IDC fatigue before surgery or treatment?

yesHopeful82014 u are not alone dx in may 2016 papillary dual carcinoma in Stiu and my worst symtoms was fatigue everyday just tired always a certain time of day I'm normal energetic u know your body and when a change happens u know going into my second surgery June 23 2016 hope it's my last having diabetes and keep having surgeries is not good. My prayers are with u and your journey stay strong hopefully this fatigue will pass.djm71 my prayers are with u stay strong.

djm71 -- My fatigue was so bad before diagnosis (& we thought it was caused by an autoimmune) that I couldn't even work full-time. I will tell you that it was almost immediately after my surgery that I felt significantly better and haven't had a really bad fatigue day since. I'm not saying that doing chemo, etc. was easy, but I could tell it was a different type of tired. So, now we know that was truly a symptom of the cancer not the autoimmune. I hope that your surgery will provide you with a similar experience.

Before my annual mammo, I felt pretty good--was maintaining a weight loss, had two perfectly working knees, had gone nearly a year w/o a cold. I was thrown a bit by the message I got in my patient portal inbox the next day, but once I got a date for the followup imaging I was calmed a bit more, expecting it’d be nothing (it was about the time of stories about possible overtreatment of DCIS, and I figured that since I’d never had an abnormal mammo before, DCIS would be the worst it could be). But the two weeks between my ultrasound and biopsy (had to travel for work, and they said the extra time wouldn’t make a difference) were the most nerve-wracking of my life. Every other thought was “What if I have cancer? I might have cancer. It’s probably cancer.” Funny thing was, I was down in New Orleans--the weather was perfect, I was in the best shape of my life, walking at least a mile a day, limited only by my schedule and a few foot blisters. Now, it’s possible (though not easy) to stay low-carb down there, what with seafood and fresh produce, but I began cheating majorly on my diet--first eating the biscuits and bread that came with every meal, then having dessert, then going whole-hog with spuds, rice and other starches. And of course beignets my last day, with a hand pie to go for the plane ride to Philly. When my singing partner picked me up at the Philly airport en route to our senior center gig (so we thought) near Scranton, I took full advantage of the Krispy Kreme--with the “Hot Now” sign lit--across from our hotel (we haven’t had them in Chicago in over 5 yrs) and had a free hot one and two chocolate-iced creme-filled for bedtime & breakfast. When we got to the senior center, we found they’d booked someone else--we learned the woman who’d immediately rebooked us there after our gig the year before quit a month later, taking the schedule book with her.

Yup--I could have left New Orleans two days earlier and delayed my biopsy by only a week--saving myself airfare, hotel rooms, restaurant meals and an entire week of horrid worry. ! The “what-ifs” began to multiply as we drove back to Chicago, where my singing partner dropped me at home before proceeding to his next gig near Peoria and I had to emcee two writers’ rounds at a local annual folk festival Labor Day weekend--as I’d done for the past 14 years. But I was so tired that the first day I went straight back to the hotel to nap and the second day I headed home. When I got the diagnosis of grade 2 IDC--one type more serious and two grades worse than what I’d feared, I felt like I’d been socked in the gut. But the next day when my gyne called to tell me it was Luminal A, and set up the appt. with my surgeon, I calmed down considerably. Never did get that fatigue again, not even after surgery or during rads--but I do get jet-lagged very easily and have to nap at least a couple of hours after arriving (they worst thing you can do for overcoming jet lag, but it is what it is).

hi djm71 I thought it was just me to. Before I got diagnosis I started to feel really tired to I know my body I knew something was wrong I'm going to see my bs tomorrow. Going to ask her about it will.let u know what she say. Sorry u are going through this but glad to know I'm not alone hopefully after treatment we will get better u are my prayers.

W

I am 44 and just diagnosed with iDc. I too have 3 herniated discs. I've been napping for about 6 months. In addition, my period got CRAZY! I'm scared too about the road ahead. We will PERSERVERE!

Wow such great information. Everyone at home thinks I'm making my fatigue up. I knew I wasn't going crazy. I workout 5 days a week and for the last 3 weeks I have just felt exhausted whole working out, I get really winded. Today it hit me, I wonder if it goes hand in hand. That's how I found this site.

I was diagnosed with bc last week ILC and IDC. Not sure what stage, Dr said she wouldn't know until after surgery.

djm71-this post, and the accompanying posts from same-suffering souls, is one of the most helpful things i have ever read. the fatigue prior to the dx was crushing. every day was a nightmare sickening struggle to get to and from work. at first i chalked it up to menopause, and then i was 'diagnosed' with fibromyalgia, which i can't help but feel is a catchall term medical professionals use when they don't know what the hell is wrong with you. i also had a great time chastising myself for being lazy (former community activist, full-time job + school, hardcore gardener & party-thrower) and spiraling down into the dank well of deep depression. i've known something was wrong but never in a million years would i have suspected bc. i have to thank one, ONE sharp Dr., among the dozen or so i saw, that literally forced me to take the mammogram.

Thank you for helping me to know i was not imagining things

Yes. I was experiencing significant fatigue since end of October/beginning of November. I was diagnosed with IDC, Stage IIA Grade 3 on 1/4.

Thank you everyone for the great information. I was diagnosed with IDC a couple of weeks ago and am waiting to see the surgeon. I have been beyond exhausted and didn't know why. I'm still working full time and have a family to look after so I'm suspecting that working and stress are probably playing a huge role in this. Also, I haven't been able to get my flu shot as I've been catching one thing after another since October. It helps to know that others have experienced that same thing and that it's not my imagination. My doctor put me on antibiotics a couple of days ago to try and wipe this cough and sinus issue out so that I'm good to have surgery. Keeping my fingers crossed.

Finally found others with the fatigue before diagnosis. I was diagnosed at the end of December. IDC 2cm, I've had this fatigue for a few months. Trying to chock it up to other reasons. and thought I was imagining it after diagnosis. Now I know others have the same issue. Thank you for sharing

Samoya, I too had a 5 cm Idc. The fatigue prior to my diagnosis is what prompted me to get in for all my physicals which I had not scheduled for several years. It was my gynecologist who found my lump. Immediately after my lumpectomy the chronic fatigue lifted. I have since had a BMX with reconstruction and in healing from that surgery (12 days post op) I have more energy than before my original diagnosis

So glad to have found this thread! I felt so lousy about 3 months before I was diagnosed that my PCP actually ordered a MRI of my brain. I've been wondering if anyone else had a similar experience...good to know I'm not alone. And yes, my brain was still there.😊 Dealing with radiation fatigue now but that shouldn't be forever.

Yes my wife has been very tired

My wife and I have just had our first child via IVF in November 2017. My wife has been suffering from Anemia and last week was diagnosed with IDC in both breasts - multi centric. 2cm one breast (left) one cm (right).

She had a bilateral mastectomy three days ago and has been unable to get out of bed. Her Hemoglobin is only 90. Surgeon said surgery went quite well , however I am deeply worried. We get the pathology results on the 29 th March.

My wife is extremely fatigued

Worried sick

Dear DeAnneP,

Welcome to the community. We are so sorry about your diagnosis and fatigue. We are glad that you reached out here and introduced to our members. We wish you the very best with your surgery tomorrow. We hope that you will stay connected here and keep us posted on how things go for you. The Mods