INSOMNIACS place to talk in the wee hours

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  • Eeyore07
    Eeyore07 Member Posts: 113
    edited December 2017

    ShepK, forfeit the deposit and get a dog you like! Is it going to be your dog or FF dog? If it is his, let him train his own dog. How about a Corgi?!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2017

    Shep, think about getting a Sheltie. They are very loving and loyal and very attentive.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    Tessie you can feel very confident that your doctor is being thorough. Just gotta say, I like to hear that.

    Won't stop snowing here. The area has winter storm warning just ending but still more system snow coming,mwhatever that is.


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  • Liryll
    Liryll Member Posts: 14
    edited December 2017

    My first post here.  Just recently diagnosed and had a lumpectomy last Wednesday.  It's 4:30am and I can't sleep, I get my first path report tomorrow (the day after today).  So I happened to jump in on the dog conversation.  I say forget the hound and get the dog you want.  I have a GSD and happen to think they are the best.  Good luck with whatever you decide!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Welcome here. Lryll. Hang your hat awhile. Check in on the just diagnosed thread for info to prepare before treatment starts. I'll bring it back in a bit.

    Shep, that's awful. Lryll suggestion of cancelling. Is that possible. Is FF trying to be a bigger analpore than he has been. Could you cancel? I checked on the reservation. They still haven't done room assignments, but she said they would try to get us as close as possible.

    Donnie has done the grouting and redid several plugs and lights, fixed the window damaged from Irma, with framing, and stucco, then he painted a third of the house. I was concerned about the stucco as he never done stucco before and it's a several step process. But it looks great.

    WE ARE FREEZING here. I can't imagine you folks in snow.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Bestbird posted this yesterday. She attended the SABCS and was a panel speaker. She has also, expanded her MBC book

    https://community.breastcancer.org/forum/8/topics/860853?page=1&post_creation=true#post_5107279

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Junie, Shep et all. Post edited to remove offending phrase

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Lyrll and other newbies athread to help get organized


    https://community.breastcancer.org/forum/5/topics/...


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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    Liryll - welcome. I'm with you, forget the deposit.

    Shepkitty, love the initials FFH. No longer DH, huh. A hound would be a huge no for me too, your reasons exactly. I have a Newfoundland, he like to run when given the chance so he is always on lead, I feel for him but he is safer from hunters, coyote herds, traps set in woods, being taken, cars hitting him, even snakes, the big stupid tried to play with a blue racer a few years back, he was on lead and I wa hauling his arse up the hill gasping no no no no. The racer could have beat us to the top. But a Newfie is high maintenance too, I can't do all the brushing now like I could. And I know there are those that can be off lead and manage very well for owners. A vote for no hound is what I say.

    My Newfie is prompting me to come do the scheduled cookie treats, it's after dark. And a movie. I use him for house slippers.

    Danny Boy when Hubby forgot him in a snow storm a few years back, after the accident, he went in basement to stoke stove and got distracted, I was trying to nap but my gut said get up and I found this poor baby..... and I yelled to the basement HUBBY YOU HAD BETTER BE DEAD!!!!! Of course I had to take time to get the photo so Hubby couldn't deny his wrong.

    image

    image

    Snowing again, this time little fine flakes like sleet, all night supposedly. Might get scurvy, don't think we have enough fruit, all else is good.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited December 2017

    I have not been here in awhile but just wanted to pop in and wish everyone happy holidays and blessings for good health in the new year!


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  • Tappermom383
    Tappermom383 Member Posts: 643
    edited December 2017

    A friend approached me last night to chat - because of her family history and genetic testing (I don’t know the specifics), she is facing the likelihood of having BC in the next few years. And so now she is weighing the pros and cons of prophylactic mastectomy. Does anyone know of a thread here that would help her? I’ve referred her to BCO as there are articles about the topic here.

    Thanks.

    MJ

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2017

    I've seen references to genetics in some of the thread titles. She should be able to find some info there. Several famous women have had BMX for prevention.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2017

    Goodness grief! I am so behind. Busy accomplishing nothing again. Time flies faster than I can move. Anyway...WELCOME to the new ladies here. Oh wait, was that Ms. Jazzy? Must have been the same wind that blew both you and Eeyore in. Need to go back and take notes. I am sitting in the airport waiting to board the plane right next to this lady who was snoring quite loudly. Poor lady must be exhausted.

    Junie, we need to celebrate your birthday when we get together. Shep will bake the cake. I will bring my Instant Pot and Ms. Sas can make the dumplings.

    Yes, Ms. Sas., my Instant Pot did flash burn and I didn't even have to pay extra for the feature.

    Poor Danny Boy. He looks so pitiful in the first photo.

    Oh Shep, that dog is gonna be taller than you.

    Boarding soon.

    image

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2017

    Best wishes to you too MammaRay

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  • EdelC
    EdelC Member Posts: 5
    edited December 2017

    I got a partial diagnosis last Wednesday, tomorrow I go to my consultant who will give me the patholgy results. I'm outwardly calm-it's my nature, but my stomach is in knots. I wish it were tomorrow

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Blue, I love Danny Boy. Furry hug-a -bug. Love the snow on him. My Brittanies used to love the snow. I even hung two ring towels holders by each door. They each knew to stay until dried off. They would try to kick up a back paws to have them cleaned off. I thought that amusing. People that visited thought my towel ring holders were odd. I thought them clever. Never had to run for a towel or have them clumped on the floor by the door.

    Lover super weather for your cruise. We didn't talk about meeting in Daytona. My plan is to be in Daytona at or about 10 am. Leaving Port st John about 8 am. Call me when you get to Daytona with the address and I will mapquest it. OR give the address to Shep when you are on land and she can relay it.

    PICTURES, and more PICTURES. PLease.

    MammaR never to early to say Merry Christmas and Blessings to you and yours :)

    Wren and Tapper, there are genetic threads smattered throughout. Not sure how they would help if she's already been dx'd with I'll see if I can find and or remember any


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    HELLLOooooooooooooooooooojazzy, Merry Christmas...........Hope all is well with you. Missed you here.

    Louis Armstrong for you


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Jazzy followed, by a little Charlie Parker doing his rendition of the same song

    https://www.youtube.com/watch?v=JrIHEdKa0x0


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2017

    Chronic pain, My tag line " Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride". Makes me happy too :) . It's part of me and it's all so what I aspire too. It reminds me to get off my duffus and do more i.e. I'm not done it yet, keep on moving and DO something Hahahah

    EdelC, these are the hardest days. The not knowing what's coming. Once things get moving, it will get better. Kinda. But certainly, better than the limbo you are in now. While you are waiting read this thread nd get some things prepared. It's organizational things. Pick and choose :)

    https://community.breastcancer.org/forum/5/topics/748296?page=1



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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2017

    Hi Edel I left you a mesage over on the thread you started.. Will be thinking of you tomorrow. XXX

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2017

    Edel, Welcome and good wishes for a positive pathology result. Once you have a plan, the anxiety will go down a little.

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  • JWoo
    JWoo Member Posts: 1,171
    edited December 2017

    I can't believe this year is almost over.

    I hope you all have a wonderful holiday season, full of people you love.

    image

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    aawwww jwoo, bluebirds!

    Edel, there will be shock no matter what you are told. And second guessing. And a lot of hindsight you can not use. Aim for sleeping at night, it hits hard, the insomnia with illness and worry. Hahaha, wrong threas to say that on. Keep talking.

    Sas, Danny Boy's favourite thing is snow. Here's a good picture of guilty face, he was caught eating snow which freezes his stomach and makes him puke in the night. Oh, no, on iPad,will have to post later.

    Thyroid surgeon appt tomorrow morning. I am prepared for them to tell me I am not in a good condition for a surgery like this, could be two to twelve hours depending on vocal chord and nerve involvement. And after haunting my PET CT scans again I see the cancer lymph node was 14.4 SUV in Nov 2016 then 8.0 February 2017. So ibrance reduced it but not gone. Off ibrance April 5. And a scn right before did not mention that cancer node at all. So surgeon will have to call on that detail. How sis I miss this?

    Later.

    Thanks for the music SAS!

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  • Faithonfire
    Faithonfire Member Posts: 85
    edited December 2017

    hi MT,

    I am ok but still very broken-hearted after my kids told me they don't want to see me for Christmas and I am not allowed to travel before my surgery January 9.

    I have had trouble getting out of bed after that on top of hearing NOTHING from my husband in over a week now because he broke his phone AND computer all at the same time and our kids don't want him talking to me anymore so he won't borrow their phones either.

    My unspeakable crime for such utter rejection? I abandoned THEM to stay with my mother and use the same team of doctors for identical breastcancer 3 years ago! They claim I was a lazy mother for trying to rest or failing to keep up their insane schedules on top of a job as I was dying of cancer!!

    I'm still trying to face my life one day at a time for now, and I set up the nativity scene on the mantle for mom today. I was never allowed to touch it as a child so it was so funny that I was the only one left to reach it that we had a good laugh.

    I go in for surgery bloodwork this afternoon so that's why I can't sleep and have been crying for hours but I do that in private if possible. When it gets to days mom is the only one who I will get up out of bed for.

    Crying in public is a bigger embarrassment for me and much harder to go out at all if I know I can't avoid it. Therapy and doctors visits don't count though, if they insist on making me that cold and that uncomfortable I'm not going to spare them my tears!

    I am more confidant about my surgery than I have ever been now that I know I am having a skin saving nipple saving double mastectomy January 9. The plan is to save as much tissue as possible and bank the nipples in my abdomen near c section scars for later attachment when implant replaces spacer if tissue is viable. If not she can use other skin to form new ones to attach. Then they will take fat from my bum and belly to fill in around implant so the BEST part is knowing I will wake up NOT flat and that hideous power port GONE from under my skin forever hallelujah!!!

    Not sure what size I will be when it's all done but that doesn't really matter to me as long as they will FINALLY be the same size! I'm probably going to wind up a c or little smaller and I am so excited to get the tumors out it makes me happy knowing I will NEVER do chemotherapy again!

    I will check in after I get the results and let you know how it all goes!

    Thanks for helping me feel cared about enough to share with you all, I've spent so many years being told to shut up it's hard to realize that I can finally be heard. That means more to me than I could ever tell you, bless you


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2017

    Well my wish for a White Christmas may come true!!!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    Faith in Disbelief - I would cry too. How many children? How old, I missed that post I guess. My daughter moved to the UK and I may never see her in person again. That is sad but I dont think on it much. I have an image of her and her new hubby getting off the jet w their carry ons and that is what I stick with. We get to do FB chat every day and can Skype when she gets an ipad I think. If I can talk. But your story is so different, when they actually turn their backs on you would be just too hard, especially when you are going through all this. You have your mom. Are there others, sisters, brothers, relatives or close friends?

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited December 2017

    image

    Just wanted to wish everyone a very Merry Christmas

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2017

    Love the card! Merry Christmas to you.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2017

    great card, chance

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    good card.


    I posted this on Steamroom by accident. Am sleeping better. Today until 1pm. More daylight hours are the goal.

    posted on Stroom.... Am trying to flip my wrong schedule, have been going to bed at dawn then sleeping until dusk. So took a little hemp oil and 5 mg melatonin. Wanted to wait until it kicked in so did the spider solitaire puzzle for day. After 14 attempts I finally got it in 113 moves, all else didn't win at all. Usually get it in 1 or 2 tries. So maybe the melatonin had kicked in father quickly. Ya think?

    Was on FB posting this story, happy holidays and enjoy these.

    Pet Skunk for Christmas? Tie mine, please.....

    https://skunkiedelight.wordpress.com/2009/12/19/pe...

    Pet Skunks A Leaping Christmas Card

    https://skunkiedelight.wordpress.com/2008/12/17/tw...

    image

    Here's the one of Danny Boy eating snow that I couldn't send from the ipad.....

    image

    image

    A relaxing and memorable Holiday weekend to everyone!

    Diane

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