Newly Diagnosed 39 yo; grade 3 IDC

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foreverfaith
foreverfaith Member Posts: 23
edited April 2018 in Just Diagnosed

I don't even know where to start. I was diagnosed last week on Tuesday. The first few days were just complete shock. Over the weekend it set in and I started going into panic mode. Today, I'm a little calmer. I did receive a copy of my pathology report, for which I spent hours googling everything on there! At this point I've met with a surgeon who discussed the several different options available. Thursday I see an oncologist. My surgeon was confident we caught it early due to small size of tumor, 1.5 cm. However my path report has me a little freaked out. My grade is 3; lymphovascular invasion is present and my Ki67 is at 70%. I'm not certain about my her-2 status. It stated pending on my report. ER weakly positive and PR negative. My surgeon seemed to think lumpectomy with radiation is the way to go, if my BRCA is negative.

I've read through so many threads here and have a huge heart for all the woman, along with their families, who are going through this. Never did I think I'd be here. Any insight you wonderful ladies have would be greatly appreciated.

Comments

  • VL22
    VL22 Member Posts: 851
    edited April 2018

    Hi cpusen- sorry you’re here. It is overwhelming and frightening for sure. This is a great place to share. You have just boarded the coaster and your emotions will be all over the place, which is normal and ok.

    Take a breathe and get all the information you can. I found taking someone else to appointments is a good idea - stress can make you zone out. A second opinion is never a bad idea. The pathology that you shared makes me think that Chemotherapy would be on the table, but I’m no doctor. I found looking at the NCCN website for breast cancer helped- it has information on treatment options per pathology .

    Best of luck to you and stay active here - it can really help..

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    Thank you VL22. I appreciate your feedback. It is totally overwhelming. Just found out my her2 is negative. My husband and sister plan to accompany me at doctor visits.

    How has your chemo experience been?

    This is such a crazy emotional experience. Next on the table is when to tell my daughter. She is 12 years old. We already told my son, who is 22. We are blended family. My daughter was with her dad the week I found out.

    I've already shared with my siblings and dad. Mom died of lung ca 10 years ago. Now, I feel like I want to wait to tell my daughter until after i meet with the Oncologist, so I have more answers for her regarding next steps. But my whole family knows and I don't want her to somehow hear it from someone else.

    My head was not in a good place last week.

  • Egads007
    Egads007 Member Posts: 1,603
    edited April 2018

    Hi Foreverfaith, One of the hardest things I've done was telling my son (17 at the time). I'm a single parent and since he was 7 years old we have been a team (exhusband is no help). I think you're doing the right thing by waiting to see the Onc. She's bound to have a myriad of questions so you're wise in getting all the info you can before approaching her. My son had a ton of questions and took it like a trooper for a day or two. Then the fallout happened. He was understandably shook up, scared and tearful. I told my son that we were going to get through this and that I would be fighting it with the strength of a lion. I told him that while I couldn't make any promises, that I would take all the treatment thrown my way and that I would make the transition into treatment doing my best to make sure his day to day wouldn't be affected if I could help it. Today my boy is 21 and so supportive. He often tells me 'if I was cancer I'd be scared of you too" lol. Little smartass. Its not going to be easy for you telling her and the only advice I can give is to present it to her in a comforting way, answer her questions with gentle honestly and ensure her you're going to fight like a lion.

    I'm so sorry you're in this position today. It is mind bending, especially at the beginning. Reach out on the boards often when it gets overwhelming. We're all here for you! Hugs!

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    Hello Egads. Thank you so much for your kind words. Your relationship with your son sounds so sweet. Even though these things are never wanted and extremely difficult to endure, I do believe that stronger relatioships can be built through challenges like this.

    I got a call from the onco. They had a cancellation, so I made it in today! Which was amazing cause the thought of waiting until Thursday was wrecking me. My cancer is triple negative so I'm not candidate for hormonal therapy and chemo (IV) is a must for me.

    I'm going to have the BRCA and other genetic testing done. After speaking with the onc I am leaning towards a lumpectomy as soon as possible and then revisit the situation, IF any of my genetic testing is positive.

    I want this lump out of my body asap.

  • lisaroz109
    lisaroz109 Member Posts: 14
    edited April 2018

    Like you (and everyone else for that matter), I never thought I'd be here. We shared similar weeks last week. Biopsy on Wednesday and was told to expect a positive report. I'm so glad you could get in to see the onco sooner than you thought. If you're like me, I'm eager to get a treatment plan, get this nasty bugger out of me, and start the healing process.

  • VL22
    VL22 Member Posts: 851
    edited April 2018

    forever - chemo is tough, but doable. Being TN can be scary, but you’ll feel better as you move along. I have 2 boys, 13 and one just turning 16 when diagnosed. I told them as soon as I was diagnosed- the only person I told before them was my husband. I just didn’t want them hearing anything from anyone else. Th roughest was my pathology was different after surgery and having to share that with them.

    My 16 year old stayed home from school the day after I told them, but they’ve handled it well and have made me very proud. Kids are resilient and take cues from us on how to deal with adversity.

    I was BRCA - and had a lumpectomy.

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    foreverfaith, actually grade 3 you may have better results from chemo. Chemo kills those fast growing cells.

    Good luck to you.

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    Chemo is definitely in my future. I guess being triple negative is also another bad layer of this. Had a visit with the onc today. Apparently this is an aggressive cancer and I'm leaning towards just getting it out via lumpectomy asap. If I'm BRCA positive then I will deal with that later.

    Do people normally continue working while having chemo?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2018

    One more positive, if you can think of it that way: higher grades seem to be able to respond better to chemo, like it makes itself more apparent, and chemo can seek and destroy because it's more visible, kind of.

    I had to hang onto little things while I was getting treatment. My oncology nurse told me that in her experience (when my white count was so low they nearly didn't give me infusion that week) that people who have side effects from chemo seem to do better in the long run. She had no science to back that claim up but it was a breath of hope to me, and I hung onto it when I was feeling scared and miserable.

    Hugs

    Claire in AZ

  • tlgio17
    tlgio17 Member Posts: 191
    edited April 2018

    Hi Foreverfaith,

    Sorry you have to join us here, but its a wonderful and comforting place to find answers and talk to other warriors. I just finished chemo last July (had radiation afterwards). I did work thru chemo, but I worked less days in the office. I had chemo on Thurs, took Friday off, then some Mondays. By the time radiation came I was very tired, so I ended up taking that time off (radiation is every day so more disruptive to a work schedule). I would suggest to take some time off at first until you see how you feel w the treatments and then if able to return a few days a week and work your way back to full time. It is all very overwhelming at first, but once you get into the routine of it all, the anxiety lessens some.

    Wishing you the best, you will be amazed at your strength thru all this!

    Traci


  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2018

    Whether you can work is different for everyone, but hopefully your employer will be patient and understanding.

    I had to take time off during chemo because I got sick for a long time after each infusion. I was able to work throughout radiation and felt almost normal, but just a little more tired and uncomfortable.

    Everyone is so unique in how they respond to treatment. I hope you sail through everything!

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    Thank you all! I look forward to coming to the forum and hearing from you all. One day, one thing at a time.

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    I was diagnosed last year at 37, stage 3. It’s very scary, but I think once you start the treatment process and have time to get used to it, things get a bit better. I am still struck by how much changed in such a short amount of time, how the last seven months have been all about cancer and treating it. I wondered if that ever goes away

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