Anyone declined Radiation and why?

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notinuse
notinuse Member Posts: 33

Has anyone declined Radiation and why?

I have an 8.7cm tumour, all margins and nodes clear. Grade 2 with a rough stage diagnosis of 1 at the minute. I am having neo-adjuvant chemo, followed by mastectomy and ovary removal. Then I am due to have Radiation and then hormonal treatment. Does anyone know why Radio is given after? I hear there are risks with permanent heart and lung damage. Is Radio really worth it? Does it increase survival rate? Struggling to find answers on the internet.

Thank you.

Comments

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited December 2017

    You said all margins and lymph nodes are clear. So you already had surgery? Lumpectomy?

    Radiation is normally recommended for treating the rest of the breast following lumpectomy. It's sometimes needed with mastectomy as well if the tumor is close to the chest wall or lymph nodes are involved.

    Part of why I opted for mastectomy was the fact that, in my case, I wouldn't have to get radiation. I was worried about possible problems from it. I also didn't want to remove that treatment from possible future use.


  • gb2115
    gb2115 Member Posts: 1,894
    edited December 2017

    I think with mastectomy whether or not they recommend radiation has to do with the location of the tumor, especially if it's close to the chest wall. I think they also like to sometimes radiate the scar area. I'm not sure what makes them do that though. However, it kind of makes sense. If cells are remaining they are likely to be near the surgical scar, or near the biopsy track. Even with a mastectomy you still have some breast tissue remaining, even if a teeny tiny amount. Your tumor was also pretty large, so maybe that plays a role??

    I would ask your doctor (radiation oncologist) to explain their reasoning. They probably have a specific reason and it might help you a lot to make a decision (one way or another), if you can fully understand why they are recommending it.

  • notinuse
    notinuse Member Posts: 33
    edited December 2017

    NotVeryBrave - No, I am having neo-adjuvant chemo first, then surgery.

    gb2115 - Yes quite a large tumour, so that's perhaps why.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited December 2017

    Pomegranite-you have a large tumor. It is in your best interest to have radiation. If it is your left breast,

    check into Breath hold Radiation - a technique that helps keep radiation away from heart and lungs.

    It wasn't available for me, but my sister had it. I know it is available in the UK.

    Both my sister and I had no issues with radiation. I never even took a nap. For my sister and I, it was

    90 percent better than chemo. Wishing you all my best!

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited December 2017

    If you haven't had surgery then you don't know if the margins and nodes are clear. Your recommendations for further treatment (using radiation) may change after NAC and surgery.


  • Shenandoah
    Shenandoah Member Posts: 39
    edited December 2017

    biopsy, July 2017, surgery Sept. 2017, followed by radiation x 15 treatments

    Lumpectomy measured 2. No cancer in nodes

    My Dr. Says the radiation is needed for any microscopic cancer that might have detached..they also recommended

    That the radiation was directed to the seat of the lump, where it laid.

    I chose a position that was offered to prevent exposure to the other breast and lung.

    You are face down, and the breast is the only part exposed.

    The table is adjusted so that the only exposure is to the affected breast, and the breast drops downward where the radiation pinpoints only that area...the lung, and other organs get no exposure.

    Not the most comfortable, but you deal with this awkward position.

    Blessings

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