Reconstruction or Not after single mastectomy when Stage 4

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eicats
eicats Member Posts: 11

I am having a single mastectomy later this month and am trying to decide if I want to go flat or get reconstruction. I am stage 4 due to liver mets that are currently not active on a PET scan - hallelujah! However knowing I will forever be on some type of treatment, I'm trying to decide if reconstruction is worth working around treatment/having to take breaks from treatment and going through longer recovery or not. Can anyone share their experience making this decision?

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited March 2018

    I did have reconstruction called TRAM flap after my first DX of BC in 1993. The only regret I have its that i didn't do both breasts. I was only 44 and didn't have a crystal ball to tell me that future would include three more DX of BC (2 in the other breast) and MBC. My vote is Yes. You go girl.💞

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited March 2018

    eicats,

    I had a single mastectomy in 2007 on the right side. I chose not to reconstruct, as I wanted to heal quickly and get back to being a Mom. Because I had radiation, any reconstruction would have been yet another procedure, and the healing would have been compromised by radiation thickened skin.

    Haven't regretted it for a moment. I don't wear a prosthesis. I do avoid knit tops, as they cling. If someone notices and wants to talk about it, I take it as a chance to educate them about breast cancer.

    It helps that I wasn't large breasted, so the lack of symmetry isn't as obvious as it would be for a more endowed woman. If I had to do it all over again, I'd would have had a double mastectomy with no reconstruction. I would love not to have to wear a bra ever again.

    Just my small data point. The real answer is that you should do whatever your heart wants. Its your body. The only caveat is that at Stage 4, you might want to reduce surgical stress to your body whenever you can.

    Best of luck.

  • pajim
    pajim Member Posts: 2,785
    edited March 2018

    Whatever you want. No reason not to have a recon if you want one. My story is pretty much the same as Blainejennifer. Couldn't have a recon due to needing radiation. So I'm uniboob. But I do wear a form because I'm large-breasted. I don't regret it at all.

    Most women these days want a reconstruction. And if you want one you should have one.


  • Snowfall
    Snowfall Member Posts: 90
    edited March 2018

    I planned to do a DIEP recon and reduction after my single MX. I am DD large-breasted and was looking forward to having a smaller profile. Unfortunately, we discovered the metastasis, and that took precedence. I don't imagine I will ever be happy to set aside treatment to allow for reconstruction surgery even if I get to NEAD.

    Luckily, my surgical incisions sprain open and we had to do emergency surgery to combat potential infection, which meant that I could have them remove the expander. It was quite uncomfortable and I would not be happy leaving it in indefinitely.

    I have a silicone prosthesis and a polyfill stuffed knitted knocker. I wear one or the other depending on what I'm doing on a given day. I usually wear the silicone if I'm leaving the house, and use the knitted knocker at home or when exercising. I sew a lot and all my life have used my left chest as a pincushion area. I worry that I will poke the silicone and spring a leak! It turns out the knitted knocker makes a great pin cushion! Neither are as uncomfortable as I expected them to be. It did take some getting used to, but within a couple months I kind of had my system down.

    Just my two sense, of course. My decisions are no doubt shaded by the fact that my doctors do not have a lot of hope that we will find long-acting treatments that are effective for my largely unresponsive cancer. I'm not interested in 2 months or more of recovery given the short timeline I may be on. I have other things to do!

  • jensgotthis
    jensgotthis Member Posts: 937
    edited March 2018

    I canceled my DIEP Flap recon. I’m large breasted but have gotten used to having one breast and wearing a form on the other side. I wanted quick recovery and lower stress on my body. I’m now 44 and the only time I think about it is when I’m going to change in a locker room after a swim. I’m single now but imagine intimacy would be an adjustment though the year cute lingerie now. I never would have expected I’d be ok with this but I am. Good luc

  • Becs511
    Becs511 Member Posts: 303
    edited March 2018

    I am going through the final stages of getting approved for a unilateral mastectomy on my left side now and I am not a candidate for reconstruction. I can not have tissue expanders since I have brain mets and require MRIs every 2 months (aka no metal). Plus I don't want to put my body through any more than I have to and I personally do not like the idea of a foreign substance, like a breast implant in me.

    I know it will be very different, but I already have to wear a prosthetic on my left side because it shrank so drastically simply due to treatment, so I am already used to the concept. I am about an A-B on my left side and a D on my right. It is weird because they used to both be perfectly matching Ds.

    I am also single and not looking to date, so I don't care what it looks like underneath. I am most concerned about making being totally flat on one side and a D on the other work in bathing suits. But when there is a will, there is a way....

  • Casun19
    Casun19 Member Posts: 111
    edited March 2018

    At stage II I had a bilateral mastectomy with reconstruction to expanders which failed and left me flat. Then I was diagnosed stage IV and cancer took priority.

    I had to wait for a few stable scans but, last month I had a Diep flap and so far I am very happy. I did have to take about a 1month break from treatment but it was throughly discussed with medical team.

    The prosthetics do help and you eventually stop thinking about not having breasts. But personally I absolutely hated it. I never felt comfortable in the prosthetics and swimforms. I just mentally couldn't get over it. I wish I was stronger but I was not. The benefits outweighed the risk of surgery for me.

    Good luck with your decision!!

  • Snowfall
    Snowfall Member Posts: 90
    edited March 2018

    It probably helps that I am totally not a swimmer. I now have an ironclad excuse for never putting on a bathing suit ever again! The silver lining.

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