Especially small ones can hide out quite well, which is why they'll probably recommend radiation if you choose to do a lumpectomy. Good luck with whatever you decide.

hi shockedat

Thanks for opening this tread. I also try a natural medicine called mms even though many told me it is bleach and I am crazy lol

Well in dec 2017 my tumor was 6.8cm started this mms stuff and in March 08th CT scan showed the mass to be 4.5cm. This is so crazy cuz chemo did never worked on my bc back in 2012 so now this natural mms is doing it for me.

I just want to tell you keep trusting your own judgment. I am now following my own instinct

I am now reading all these post but I wanted to thank you for opening this discussion

Enerva, where is the tumor?

Enerva, thanks very much for explaining. I wish you the best.

Enerva, interesting. Thanks for sharing. I started reading your post very skeptical, but it seems like it has helped you.

let me explain, there are a lot of scams out there. For example my father is convinced that baking soda (!) is number one prevention and treatment of any cancer. I would like to see the evidence.

hi muska

So let me tell you why I think mms is the one doing the shrinking

When I saw the oncologist and he told me that surgery was no an option for me he also told me that 1 of my kidney the right one was also been affected due to the mass was blocking it and there was no draining and that I must go see a kidney specialist the following month in January. So when I left his office I had the prescription in my hand for the zoladex and letroze. But I went home and read about the SE I was also determined to do it the natural way this time and I was upset about the no surgery option.

So let me explain cuz unless you know my history with breast cancer then you won't understand my actions now. When I got the lump in my right breast in 2012. I was sent home saying is no cancer let's monitor it. I insisted and had a mamogram but the lump was very small like a grain of rice so the mamogram show it was just a benign cist.

Then it started to grow rapidly and by the time I saw the specialist it went to 2.5cm in 2 months and they wanted to take my breast away right away. I requested a nipple sparing surgery cuz I didn't want to lose my skin . The surgeon told me that 2.5cm was too big and that in order to get the nipple sparing surgery I must do chemo first to reduce the size. I was furious cuz I went to them when it was very small and they push me away then I had chemo in front of me as a must do in order to give you the type of surgery you want? Then chemo did not work and my tumor went to 13.6cm yes imagine that. And I still after 6 month of hell chemo I still asked for the type of surgery and the surgeon agreed to do it. Basically she could have done it at 2.5cm but instead forced me to do chemo first. Anyway by that time I already had lost faith in my team of doctors but I was against a wall.

Anyway back to the present. When I left the oncologist office on December 22nd 2017 I made a call to my breast cancer surgeon and I left a mgs saying please call me with an appointment I was a patient in 2013 and now I have a tumor but I am been told that surgery is no an option I need your opinion. So in my mind I kept asking why ? Why is this oncologist saying no surgery? If my surgeon was able to take a 13+cm tumor from my breast why she is no able to take a 6.8cm from my pelvic? Anyway I got a call back saying she could see me in Feb 14th imagine that. I was to wait again so long but is ok I took the appointment. And I researched the internet hours and hours I found that mms stuff and yes I agree it sound it wierd but for what ever reason the testimonials kind of stick in my head and I had to try since I was not wiling to take the hormones treatment.

So I ordered and I kept on searching cuz at that time I was no sure it was going to work I went nuts searching the internet. Anyway I started taking the mms on Jan 05 2018. I saw the oncologist and he sent me to see a specialist for my kidney appointment was for january 18.

By January 10 only after 5 days on mms. I felt different my stomach came back to normal size and I was able to go to the bathroom with no issues so I knew this stuff was doing some good. When I went to see the kidney specialist he told me that the only way to check the kidney function was with a test. Which involved going up with a camera till they reach my kidney. I them told him that I wanted to get the test but that if my kidney was ok I did not want the stein. My oncologist sent me there to have a stein inserted in my kidney

This dr agreed with me he said he would no do it unless it was necessary so yes I let them do this test it was horrible. But guess what ? My kidney was back to normal both in size and functional. That dr told me he has never seen a hormone blocker reduce a tumor and he said to me what ever you are doing keep doing it cuz your tumor is ether reducing in size or maybe it moved.but nothing is blocking the kidney path.

Ladies I do know I sound like from a wako place. But if you want I can send you my reports. That dr gave me a report saying my kidney was back to normal and that he did not need to insert any sten. At that point I was more convinced that stuff bleach or no bleach was helping me.

Anyway I am not saying mms will cure me for good cuz I am not sure for how long it can work. So I am still searching for more natural options. I also found the treatment of that dr. Burzynski in texas and yes call me nuts but I am selling my condo and if I manage to get enough $ I may go and take the chance. I watch all the videos of how the FDA try to taking down and 100 of patients who he cure for good went to protest. The videos are in youtube. Also I think his cure is a permanent one. Mms is something I will take for life since it won't cure permanent. Well I saw testimonials of people who take it for life like once a month or so as prevention. I am taking it every day until I know I have a permanent cure?

When I saw my breast cancer surgeon in Feb 14th she did agree with me. She said she doesn't think I am crazy for wanting the surgery. So I went to my gynecologist and now he will do the surgery even though my oncologist is not on board. I am also changing that oncologist. I am just waiting for a referral to see a new one.

Now I face another delema. The more I think about the no having my ovaries the more scare I get. But again I am against a wall. The gynecologist is wiling to take my mass or what is left of it as long as he gets the ovaries too. He says that since I am ER + pr + I should eliminate the estrogen completely. But something tells me I will be in more trouble no having the estrogen?

Please ladies give me your honest opinion on this.

Oh and I am not telling you to try mms I am only sharing my experience. That mms stuff plus I stopped eating meat and dairy cold turkey is what I am taking and it is helping me. My type of cancer laughed at chemo but somehow the mms is taking it away. From Dec to march it went from 6.8cm to 4.5cm. And my surgery is on may 23rd again I had to wait so long so I am hoping it ll be almost gone by that time.

I personally would take the doctors recommendations. I feel that if there was an aleternative treatment that proved clinically effective through clinical trials, all of us would be on it. I originally refused the tamoxifen but did the lumpectomy and radiation and I got a recurrence after 3 years. Could the recurrence have happened anyway? Maybe, who knows, but it shows us that BC tends to be more aggressive in younger women. Be whole with your decision to postpone, I have friends who did due to denial or disbelief and they have told me they believe their tumors grew more aggressively because they waited...Hindsight

If you go forward with treatment Iwould definitely recommend you do IVF and freeze eggs....good luck xx

thanks May

I think I will go with the surgery just to avoid the estrogen completely.

I also trust my gynecologist he is the only one who listened to me.

I fear how will I deal with the consequences of no having my ovaries but I guess many did it and some are ok

As per my eggs. Well that train already left for me. I now 44 and been stage 4 now I don't want children. It did hurt me to give that up in 2012 when I was 37 but now I am ok with the fact I won't be a mom.

Thanks for your opinion

I think the real cure is in Texas at that dr. Burzynski clinic. Just not available to some due to our money access ?

My condo sells this coming week and I will keep that in mind.

thanks for sharing this is all in the documentary

https://www.youtube.com/watch?v=rBUGVkmmwbk

Well my tumor is going down in size and that is what matters to me.

In 2012 I was given 6 month of chemo even though the doctors knew my type of cancer does not respond to chemo.

Now I am the one trying what ever I find so far what I found works for my type of cancer and that is great.

I feel everybody Is different and what works for some does not for others.

Is just the way it is.

thanks Rosabella

At this point I am not able to go to his clinic

I am taking natural aproach first. The pharmaceutical industry as well as the FDA have profit enough from me in 2012 when the doctors gave me treatment which was useless but harmful to me. That is how I feel

Thanks for understanding

Hi Enerva,

You asked about the dandelion tea, i tried it cause my husband read something about it on line, i drank it once, it was soooo bitter! I told my husband, i'll drink it if he does it with me😂

I'm taking a lot of supplements like vit C, turmeric, gogi berry, guyabano tea and lots of matcha green tea together with my hormone blocker and target target therapy medicine, my oncologist approves as long as i don't do too much of it. I also had my ovaries removed before starting therapy, i noticed immediate relief of pain on affected breast and decreasedin mass size, i will know for sure on my next scan in July. I will also start hot yoga next week based on hyperthermia therapy.

Shockedat29, any updates?

maybe i'll give dandelion tea another try 🤕At least for the diuretic properties.

My WBC is trending down, still within normal limots but it was at 9 before treatment then 5.2 now at 4.7, a noticeable slow decrease since i started gogi berry and matcha which also said to help increase WBC together with vit A, yogurt etc,. according to google search 😝, as long as it does not contradict my medication and my oncologist approves, i guess supplements does not hurt.

I start hot yoga next weekend👊🏼