INSOMNIACS place to talk in the wee hours

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2018

    Here is the picture of the second book by my favorite former English professor.

    image

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited February 2018

    Sas probably doesn’t put her stats under her sig because if she did there wouldn’t be room for any other posts on the page.

    HA! Love you Sassy, my BFF

  • TaRenee
    TaRenee Member Posts: 464
    edited February 2018

    Of course I can’t sleep tonight. I go to the PS tomorrow for pre exchange visit. (Surgery is end of March). I don’t know if I’m excited or scared.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    stopped by to read all. Will probably write tomorrow or soon.

    Yes it was a one degree temperature and now none. And no anemia.

    edited to add - deleted a double post.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    stopped by to read all. Will probably write tomorrow or soon.

    Yes it was a one degree temperature and now none. And no anemia.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited March 2018

    Jaymeb, there are so many ways and reasons men leave us. My husband loved me so much he couldn't bear the thought of losing me, of watching me die (like he watched his mother), and began to drink to dulll the pain, hiding it so no one would know until it was too late and he died of cirrhosis. But he left me, as certainly as if he'd walked out the door and slammed it behind him. But I can't pick up the phone and hear his voice, and as him what should I do about whatever. After 30 years (and 3 months, to the day) together, I don't know how to do life without him. And it just plain sucks.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Beatmom - I think we have little control over the sleep when it is a physical problem like me when I was coughing all day and night. Or pain. But sometimes I just have to decide this is it. I refuse to give in and get out of bed and eventually sleep takes over. How it has been lately anyway.

    Watching the birds on feeder baskets along deck.

    Wren - hyacinths, daffodils and even tulips like the cold and will even handle snow. Also star of Bethlehem, snowdrops.

    KIRBY - having fun in the snow. Danny Boy's favourite thing is snow. Then me. He would probably lay down and let Kirby run circles around him while he laughed and ate snow.

    Jaymed - my daughter was also invested. She brought them home and we found the lost owners and or a new owner. But when she moved out she left me w a pile of cats on my front porch. ugh. Dealt w it. I am a one cat only lady. Preferably a skunk though. We did some wildlife rehab and ended up w a skunk to rehab, h couldn't be and was mine. From there I did skunk rescues of domestic skunks that lost their happy homes due to the owners usually not realizing what they were getting into. Newfoundlands have always been adopted at around 3 to 4 yrs old, they lost their happy homes too. But out first Newfoundland was a 10 wk old puppy, Orson. Newfie puppies are cut and then they are pups and more than I can handle. I prefer older dogs just getting the spit and vinegar out of them. My DD is 33 and GD is 12. I was dx w stage 4, it had already clouded my lungs and gone into the lymph nodes though not liver until 2016. Some days I do not feel so full of life or anything. Bogged down by trying to figure this out again and again. Never having an answer or doctor stick is a real problem. Then there are days when I just say to hell w it and write and have fun. I am now taking off every Friday, Saturday and Sunday, no appts or scans or tests or anything. I will cut back on Thursday too after this week is over, have the medical pain exam for the accident tomorrow and meet w my attorney this afternoon. And they want me to see yet another doctor for pain test and testimony in court, that will rob me of yet another 8 hrs of my life.

    LoverofLife - I don't know why I had the one degree temp - but I know now it is not sick and labs say not anemia, so I am feeling poorly and not happy about that. The tomatoes - Hubby opened the largest can he could find of course. I forget he does that stuff but am never surprised. They were fire roasted whole so the inside juices had not been cooked. I will make stewed out of them soon. The soup is better but most everything is tasting sour to me lately. And if it is not smoothie, pureed, baby food then it just sticks at my tender tummy and my body balks at eating again.

    Mags - sometimes we forget you need hugs daily. ((((Magdalene))) Here's a picture for you. A cornflower meadow in dappled sunlight.

    image

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited February 2018

    Bluebird, I thank you for the field of cornflowers, and I raise you a wall of roses! Grown by myself!

    image

    I loved this, it was at my old house, don’t have one here but a perfect spot for it at the new place. And Heirloom Roses has it on sale right now. Crown Princess Margareta. Beautiful, huge, fragrant blooms. Yummy.


  • runor
    runor Member Posts: 1,798
    edited February 2018

    Long, pointless ramble. Do not read if you are not in the mood to be annoyed. You have been warned.

    The past year with cancer has been .... like it didn't really happen. Only it did. But I can't believe it. But I can. There are scars. There is pain and swelling. There is doom and gloom and writing wills and giving away items that are precious now rather than later. Hub went back to his normal life, which is for him the familiar and safe floaty boat that he climbs into and bobs along when the going gets rough. And I LOVE my Hub, yes I do, and I know this is hard on him, yes it is. And I should be happy that he is in his floaty boat happily living life, refusing to let any other realities alter his path. Because that's how he feels safe. But what I really want to do is swim over to his floaty boat and stick a big knife in it and watch as it fizzles and sputters and he can use his hard hat to bail it out. Ha ha. Sorry. Not sorry. I feel like I was hurled off the dock, a passing shark took a big bite out of me, the bastard is still circling in the water and Hub is happily floating along on his floaty boat, oblivious.

    This winter has sucked and been very hard. As I said, life went back to normal for everyone except me. I am not angry at them (although I do want to deflate the floaty boat) but I am angry. I look back over the past 40 years and think, who am I? What have I done that matters? If I could do anything I want, what would it be? (long, blank pause). If I am on borrowed time, which we all are, really. But if I am on borrowed time that I have been made painfully aware of, should I spend it washingcookingcleaningfoldingvacuumingfeedingdogchickenhorsesgroceriesmowingwindowwashing? My space bar did not break. My life feels like a repetitive wheel of endless housework and drudgery and I have howled about this before. Howled about this for 40 years. I need to do something different. I know this. This is not news.

    But here's the catch. If I go rogue, do something so utterly radical, blow my world apart and the floaty boat with it, will I regret it? Will I look back on the hum-drum this is and think, I had it good, I should have treasured that?

    If I DO NOT do anything radical, if I set my sights on finding happiness and joy right where I am, which so far has been pretty elusive, if I do not make a change, will I regret it? Will I think on my deathbed, shit, I should have gone bonkers and run away with the circus when I had the chance?

    I am of two minds, and neither is worth a damn.

    Has your experience with cancer brought you more fully and deeply into the life you are living right this minute? Or has it propelled you in a different direction, clarifying that the time for change is now?

    And thinking of this stuff at almost midnight is why I don't sleep!

  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018

    Hello Ladies,

    Mags! - I know you have been struggling (((hugs))) and you have been missed. I am so glad to see your face (in your avatar) and read your posts. The roses are beautiful too. Wish we could all enjoy their aroma.

    I went outside of my apartment about an hour ago and it is snowing out there. It is predicted that this area will get 3-4 inches over night. Boo! Hiss! It is pretty, initially, but I am supposed to volunteer tomorrow and if there is snow on the ground it'll be too hard to push my walker through for the 4 blocks I'd have to walk. Not to mention the risk of slipping. Oh well, I'll just have to wait and see what it looks like in the morning.

    Blue - Kirby would have great fun running around Danny Boy. I went to the movies today with a friend and Kirby was rather restless sitting on the seat between us. But he did fine overall.

    I finally got an appt. with the neurosurgeon. I see him mid-March. Yay! Although the idea of back surgery makes me nervous. However, it's all about "Quality of Life", so we'll see.

    I am off to bed now. Goodnight to all!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Miss Blue - Looove the wildflowers! Beautiful picture; Like peeking into a secret fairy land. As for your tummy.....how do you do with yogurt? I mainly dine on low fat vanilla flavored yogurt with fruit mixed in. Fresh, frozen or canned all taste so yummy 😋

    Mags!!!! You have been very much so missed. Your roses are always so perfect! Always enjoy your pics.

    Loverly - I know you are thinking I did something that I didn't do. I would have have, but was too tired 😇💤

    Junie - So happy you got the doc you wanted!

    Sending out gentle (((hugs))) to Miss Blue, Mags, Beatmon and all my dear Owlie Sisters.

    I shall add "Ellie Mae Looking for Spring" to the flower gallery 🐶

    image


  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    SSSHHHHHH! Ellie Mae fell asleep watching Perry Mason on the telly.

    Good morning Feline! Nighty nite to the rest of y'all 😴


    image

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Hello, thank you for all the kind words, they are a blessing to my soul.

    Mags hugs, one day at a time.

    I talked with Phyllis, after three chemo's at three trial chemo's and one radiation trial, she's on a chemo trial that things have remained stable. This is the best yet. Looking very possssssstive. Also, Phyllis's son has moved to Titusville florid from Houston. He's about 20 minutes from me.

    Jay I took my stats off when our stuff on OMG THEY FOUND CURE FOR STUPID thread, started to appear on fb. The first 100 pages are a hoot. I never put them back on. I felt very liberated not looking at them. . I did even get to the point that I forgot some of the stuff nd had to relook them up b/c someone accused me of not having BC. That was about 3years ago. I then came across a statement on my path report with the PLOIDY that said "unfavorable outcome". I hrrumphed and said "well fooled you". Consider some day of taking your stats off. I think though right now you need them to keep straight where you are at. But soon that will change. Yes, we are the only mixed group. Hahaha we are special in that regard.

    Runor delete>>>>>>what up????????

    Off to MO aappointment routine. Also, decided to fire the new endocrine guy. Under his care I've gained 17 lbs.

    Blue, yes, Steam Room serves a very special need. Did you ever read the topic box? something like "drop the rant and go find a nice social thread. It's to toxic to stay here all the time". But seriously before SR, there was no place to let it all out.

    LOverly, yes, it's nice we both weren't successful Hugs and smooches

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Essa, has anyone had a relief of their sjorgens that you know of? And why did this happen?

    Junie, YAY Kirby's coming home whopdedo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Shepkitty - I was wondering when you were going to post another pic of Miss Ellie. She is officially a spoilt princess I see.

    Flowers are so lovely. Roses, trees.

    Mags - whoosh so many roses!

    Junie - Danny Boy would have to be careful not to step on Kirby. He loves little dogs.

    Sas - It would be toxic to be in Steam Room all the time, but the support system of readers is needed and by giving I think the toxicity is lessened. We appreciate you started it. The Stupid thread was a place to dump but it was almost expected to be in the form of a joke. And the Bonfire of the goddesses was a dump thread but short dumps, no diarrhea. Both stagnant now though they may live again.

    Going to get Bowen therapy for my back being out. sigh At least I don't have to leave home to do it.

    Later ladies.

    image


  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Blue, I was rushing to do the doctor thingy. I apologize, you cried all day and I ask about the sorgjens things, What a dufus. Hope the cry helped. And here I go into the science thing again. It's been proven that they're chemical things in tears that reduce stress. Which is positive for the immune system. I forget the chemicals and the mechanism, but crying is a very good thing. Obviously, doesn't seem like a good thing, but it is a very good thing.

    Shep love Ellie May's pictures. The one with the blossoms is my favorite. Has the other problem been resolved.

    Mommy hope you feel better :(

    Wren supremely love the ashes story. If I had heard of such as a younger. I would have at least done differently with my furbabies. I love the concept of carrying our ancestors with us. It doesn't follow the Catholic belief. But the Catholic belief has relaxed over the years. My priest was okay with Greg in the bedroom with a future plan. When I said I wanted Schatzi's mixed with my ashes, he said don't tell anyone i.e . b/c that is against the rules. I loved him for that. He didn't admonish me or condemn me........There was documentary about an aboringal people (forget who) that burn the body, from the ashes, some were taken and added to the family container(big). Then there was a celebration. At the celebration some ashes were taken from the big container. Mixed with liquid(water?) Then each of the survivors drank from the bowl. The idea as stated by the documentarian as told to him, was that all of their peoples that came before them, were now part of them. The ceremony was quite reverent. I was shocked at first. I had to divest myself of thoughts of cannibalism.i.e. these were ashes not flesh. I then accepted their approach of respect for all that came before them.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    QUENNIE, Hi honey, you will so laugh. My twin at 67 has just bought her first computer. HP pavilion. I didn't tell her that's what I had and all the troubles. My nephew helped her----God Bless him. She has no patience. She's north of Saginaw in Alger area. I know you know where that is. It's a low internet service area. She has convinced herself she must rent out her fore house to make more money to live on. The computer is needed per her thought to do marketing. She's on a lake section of the rifle river that has been created by a small dam. Multiple others on the lake have successfully done this. I hope she does excellent, but I fear she will through the computer in the lake.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited February 2018

    A truly insomniac night. 4:43 local time currently. Been awake since probably 6 am, and no nap, either. My friend (proprietress of my favorite Mexican restaurant) scooped me up this morning and took me to her church’s perpetual adoration chapel for an hour of contemplation and prayer, just the two of us. Very peaceful. My sister in law has been encouraging me to go over there (it’s just a mile or so away) and i’m glad I did. When I got back I fully intended to go back to sleep for the rest of the day. Ha! Almost like I’d forgotten I’m buying a house! My lender called with a list of things I needed to do today..So the rest of the day was spent signing papers, both electronically and “wet”.and digging up various pieces of documentation. Sitting here in bed with 2 iPads and my phone.

    But that was the business side of my brain. The other side was doing something entirely different. I’d caught an ear worm from some music I’d been listening to, courtesy of my cousin. (If you are unfamiliar with ear worms, that’s what they call it when you can’t get a piece of music out of your head. I’m one of a small percentage of people who almost constantly have music in their head. Always have. Runs in the family, too. Dad definitely had it. It’s actually a form of auditory hallucination.) So anyway, I had to find the song so I can get all the words right. Well as it turns out, this song is called The Prettiest Flowers, and the version I love is by a Southern Gospel group called The Isaacs. It’s not on any of their many albums, at least not on iTunes, but it is on YouTube, along with a playlist of about 299 pieces of their music, both live and digital recordings/

    Well, if you’ve known me any length of time, you probably know how much I love to garden, and my special fondness for roses. In fact, I’ve already started picking out a choice few favorite bushes to plant at the new house. There’s a grower I like to get them from, called Heirloom Roses, and I’ve been haunting their site, especially the sale pages, in between signing documents. So between the song and the roses, I started thinking about DH and what we believe happens beyond the last heartbeat. So I made a post on Facebook, with that picture above of the Crown Princess, and linked to the YouTube videos, and the following words:

    When David and I met, he was not too keen on flowers, whereas I was always itching to get my hands in the dirt. Roses reminded him of funerals – until I started growing them. I am picturing him finally taking the time to stop and smell the celestial roses – the prettiest flowers – growing beside the streets of gold, without even having to be encouraged to do so. Do they remind him of me?
    https://youtu.be/4NTCT9oQL_c
    P.S. Here's a version with all the lyrics. I love them both.
    https://youtu.be/LfT4vTssYPw

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Sas - the cry was quite healing. I have cried for various reasons the last week... frustration, anger, longing memories of my mom, despair, shame, anger, sadness, even hope and appreciation made the cry interesting. Have not cried so much maybe ever. Real tears that were blotted up by the Sjogrens. Now that and lupus seem to be in remission from taking Xeloda, there is room for more ways to heal.

    Sas - that's one way to delete a computer. I have often threatened to take mine into the woods and leave it there for three full days. Then return for it, either to take it home after it has thought about what it has done OR to mash it with a sledge hammer and then become a potter or something hopefully non-stressful. But since writers need their computers then here we sit.

    Mags - so beautiful. Now is the song singing from the earworm hallucination or from deep within your heart? I think that perhaps he is with the flowers and thinking of you.

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited February 2018

    Sas: (snickers) Your sister has my sympathies....and yes, I do know where that is. Let me know if she needs help lofting the (&%_W^ thing over the dam(n) into the reservoir beyond. I've been happy with my HPs, but not everyone is.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited February 2018

    Hey Blue, that’s a great question, and I think I have an answer. I’ve had this all my life, and apparently most of my immediate family do too. Not my cousin, though, which is why I think it came from my dad. Although mom was very musical, had a beautiful soprano voice, sang at her high school graduation, and in choirs as long as she was able, there wasn’t always music in the house when dad was at sea, that I remember. But my dad collected music, mainly classical, opera, and broadway musicals. After he retired from the Navy, he would go to the base library and check out (vinyl) records, and go home and record them on his reel to reel. So when he was home, after he retired, music was always coming from the inner sanctum. A lot of the music I carry in my head is from that exposure. But it wasn’t just the exposure, because siblings recall the music as being oppressive, and have no affection for classical, etc. whereas I still hear snatches of them constantly.

    But it wasn’t until a conversation with Sassy some time last year that we tracked down the syndrome and identified it (because that’s what we do on the phone!). And that I learned that not everyone hears music in their head all the time! I see it differently now, as a gift, and I actually observed how I channel it and control it. For instance, if I am on the verge of a depressive episode, certain pieces or songs will start to play. If I allow them to continue, they can feed the depression. But if I change the “jukebox” (as I think of it) I can reorder my thoughts as well and avoid the negative. Another thing that happen is actually closer to the conventional understanding of the ear worm, and that is a song that keeps playing, repeats and repeats, until it becomes annoying or even, in the extreme, sickening. When that happens, actually playing something different on my phone helps break the cycle.

    I think what happened with the flowers was a different sort of thing - you are correct in your assessment of it coming from deep within my heart. I’ve been listening to a couple of different albums on my phone lately. One is an older one, 1997, called City of Gold; the other a newer one, from the Gaithers, called Going Home. It’s a compilation of clips, some longer, some short, from their Homecoming Series, about death and Heaven, and there was a short clip of The Prettiest Flowers. So that was the origin of the ear worm, and finally I just had to do some research and find out who sang it on the album. That led me to the Isaacs playlist. Then, as I was sitting here signing papers and thinking about how different buying this house is, doing it by myself, and I just thought of David and how he hated the smell of roses until I started growing them and cutting them for the house. He had probably only ever smelled florists’ roses, at funerals. But in the 90s I found one of my favorites, called Tiffany, which is an old hybrid tea that actually won awards for its strong fragrance, which I liken to sticking your nose in a bowl of raspberries. And the plant I found was actually a climber, and over the years we were in that house, it grew up to the 2nd floor windows. Unfortunately, due to a neighboring mulberry tree, it didn’t get enough sun after May or so, so it stopped blooming, although after the mulberry shed its leaves in the fall we might get a couple of blossoms.

    David figured out that he’d never smelled REAL roses before. I wonder what heaven’s roses smell like?

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2018

    DH played music all the time after our marriage. The genre changed from time to time, but I never had any input about what to play. In time, I learned to screen it out like I do the ads on my computer. I guess in some ways, that's my loss. On the other hand, I am totally into art and color. On our way back from Oregon, we stopped by Heirloom Roses to see their complex. They have an area about the size of 2 lots with roses planted all around. You're free to walk and sniff and take notes. We bought the Impressionist, which is a rose that changes colors throughout the bloom season. Smells good too.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Mags - Not like your gift, but I hear music, choirs and such so often. Over the sound of the shower or when there is a din from the television and I am nearby, the music kicks in. Seldom words. More of a full orchestra and choir. Or an angelic voice. But not all the time.

    When friends and I went to Sedona long ago there was a fountain in the house we rented for 10 days. Sitting quietly in the living room one could hear voices of the native Grandmothers talking in their language. Sometimes them singing. It was eerie and captivating. I could hear, a few other women could too, not all. Water carries music, memories, miracles.

    We had music in elementary school and onward. But at age 14 this was actually my introduction to music This one on my stepdad's album and he couldn't get over that I loved this music. Forget 1970s rock n roll, I loved the R&B from two decades before and forward to mid-sixties.

    and this from Peer Gynt of all things, he had the entire recordings of the play.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    I almost got up last night. In that short time between going to bed and falling asleep where there is no thought of cancer I forgot the problem and had a tussle with one of my pillows and it hurt. Oh yeah, forgot about that, didn't you, the liver said to me. Eventually I drifted off. Then woke to the powerful winds blowing through the woods, strong and capable of taking down trees but none that I found today.Danny Boy had to go out at 3ish and I swear his fur was windblown straight back like he had been styled.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited February 2018

    Blue~ I am thankful that you are able to cry. The body does release hormones to help us when we cry.

    Here is an excerpt: “ In fact, one study collected both reflex tears and emotional tears (after peeling an onion and watching a sad movie, respectively). When scientists analyzed the content of the tears, they found each type was very different. Reflex tears are generally found to be about 98 percent water, whereas several chemicals are commonly present in emotional tears [Source: The Daily Journal. First is a protein called prolactin, which is also known to control breast milk production. Adrenocorticotropic hormonesare also common and indicate high stress levels. The other chemical found in emotional tears is leucine-enkephalin, an endorphin that reduces pain and works to improve mood. Of course, many scientists point out that research in this area is very limited and should be further studied before any conclusion can be made.“

    https://www.google.com/amp/s/science.howstuffworks.com/amp/life/inside-the-mind/emotions/crying1.htm

    Hugs

    image

    Love the music videos. Here is one of my favorites:


    Mags, thank God the auditory hallucination is music rather than voices

    Very happy to hear that you are buying a new house. Saw the photo of it. Beautiful! Curious what the inside looks like.

    Shep, I love the photos of Ellie. Hopefully, the med works and she is no longer Smelly Ellie. Poor baby.

    JunieB, yay! Wisdom to neurosurgeon.

    Ms. Sas, hope the back roll helps.


  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018

    Mags - I am listening to that song right now. Beautiful! I'd never heard that before.

    Sheppy - Miss Ellie is a cutie. Looking very comfy on the couch.

    Blue - The pink & white flower pic you posted, are those Hydrangeas? Very pretty.

    Loverly - So what if a person just doesn't cry?

    I had bought a bunch of bananas to bake some bannana/apricot bread, but never got to it because of my back. So this morning I took those very brown, yucky bananas to the compost heap.

    On another note, recently I was reading on the Ibrance thread about the things we on the drug are not supposed to be consuming (i.e., Grapefruit, pomegranate, blood oranges & Tangelos). This info was also given to me by a nurse from the specialty pharmacy that is supplying my Ibrance script. As it turns out I was never given this info and I've been drinking Pomegranate/Cranberry juice w/ sparkling water for awhile now. Apparently these items increase the toxicity of the Ibrance and possibly was causing my ANC to be quite low. Now that I have stopped drinking the juice, my last CBC showed my ANC to be 1.3. That is the highest it has ever been 3/4 of the way through a round of the Ibrance. Hmmm!

    Well it is 1:00 p.m. here and I need to get in the shower.

    Later Ladies!

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited February 2018

    Had lunch with the Sacto ladies last Friday. As usual, not enough time

    image

  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018

    Loverly - Oh what fun. So good to see all your faces!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    LoverofLife now it is unusual to find music videos with farm life, cool. I really had fun watching that one. Imagine living on a peaceful farm like that one. All green.

    Yes, Junie, those are in the front yard. A huge old bush.

    Junie - at least you knew when to give up on the bananas. And on the Ibrance note, that is why we have to do this on our own somehow. I had surgery and was never ever told not to have a blood pressure cuff on that arm, no labs, and what to do to avoid lymphedema. About 5 months later I found BCO and info. How did I find bco? Because the bc nurse navigator at the hospital where the surgeon was made a special trip to my appt to give me the huge folder the surgeon's office had been hanging on to through all my December appts, never gave it to me. Bless her heart, I found you guys finally. That was back in Jan 2012.


  • jaymeb
    jaymeb Member Posts: 276
    edited February 2018
    Hi Blue, and all you wonderful women.


    It's 3:00 in the morning my time, and still wide awake. I had my exchange surgery, and the right breast lifted. Oughhhhh😂😂😂. Bye bye expander, thank god!!!!! The silicone implant feels better, but I'm sore. The right breast, where I had the lift hurts like hell. Especially the nipple. My PS had to cut on my breast, and some of the nipple. Well, I wanted the right breast to match as much as possible to the left. The PS told me I would have more pain on that breast. Boy, she sure wasn't lying!!!!!! It's worse. My anesthesia still hasn't worn off. It will take two days. I'm just now feeling a little coherent. I'm taking Vicadin, and it only takes the edge off, not the pain. I'm not a fan of pain medicine. Hope to be off in a few days. Can't take the ambien while on it. Need to get off it anyway, but addicted to it. Sighhhh.


    I've been catching up reading your Ladies posts. Blue, my eyes got wide reading about nobody on your medical team telling you NOT to use your mascectomy arm for blood pressure readings👀👀👀👀👀👀. What the hell? Sorry about that. That was one of the first things I was told, even before my mascetomy. If my wrong arm is used to get my blood pressure, it's my fault because I'm always running my mouth to the nurses, and get distracted. 🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️ By the way, how are you feeling? It is sooo true, crying is the best medicine. I cry a lot!!! I have a history of depression. Always feel better after a good cry, if that makes sense. Blue, I think I mentioned how much my daughter and I love animals. However, she is more obsessive. She's an only child, and her pets since she was a baby are also her security.

    We have two cats, had fish, now hamsters in our small two bedroom apartment. I swear she is asking for another cat, a puppy, more rodents(which I call hamsters), and a rabbit. She's a great kid, but lord have mercy. I told her when she gets out of college, and on her own, she can get a farm, and have any animal she wants. If I tell her you have one, she would probaly try to leave here, and find you!!!!! Lol.

    I'm curious ladies, have any of you had, or have lymphodema? I always thought if one gets it, it would be immediately after surgery. Well, today, I was told lymphodema could come at anytime, years later. Is this true? It's a stupid question, but how?


    Loveroflife

    Great picture. Thanks for sharing more indepth info about what tears do. It makes sense. I always learn so much on this thread.


    Mags

    I'm so sorry about your husband. How long were you married, if it's ok to ask? I've heard, and read BC can be rough for a husband, and of course family in general. I'm divorced(which I regret everyday). My ex is a great man. Also, a very devout Catholic.🙂 I know you have great memories. My father passed 8 years ago at 65. He and my mom were married 46 years. She still misses him everyday. So do I. I read that you love gardening. I love flowers. Friends that I have tell me gardening is also therapeutic for them. Do you grow spices, or vegetables?

    Well, now it's 4:00 am. Maybe I can go to sleep. Still very tired from my surgery yesterday. Hope all of you have a good day.


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