INSOMNIACS place to talk in the wee hours

Anonymous

Oh My!

Dear Kath,

I am so sorry for the horror you went through. I had corrective surgery on both my eyes - at the same time - about 17 years ago. I too was wide awake and scared out of my mind. I didn't feel anything at all though. Of all the people I know (including my super sissy BFF) who have had cataract surgery, not one of them felt anything during the procedure. I'd definitely give that doc the boot . So, so wrong that he wasn't even concerned when you talked to him after. Can you consult with a different and hopefully better surgeon?

All the chit I've been through and the eye stuff is still the scariest to me. I totally understand your fear. I hope your eye isn't too uncomfortable and heals quickly. Big (((HUGS))) to you and may somebody put boogers in the next meal that bad man eats!

Sassy,

You are amazing. You were able to provide better care and information over the phone than anyone who was actually there working at the hospital.

Loverly,

How can I ever again post pictures of rotund sexy fellas for you when you continue to be so heroic with your vast knowledge and caring heart ?

Sas & Loverly our BCO Angels 😇

Miss Blue,

I've been greatly enjoying Skunk Medicine - such a wonderful read! I was so looking forward to reading how the skunks and Jesus were going to tie in together at the end of the book. Had a good chuckle that you were referring to a different book you'd written. Now I have another good book to look forward to reading. Still disappointed that there will not be any tails (ha!!) about Jesus and the skunks.......

Mags,

You are an amazing woman as well. Amazing and strong! As much pain as you were in, you were able to reach out and get the help you needed. I sincerely hope that after getting the "riot act" from Sas that the staff will step up. I also hope they will move you to a unit that will provide the comfort and care you need.. Feather soft ((hugs)) to you. And a barrel of boogers for the nursing staff's coffee!

Patty,

Always in my thoughts and prayers - Just like Mags, I believe that God still has plans for you - good ones!

Junie - Where are you?????

For all our dear Sisters .........

feelingfeline

Hi Shep. I love the avatar. We have adopted a new kitten (Elliott) at our house. Our 5 yo cat Arthur is not over the moon, but not too hostile either. XX

sas-schatzi

Hello, Mags was considering going home this afternoon. I'll call tomorrow and see what she and her doc decided. We chatted about much . One thing was home health and how to check out the house to "make sure the house can't hurt you"

Mags I broke a rule, I walked into an unlighted room. First dog fall in over a year. Lots of boo-boos. Worst is right knee. Scariest ever though is my head hit a concrete corner at the bridge of my nose. It's still thumping, It's not swollen or bruised. I think I hit a nerve, but the thought what a bit different fall could have meant.

Shep Mags did have an event yesterday and they followed ACLS protocol perfectly. Mags felt very positively about how it was managed. I also heard from her that she understands what she needs to do when she goes home. I deleted my post regarding the first event. Cuz I thought I should. I wrote it when I was still very emotional about the scenario.

Kathy still shaking my head.So sorry.

magdalene51

Mags was a bad girl and did not obey Dr. Sas, had to go to new house. Everything was ok until about 2, when I woke with a little shortness of breath. Controlled breathing and kept panic down, but no improvement. Texted DC at the other end of the house; she was awake and came. Sat on bed and prayed with me, then got her pillow and blanket and slept on the bed all night. Breathing regulated, no panic.

Mags is in her new bedroom with a big cup of coffee.

Have a Blessed Good Friday, Owlettes!

feelingfeline

And the same to you dear Mags. X

jaymeb

Yayyyyyyy Mags. I was really worried about you. I prayed you would get out of the hospital, and had a good feeling you would be in your new beautiful home. I can just see you in now, in bed with a huge cup of coffee. I love coffee, couldn't leave home without it. Not the nicest morning person. Hmmm, you should have sent a pic.

Sas and Loverly

Wow, you ladies don't play. You know how to get shit done!!!!! What a godsend you are!!!!! Mags in her house. Wow🙏🙏🙏🙏. So happy for you.

Mags, how are you feeling overall? Was your house completely ready before you moved in? Please take it easy on yourself. And be a good girl.😀😀👍👍

jaymeb

Kathindc

I'm so sorry you're going through all this crap. I'm not really understanding what theses docs are doing? By the way, what specialists do cataract surgery? I've never had it, although one day, I'm sure I will. I thought cataract surgery is supposed to help you see better. What in the hell is wrong with the docs???🤦♀️🤦♀️ If you don't mind, or anyone, please explain how cataract surgery is done the right way? How long is the norm to heal from this?

jaymeb

Shep

Thanks for sending that prayer. I love to read anything that helps us stop, and think what we do have. I've been in bed all week thinking I had the flu, but I think it was some kind of virus. Couldn't keep anything down. So, today I finally made it from the bed to the couch. Big accomplishment. Sigggh.

Shep, another dumb question, do you have a cat? Sometimes when a pet owner has a pic of their beloved furry ones, the cat or dog could be deceased. If you have a cat, what is it's name? I'm forgetful, and I hate it. Really depresses me.

jaymeb

Sas

What are you doing to your house? Love the pics. Would really like to see it when you're finished. Hope you post more pics. You tripped over your dog? Ouuuch. You've been very busy. What you did for Mags was great. Although she disobeyed you, hehehe, I was so glad she made it home. In her bed with coffee. It's amazing how these tough ladies, Patty, and Mags are not giving up.

And Loverly, Ditto!!! You and Sas make a great team. Even though you two are on opposite sides of the coast, I could see you ladies working together doing, well anything to make this world a better place.

jaymeb

Junie

Howdy. Hope you're doing ok. So your getting Kirby groomed. Not sure if I've seen a pic. My damn tamoxifen causes memory lapses, and scatteredbrained. I hate it. You're having surgery? When? What's wrong? Glad you have a lawyer on that high speed case. What were those idiots thinking, flying away from the police? Well, I'm glad you have your lawyer handling it. You have too much on your plate. When you can, explain to me what's going on with you?

jaymeb

Well, finally going to bed at the crack of dawn. Maybe I can get 5 hours sleep.


Ladies, have a wonderful Easter weekend.

PattyPeppermint

happy wonderful Easter to all

Hugs

Hootie hoo

magdalene51

My Missouri girlfriend always gives me moo things. She got me the moo cup while visiting Hershey PA a few years back, and with very few exceptions (like this week) its what I have my coffee in. When DC unearthed it last nigh, she made me a cup of decaf so I could let my GF know the moo cup is back in service.

Anonymous

shep yes that's in A Breath Floats By 2nd edition w adams as author. And there are skunks and Newfoundland dogs in it. So you'll like that.

Anonymous

Miss Blue ~ Yay! Very much looking forward to reading. Hoping your scan results came back A-Okay and you are feeling more comfortable .

JayNC ~ Yes, that is my kitty Pris. She is an American Bobtail and looks like a tiny Bobcat. My beloved German Shepherd Marti passed away last July - she was almost 14. She and Pris were true BFFs. Ellie Mae is our 4 month old Bloodhound. She is about 45 lbs and four feet "tall' when measured all stretched out. Pris doesn't like her 'cuz she likes to body slam the kitty.

Feline ~ Poor Arthur! What a terrible shock it must have been when his kingdom was infiltrated by a cute little fuzzy-wuzzy. Hmmm.... who will accept their unwanted sibling first I wonder? Arthur or Pris?

Mags is home and in her new house!

Patty ~ Hootie Hoo, you're home too!

Stay healthyish and happy Dear Owlies!

Easter blessings to all! 🐇🌷🙏

feelingfeline

Hi Shep.

a Happy and Blessed Easter to you too.

Arthur is doing pretty well.only a hiss when Elliott goes for his tail!

What a gorgeous skunk and Easter Egg pic - perfect for Bluebird.

XXX

JunieB

Well Good Day to you all,

It is 4:44 a.m. here now and I have yet to get to sleep, despite having taken double my normal sleep meds. So frustrating! At least Kirby is warm and comfy in bed.

First, my attorney called to let me know that the bus that I was on is owned by the city it runs out of and therefore is a "Public Entity" and is not required by law to carry Personal Injury Insurance. Go figure. The man who caused the accident is a transient, therefore no insurance or money. So it appears that Medicare may have to pay the medical bills for this misadventure. :0(

I had an MRI of my Thoracic & Lumbar spine last Thursday. I hate the older MRI machines. I feel like a stuffed sausage in them. I had a bit of a panic and had to be pulled out to take some Xanax to finish the scan. The results show that the L3 fracture is better, but I now also have fracture of L5 (which the neurosurgeon believes is from the accident). So the plan as of now is to do a Kyphoplasty + Fusion of at least L5-S1 and I need to talk to him again about L3. In the meantime I see my MO on Wednesday for treatment and to discuss how long I need to hold the Ibrance before & after the surgery.

I worry about how long Kirby & I will be apart this time too.

Kirby was scheduled for a grooming on the same day as my MRI and I had planned on taking Amtrak to/from and couldn't be here to take him to his appt. So I called to cancel his appt. His groomer said something about being willing to babysit him if I had someone to drive me to Portland, but it was the day before and I wasn't sure if anyone would be available on such short notice. Well by the grace of God, a lady I know was free and happy to drive me. The IV, MRI, etc took approx. 3 hrs. Then on the way home we got to stop for lunch, then picked Kirby up. I came home and flopped in bed and slept a couple hours.

This whole surgery on my spine scares me. I worry about the outcome, plus how much my mobility/range of motion will be effected. I think my gardening days may be at an end as well. All these changes that come with this cancer CRAP are very disconcerting.

Kathindc - I am so sorry you had such an awful experience with your eye surgeon. Like Shep said, "give that doctor the boot!" He most certainly is not the only one out there. We need doctors and medical staff that hear us, but I know that is harder and harder to find these days.

Sas - Your bathtub looks very comfy! Also I am very glad you were the conduit and help for Mags.

Mags - So glad your back home and putting your Moo Cup back in service. I hope your recovery continues to go smoothly.

Well, I think I may try to go to bed now and see if I can fall asleep this time. I hope everyone had a wonderful Easter and your first week of April is warm and sunny!

JunieB

A friend and I did take a bit of a walk yesterday because it was 62 degrees and very sunny. Here are a couple pics from our walk.

This is overlooking the city from a neighborhood above my complex.

Some Cherry Blossoms in the neighborhood.

sas-schatzi

Happy Monday morning Owlies, Trying to catch up on reading. I've gone back to page 1466. Split screening. It always is frustrating when I've read and then new posts pop in behind what I've read.

First,a report on Mags, she had a couple of nights of excellent sleep. She sounds great. The whole home health team is falling into place. Nurse, aide, PT, OT.

The Company she hired for the move called Care Transitions is a national franchise. Their operation.sounds great, but the completion was not . Mags is meeting with the owner today. The reason I bring this up is I considered calling the same company that has a franchise close. Me for the 25 year decluttering versus a move. I'm hoping to learn from Mags tips on using the company.

Blue, just saw your birthday was March 25th. YAY, Happy Belated Birthday. Hope it was a very nice day for you. Rare , rare that a woman delivers herself, plus aable to take care of the cord wrap. Special lady.

Jay, your questions on Luminal A &luminal B &Ki67. Learned it, then forgot it. No imperative to learn it again. BUT if you go to the technical threads or the main page and use the search box, they're will be definition pages. For sure it's on the main page. BCO has been excellent about creating new topics over the years. When I found BCO in 2009, it was during the search for BC info. BCO had better info than anywhere else.Plus, the community. I haven't made a search like that since. Other web sites may have been established since.

sas-schatzi

Jay, Just reading about your concerns on your pathology report. They're at least two grading systems. They each have a name. Some reports use only one, some both. I'm familiar with only the one I had. BUT I forget a lot of even it. Again,the main page does have a description.

For the one that I was graded on, It has 3 grades, They're three things studied to determine grade. It's a point system. The points are added up then a grade assigned. What I have found over the years in looking at peoples diagnosis info is that something that appears to be serious trouble, may not have ended up with the most serious circumstances. Whereas, a much less troublesome diagnosis would have a more serious outcome. That's a really inexact observation, but I found it relative enough that my conclusion was have a great team, get a second opinion on your first teams plan. Then follow the plan.

IF you have availability of a NCCN hospital National Comprehensive Cancer Network hospital, have them be your primary or second opinion. My primary was local, but had a relationship with Moffitt NCCN in florida. So, for my BC care, it was based on NCCN care with NCCN plan. The practice of local facilities developing this type of care is becoming a very common affiliation. My facility was very forwaard looking and the first in Florida to establish the Moffitt connection.

Now with my Thyroid Cancer it was an RO not with my group. He didn't make that connection with Moffitt. The treatment for my TC was outdated. But not so much his fault. The treatment that the NCCN hospitals would have recommended weren't published yet. What it meant for me is, I was treated with Radioactive Iodine-131. If Moffitt had been consulted, they would have recommended. watchful waiting with blood testing tumor markers and ultrasound. The RAI-131 caused a condition that is still causing problems 4 years later.

The pathology is truly Geek and Latin with some German thrown in. Next visit with your MO take the report with you. Highlight or write your questions out. Then get them to explain it as if you were a "Five year old" (Denzel Washington from Philledelphia movie). Then once you think you get it, put it away.

My BC report had me dead. Serious. These words were written in one section. "Unfavorable outcome". At the time I read those words, it was an "oh shit" moment. There was too much in my life going on, to dwell on those words. DH was diagnosed shortly after me with Lymphoma.

I forgot all the negative stuff in my path report and reread it about two years ago. By then I was 7 years post initial diagnosis. My reaction was "well, showed them". Now 9 years. Cancerversary was Feb 2018.

Many can tell their story differently.

My point is, if I dwelled on how that report read, I think the quality of my life would have suffered much more than it was at the time.

Find the best care team, follow the plan, be aware of new research, stay active in life. This doesn't mean that everything will be hunky dory. But worrying about it can affect you as it produces stress hormones that can affect immune system negatively. \

Add things to your plan that support your immune system directly or indirectly. A while back FeelingFeline mentioned a supplement she started for memory. I looked at the ingredients. Great ingredients. The supplement could be used as is, or the individual components could be added to the diet. Because at one time or other I had studied several of the ingredients, I knew they were also supportive of the thyroid and liver. It's things like this that you want to pay attention too.

Just today I ordered CBD oil. Much has been written about it. It's not conclusive meaning absolutely scientifically proven, but it's strong enough with research and anecdotally that I'm going to give it a try.

sas-schatzi

Mommy, WOw time flies, I remeber like yesterday when Charcoal ws having troubles and passed. Then all the daily updates of Princesses antics. She was a fireball all over the house.

Loverly, I just got to the original pic of Mitzy, Poor baby. Now she's statuesque.Please, ask DH what it was that attracted him to her? With Mitsy pulling on the leash, there is a type of head nose harness that may Help. Shep will know what it is and whether it will help.

Poor Dad, prostatectomy management is on the cusp. The older surgery still being the most common. Laser will take over in the future. A friend had the laser couple of years ago, but had to go to Tampa as no one was doing it here or in Orlando. There was a fb ad that showed a new type of device urine container for men. It had a wrap for the penis. It was covered by medicare and supplemental insurance. Only saw the ad once. It was on the fb newsfeed. So sorry, about the SIL. condolences to DB and kids.

Loverly, would you do a look see at Losartan. New drug for mags. I explained bout ARBS.. The specific thing with Losartan does it have anything related too or impact on BC. Micardis a sister ARB was identified as having a relationship to oncogenic for BC. I haven't looked at ARB's since. I know one drug in a class doesn't mean all drugs in that class may have a problem, but this is a just in case look question? Thanks I suggested that Mags ask for a switch from metoporol to Coreg. He switched her Cool. She was put on daily dosing of Imdur after the bad night where the nurse and supervisor wouldn't listen about it being a cardiac event. The troponins were slightly elevated the next day. Hrmph. Sure hope they make a plan to do some cardiac teaching and consider Advanced Cardiac Life Support as a unit requirement. Would have loved to be a fly on the unit when the scenario was discussed.........

Feline, new kitty Why "Elliot" and the extension of that why "Arthur". Schatzi was the choice of my son and his girlfriend. Dini is short for Houdini, he doesn't try to escape anymore thank goodness.

Shep I'm going to delete somethings in the topic box and put the prayer there.

Junie, good luck with the surgeries. Glad you have so many that help out I so wish everyone had walkin tub. They have improved the door design. This one is just a bit hard to get into b/c it isn't square. The bottom of the door is angled. As much as I've used it, it's still a thought process i.e. being IN the tub to fill it versus filling and stepping in. Hahha Love the cherry blossoms

Patty Hootie Hoo Chickie Poo Hope you are feeling better.

TaRE Hootie Hoo too

Jay I will post some more pics when things are done. We made some great headway this weekend. VERY excited

sas-schatzi

Thought this would be a good topic to review. It's on plastic particles found in bottled water.

https://community.breastcancer.org/forum/73/topics...

sas-schatzi

Okay, did I piss everyone off?

sas-schatzi

Well, apparently, so

Anywhooses, ordered CBD oil, Mags and I were talking about it. She recently got it. Felt it was helping her. Not sure if it was Loverly, or Shep that said they were using it. I've done some research on it. Not enough to schooled in it, but going to do.it

tlking to mags

Loveroflife

Bahahaha. Ahem! Nope not me.....although I would like to try it at the moment. Down with a bug shared by DH. He came home last Thursday and is still fighting jet lag with a respiratory infection. I should have disinfected him with Lysol at the first cough.

sas-schatzi

Loverly,so funnyI can just envision him coming off the airplane and you spraying him down Hahahahah, so sorry he got a bug. He's so kind to go and volunteer. But bacteria and viruses know no bounds. Love to see you

Loveroflife

Kath, how are you doing? What a horrible experience!!! I think doctors who have no empathy shouldn't be in the business of taking care of people. Have a blessed time with the kids. They should be here by now, yeah?

JunieB, beautiful blooms. My nose is itchy looking at the picture though. Allergies is bad here. Everything is in bloom. Pollen overload. Even Mitzy sneezes. Hah!

Feline, do you have photos of Elliot?

Ms. Sas, will get back to you on the ARB.

Mags, hoping and praying that the complications from the vasculitis is temporary.

Shep, but but but I am starting to like theMr. after you shared with me the story behind his photos.

Loveroflife

Here are some pictures of the Nepal trip. No protestors and long queue for gasoline this time. They were able to help over 100 families with basic staple foods( rice, lentil, oil, sugar, and salt) in this particular province. Most of these folks lost everything during the monsoon flooding last year. Many lost their lives, homes, and livestock.

The medical camp:

feelingfeline

Hi Lover, hope you and DH are feeling better soon. He is a hero.

Hope also that your Dad is doing well.

here is little Elliott

He looks full grown in this pic but really he is a baby!

JunieB

Feline - Elliot is quite a handsome kitty. His markings are very unique. Is he Mr. Cuddle-bug?

Loverly - Sorry to hear that you & DH are sick. I guess another example of giving sacrificially, right? So glad DH is able/willing to go and help the Nepalese people. Such a great need to be fulfilled. Poor Mitzy is sneezing too? Sorry to make your nose itch! ;0) I haven't heard from you in ages! My movie buddy & I are going to see "God's Not Dead: Light in the Darkness" tomorrow, well actually later today, since it is now almost 1:30 a.m.

I saw my MO today and had my Faslodex injections. I am holding the Ibrance for 3 weeks to have the back surgery, then 3 more weeks post-op. After reading my MRI results today, it almost feels like my spine is on the verge of collapsing. I know that is an exaggeration, but there are quite a bit of degenerative changes. However the CA is still stable.

Shep - I hope you enjoyed your warm dinner the other night. Sorry we didn't get to talk longer.

Bluebird - How are you doing?

Sas - Sorry I missed your call, I was napping. It was a long day. Any new news on Mags?

Ok, good night to all and Good morning to Feline!