INSOMNIACS place to talk in the wee hours

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Yes, LoverofLife - blue is my favourite colour. And neutrals, I love neutrals. If I have a red it is just a tiny bit like a few flowers in red with neutrals all around.

    Sas and Lover I am glad you are still here. We need you.

    Sas - that is how I feel about Hubby - I am upset about this more than anything, I will likely not be here to take care of him when he has needs like I have now. Maybe that is why I am trying to marry him off asap after I go, if I go first. In my obit I wrote I joked .... "She married ______ from _______, Pennsylvania just twenty-two days after they met in 1980. "Not the stupidest thing I have done. This marriage has proven to be a comforting journey to the end. I want him to be all right when I am gone. So I spread the rumour he is a millionaire. He has also almost learned to cook though he will probably revert to eggs and hot dogs. The couple never lived where there were not mature trees. They enjoyed auctions, flea markets, movies, Newfoundland dogs and pet skunks. Perfect match. Their daughter, Naomi Faon, was born in 1984. Much to her father's dismay, Naomi was raised on the adage that well-behaved women seldom make history. They both realized someday Naomi would fly. Fly she did, to marry musician Gavin _____ in the U.K. where both are in the care-giving field. Diane rests well, knowing her daughter is very happy."

    There's more before and after.

    WREN - That is so cool. My stepdad wanted her ashes to all be buried w him. She did not. So they were not spread. And he kept her urn beside his bed. Need I say more except perhaps to qualify this with he did not die for another 14 years or so. I seethe sometimes, this would do it. IF we had known what we found out after he died we would have confiscated her ashes and spread them sooner. In the end, some went in his grave but it was not my DS's idea. Some to her picnic table by the garden in the far back where she spent a lot of time alone night and day under the old hickory tree and some scattered at her family's plots in the country cemetery.

    Last night I slept through and was very happy about that. Do any of us really want to be insomniacs? I dunno. But I miss you guys when I don't wake up or stop in.

    Dinner is done, oh yes, appetite!


  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited February 2018

    Wren: I like the idea of putting portions of the ashes where the survivors considered suitable--soup tureen, humidor, over the railing as the ferry crossed some significant or memorable point....it's all appropriate.

  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018

    Hello to all,

    Blue - That is a very pretty urn. I love the Newfie face too. Is Danny Boy a cuddler? That soleful expression on his face makes me want to just rub his ears and snuggle with him. Sorry you have such pain from the auto accident. How do you keep a positive/hopeful attitude when it gets real bad?

    Loverly - Despite my feeling yucky that night, I was very glad to be able to spend the time with you, Shep & Sassy. I do feel bad that I wasn't a ball of fun to be with though. I surely hope that we will be able to try again sometime in the future.

    Shep - Ellie is a cutie and the clip is adorable. I hope you're doing well.

    I have been really struggling with back pain since Christmas . I've had worsening pain in my sacrum, right hip & lumbar spine. Sitting, bending, getting into/out of bed, everything has been difficult. There is weakness in my right leg as well. Both my bone scan in December and CT in January showed that my cancer is stable. But when I got up on Friday morning I couldn't stand on my right leg without it buckling and the pain was severe. So I had another trip to the ER. They did an MRI of my lumbar spine and found a fracture in L3. But despite my description of my symptoms they didn't scan my sacrum. So now I am on a steroid to calm down the spinal nerve pain, plus back to wearing my back brace. My MO sent a referral to the neurosurgeon back on February 1st, but no response yet. I am hoping that now with the fracture the neurosurgeon will be able to get me an appt. soon.

    Kirby's trainer came and picked him up and is boarding him until I can function better. I had a huge pile of laundry that I had been putting off because of the pain I have been in, but thought I could get it done yesterday because of the back brace, steroid and pain meds. But thankfully a friend called yesterday morning and offered to come pick up my laundry and take it back to her house to do it for me. While I am very thankful for the help, it is hard to think of someone else dealing with my dirty laundry. Fortunately I didn't let my embarrassment let me decline her offer. She came and took the majority and I did 4 loads myself. If my friend hadn't helped me I NEVER would have gotten it all done, because by the time I was done with the 4 loads I had left, I was in SO much pain I was near tears and wanted to scream. When pain gets to that level it really messes with your head and makes me start to wonder if going through all this treatment is worth it.

    Thankfully, today was a new day and I stayed in and rested and took my meds. I sure hope the neuro. can do something about the degeneration of my spine so I can get some QOL back, and Kirby can come back home.

    Kathindc - You asked me a couple weeks ago about how Kirby is doing and I responded, but when I tried to submit my post it disappeared and I couldn't sit any longer to type it again. Anyway, Kirby is doing great. When he came home on Jan. 28th his trainer took us to a local park and she worked with us (more me) to get me on track so I could stay consistent with his training. A day or so after that I even texted the trainer to ask if she was sure the dog she brought back to me was really my Kirbster. It is as if he grew up and became a full adult in 5 weeks. Well at least when he has his service vest and training collar on. He has been excellent on the bus, in the doctors office, restaurant, etc. Several bus drivers have even commented on what a difference they see in him since this last round of training. However, once we get home and the vest & collar come off, there is my little puppy again, ready to run and jump and play. I really love that little boy.

    Sas - I am sorry I had to cut off our conversation yesterday, but I was hurting so bad I couldn't think straight or follow the conversation any longer.

    I know there are other posts I want to respond to, but my night meds are kicking in and I need to go to bed. Goodnight to all. I hope you all have a great week.

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2018

    Junie, Sorry to hear you're in so much pain. Do take it easy and try to do way less. Once you get to that point in pain, it's very hard to get rid of. I know you know this, so I won't preach. Kirby sounds wonderful. Behaving when he's at work with the vest and playing when he's not - just what you want. I hope they're able to do something about your pain right away. Gentle hugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Junie, the pain sounds unbearable. Hoping it can be made manageable. Kirby had to be happy to be back with you.

    Danny Boy wants to be a lap dog. Very cuddly and huggy.

    Micmel, after the flu passed how long did it take for you to return to "normal" and get your strength back. Hope not too long, been wondering about you.

  • kathindc
    kathindc Member Posts: 2,042
    edited February 2018

    Junie, hope you are getting some much needed relief. Sounds like Kirby knows when it is work time and when it is play time. A lot to learn.

    Shep, who is your pup doing? Hope training is going well

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    OWLIES, been out hunting for the cure guy

    CeliaC Tanks that was a very sweet thing to say :)

    Dammit Junie if it isn't one thing , it's another. Hope the steroids work. Sounds like Kirby made great strides in the last 5 weeks. Yay. Love it that he gets the vest and no vest difference .No more bus drivers threatening you.. Don't worry about the phone call. They are supposed to be fun, not painful.

    Blue, I totally love the urn. It's so elegant. Hope things re getting settled with the accident. I so dislike stuff like that. I have to tabulate all the millions of receipts for the remodel for the taxes. All those itty bitty pieces of paper. I thought of keeping a ledger, alas, I didn't. Blue, you are so right on this years flu. The vaccine is only 10% effective this year. Basically, they missed the mark. This is not good. It's hitting adolescents very bad. Nasty.

    Wenchi woohoo foobs and comfort. Great combo. Er one foob.

    Jay, wrong or right, I have decided not to get the flu shot anymore. B/c of what they re putting in it. Statiscally more seniors die from the flu shot than the flu. I'm a senior. There is some not so good info coming out about the flu shot. I don't want to influence anyone. I do suggest googling it and reading several sources.

    How the flu shot is made. I read the process many years ago. This is what I remember.

    Each year in say Jan or Feb, there is meeting in Switzerland or thereabouts. All these doc types different specialties look at data from the recent past and the present. Then they choose three viruses to make the vaccine. Then it's made in factories over the next months with the goal to be ready by Sept.

    Then the watch. If the get a 60% hit, meaning they "guessed right. If they get anywhere near the 60%, it's a successful year. Earlier this year they were getting a 30% response. Then as the months have gone on the vaccine is only getting a 10% hit. Meaning they didn't guess right.

    I already forget what the predominate strain is, H2N3 I think. It's a stinker.


  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Beatmom, so, glad Metavivor won the 10K. I saw your post only a few hours after your post and it said it was closed. BUT YAY!

    Jay, a few months ago we did a look at melatonin some very good studies page back and see if you can find it. There was an exceptional meta-analysis. It's not only good for sleep, it's showing that they're about a half dozen or so cancers that it's helpful with.

    If you find the page, I'll repost on Pain and other things, and put it in the topic box here.

    Are you still trying to get off Effexor?
    Your questioner: tamox and forgetfulness. Yes, but I will go and find something definitive. OH I just saw Feline's post.

    Feline I'll look at that one too. It'd be a blessing for many if it's not got anything in it that could cause trouble. But WTH we take the SERM's and AI's nd how much more poisonous are they?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Bluebird, there was a gal here years ago.....Tada the momory came back. nd you signed it Essa. We were together on Fuzzy's Romp Room in 2012-2013.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Feline and Jay et all, this is from the Nordica web site.

    https://www.newnordic.ca/products/clear-brain?variant=29257488593

    Clear Brain combines walnut extract with extracts from ginkgo, green tea and a complex of B vitamins that all work to support brain health and its cognitive and memory performance.

    MEDICINAL INGREDIENTSPER TABLET
    Pomegranate extract (Fruit) (Punica granatum L.)75 mg
    Green tea extract (Leaf) (Camellia Sinensis L.) 30:175 mg
    Ginkgo (Leaf) (Ginkgo biloba L.) 50:1
    24% Flavonoid glycosides
    6% Terpene lactones
    60 mg
    French maritime pine extract (Pinus pinaster L.)40 mg
    Walnut extract (Seed) (Juglan regia L.) 5:125 mg
    Black pepper extract (Fruit) (Piper nigrum L. )3 mg

    NATURALLY SOURCED INGREDIENTS

    WALNUT
    (Juglans regia L.)
    Walnut extract has neuroprotective properties. It is an excellent source of α linolenic acid (omega-3), antioxidants (flavonoids, phenolic acid) vitamin E and selenium, which help reduce inflammation and oxidative stress in the ageing brain.

    GINKGO
    (Ginkgo biloba L.)
    Several studies demonstrated the beneficial effect of Ginkgo on people with dementia and cognitive decline. Ginkgo extract, provides antioxidant and anti-inflammatory flavonoids and terpene lactones and is known to help improve peripheral blood circulation to support transport of oxygen and nutrients to cells.


    GREEN TEA
    (Camellia sinensis L.)
    Clear Brain uses the popular ingredient l-theanine, from tea leaves, to enhance alpha brain waves. This creates a state of relaxation, concentration and alertness, similar to what is experienced when meditating or while relaxing deeply.

    CAUTIONS & WARNINGS: Consult a health care practitioner prior to use if you have a liver disorder or develop symptoms of liver trouble (such as abdominal pain, dark urine or jaundice), if you have an iron deficiency, are pregnant or breastfeeding, are taking medications for diabetes, high blood pressure, or seizures, or any other medications or natural health products. Do not use if you are taking products that affect blood coagulation (e.g. blood thinners, clotting factor replacements, acetylsalicylic acid, ibuprofen, fish oils, vitamin E) as this may increase the risk of spontaneous bleeding. Do not take if you have allergies to walnuts or tree nuts.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Clear Brain has oodles of good stuff. Pomegrante is the gods gift to humans as is green tea. Walnuts are too. One thing I didn't know about walnuts is the high selenium. With my thyroid cancer search, I was to take Selenium 200 mg a dy and Zinc 50 mg day. I found the cost prohibitive. Must start walnuts.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    A funny story about Ginkgo or at least I think it's funny. Ginkgo has had a reputation for a very long time of helping the brain. I was purchasing some vitamins. I had Co-Q10 in the group. A guy behind me said what is that good for? I forgot, but then said if I'd been taking Ginkgo, I would of remembered. We laughed and laughed. My husband and the cashier looked at us like we were crazy.

    FYI:in the previous post it mentioned about anticoagulants and bleeding etc-----ginkgo is the culprit in that list. Ginkgo is one of those things that should be stopped before surgery

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    What's cool about the product that Feline found is that it not only supports brain health is it supports the liver and thyroid too. A 3 for 1 product


  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    https://www.medscape.com/viewarticle/748903

    this is on Aromatase Inhibitors I didn't catch it all BBL, bbut it 2011 frankly a waste. This was in the early days of AI's I was there they didn't know shit from shinola in those days. But for some reason I couldn't get this to wipe out

    Aromatase inhibitors (AIs) have emerged as the standard therapy for postmenopausal patients with estrogen/progesterone receptor-positive breast cancer. As adjuvant therapy, treatment is typically recommended for approximately 5 years. Endocrine therapy decreases annual recurrence odds by 39% and annual odds of death by 31%, irrespective of the use of chemotherapy, patient age, menopausal status and axillary lymph node status, but this benefit must be balanced with treatment side effects, one of those possibly being cognitive decline.[1] As mortality has improved, the issues of treatment-related morbidity have grown increasingly more important in breast cancer survivors.[2] Cognition impairment from AI therapy will become more of an issue to consider as clinical trials are looking at the role of AI beyond 5 years.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Tamoxifen is a Serum Estrogegen Modulator I would have to look at it individually from AI's. I would want to see current research on both. In the case of these two drug classes that's difficult. Even if something was published today, it's already several years old. The SERMS are near 20+ years old. I'll see what I can find

    Bottom like Jay to your question yes, Tamox and Ai's can mess with the brain and every other body part

  • kathindc
    kathindc Member Posts: 2,042
    edited February 2018

    Oh, the fruit of the ginkgo tree! Yuk!! Growing up,the street I lived on and moved back to has ginkgo trees. The city use to spray them to prevent the fruit from forming, yay. If the spray was too late, fruit formed and dropped in the fall. Broken fruit smells like vomit. City stopped spraying over 30 years ago. My block had the female trees cut down and males planted. Several blocks in my neighborhood aren’t so lucky nor did DD2’s neighborhood in the DuPont Circle area. The last thing you want to do is step on them before getting in your car or going into your home. That smell has always prevented me from taking the ginkgo biloba supplement.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2018

    Kathy how funny and awful. I used to feel the same way about mulberry tree's. My inlaw's had a tree--not sure what kind. The bird's would get "drunk" and fall all over the place.

    Just found out Westminster is on

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2018

    Happy as a pig in the mud!!!!!! Got to see my favorite Enlgish professor from my community college days at the book signing for the release of his second novel. He took a picture with me and hubby and signed a copy of his book for me.

  • kathindc
    kathindc Member Posts: 2,042
    edited February 2018

    Argh, mulberry trees. Had one in the yard across the alley from us. Man, now there’s a fruit that has the birds pooping all over the place. They must go directly through them without stopping

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited February 2018


    Sending hugs for Valentine's day.

    Image result for happy valentines monkey

  • runor
    runor Member Posts: 1,798
    edited February 2018

    I have not posted on this thread before. I never thought I was an insomniac, perhaps I'm not. But I have something else going on. Sleep avoidance. Bed not-go-to-ness. Suddenly going to bed is, hmm, no, let's not. Hub is in bed and has been for hours, daughter is in bed and has been for hours. But me ... I will sit up and play mah-jong on the computer (can't break that 60% win level!) or look up stupid stuff. Why? What's going on?

    Ever since this cancer diagnosis, there has been a creeping sadness. A lurking, shadowy fear. Maybe this is the monster in the closet that tortured me as a kid, I don't know. But I do know that I do not want to get into bed. The dark is hard. My mood descends as the sun goes down. It's like darkness spreads through my body at night. A coldness. A touch of the void and it scares the hell out of me.

    During the day I can pretend that I'm coping. Today a kindly neighbour asked how I was doing and I said fine. Fine. I'm fine. I AM NOT FINE AND I NEVER WILL BE AGAIN! My head is a messed up bowl of crap! I am sad, so crushingly sad. I am a zombie. I look and move the same, but feel like I am lurching, stumbling, trying to find footing that was automatic before but now I trip on my own feet trying to navigate a way through a life that seems utterly foreign even as it is exactly the same. But not the same. In the day, oh god, the effort it takes to BE NORMAL. But at night, there is no avoiding it. When I crawl into bed all those bad thoughts crawl in with me.

    "You should be living life to the fullest. " "Every day is a gift." "Any one of us could die at any time." "Your stats are good, you will probably live a long life." "Other people have it worse than you, so shut up already."

    Yeah. I know it all. I believe it all. But it doesn't change a damn thing.

    So here it is, well after midnight and instead of getting ready for bed I'm thinking about that cold Coke in the fridge and wondering what a jolt of caffeine this time of night will do. Keep me awake? I have stuff on my mind that is much worse than what's in that can of Coke for keeping me awake! I am deeply ashamed to admit that I am still stuck here, a year later. I should be doing better. Should be living life. Should be past this. Should be in bed. Should, should, should. But I'm not. If this makes me an insomniac, then your numbers have grown by one.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited February 2018

    runor, this is only scratching the surface of the issues you raise but if it is possible, turn down the brightness of your screen at night. You probably know that it has been found that the bright LED light mimics daylight and keeps your brain awake .... HUGS.


  • runor
    runor Member Posts: 1,798
    edited February 2018

    Hello feeling feline! Thanks for the tip. I would be better off if I just turned off the damn computer altogether! I see you are in Ireland. I have this bucket list fantasy of going to Ireland and importing an Irish Draft. How hard can it be? (says the person who can't get to bed at night!)

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2018

    Runor, As a former counselor, I recommend finding someone to talk to about these feelings. The oncology department may have names. People think we snap right back to our former lives, and that's often not the case. I hope you're able to nap during the day and get some sleep. We need sleep to function. I found a book once that was interesting, but the author had a hypnotic writing style. I have no idea how students stayed awake in his lectures. A couple of pages and I was sound asleep.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Travis is here to make everything A-Okay!

    Thank you Smaarty for introducing us to our fave CatMan! 😻😋💕💕

    https://www.facebook.com/travbeachboy/videos/20180...

    https://www.instagram.com/p/BfHAuHHlkPV/?taken-by=...


    image


    (using two different links just incase........)

  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018
  • JunieB
    JunieB Member Posts: 1,023
    edited February 2018

    Oh Goodie! I woke up with a scratchy throat and chest congestion this morning. I was really hopeful that I'd make it through this winter without getting sick. Obviously I was confused.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2018

    Am running in and out - will read later when in my TV chair and Hubby has his shows on.

    SASSY - your memory is alive and well. Fuzzy's was the BOMB. So much fun. Yes, Essa. Thus the DE for Diane Essa.

    Sas - I got your message - will call you soon. Cannot promise when. Tomorrow seems to be all hospice here, palliative nurse in morn, chaplain and social worker afternoon. Hubby and I will run out for lunch between. It was spread out but w the snow last week reschedules were necessary.

    Runor - I come and go here. But we talk during the day too.

    Back later or soon.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited February 2018

    Why am I still awake? I hate this. At least I have bco to come to.

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