December 2017 Radiation Group

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  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PauletteK, 4 more, that's awesome! We're here to support you through it!!!

    gigibee, yeah I'm thinking the same. My mom stopped hers she said in her mid40s and my middle sister just turned 50 in Nov and she hasn't had one in months. I'm glad to know mine stopped before so that I'd know it was just my body and not the meds. I'm keeping track of my dates because I think its considered menopause when nothing for a year. Ill talk to my Drs about it at the end of the month.

    My cycles were very short prior to any of this; they were like 3-4 days at the most so yeah, I'm just thinking I'm 49 and nature just took its course. Lol


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PauletteK, no chemo. I stopped taking bcp Sept 30 I had a cycle Oct 5th and Nov 4th. I didnt have one Dec or Jan. I didnt start tamox until Jan 1.

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited January 2018

    I met with my MO yesterday and got my prescription for anastrozole. After talking w/her about the side effects she calmed me down alot. She said I only read negative things because people that have no SEs don't usually write about that. So I'm going to relax and just put my trust in my drs and the Lord. They say you can take them any time, with or without food. I decided to take it at bedtime. One of the SEs listed on the lengthy list is insomnia. Well I have to tell you I slept like a log. I had probably the best sleep in a very long time ... go figure!!!

    I'm so happy to hear you ladies are finishing up your RADs. It's such a relief because it's such a big part of every single day. Then when it's over, you don't have to go every day, you don't have to think about it, it's very emotional. At least for me it was. I cried all day, but then again I'm a crier :)

    Have a beautiful day, think positive ...... and eat your protein!!!!!

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    Ellyn27, glad to hear that you are now comforted. I think we actually hear 100% of things that CAN go wrong; but certainly that's not what actually happens. On one of the post before someone posted that they just 'stopped' reading up on some stuff because they became more anxious about the negatives. Again, glad to know that you are feeling better about it all. Have a good day!

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    I met with MO this morning to go over Oncotype score of 19. She believes with chemo I have maybe a 3-4% benefit but with side effects it would be a wash. She left it up to me, my decision is no chemo. I was almost home in my driveway when I cried happy tears!

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    CindyNY YEAHHHH FOR YOU! I know those tears all too well! So do you know what your next step will be?

  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Cindy, that is great! I have an oncotype score of 18 but with the positive nodes, I had to go the chemo route. It must feel really great to avoid it. I guess you just go straight to hormone therapy?

  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Cindy ... what a good feeling! Chemo sucks I can tell you that. You can ask Amy or read our August chemo thread, so much crying and pains we went through, it was unreal. No poison in your body is a good deal.

    Ready for more zapping? Not really, I can feel my breast really swelled and looks burned. 9 more to go, 4 whole breast and 5 boosts. I’m hoping boosts will be less burn.


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    Ladies, I have a question for those that have completed rads and now on meds. After my surgery, Id get the 'twinges' in my arm (as the Drs said that's the nerves talking to one another to reconnect); which was good. Since Ive been on tamoxifen, every now and then, I get those twinges. Im guessing that means that the meds are doing what they are supposed to; but was just wondering does anyone else still get those (post surgery; mine was Oct 19th).

  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Lifechoices did you remove any nodes? I noticed my armpit and back were numb after surgery however when I was doing PT, one day my Pat massaged my back of the armpit she told me I have a lot of knots there and I noticed I got some of the sensation back after she massaged. I don’t know is that what you meant.


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    PauletteK I had 0/1 nodes. Nothing hurts; i just feel the healing twinges is what I call them lol... It had stopped after surgery and I really didn't get them during rads but since ive been on tamox; i get them random. Again, no pain just twinges. Again, Im just believing that the meds are doing what they are supposed to ;-)

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    I've got 7 more rads, then MO will prescribe an AI. Unkown what one, but everything I've read about them, they all have SE's. MO said she'll be monitoring me close, so I'll go with the flow.

    When my RO nurse asked about pain I told her periodic fast zap of pain now & then in the breast/underarm area, and gone before you know it. She said it's most likely healing from the breast surgery. LifeChoices- Maybe that's your twinges.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Finished #22/30 today, 8 more to go .... oh boy, skinis getting more red and today I feel a little sore now. I hope tonight won’t me too bad.

    How’s everyone zapping?

  • Indigo29
    Indigo29 Member Posts: 120
    edited January 2018

    Hi everyone, I've finished with my radiation treatment in November but wanted to tell you about this cream that my radiologist prescribed for me when the skin on my collar bone started to get sore and blister 3 quarters of the way through my 33 treatments. It really helped

    ASCEND laboratories, llc

    Silver sulfadiazine cream, USP 1%

    image

  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    19/30 done today. Had a new tech, a guy, that was different. So 4 more whole breast and then 5 boosts.

    I am definitely pinking up quite a bit. No blisters or peeling, hopefully my skin can hang in there a bit longer.

    My RO said the twinges can be where the nerves were severed in surgery, just throwing that out there.

    Wishing everyone good zaps.

    Today I got in 2 hail mary's on each side during zapping which I usually count 20-22 seconds on each side.

  • Neanie44
    Neanie44 Member Posts: 73
    edited January 2018

    CindyNY--Yeah for you!! My original treatment was just radiation, but then that score of 44! So new ballgame. Sometimes, I'm doubtful I made the right choice, but nothing but God helped me make me through. Glad you didn't have to experience.

    Indigo 29 - Thanks for the tip on the Silver sulfadiazine cream That stuff is amazing. Used it when I burned my face and I have no scar.

    Lifechoices2017- Glad you're getting back into the swing of working. My co-worker kept pushing me to go on FMLA, but.I resisted. I worked when I could, even if it was just for a few hours and found that it kept me from falling into a deeper depression than I was in. I was blessed that my son works in the building next to mine so he drove and took care of me. I also have wonderful coworkers that didn't let me do to much.

    I met with my RO today and she also said those twinges were the nerves. 4/33 completed and she said skin looks good and keep doing what I'm doing. What I'm doing is the midterm 3x's a day and I purchased the aquaphor to use at night like you all suggested. A little extra never hurts. Lol.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    indigo thank you for sharing the Silver sulfadiazine cream, I will ask my RO if I need the prescription for the cream.

    So far no peeling nor blisters, thanks God. Gigibee we are so close together cheers!

    Neanie , most important we kick Cancer out of the door.


  • Indigo29
    Indigo29 Member Posts: 120
    edited January 2018

    PauletteK and Gigibee - glad to hear that you are almost at the end of you radiation treatment - one more hurdle soon to be overcome and out of the way. I had 5 boosts at the end too. I asked my radiation technician what the boosts were for and she told me that boosts just target the area where the tumor and surgical incision was and are much quicker and less harsher on the skin then the other radiation treatments.

    Neanie44 - I agree; it's a great cream. I only needed to use a little bit for it to be effective. My skin healed beautifully.

    CindyNY and Lifechoices I also got the twinging pain and my radiologist said that the twinges were probably from the tissue healing.

    Even though I've finished radiation, I still apply aquaphor cream in the morning and before bedtime on the whole radiated area as my skin there gets dry very quickly.

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    Neanie- you can be sure if I had a score of 44 I too would be doing chemo. You made the right choice. HUGS!

    Gigibee- I too had a guy tech, it threw me at first...so much so I thought he said his name was Dan. Well multiple treatments later with "Dan" I found out his name is Brian.

  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Scott is one of my techs and I really like him. I'm at a teaching hospital and I can't tell you the number of men who have seen my breasts!

  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    CindyNY laughing out loud about the wrong name. I’m just like “hi I think your the last person in several counties who hasn’t seen or groped my breast “. I jest but seriously I feel that way .

    Indigo29 thank you for your support !

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    HILARIOUS.... Dan, no Brian! I too had a guy tech; T.K. .. he was the best. Everyday he'd be like, your name, b-day and is this your picture. Id give my name, bday and say yep that's me. One day my pic didn't show prior to my getting on the table. He was like, you didnt verify your pic, i was like but you know my boobs by now...he and the other 2 lady techs all started laughing.

  • Rhyfelwr
    Rhyfelwr Member Posts: 88
    edited January 2018

    There was a guy tech in training around for a couple of the weeks, and I never did get his name!

    Neanie, there are worse things in life than chemo. The support meds are so much better than they used to be. It’s hard, but you’ve already got your skills as a fighter. You can do it

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    Good afternoon ladies; thanks for the follow up info on t he twinges. I too figured that it was just my inside healing but because they had stopped and started back while on tamox; i guess again that too is reconnecting everything that needs to be.

    Ive been on tamox 9 days now (10 tonight when I take it at 6pm) and so far other than the twinges, I feel no SEs. Ive continued to take my vitamins as my MO approved and because they say tamox can cause 'slight' achy joints, im going to start back walking (when the weather breaks) but in the meantime, will do my stationery bike a 2-3 times a week just to keep motion.

    Neanie, I worked in HR for 12yrs before I was in the position that I am now at my school so I knew the paper trail. Not knowing what was to come when diagnosed, I was like, let me do it to be on the safe side. Well because I worked everyday but 4 of my time; I probably could have done the same as you. When I look at my total days that I could have been out, an now looking at the the actual time... I would have been out a TOTAL of 55 days; but because I did limited hours, but worked everyday, I truly ONLY missed 20 days of work. That in itself is a blessing as I was able to work; drive myself to every appt and still be able to do my church work (Pastors admin and I direct 2 choirs; sing on 3). My life is busy but I was able to keep as much normal as normal could be. Im the admin for the principal at my school; with a total staff of 15 ppl; and only 5 of them knew but you are correct, they were VERY supportive and restrictive of the things they allowed me to do.

    PauletteK and gigibee I hope that your skin continues to 'hold up' as you continue your zaps!... and the same for all others on this post.

    P.S... as im typing this, just got a hot flash... YES the tamox is working! lol

    Have a blessed day MY WARRIORS!

  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    lifechoices, glad you aren't experiencing SE's, and that you were able to stay so active during your treatment. Your transition after treatment should be a lot smoother because of that.

    I had to laugh at RAD's today when I was discussing some of the songs that come on and and the tech said one time "another bites the dust came on " and she was like "No!!!"

    20 of 30 done today. I took my first nap today. Haven't been sleeping well at night.

    Happy Zapping to all !


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited January 2018

    gigibee; thanks and yeah its going well. I do have i guess you'd say discomfort just under my breast where the bra rubs. I made it a point to purchase 'cotton' prior to all of this and no underwire. Honestly I think my 'boob' is just bigger (lol) and the before fit is not same as the 'after' swelling fit. But no skin irritations or anything (thank God)!

    Another one bites the dust...LOLOLOLOL! Yeah, NOT TODAY...

    I actually think i took a nap on the rads table one day. Its like I was counting and all of a sudden I jumped up when I heard the buzzing... lol. I must have been counting sheep!

    But WAY TO GO 20/30... almost at that finish line!

  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Another One Bites the Dust made me crack up laughing!

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    At my breast MRI I requested Tom Petty. I heard "don't come around here no more" and thought YOU got that right - cancer don't cone around here no more!

  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    I don't know if any of you are Game of Thrones fans? If so, you will get this one. I am a huge fan and I told my family the other day after 26 radiation treatments, I am looking like.... (lol)

    image

  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    I like that one CindyNY!

    OCD Amy, yes I watch GOT and that is about right!



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