Medical oncologist - should I see one?

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momto3sons
momto3sons Member Posts: 311

Yesterday I had my follow-up with the breast surgeon who did my excisional biopsy last week. The biopsy showed intraductal papillomas, ADH, and a host of other non-cancerous things (I don't have my pathology report in front of me, so I can't remember all of it). My surgeon said this does keep me in the high risk category, and she's recommending the "watching closely" option. Since I'm only 42 and most likely another 8-10 years out from menopause she didn't feel comfortable starting me on Tamoxifen, but did mention I can follow up with a medical oncologist.

I'm leaning towards following up with an MO - I've already hit my deductible thanks to the biopsies - but I don't want to waste their time. Has anyone else here decided to follow up with an MO once they were moved into the high risk category?

Comments

  • Hadiya
    Hadiya Member Posts: 37
    edited March 2018

    Hi Carolyn! I'm glad everything came back okay!! I've been thinking of you and sending many prayers so I am very relieved.

    I didn't have ADH and my AD wasn't found on MRI as you know but I'm still in the high risk category because my mom and both grandmothers had BC and my breasts are dense. I've had many biopsies through the years so I understand the energy behind your question. I defer to the others here about whether or not to see an MO.

    I would highly recommend Susan Weed's book - Breast Health. You may find guidance about how to proceed in the book and also ways to keep our breasts healthy.... just in case you are interested!

    All best to you!

  • momto3sons
    momto3sons Member Posts: 311
    edited March 2018

    Thank you for the recommendation - and the prayers!

    I figured it couldn't hurt to at least have an initial meeting, so I asked my BS for a referral.

  • Runnergurl
    Runnergurl Member Posts: 6
    edited May 2018

    My Mom and both sisters have had breast cancer. We are all BRACA negative. Both my sisters have the Check2 gene but my mother does not. My primary care sent me to a breast surgeon who then sent me to an oncology. I am now on Tamoxifen for the next five years with alternating Mammo and Breast MRIs every six months. According to the Gail scale I have a 30% change of BC. It's never a waste of time to be proactive. Go see an oncologist if it will make you feel better. I'm glad I did!

  • Beatmon
    Beatmon Member Posts: 1,562
    edited May 2018

    I agree being proactive...see an oncologist. They can advise and help with a plan for careful monitoring of your situation

  • exercise_guru
    exercise_guru Member Posts: 716
    edited May 2018

    Well well at the very least they would more than likely let you come into their PA. I was able to meet with an oncologist before all of my test results were back.

    Based on my experience if I were trying to prevent breast cancer and I was in a high risk group there are a few steps that I would take whether I took tamoxifen or not.

    Getting good quality sleep in a dark room

    There is some good research about fasting for 13 hours a day which include sleep so that's easy just stop eating after dinner and add your breakfast 13 hours later

    Exercise has pretty good research as well as trying to keep your body weight at a reasonable level.

    Beyond that I would look into broccoli Sprouts which are so easy or broccoli tea you could do a search on that both are pretty affordable and very easy

    And then I would also look into mushrooms I think there's one called turkey tails that has a supplement but they've even shown that cooked mushrooms daily are really good

    I think it's worth it to think about tamoxifen but there's also the factor of what birth control you might be on. So there's some things to consider if you're at high risk.

    In my situation one side was estrogen-positive and the other tumor was not.

    For women who have relatives with breast cancer it might be worth finding out whether or not they were estrogen-positive because there's no evidence that tamoxifen works on preventing the other tumors.

    I face that everyday taking tamoxifen which is really not that great and is messing up some areas of my body. I know I need to take it for the one side but I still worry that her2 might get me.

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