The truth about the SGAP Flap for thin women
I just want to warn thin women before they decide to get SGAP Flap breast reconstruction. It is a salvage reconstruction and will most likely disfigure your buttocks. It is not designed for thin women. It should only be used in rare occasions. It is being falsely marketed to thin women as it was to me. Women should be aware of the risks. You do not want to be in my position!
Comments
-
Did your PS tell you about the risk of disfigurement? do you mind sharing which doc did your surgery? Thx! I am investigating this approach now for a surgery soon!
-
mvwaterskigirl - I do not want to name my doctor at this time. I feel it is better to educate so women can make an informed decision. I had Bilateral SGAP Breast Reconstruction. My doctor assured me that I would not lose my curves with SGAP and that I would look normal after stage 2. I was told that the DIEP scar would be ugly on me. I was told to only listen to them and was assured repeatedly that they would be honest with me throughout this process. After stage 1, I was repeatedly told that I looked how I was supposed to look and that the doctor could easily fix me. In stage 2 he did the pants-over-vest fasciocutaneous flaps and that helped a little. He was very pleased with his work, but I was still clearly severely disfigured. He told me that I was the first patient of his to ever complain about how I looked. He told me that women seek him out for this "look." A nurse at the hospital told me the same. I was completely devastated and have been ever since. My whole experience with this doctor and his staff has become my nightmare.
What is your body type? Where do you gain weight? Why can't you get the DIEP? I was still encouraged to get the SGAP even though I gain weight in my stomach (apple shape). I took care of myself so I was thin (banana shape) when I got the SGAP. He told me to stay at my stable weight and he could get me a cup size bigger and not disfigure my buttocks with the SGAP. He never got me a cup size bigger and even with weight gain, I am still not bigger.
I have since gained 15lbs in order to prepare for fat transfer, but I have been advised to gain another 15lbs (30lbs total) before reconstruction. This is very unhealthy, but I don't have any other options. I will need multiple reconstructive surgeries. The recoveries are long and painful. Some doctors have also recommended butt implants along with fat transfer, but I won't do that. I have 2 missing lymph nodes in my armpit and don't think I can get liposuction on my arms or axillary. So my arms are going to have to stay fat and I will always look weird. My boobs did NOT get any bigger with the weight gain. Only my band size changed from 32B to 34A. I can't finish my breast reconstruction because I need to reconstruct my buttocks instead. I will always have to wear a stuffed bra. I do not look good fat and I feel terrible. I cry almost every day. My buttocks is scrunched together and my gluteal folds are disfigured along with other problems. I do not know how that happened as I had small flaps taken out and they were supposedly designed to not be destructive. I had the sloppiest, most destructive surgery EVER. It is not necessary to disfigure the buttocks in order to get flaps for breast reconstruction.
I believe that the SGAP is a good option for pear types, but is a "salvage" option in banana or apple types. I clearly was not a good candidate for SGAP and should not have been recommended it.
I have searched all over for a doctor that can reconstruct my buttocks and takes my insurance with no success. It is hard to find ANY doctor with the skills to reconstruct the buttocks. I did not think it would be this difficult to find a doctor. I still have not found a doctor that can help me with this complex buttocks reconstruction. My family and I have accepted that we will have to pay for all of my expensive reconstructive surgeries. I have been turned down by really good surgeons because they aren't confident that they can fix me (devastating). I have had other surgeons tell me they can fix me but can't prove it or they want to work on my breasts first ect. It is obvious they just want my insurance money.
I am such a burden to my family. I don't want to waste our time and money if I am not going to ever look normal. I wish I had known this information prior. I am just trying to warn women that this may happen to them. You do not want to be in my situation. This was 100% preventable.
This is just my experience. I have not found another woman with a similar experience. I have not found support in the breast cancer community. Everyone is disgusted with my buttocks apart from the doctor and those that are connected to him. It was a total scam.
The microsurgeons that do SGAP only have minimal buttock reconstruction skills. It is known that these flaps can be really disfiguring but lots of doctors are not honest about it. They have no business disfiguring women when they know they cannot reconstruct them afterwards.
-
I am so sorry you had such a horrible experience. Thank you for sharing it. I am thin and am not a candidate for DIEP. I think I will just keep my rock hard implant (horrible after radiation).
I truly appreciate you sharing
-
Dear Ad197
So very sorry to hear your very sad tale. I too am thin - 126 lbs in clothes - and altho' I could have a DIEP it would be very high on me and anyway I couldn't entertain the idea of a massive scar across my front.
I too have been totally messed about/screwed over by my surgeon - trying to be polite here! I think he is probably quite a good surgeon, but when it came to me, a patient who was so scared of surgery that I put it off for 5 years, he then went on to perform the worst surgery he has probably ever done in his 30 year career. Nobody thought it was good. I ended up with PTSD, over twice the basic score to qualify, but still no way of helping me - and I couldn't get the appropriate mental health support either. So physically and mentally assaulted. It was not an SGAP that I had, it wasn't anything ever written down in all the books on surgery. He just totally screwed up. He apologised, but, as we all know, the only person who has to live with it is oneself, and I said to him:"You can say sorry until you are blue in the face, but it won't change the way I look." When looking for other PSs to put it right, they were all shocked and I had one top woman PS say that I wasn't the worst case she had ever seen, but I was pretty close.
It's all complete s**t. There is nothing else to say. You really have my sympathy, but that barely helps you.
Have you thought of going to South America? Brazil? They are supposed to have good PSs there AND all the women there want big bums so maybe they could help you restore yours to a good look? Just a thought. You need to find someone who does a lot of them. That is key.
Good luck, and I wish you some peace...........very damned difficult, I know!
Hugs,
xxxxxxxxxxxxxxxxxxxxxxxxxxx
-
Ladybird-dancer - I am sorry to hear of your situation too. I hope you find a way to get fixed. If you gain a little weight then what gets cut out in a flap (provided it gets taken from an appropriate place) can ALL go to your breasts, unlike fat grafting where they have to liposuction out a lot of fat, then 1/3 gets fat grafted back in and 1/3 more dies and then you are lucky to get 1/2 of the fat to survive and it can be unpredictable where the fat dies. Then it has to be done multiple times for an even result.
You were botched. The thing is with the SGAP, I ended up exactly how the doctor expected me to and he was always very pleased with how I looked. He and his staff always told me, "I looked great." According to the doctor, I was not "botched." He told me my gluteal folds would go back to normal after a year. He did not think it was a big deal that my transition from back to now scrunched buttocks was gone and did not have a solution for it and he thought my dents were not so bad. His "solution" was to put a little fat in the dents if I wanted. He told me to gain weight so he could use my tummy fat to fill in my dents. It would have been better if he just used my tummy fat for my breasts to begin with, but he advised against that. My husband and I spoke to the doctor multiple times before the procedure about how this was going to affect my buttocks and we were convinced he was right on board with us. I told him I was not willing to trade my buttocks for breasts. He was in total agreement with me. He never admitted that I was disfigured.
Another microsurgeon confirmed that how I looked including my infragluteal folds (my biggest concern) was very common with the SGAP, he showed me how it happened. He told me that he always explains to his patients how they are going to look and said they never care because they just want breasts. A different doctor told me it was very common for those flaps to cause severe deformities. Apparently, this seems to be common knowledge among doctors.
How come we do not have this information? I went back through all the pictures I could find on SGAP and I still have not seen any disfigured gluteal folds. My buttocks is the worst ever! I think women should know that their gluteal folds might be disfigured (among other things) BEFORE they get the SGAP. It is a defect of the procedure that should get addressed as doctors are taught not to disfigure the gluteal folds to begin with. I do not know how the SGAP ever became a FIRST LINE option as it results in SEVERE DEFORMITY. Who would be happy with that?
The doctors should not be able to lie to us. I think us breast cancer survivors should have this knowledge so we can make informed decisions. We are easy to get taken advantage of and I don't see any organizations getting information to breast cancer patients, they seem more interested in promoting doctors and dressing up in pink.
I also am VERY scared to trust another doctor again as they can and will tell you ANYTHING just to get your money as I have experienced.
Doctors don't give me much information over the phone or email from my pictures that they have me send them. Many have already told me they cannot help me, but a few others want me to travel all the way across the US to them for a consult. I don't see many doctors reconstructing the gluteal folds as doctors are taught not to ever mess with them because the gluteal folds are really difficult to fix. I need to see proof that I can get fixed. I don't have that, but I am expected to trust a doctor to "try" to fix me?
A really good bbl doctor here in the USA that I saw rare pictures where he improved the infra gluteal folds in a patient of his, told me that he could not help my disfigurement. What a blow! If he can't fix me, then how can I believe another doctor that tells me they can without proof? I already once traveled far early on to a doctor that said he could fix me, but all he did was poke my buttocks and didn't have a clue what to do but wanted to "try," and still told me that I would always be disfigured. What a waste! I can't waste my time going to doctors that can't help me. This is why I am warning other women. No one wants to be in my situation.
My surgery went as planned and was considered a success by my SGAP doctor! Hasn't another woman been through this before with SGAP and got fixed? At least tell women they are going to be disfigured, don't try and tell disfigured women that they aren't disfigured when they clearly are.
Many women have advised me to seriously consider going out of the country for reconstructive surgery. I was shocked to learn that other countries are way more advanced than the USA in plastic surgery. I don't want to leave the USA for surgery if I can help it. I have not reached out to any foreign doctors yet. I am ashamed that I might have to go out of the country as it is more likely a foreign doctor can finish what the American doctors don't have the skills to finish. It is embarrassing enough to know that I was lied to and used to make a quick buck by a "reputable doctor."
I think Columbia is the leader in plastic surgery. There is also the Dominican Republic and Mexico, but Columbia is safer in my opinion. I only hear about Americans going to those 3 countries. I don't hear of Americans going to Brazil for plastic surgery. Do you know of any good doctors there? A bigger butt won't improve my disfigurement, it will just make it a bigger disfigured butt.
This is really difficult for my family.
I am open to ANY doctor that can help me.
If anybody knows of any doctors in any country, especially the USA that has experience fixing the buttocks after SGAP (or severely disfigured buttocks) please let me know ASAP.
-
AD197...I am sickened to read about your experience. I sent you a PM...Thank you so much for educating us. Hoping someone can suggest a doc who can help fix the area. Sending love!
-
I am so sorry to hear of this after all that we have to go through mentally and physically with the cancer and to be left looking and feeling devastated. I am thin, about 135 at the time I was having surgery. My PS told me I did not have enough fat in my stomach and though I have a big bootie he did say that I probably would not be happy with the scars etc, if he took it from there. I went direct to implants and they are not much bigger than I had, but I don't know if I would have been able to deal with the look of my bootie then too.
-
Yes, it is very difficult to have a disfigured booty.
-
Ad197- I am so sorry that you are going through this horrible experience. Doctors are supposed to "first, do no harm" and that is what we deserve. If they can't make us better, they should tell us the truth- whether it's good, bad, or downright ugly. I hope that you can find healing in some way.
I know you do not want to share your doctor's name, but I am considering this same procedure and would never want to choose the practice that did such a poor job with your surgery. I am not super thin- 155 lbs. and 5'10"- but thinn-ish, I guess. I am talking with Doctors in NOLA that have suggested I am a candidate for SGAP and assured me that anything done to my hip area would be corrected in stage 2. They seem to take SGAP tissue from the "muffin top" area and not from the gluteal fold. Is that what happened in your case or did they take tissue from both above and below?
Would you consider sharing the name of the practice at least? Or maybe just the city and state? It would certainly be helpful to those of us considering SGAP in the near future.
Thank you and I hope you find healing.
-
maureenb: I had tissue taken from my upper buttocks and when they closed me up, they pulled my gluteal folds and disfigured them. I did not have tissue taken from my gluteal folds, but they are severely disfigured as is common with the SGAP procedure. I would think that the "muffin top" would not pull on the gluteal folds as it would not cut into the buttocks at all. That would be the superior choice imo. I see that you were told that you would have the SGAP, but the muffin top area would be taken instead of the upper buttocks. Why do they use the SGAP perforators from the muffin top area? Why aren't they using the lumbar or Hip perforators instead of the Superior gluteal perforators? Why was that perforator chosen? Are you pear shaped?
It has been my experience that there are good and bad things about all doctors, not just "good" or "bad" doctors. I am trying to educate women so they can make an informed decision and choose the best doctor for them. My SGAP doctor has an excellent reputation, but he chose to be deceptive with me. Had I been educated, I would have been able to avoid being put in this horrible situation.
The doctors should be able to show a lot of before and afters and at all angles, video would be best. Ask them to show you what is the worst you could look like and how they would fix it. They should be able to prove to you that they are trustworthy with lots of pictures and videos.
My SGAP doctor and staff promised me to the moon and back that they could easily fix me and that they have fixed HUNDREDS of women that looked like me in the past. I don't want anyone else to be unknowingly put in my position. I cannot live my normal life with a disfigured buttocks. I haven't found anyone that is okay with having a disfigured buttocks.
-
Just to clarify, I had the SGAP procedure, not the IGAP, they took tissue from my upper buttocks and when they closed me up, they pulled on my gluteal folds upwards and towards the center and disfigured them. Plastic surgeons are taught not to ever disrupt the gluteal folds in school because they are very difficult to fix. My gluteal folds were not cut but are severely disfigured. I was told this happens a lot with the SGAP procedure, but women don't care how their buttocks looks. I cannot believe women would be happy with a severely disfigured buttocks. I thought I would be able to find another woman who had the same experience as me, but got fixed. This experience has changed my life and I don't want another woman to have to go through what I am going through.
-
ad197, I am so sorry you have to go through this after cancer. But I am also so impressed gat you have taken the time to share and warn other women. You are remarkable
-
Thank you for your kind words. Everyday is a struggle and I just want to make sure other women get the proper advice to help them make the best decisions for themselves
-
that is so terrible. after all you have been through. i don't know all of the medical terminology or exactly where they are taking the fat from. i was told SGAP but I guess I assumed it would be muffin top area because that's where all of my fat is. i guess i need to find out more about it! were you treated in new orleans? i am hearing they are excellent and do thousands of SGAP procedures. i would not want to to have a disfigured buttocks either! we don't want any part of our body to be disfigured! we just want to look and feel as normal as possible after cancer.
i hope there is someone out there who can help you.
-
for the thin women that had bad results with this surgery, would you mind stating your height and weight? i am 5'10 and around 150 lbs. not super thin, but not a ton of fat either.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team