Thinking of MomAllTheTime and Dani

Louis i think a lot about you. Are the kids listening to you? are they verbal about their feelings?

Zar i have been reading sporadically, i didn't realize you went back already? With your DD? How is the rest of the fam coping? how exciting you got to see a marathon right from your room. I can't tell you the weekend was great. It was great that no emergencies arose, but e/t is status quo, and D is very pissd off, as you all know, there is so much other stuff that you wanna be preocupied with and this monster keeps you from doing the stuff that you need, enjoy so yeah it's to say the in the least a pain in the neck.

Cathy/ Jen tom she is scheduled for a blood transfusion, he wants to see if she could keep the HGB at least. With all that going on to think that she is going on the 3rd week w no tx is outright frightening.

Thank you for your good thoughts, you know it means the world. You take care everyone.

mom. This might be a question you've already answered. Is there any evidence that Dani's y90 helped at all? I remember she was going through so much when she had it done.😢

Praying for you, Dani, the children and doctors.💞

Always considering you.

Always in my thoughts Mom and Dani. Hope the neupogen works and she get Tx soon.

thinking of you and Dani and all your family

Mom, I like Sandibeaches idea. Close your eyes and imagining all of us lifting you and Dani up with strength and love from thousands of loving and understanding hands.

You and Dani are always in my prayers.

Dh is not likely to ever work as a police officer again. It has been a year since the motorcycle accident. His traumatic brain injury has left him with chronic migraines as well as a truck load of other problems. He is only 44 and will be taking a medical retirement. I thought that dealing with MBC was enough! Poor guy

Guilt is now my middle name. I can’t say “I love you” without adding I’m so sorry about this! It’s a real life living nightmare!

All of my biggest hugs being sent to you!

Love Chelle

Grannax what if I tell you I don't think so. She's been having problems even worse since she had the Y90. So I hate to say it, I don't think it did a damn thing for her. She said she felt a hardness in the area above the liver since then, something uncomfortable – she is not happy about it.

Chelle it really made me sick to read your update. What a heartbreak. No words. These things are really hard to deal with. As you said it's another set of issues totally unwelcome. And you could use all the support and now you have to give the support. Hugs and hugs, let's join Sandi's friends in this virtual hug!

I really don't know where we are at. It was a tough week, the pain in the bones is still there of course, another week with no tx, due to her infection and very low #s. All of it. Whatever had to be up was down and vice versa, she was on Neupogen daily so now it shot up to 29 which is too high, and the platelets which were at 50 is now at 35, seems that the Neupogen lowers the platelets. You know you fix one hole and another spurts problems. But now, she seems 4 mos pregnant, swollen legs (which really were sticks b4), tiredness and dry mouth. We all know what all this points to. She's having a CT shortly, and we'll know if maybe she has some blockage or what, yesterday was her DD bday, small party for her friends and she was just on the sideline. The kids still think she has a bad infection and she tore a muscle, another thing we have to deal with, but she's not ready.

She also has some type of something, lesions just coming out of nowhere, sprouting? Yeah, out of her skin, for that he gave her Flurouracil. Like seriously?? She doesn't have enough?? Ridiculous.

Am I crazy that I did not loose it yet? Is something wrong with me? Weird. I stopped taking the Celexa, it was keeping me from crying, and I have to feel the edge, the fear so I could be on guard, and think better how to act, what needs to be done. If the anxiety will get as bad as weeks ago, I'll take a small dose. Of course I didn't tell my doc this, but he would not understand. So you do what you gotta do. Definitely having you guys helps me with my sanity.

Thank you again for all your sweet and meaningful wishes. I know. I'll update when I know what's what. Love ya'all

mom No Apologies! This is a place to share ALL your feelings, good bad ugly. Beats bottling them up inside til you burst. Just breathe & take it one day/hour at a time. We are all here for you. Virtual hugs.

Mom- my heart is hurting for you and Dani. Praying for healing and peace for both of you. Love, MJH

Mom, I pray for you and Dani every day. I wish I could take all of this suffering away from you guys.NEVER fret about your posts being depressing!!! They are posts from a strong, loving mother who just wants her daughter to get some relief. Sending you both a hug!

mom I think you are living in a nightmare . I can just imagine myself in one if either of my adult children had what Dani's had. How you find the words to say, a way to bite your tongue when you know there are words that must be said, but she doesn't want them said, how do you not shed tears every time you see her, And your precious grandchildren not knowing what lies ahead for them, trying to respect Dani's wish not to tell them but wondering if that's the right thing for them. I imagine you are wondering about how your life will change when her time comes. It's all so wrong, so upside down, life as you imagined it, is not what seems to be happening. It's backwards, improbable sequence of life that has no sense of normal. At the moment, I'm crying tears for you, that Dani cannot see. 😢 💞

Yes, momall. Safe here. Holding you

Healing hugs and prayers.

MomATT - adding my love and prayers for you, Dani and all your family