December 2017 Radiation Group

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  • tlfrank
    tlfrank Member Posts: 199
    edited January 2018

    lifechoices2017 - I hope minimal SEs continue for both of us!!!! I was already having hot flashes and have not notice any change in them. If anything I'm sleeping better too. Fingers crossed.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    I think we all have different dose of radiation also how many session of treatment is important. Also I have to treat lymph nodes some of you early stage don’t have to that make the different also. Now I understand why my RO checked on my collarbone area every time, now that’s the Area got burned the worse. No complaints most important we kick the cancer out of the door.

    Last one and I can do my 💃!!!

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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PauletteK...last one TODAY? ... AND WE GONNA DANCE...DANCE...DANCE!!!!

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  • PVM
    PVM Member Posts: 136
    edited January 2018

    Paulette last one today woot woot woot the countdown has begun like lifechoices has said we shall dance. Ring that bell & cry those happy tears you so deserve too.

    Tilfrank hoping you don't get very many SE's from Tamoxifen. I have been on it since Sept & like lifechoices says i got thirsty too, i was not sure if that was part of the rads as i just finished but i am always thirsty. I do have a bit of bone stiffness but i was not sure if that was to do with the chemo as it can affect your bones. I had an eye appointment last week as i knew my eye site had changed during chemo but was advised by my eye dr that she wanted to check me every year esp if i was on Tamoxifen as it can cause eye issues as well. Hope the nausea goes away for you soon. I take mine at night & find that it helps with the wonderful hot flashes that are not so wonderful lol

    Have a great day ladies :)

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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PVM; hello beautiful! Yes, so far so good w/the tamoxifen. I take mine every night @ 6. I sometimes feel a hot flash or two in my sleep, but no so bad that its disturbing. If anything I think my mattress is the nuisance (be glad when my new one comes in in Feb). I have my RO/MO and surgeon appts next Wed; and my eye dr on Feb 7th. I feel like Im a car getting a complete overhaul; but if thats what it takes...I'll DO IT!

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  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    Glad to hear most of the RX side effects are manageable for those of you who have recently started those.

    I did 28/30 today. I saw the doctor who is very pleased with my skin. She wants to see me in 3 months. I will finish my next two days of boosts and then I'm done.

    The best song ever came on today...wait for it..."ring my bell" Donna Summers never sounded so good and I said "oh I will be ringing that bell, that is gonna happen!!!"

    Thinking of warrior woman Paulette who is kicking cancers butt at her last Rad today and hoping her collar bone has calmed down.

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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    So we have PauletteK at the finish line today; and gigibee you'll be right on her heels! ...you can ring my belll...llll..ring my bell...and yes I was singing that as I typed! lol

    I tell ya... yall are some FIGHTING WARRIORS! Honestly I know that this journey has been days and days and days for us all; but it seems like we all started at different times; but almost ending up near or about the same! I can't think of a better group of women to have been on this journey with that YOU ALL! In this group; so much knowledge, strength, power, hope, prayer, courage and MOST OF ALL 'FIGHT'!

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Lifechoices and PVM I’m at the finish line with you girls ..... woot woot! I finally finished this long journey!

    OMG, Bad news since last year April, scans, tests, surgery, chemo ...... radiation.... did I miss anything? Oh yes, depression and side effects! Goodbye to all this! I hope SE won’t me that much for AI.

    Thank you ladies, thank you for all these supports! Yes we are doing happy dance 💃🏻 💃🏻💃🏻💃🏻💃🏻💃🏻

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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PauletteK yipppeeeeeee!!!! As David Bowies song says...Lets Dance! Im so proud of you my sister for your courage and strength!

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Lifechoices, I’m crying for joy and fears at the same time, I am so happy it’s done, at the same time I afraid it comes back ..... I know I should be positive.


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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    Stay lifted my sister! We weren't prepared for this, But God we made it through. Live life, enjoy, breathe and look toward those things that we have or could have missed out on. I thank God for His restoration and making me whole. So i cant live as if Hes done nothing. Yes its probably easier said than done. But im believing that He has a purpose for me; for us...so we got another chance! No regrets, no fears....just live!

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  • PVM
    PVM Member Posts: 136
    edited January 2018

    Yay Paulette so happy for you my fellow fighting kicking cancer in the butt warrior woot woot Woot!!!! Cancer had no clue who it was dealing with when it was dealing with you. Cry those happy tears & know that like lifechoices says beautifully we need to live life. Proud of you & you need to celebrate tonn!!!!

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited January 2018

    Paulette, congratulations! It has been quite a journey for you and I hope tonight you celebrate, dance, have that glass of wine and get a good night's sleep. Sure, the risk of recurrence is technically there, but so is the possibility of getting struck by lightning or winning the lottery. We made it this far; let's think about everything we can accomplish next!

    Thinking of all of you so much and still so grateful for your support. I'm on week three of Tamoxifen and taking it at 9 p.m. No side effects so far.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Georgia, Lifechoices and PVM .... more and more survivors I met and I found many of them are over 10 years long. We should upbeats and beat cancer. I do believe our attitude is very important. Love all the posters and we really should have good spirits!



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  • PVM
    PVM Member Posts: 136
    edited January 2018

    Paulette I try to be upbeat & im sure like all the lovely ladies here have my days when the negative comes back. I guess that will be something that at some point will hopefully get better but love the support & encouragement we all get here is amazing & i have to say lifechoices love you for being so positive & always praying for every single one of your pink sisters. Im honestly grateful to have come upon this amazing forum & met amazing wonderful warriors fighting the kick C in the butt battle like me. Like you say Paulette there are amazing long time survivors & that shall be all of us ladies :)

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    PVM and everyone, we have a FB closed private group most of the ladies are from July and August chemo thread. We setup this group so we can be continued to be friend and we can communicate with each other. If you want to join send me a PM, I can bring you in.


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  • Neanie44
    Neanie44 Member Posts: 73
    edited January 2018

    PauletteK- You did it!!! I'm so glad you danced! It's so normal that when one chapter of our life closes, we immediately start thinking about what's next? Particularly on this journey, but allow yourself a moment of happiness to celebrate. I like what Georgia1said about the reoccurance and winning the lottery. (Lol) and she right, so let's go with that and tonight celebrate you and those that are one step closer to winning the battle. Also, I'll be sending you a PM. There's no way I'm losing you gals!

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    So happy for you Paulette! You've been through a long journey and fought so hard. I'm glad you can turn this page and move on.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    I will stay in this website and try to help other if they let me. The FB group we setup is for all of us continued to be friend and share our life. Anyone wants to join please PM me.


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  • SoniaL
    SoniaL Member Posts: 131
    edited January 2018

    Yay Paulette - congrats!

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  • Ellyn27
    Ellyn27 Member Posts: 147
    edited January 2018

    WOO HOO PAULETTE!!!!! Finally finished and time to relax and let the healing begin. You must be so relieved. Now we know why the breast cancer ribbon is pink ... because we all turned pink!!!  We've all shared this experience together and I want to thank each and every one of you for all the love and support. We have our battle scars that will remind us of what we have been thru, but more importantly we should remember how strong we've been, how strong we are and how much stronger we are going to get going forward.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Ellyn, well said, I turned Red also beside pink 😂😂😂 yes we are strong and we tough it out. Many of these days are built by our tears and pains. This is the toughest in my life. Many days I thought that I’m not going to make it during my chemo time. Many nights I cried and cried. I still have tears in my eyes but I won’t let Cancer take me down.



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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    GOOD MORNING LADIES! Omg... I fell asleep last night and missed all of these posts. YES... we are 'some' of the STRONGEST WOMEN I KNOW!

    Have a great day and KEEP DANCING!!!!

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    So a few days ago I noticed that my throat is darker on the side where I got rads. I goes about half way up my throat. I didn't think rads were going up that high. My throat doesn't hurt. Anyone else have this? I see my MO on Friday and I may pop across and ask if I can see a rads nurse real quick just to ease my mind.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Amy, same here, I just got another burn spot on my neck, I do not expect rads go up that high also. Keep me posted.

    Lifechoices, I can’t add you as friend, you need to send me friend request.


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  • PVM
    PVM Member Posts: 136
    edited January 2018

    Amy & Paulette i notice that both of you had rads on the left hand side, could this be related to you both having to turn your head when/while getting rads if you had to turn your head. I am not experiencing this yet but i have been a week out of rads today. I am getting having bad peeling on the side of my breast where your axilla is/bends, its red & slightly raw looking but its not raw just sore. I did a saline soak as advised by my hospital however it burned & i could have sworn i saw purple elephants fly with the burning sensation so decided to use cortisone cream instead lol

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  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    Today was 29/30 for me, Paul Simon was playing , these lyrics spoke to me, sounds a lot like this journey, a lot of not knowing and a lot of taking my time, but I am on my way now, on my way to being done with rads. So tomorrow around 3:30 I will ring the bell in the presence of my daughters who will get to see firsthand how strong women are...I was crying today just thinking about it and I know I will be a hot mess. My skin is healing nicely with the exception of the boost area which is still pink. My collar/neck area was spared as I was in the prone position. Prayers to all as you make the daily voyage to treatment.

    Well, I'm on my way
    I don't know where I'm going
    I'm on my way
    I'm taking my time
    But I don't know where...



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  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    OCDAmy & PauletteK - I was flat on my back with my head turned to the right for rads. I had no node involvement, and noticed you both listed some nodes. Might it/redness be from that - expanded area getting rads?

    Gigibee- tomorrow is it for you! Power on strong lady, your daughters have a great role model. Hugs to you!

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  • PVM
    PVM Member Posts: 136
    edited January 2018

    gigibee we are counting down for you tomm as you ring that bell & dance out of there. Cry those happy tears & your daughters will be proud of the warrior their mom is - hugs

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Gigi, Woo Hoo! We will be celebrating with you as you ring that bell! It's such a relief.

    Yes I assume because of positive nodes the rads were going up higher I just didn't realize it was that high and on my throat. I'm still going to ask a rads nurse to look just for peace of mind

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