How To Be Alone without Fear

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Anonymous
Anonymous Member Posts: 1,376
How To Be Alone without Fear

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  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited February 2018

    I am married. DS is away at college, and DH has to travel frequently for his job.

    Lately, I've been having a lot of fear when I am alone in an empty house. What if I fall? What if I pass out and no one notices? That sort of thing.

    What have you guys done to manage your fear when you are alone? I have a dog and cat, but I feel they would be useless in a medical emergency. The dog would want to help, but I'm afraid the cat would be assessing my soft bits for deliciousness.

    BTW: Applause to those who are working, and/or living alone during this disease. I am in awe of you.

  • Becs511
    Becs511 Member Posts: 303
    edited February 2018

    I think part of your fear is that your are not used to it. You are used to having your son (and probably his friends) there, and other people in your house, and it is a transitional period in life, and that unto itself is scary! But you will slowly get adjusted and find ways to make yourself more comfortable, and maybe even enjoy the quiet, alone time!

    I am single and have lived by myself throughout my diagnosis. The only time I have been afraid in the almost 4 years that I have been living with MBC is when I was diagnosed with brain mets 2 years ago and I was experiencing seizures. However, I never lost consciousness and knew enough to sit down while they were happening. They were localized to my left side, so biting my tongue was never an issue and they are now controlled.

    I also live in a large high-rise doorman building in Manhattan, so I know if anything was to happen, I could just scream really loudly and a neighbor would hear, or I could call down to my building's front desk. I also live within a 15 minutes taxi ride away from Sloan Kettering (where I get treated).

    The one thing I do, do is if I am starting a new chemo, I stay with one of my parents (they are divorced and both remarried), the night of the infusion, just in case. I also sleep with my cell phone on my night table, right next to my bed, so it is easy to get to.

    But I love living by myself and keeping my independence is very important to me (especially since I am still working part-time). It is my connection to who I was and my lifestyle before my diagnosis.


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2018

    bj, I used to have these kinds of fears when I was a young mother. I would wonder what would happen to my son when he was a baby or toddler, if I were to fall down the stairs or some other kind of harm came to me. I even ran through a scenario in my mind of how I'd run to the next-door-neighbor if I was choking. I think being a mom made me realize how precious life was and taking care of one so dependent on me gave me concerns I'd never had before.

    Tho I'm not home by myself for an extended time, my 89 year old mother-in-law lives across the street. We had some concerns when she moved there three years ago. I found this alert system device and we got it for her.

    http://assistivetechnologyservices.com/TwoWayTalkThroughAlertSystemWithNoMonthlyFees.html

    It has a big price up front, almost $300, but thats all you pay which is less costly than the “help, I've fallen and I can't get up" type service that charges a monthly fee.

    How it works is up to 5 numbers can be stored in the device. A portable button you keep with you, when it is pushed, calls the first number. If no response, it calls the next, ect. It will even call 911.

    It offered us some assurance that if my MIL had an emergency, she could reach us.

    So guess what. Last summer, dh was using the landline talking to his son. His cell phone rang, and I saw it was my MIL. She was calling because she was having a hard time breathing. We promptly got her to the hospital. She'd had a heart attack! She eventually recovered and is back to her place.

    Several weeks later, we were talking about that evening and I told dh, “gee, I didn't even know your mom knew your cell phone number!" He said, “she didn't! She pressed her emergency alert button. When our home phone rang busy, it called my cell phone!" It was wonderful to know it worked. Maybe something like this could help alleviate some of your fears.


  • JFL
    JFL Member Posts: 1,947
    edited February 2018

    Divine's suggestion sounds like an amazing device. Your fears are warranted and certainly shared by many. In the current era of cell phones and Uber (and in some cases, those Google home devices, Alexa, etc.), we are all in a much better position than it would have been 10-15 years ago. Keeping your cell phone with you at all times can provide some comfort - even in your pocket when you are walking around the house. Perhaps making some emergency plans in your head about what you would do in various scenarios could also provide some comfort. I am now not alone but recall being alone in the past and walking 2 or so miles home from the hospital after getting a neulasta shot the day after chemo 11+ years ago. I was so weak from Adriamycin and it was a very bad idea but I don't recall having other options at the time. I tried to find a cab at the cancer center and there were none. It was a Saturday so there was only a skeleton staff. I found someone to take me to chemo but not to take me for neulasta the next day. It was definitely a low point for me. I think many can understand your sense of worry.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    You probably aren't ready for this, but there is the emergency button that you can wear if you are in danger of falling, etc. A friend of mine with bone mets and mobility concerns wore one and it gave her a lot of peace of mind when she was in the house alone as it would contact 911 for help.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2018

    This is a great thread! Keep the tips coming

  • Goodie16
    Goodie16 Member Posts: 446
    edited February 2018

    I live alone and after my seizure and brain met discovery, I became concerned no one would find me until it was too late. I have a good friend that checks in with me a couple times everyday. She either calls or texts. We have agreed that if she doesn't hear from me within an hour from her call or text, that she will either come to my home or call my sister to check on me. It gives me peace of mind just knowing that someone is a little aware of my day to day and steps will be taken if I haven't been heard from.

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited February 2018

    You guys are amazing. I love the idea of the life alert system, but need one that calls 911 first, as all my relatives live elsewhere, and the only friend I would impose upon like that has MS. I am sure there is one like that out there.

    I do keep my cell phone on me at all times. I've even sewn cell pockets in my garments so that if I fall, the phone won't skitter away from me. Not paranoid at all, right?

    My neighbors are fantastic. I should probably just gut it up and let them know that I am having some trouble with fear when DH is out of town. The last time they knew I needed help, I had people knocking on the door, well, a lot. We live in a townhouse community, and are quite close to each other, in all aspects. A brief moment to reflect on how lucky I am in my community and neighbors. Since I was diagnosed, I haven't had to clear snow from any part of my front area. It disappears.

    Becs, you are a fierce NY lady. We lived in Queens during my first diagnosis, and I'd take the subway to and from treatment. Once, I asked a row of folk in the special need seating area if I could have a seat, and a lady responded that I looked healthy enough to her. I took off my hat to show the baldness, and still no one budged!

    Mrs.M, my spouse is in love with that alert system, and we'll probably be doing it. I've looked at the web site, and can't find a flaw. Thank you for directing us to it.

    JFL, two miles the day after chemo and right after getting your neulasta shot?!?!? OMG. I take back all my pity-party feelings about not getting a seat on the subway. You are amazing.

    nbnotes, do you recall what system your friend used? I've gotten some hotspots in my hip, so mobility concerns are on my fear list. I'm already using a cane, and living downstairs, even though all the bedrooms are upstairs. I go up and down as rarely as possible, to grab clothes, take a shower, clean the cat box. Gotta be honest with you, if I'm alone I don't bathe or shower, I do a sink bath in the downstairs lav. I truly fear slipping and bonking my head in the bathroom, just like that unfortunate Bollywood star did recently.

    Goodie, I like your plan. I think that my friend with MS and I can set up a mutual checking in arrangement. Her husband doesn't travel, but he does work all the hours, and she is alone a lot. It does make a huge difference to peace of mind if you know that someone will be checking in with you.

    Thanks again, everyone, for your advice. I can fall down a despair well every now and then, and you guys have always lifted me right out of there.

  • SoFAfraid
    SoFAfraid Member Posts: 1
    edited February 2018

    I have been alone for long time now, but feel I'll never get used to it. After a TBI I have been suffering from Depression, Anxiety and PTSD. Two months ago I had cryotherapy for a carcinoma that looked like a red spot in my face. No more tests or instructions were given. I felt sort of loss because I have no one to talk about my fears, but it wasn' too bad because I thought it was "done and gone".

    I' 57 and never had a mammogram, so I decided to get one done. Now waiting for a biopsy on my left breast, after two mammograms and an ultrasound. I tried talking about it with my therapist, after all he is the only person I have actual conversations with. But talking about it made it more real for me. Now I wonder if the skin cancer could have metastasized, or if I had breast cancer first and it got to my skin.

    I' scared and don' know what would I do if I get diagnosed with breast cancer after the biopsy. It' no good to tell myself not to cross that bridge until I get there. I think that' what we all do when we are scare and alone.

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited February 2018

    Here are a couple of other forums on this site that might be a better fit for you:

    https://community.breastcancer.org/forum/83

    https://community.breastcancer.org/forum/62

    https://community.breastcancer.org/forum/62

    https://community.breastcancer.org/forum/62

    https://community.breastcancer.org/forum/62

    While you and I share the "aloneness", these forums will give you tons more people to talk to. Stage 4 is a different mind-set than you've got right now. As a matter of fact, I hope and pray you never need to come to this forum :)

    Best of luck,

    Jennifer

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2018

    AlwaysAlone, we are truly sorry to hear you express how lonely and anxious you feel. We hope that you, with the help of your therapist, are able to get you the care you need, and find strategies to getting help, should your biopsy yield something positive. Have you tried support groups for TBI patients? It may be helpful to find a group of individuals who understand the emotional side effects of managing a TBI.

    Please keep us posted, albeit indeed probably a different forum, as suggested above, and know we are here for you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Blainejennifer -- I wasn't sure of the name, but I just did a quick online search. I think she used Life Alert. She had the necklace alarm which was waterproof, etc. and would call 911 immediately if pressed. They also have an alarm button just for the shower.

  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited February 2018

    I appreciate you starting this thread Blainejennifer. While I am not concerned at the present time, the idea of being alone is a huge worry for the future. I am 55, single and live with my mother in a big old house. It made sense for us to join forces given my marital status and the fact that she has been a widow since 1986. While I have primarily been supporting her through two knee surgeries and other associated issues with getting older, these days she provides support when I am under the weather at home as well. However, she will be 87 in a month and is definitely finding life a bit more challenging with aches, pains and limited mobility. She is no longer able to drive to unfamiliar places (she still does quick hops to the grocery store thankfully... I hate shopping!) or help with anything requiring any kind of technology. But overall, we are managing well. Oh.. and dog walking is out! But, so far we are managing.

    My big worry is what happens down the road. I don't have any other family locally and so, if anything happens to my mother, I will need to have a strategy to deal with things on my own. Fortunately my cancer seems to be slow growing albeit, somewhat difficult to treat, but I know at some point it will start to get the upper hand. What then? It's reassuring to hear of others who are able to maintain their independence while battling this beast.

    Thanks again for starting this thread. I know there are many in a similar situation who will hopefully chime in.


  • intothewoods
    intothewoods Member Posts: 449
    edited March 2018

    This is an important thread! I related to your post blainejenner and very glad I took the time to click on it! I passed out this past weekend. My spouse was in the other room and I was able to call her on my cell which is always near if not on me. It was very scary and I thought about what I would do if I had been alone. I don't have any family or close friends nearby but I live in a condo and know a lot of our neighbors through dog walking. I am going to swallow my pride and take my upstairs neighbor's offer to help and ask if she would be willing to come and sit with me for a bit if that ever happens again. More of an exercise in self-care because I believe the fainting was caused by dehydration which is unusual for me. I'm going to do the same with a neighbor and alert our concierge of the person's roll so she is let in.

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited March 2018

    nbnotes, thank you for the name. It looks like that's the route I need to go for true peace of mind. Even if spouse is upstairs and I'm downstairs, he'd have a hard time hearing me if I shouted out. We are all a little bit older, and a little bit deafer than we were when we started this cancer fun. That shower button is clever as heck.

    To be honest, if I had to do it all over, I wouldn't have moved into a two story house. Mobility limitations have halved the house for me. We've only got a half bath downstairs, so I can manage when spouse is out of town. I'm not ready for a stair lift yet, and we've got weird twisty stairs, so I don't even know if a lift would work.

    But, I love this place, and all the green around us. We are right next to a national preserve, and I can get to hiking trails about twenty feet away from my back porch. When I can hike again, that is.

    Sadiesservant, I hear you about the lack of family near! That's another thing on my list of "Do Overs". It was hard raising a kid away from family, and it's hard being ill without family close by. I worry about leaning on my spouse so much. Now, whenever he tells me he's got to travel, he has to deal with a blubbing wife. He kind of thought I'd be resilient forever, as I've been doing this for 6 years, and only recently have had real issues.

    We've come to realize that as much as we love it here, we should look at cooperative living arrangements for older folk. Bleh. I'm 57, and don't feel older, except when trying to move these compromised bones. Whoops, I'm going to have a pouting session right about now. I love my house. Don't wanna move - can't make me.

    I guess what I'm trying to say is, plan ahead. There might come a time when both you and your mom need some assistance, so maybe start looking for a living situation that might be conducive to that? Or, you can be like me - only be moved from my home by burly men as I hang on to the door frame, bleating. I'm not recommending that choice, but it is what I feel.

    Intothewoods, You passed out?!?! Wow. If that happened to me, I'd be wearing about ten different alert systems right now. Not that I over-react or anything. But, you illustrate perfectly why the alerts would be so handy. And, a good reminder to stay hydrated. Are you feeling better now?

    Speaking of dog walking, off I go for my daily wobble with the dog. I am really grateful I worked with her when she was a pup, because if she pulled on the lead now, I'd be face down, eating some driveway.

  • intothewoods
    intothewoods Member Posts: 449
    edited March 2018

    blainjenner, your house sounds lovely and I can see why you would not want to move. I don't have stairs in my condo but do live on second floor so if elevator fails... Right now I can do stairs. I live in the city and don't have enough green. If burly men are needed I hope they are handsome gentle and funny like you! I feel much much better. I saw my oncologist Wed and he ordered hydration, more on Monday and going forward after every chemo. I was meditating when I passed out and my meditation teacher says it does happen, has happened to her and is more common in women. Of course it is haha.

    Sadiesservant, it sounds wise, albeit difficult, to start thinking now about how you will manage in the future.

    Wishing all good days

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