INSOMNIACS place to talk in the wee hours
Comments
-
Been a bit busy with trying to play catch up with things I let go lately.
Sas, Princess is still a fireball around here. Although she is starting to mellow out a bit.
-
Junie Elliott loves a good stroke and a mock wash behind his ears, but is nervous of being picked up and cuddled yet. However the main thing is that Arthur our nearly 5 yo cat is not being too huffy about the little space invader! Can't say he's thrilled, but he's tolerating the invasion. Elliott of course keeps blotting his copy book by doing kitten things like pouncing on Arthur's tail!
-
Mags checking in as I listen to my daily 6 am alarm that I still don’t know where it’s coming from. New house noises don’t usually include a 6 am alarm, do they?
I just want to say, I’m getting stronger every day. Doc says I now have congestive heart failure, so I’m on a slew of new drugs for that, and I have someone from home health coming every day, nurse, ot, pt. I have yet to shower, and my hair is... ugh.
The house is wonderful, and work continues apace in putting things away, with little more than a nod from me. The kitchen is a mess, since I gave up my big china cabinet with the dining set. There’s no formal dining room here, and we’re past a need for it, but I may need to supplement the one curio I kept, but it will be something much different. I’ve spent way more than I should, I know, but I’m a woman on a mission at this point. My son is arriving Sunday for a whole week, and we’ll be together for my birthday for the first time ever. He has to drive down to Dallas for a meeting Wednesday, the cause of his week here; he arranged to “work from home” the remainder of the week, from my home this time! I had already been planning a housewarming for next Saturday, so it will (hopefully) work out perfectly. My sis has been here this week, breaking in the guest room so to speak, although the last couple things I ordered are coming Monday.
I ordered a rug from Wayfair for the living room, and when it arrived one side of the edging was defective. A call to Wayfair resulted in immediate shipping of a replacement, a 10% coupon on my next order, which I used immediately, and the defective rug? “Sell it, donate it, use it somewhere else.” No need to return. Love Wayfair. Rug’s going in the estate sale. Hehe.
I have a sweet friend who is a buyer for interior designers and she’s coming over this afternoon to help us figure wher to hang pictures etc. nice to have friends in high places so to speak.
All in all, I’m a relatively happy camper this fine morning. With an amazing story to tell. Love to all my Owlies, you are the awesomest womens in forever.
-
Fab Mags. Enjoy your DS's visit.
-
Feline, glad Elliot is settling in nicely.
-
Feeling heartbroken and devastated. Just got word that a dear friend and former high school classmate passed away. Last time I saw her was at our class reunion five years ago. Heaven just got a little brighter and gained a wonderful angel!
-
Lover, so sorry your DH came back sick and you caught the bug. Hope the two of you are over it quickly. I so admire your husband with the volunteer work he does. I second Feline in he is a hero. You've got a keeper! I know it isn't easy being the one at home with children to take care of when husbands go on travel. When our kids were younger my husband had to travel a lot. Never failed, seems like one always needed to go to the emergency room. One time, our son hadn't gotten home by 7:00pm from school. I called my husband to let him know. He asked what I expected him to do. I told him if I had to worry he was going to have to worry too. A few minutes later our son called. He went to a mall with friends and didn't have change for the phone. I asked how was he calling me now. I asked a friend if I could borrow some changes. I asked him why didn't he think of this earlier. Shall we say dumb silence ensued! This is from the kid who would make a local collect call home when he didn't have change! Glad to hear your dad is active again. How are your DDs doing? And most importantly, how are you other than the respiratory infection? Keep an eye on that bugger.
My eye started bothering me and went in to have it checked out. Was told it was healing nicely. Couldn't find anything amiss. I think stress is affecting me/it. Hubby has health issues that he ignores and they came to a head two days after my surgery. He landed in the hospital for two days. He went hypoglycemic due to an infection and his discharge papers have him taking his insulin as if he is hypo. He is definitely uncontrolled hyperglycemic so you can just imagine what his numbers are like. Finally got him to contact his endocrinologist and are awaiting his e-mail. I'm ready to spit nails at him. PCP told him if he kept up his bad habits he's looking at 2-3 more years. As the doctor was talking to him, he tried making light of things and I just kept saying, "Don't. It isn't funny." Our daughters blame me for not getting on him more but there is only so much I can do and believe me I have tried. I can see him tune me out the minute I try to help. At some point, he has to own his health issues and become responsible for his actions. What I find amusing is I have the same health issues and some, but I do own them and I do try to do something about it and will own up to my mistakes.
Mags, so glad you are in your new home. Interesting mystery you have. I could understand if you were in a row house and your neighbor's alarm clock was at the same wall to you but this one is a puzzler. If you find the answer to the mystery, please share it. Enjoy time with your son! Praying for you. You've had it rough lately.
Jay, you asked about cataract surgery. The eye surgeon goes in and breaks down your natural lens, cleans out the pieces and puts an artificial lens in its place. I went for the monofocal lens for distance as I have astigmatism so will still need glasses for reading. There is a new multifocal lens that can correct both but it's not covered by my health insurance. I would have had to go out of pocket way more than I wanted. That was not going to happen.
Junie, keep us posted about your surgery. Will start saying prayers for you. You need to catch a break. How is Kirby doing?
DS and his family arrive on April 27 and will then go to San Antonio on May 7. He has a conference he has to attend there. I haven't seen Toko, DDIL, for six years. Love her dearly. She's a school teacher and they go year round. DS's conferences haven't synced up to her schedule for awhile. Getting excited!
Feline, Elliot is adorable. I can just see Arthur now when Elliot goes for his tail. They look like they are from the same mom and dad. Did you plan it that they would have basically the same markings?
Need to get to bed as I have another early day running hubby to medical appointments.
Nite, nite ladies, morning Feline.
-
Morning Kath.
Total co-inccidence that Arthur and Elliott look alike. We were matched with Elliott by Cats Aid a rescue charity - we didn't even know what he looked like until they sent a photo!
Best wishes for your hubby. I wonder if joking with the doctor is his way of coping, and it is understandable that it is so very difficult for you to watch when you don't feel the same way. You know all that Men are from Mars stuff. Sometimes it's true. It seems very hard that you feel blamed by DDs. Is it possible that they could tell their Dad themselves that they love him and don't want to lose him?
XXX
-
-
Didn't sleep well last night, the news of my high school classmate's passing hit me really hard. Still tearing up every time I start thinking about her.
-
Mommy sorry to hear of your bereavement. I remember the shock of hearing that someone from my year had died at our 25th year reunion. In my case I didn't even know the girl well, but it seemed so unbelievable. (This was before BC btw...) I hope your classmate is in a happy place being welcomed home by friends and loved ones who have gone ahead of her.
-
Condolences for the loss of your friend, Mommy. It's a bit creepy when they're your age and a friend.
Mags, Perfect sign!
-
Yes it is. She was the class President in our Senior year. Same age as my older sister was when I lost her. I still remember what she said to me when she found out I had cancer. She told me that's she wanted to see me at our next class reunion and that I was to kick it's backside hard and send it packing!
-
Spot on Mags!
-
Of course, being me, you all know there’d be a story behind that meme.
Its date in my camera roll is May 6, 2015. I had just found it, probably on Facebook, and texted it to my Missouri friend, and walked out to the hall where DC was standing, and as I was sharing it with her, we heard the crash from the other end of the house and went running, to find DH had fallen, the first of 3 times in a matter of minutes, and of course he wouldn’t let us help him up. Insisted he was fine when he obviously was anything but. He went in the bathroom that was right there, wouldn’t let me in (fortunately didn’t lock the door as he usually did). Moments later, another crash. I opened the door to find him slumped over the side of the tub, still sitting on the stool, covered with feces, and half conscious. DC meanwhile on the phone to the ambulance. I kind of got him cleaned up a bit and DC brought a chair for him to sit in, but he fell in the hallway and that’s when the ambulance arrived.
The beginning of my nightmare. Yet I share the meme with you, and we can all chuckle about our men: can’t live with them, can’t shoot them.
-
Sorry, Mommie, so sad. Hugs
-
Thanks Sas. Been sitting here remembering the good times and the jokes we shared.
-
Yup Mags, it must be a male gene thing. I was so not happy with hubby making jokes about his health that when the doc told him if he stayed on the course he is on that he is looking at 2-3 years top but it could be shorter. Doc looked at me and then to himand said it could be justifiable homicide on her part. Stubborn fool is what mine is.
-
I am thankful today despite the challenges of life. Hope to be back later. Muah.
-
Mommie, the memories of life a loss, so surface with each loss. I haven't read that this happens, it just kind of my own personal thing. But it could be a wider thing. We feel the loss of the person that has just died, then we start thinking about other losses, and ourselves. Like our dying. It all gets in a kettle of soup thoughts. Then we stir the soup. Instead of blending, we get these flashes appearing like alphabets in soup. Each letter is a memory. Then it fades back into the soup. But we don't want it to fade back into the soup. We want it to keep the letter right where it is.
These days will be hard. But if you have Faith, you know you will see her again. Faith in life after death, in the soul, in the spirit, in the essence of what we are, is the whole reason to believe in God. IF that thought does not exist, then why anything in life. They're can't be a nothingness after life, b/c we wouldn't strive so hard to complete life or value life as we so strongly do.
Her last words to you were to fight hard so she could see you at the next re-unioun. She believed in you, she believed in Hope. Now the tables have turned. The fact of life is, we know not the time or place we will be called.
Love you sweetie, no gentle hugs here, just really squeezing hugs. sassy
-
Thanks Sas. Slept a bit better.
-
Oh Mommy, I am sorry to hear about the loss of your friend. Just as Feline said, I hope she is reunited with her love ones in a better place where there is no pain and suffering. Hugs.
Feline, I agree Elliott is adorable. Hope he will learn some manners from Uncle Arthur soon
Kath, it’s not as tough now when DH is away compared to when the kids were little. Thank you for sharing your story regarding DS
Kids! Hope your eye is better. Do you still have eye dryness? The dryness has to be uncomfortable post surgery. So stressful when our love ones don’t take their health seriously. Mom is one. Sometimes DH is stubborn too. Told him if something happens to him I am spending all of his hard working $$$ ( he is quite frugal) Hah! Mags, I am curious about your 6 am alarm too. Hope you continue to feel better each day and the CHF is just an acute episode.
Ms. Sas, we need to talk. Not tomorrow as it’s my work day . Maybe Tuesday after 3 pm your time. So glad you talked Mags’ team into changing metoprolol to Coreg. Good choice. As far as ARBs, there is no solid evidence that they cause cancer. I was able to pull up several articles on the the different trials on ARBs. There are conflicting findings. I found one interesting writing on the study of the studies that claimed the possible link of different cancers to this class of drug. Possible bias in these trials. Ironically, it’s possible that ARBs are good for people with BC based on their mechanism of actions and the role of over-activation of angiotensin II receptors in the pathogenesis of some cancers. Dang that was a mouthful. Hah. I need to read these articles again before we chat.
GOt to go. Hello to my other sisters.
-
Mommy, doing okay?...............
Donnie did a paint job today. First, we didn't talk about the work. I said that we had to add a piece of molding to cover where the hinge groves where for the french doors that were taken down. He was okay with that. He was painting the area. He went to get up and put the end of the brush on the couch, then countered that movement by putting the heel of the palm, it had paint on it. Donnie can do many excellent things, painting he's learning. It worked out with quick response. Only two permanent marks on the couch. which are very much smaller than originals. ............Then he painted an area that for 25 years I didn't want to paint b/c it was wood. I really disliked it b/c it wasn't appealing , but it was wood. Anyone that has refinished wood knows what a PITA to the max it is to take it back to the original wood. SO, for 25 years I put up with something I disliked. Today it got painted. A 25 year mistake. Looks great.
A Mags report, son coming into night for a week, No negative medical stuff. House Blessing tomorrow, Her sisters birthday is tomorrow. Mag's birthday his Wed. She described that she was her sister's birthday gift when her sister was five. House warming next Saturday. She had a friend show up this Saturday with a great desert , great visit. Friend got the date wrong. Great visit. Friend coming next week again. Yes, I'm very involved in Mags life right now, Tooo much, but there has been an intensity.
Update on Phyliis----Aka PDGraham. She is doing excellently on her latest trial. Greatest side effect is sleep attacks. NO OTHER negatives, which is light years away from her other trials.
Beatmom, Phyliss told me about travel plans and I already forget, but I think she will be travelling soon. Apparently you are close in proximity to Mags.too.
-
Loverly, Oh so thank you on the ARB research, I think I mentioned I was on Micardis when I first heard the connection. I, of course, wasn't happy, as BC was strong in the family and I was on the drug for two or three years before dx. I didn't need to add another risk factor. But it does swing to another question: Is there a genetic question with ARB's ? If there is any thing that floats to the surface in your research.........The conflicting research is always troublesome. Okay from a different angle "Is there an Ace inhibitor or ARB that is best used or lest connected with cancer?". It changed the question a bit, I recognize it changes the search majorly to pin it down.
I love Coreg--Carvidiolol. DH was put on it when he went from a 55% EF (ejection Fraction) down to a 20% EF. That occurred after being increased on his statin drug In one month he dropped on the EF. It caused him to be immediately disabled. 15% EF is transplant criteria. He was put on Coreg. Over time his ejection Fraction came up to the low 50's It was so impressive. But then when he needed a certain chemo his MUGA scan showed he was 46%. That chemo required a 50%.
For anyone reading, a normal EF is (without looking it up) is > 50. AND not to worry if it is 50 or greater. BUT I'm at the age of forgetting.
What is GREAT about Coreg Carvidiolol is DH came up over time to a > 50% EF. At the time he needed the EF to > 50% it happened to not be <50%. BUGGER. I forget why the drop, there was a reason..............I forget.
There was a beta blocker thread I did because beta blockers were connected with reducing recurrence for BC. With that thread I think I listed all new Beta blocker drugs. I was surprised about how many Beta blockers had been introduced from the time I became inactive in that area.
Supposin I should link to that thread BBL
Okay this link goes back to 2016.
https://community.breastcancer.org/forum/73/topics...
Actually, asked MBC friends to talk to their docs bout adding low dose beta blockers to their regimen. No body to my knowledge did it.
the study identifies propranolol and nd NSAID. . The reason they used propranolol was it was the first drug in the class of drugs.
When a Novel(new) drug class is identified the greatest amount of research is spent on this new drug class. Horrendous of amounts of research and dollars. Propranolol aka as Inderal. Wasn't the greatest drug, but had some interesting collateral affects. It was used for migraines, essential tremors(shaky hands), and social anxiety. I say collateral affects versus off use label.....strange I would use collateral. BUT it is greatly noted for those aaffects. BUT>but it was also known for a blood pressure rebound affect if a a dose was missed... and that rebound effect may get out of control. ERGO, the next generation of beta blockers didn't have that problem. The greatest was metoporol still the #! drug seller in the class. But I believe Coreg is better. DuH, that and 10 cents won't buy a cup of coffee i.e. I could be wrong.
New drugs are in the beta blocker class. Each drug comes to market b/c it has a particular niche in the class. But I learned over the years it can be safer to ask for and older drug that is tried and true----also free or cheaper
-
Tooo much? Oh Sas, please don’t say that! You’ve been my lifeline and link to sanity and key in my healing process, as well as sister and friend!
Indeed, my son is here, and I am content as the cat who found a bucket of cream. Such peace!
Love to all of you, Owlies. More soon…
-
Doing a bit better since my friend’s passing. Taking it a day at a time.
-
Mags Okay dokey. It has been a very wild ride. By now the house blessing is done. It's such a nice ceremony.
Loverly, I will be here Tuesdaay. Send me the link tor what you want me to read. The only reson I wou;dn't nswer is if I had a sleep attack.
Hugs Mommie
-
Thanks Sas.
-
Hi Ladies
Been reading all of your posts, still trying to catch up.
Sas
I just sent you a private message. I just now saw it. Be prepared, it's long. Lol. -
Morning Jay, glad you are back. Trips are nice i.e. traveling type versus my trips that are usually falls. I think it's time for phone call. Think about connecting by phone with some members. It is wonderful for many reasons. We are all going through this. We can talk about stuff that others just are clueless about. Cancer can be isolating. Not everyone that you talk with by phone will become a BFF, but it all works itself out. Also, some prefer not to talk on the phone.
Shep is there a way I can darken up the print on the screen?
Junie how's surgery prep working out?
I'm still working on hearing aides. Just found out I have some coverage for the three different types of devices. 1.cochlear,2 bone implant for mixed ear,3 hearing aides. For some reason the gal in Jan told me I didn't have coverage for #1&2. But I will have to travel > an hour in each direction. At least this way I can get the proper device.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team