December 2017 Radiation Group
Comments
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downnotout, I was delayed a bit too due to a change in my HER2 positivity, then I had to wait 2 weeks for oncotype. It will all work out. If nothing else we learn to be very patient after this diagnosis!
hugs paulette, you have been through it. Hope we can help you through this next phase.
lifechoices, I too have shared my diagnosis with very few. For a while I had trouble even verbalizing it to some I wanted to share with. Once I had my final plan I told 2 more friends. I'm just not a person that wants all that attention. Although after this is behind me I want to help others through it.
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PauletteK, I know those tears. I've looked in the mirror and screamed. Ive woke up at night in tears. I've cried in my journal as I'm asking God for favor. I've cried on my way to work, appts and I fell to my knees at my biopsy session... when I was told, yes it's cancer. And even where I am now... I still shed tears, but now they fall for a different reason. At first I was scared, fear, the not knowing, the questions, the whys, am I going to live ... my tears now; of thanks, of joy and knowing that for all of my fears, God had an answer for them all. He knew my journey before I did. I'm not in denial of what this is, but I'm grateful and blessed that He allowed me the strength, health and sanity to be able to go through it. Im believing that I must have a purpose to be in this place.
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gigibee I felt the same. I didn't want pity parties. I wanted support, laughter and somebody to say I got you! I told my select few that I wanted to keep my prayer circle as small as my 2cm...lol... and they obliged!
And Lord, talk about it...no wayyyy... me having to say I Have Cancer was like a knife in the heart. But now I can say, I'm a survivor...and soon I'll share my story...MY STORY and yes, I hope in some way I can help others.
My fella, I love him dearly.. tells me it's ok to break, that I don't have to be the fighter all the time.
I swear, I'm so thankful for you all. Here you get to spill your heart, and everyone gets it! Lord thank you for sending these strong, brave and beautiful women in my path!
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Lifechoices - I admitted I’m weak during this journey, it knocked me down so many times. I cried and I was afraid that I have depression. I’m so glad to find this website and I got all of you listen to my worries and we can laugh together.
Gigibee- thank you so much, we will here for each other.
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Just starting out on the boards here, and I am so grateful to hear from others on the road. Thank you for the positive attitude, lifechoices!
So, is Warriors at Work a real bboard? Isn't that what this board will morph into in a few months? Now that I am getting closer to the end of rads, I am really wondering what "after" will look like.
I did notice yesterday that I am beginning to get eyelashes back! That feels exciting. There is a tiny little fringe of lashes on my eyelids. Still waiting on the eyebrows, though. There are a bunch of stray white hairs, but not much that adds up to a legit pair of brows. Still, I missed my eyelashes more, anyway! So that is my good news for the day.
Cheers!
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I have a few baby eyelashes coming back too. Mine didn't leave me until after chemo was over. I'm the opposite, I really miss my eyebrows although a few are holding on enough that I can fill in. My hair is coming back pretty quickly too. My happy thoughts for today.
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I didn't lose eyelashes and eyebrows until later in my Taxol chapter. I don't wear much make up at all, but the one thing I used to do regularly was wear a little bit of eyeliner. It just felt silly to paint on lines when there was no eyelash there to blend with. I have to say that I haven't really minded the simpler morning routine without eye makeup!
Lifechoices, do go back and compliment the gal in the rads office with the fuzzy grey hair. We gals who have been bald do appreciate being told that we still look beautiful, especially for those of us who feel somehow less than ourselves. After a lifetime of hair down past the middle of my back, I am still surprised whenever I look in the mirror. It doesn't look like me. So feeling pretty even if I am not myself is something very special. Give that encouragement -- she will appreciate it!
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Rhyfelwer, Actually just Tuesday I did run into a lady as she was leaving her rads and she has shorter grey hair, we spoke in the hallway about our recent snow and we both wished one another well in our treatment. I hope to see her again so that I can compliment her beauty:)
And Warriors At Work; lol...not sure it's a real bboard, but I feel that's what we are.
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Hi everyone...my first radiation treatment is tomorrow, 12/13. I've been scrolling here tonight to learn all I can and am so encouraged by the comments. This has been a long journey (chemo May through September, bilateral mastectomy in late October, now rads through the end of January), but God has been faithful and has given me a wonderful support system of husband, family, and friends. I'm also thankful for these boards and all the help we can lend to one another. Hope everyone has a good week, and I'm ready to get started tomorrow and be one step closer to finishing treatment.
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Hi Sonia, welcome to the thread, I did four sessions only so we are about the same time. I pray that we have minimal SE and sail through this fast.
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GOOOOOD MORNING LADIES!!!! WE WILL WIN... Have a great day!
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I need that Lifechoices, last night I dream about doctor announced I have cancer, then I started crying, and I woke up. So I need Win, Win Win!!
Will have my #5 radiation today 💪🙏🙏
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Hi Sonia, we have similar journeys as I have also had chemo, BMX and now rads and after I will go on AI. Welcome to our group and hope you find support and friendship as I have with these tough women.
Lifechoices, you really keep me pumped up!
I switched to mornings from now until I am finished. I am the second patient of the day so in and out is much faster. Today the machine kept humming and spinning on zap #10 (yes I count the zaps) and I got worried it was breaking down but it was fine. The tech said something about filters adjusting or something like.
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PauletteK; you will win! There's a song out now called YOU WILL WIN ...
The Enemy came up aganist your home - The enemy came up against your children
The enemy came up against your Name - The enemy came up against your character
You will Win, Win - You will Win, Win
The enemy came up against your health - The enemy came up against your finance
The enemy came up against your vision - The enemy came up against your businessI know you're hurt - I know you're torn - I know you are broken
It's my winning season - Everything attached to me Wins
...AND YES...it is my WINNING SEASON and I truly believe that In the Name of Jesus; EVERYTHING ATTACHED TO ME WINS!
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OCDAmy; maybe this is my purpose! We are ALL in this together! Im just so blessed to be in the midst of such strong women! I thank God for guiding me here and to be able to lift and be lifted!
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Thanks Lifechoices.... ❤️❤️❤️ So glad to have you here to pump us up!!!
Teese - how do you count the Zap? I should do that also.
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HAHA...i count the zaps as well... I also count in my head. When they say 'ok we're leaving the room', i start counting my breath counts to see if they are taking the same amount of time. Then when the machine makes the first 'loom' over my body to the right side, im like ok, here comes the zaps! When it looms BACK over to my left side; i get (2) more zaps and then i hear the machine click; the doors open and the curtain come back...and my table starts gliding back and they remove the gown off of me (sidenote: it gets cold in there; so i wear (2) gowns; one front/one back...when I lay face down, they put them over me waist down so that im not cold)...they also put the foot rest under me so that my legs are relaxed)... I LOVE MY TECH's!
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I count the zaps as well. I also count how long each zap takes, but I had to hold my breath during each zap, so I was particularly interested in how long each would take! I named the linear accelerator machine "Bert", because it reminded me of the big slow troll in Tolkien. Bert would zap from four different positions, and each tech seemed to take them in a slightly different sequence. Now that they are doing boosts, Bert wears a special extension and one stays in one position. That zap is only 20 seconds long. I can free-breathe, so I am not as desperate as I count.
Today, I walked into the office, straight to the dressing room, back to the treatment room, positioned, had my 20-second zap, then back to the dressing room and out of the office all within about 10 minutes! It would have been quicker if I hadn't been wrangling on my lymphedma sleeve (punched myself in the eye the other day when I was trying to get it on and lost my grip of the edge as I pulled).
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I am being treated with IMRT so my treatment is slightly longer. They do what they described as a "mini CT" scan each time and then I get 11 zaps from many different directions. I count how long they are but they are different lengths. Mostly between 10-20 seconds. I do not have to hold my breath at all with the IMRT. I am not getting boosts, I think because I had a mastectomy they don't do boosts.
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Hi ladies, I have my Rads simulation tomorrow and part of the visit will be to work out my 6 wk treatment schedule. A question I have for all of you is what if anything did you have to do to make up for holidays? Do they up your dose the other days that week or just give you more days on the back end? I am really hoping to start my radiation in December just to get it the heck started already but the christmas and new year holidays will definitely impact my schedule. I was hoping for some points of reference before I go into the conversation tomorrow. Thanks in advance for anything you can share!
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scaligirl, I will not get rads on Christmas Day or New Years Day. They will just tack those days on to the end so I get a total of 28 treatments. My machine wasn't working one day and so it added another day on. I understand from others this is common so even if they give you a last treatment day, know that it may change if you miss a treatment day.
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I also did not want pity from others and have kept my story in limited release. I've been at my worst during this and wanted to surround myself with those who would accept seeing me like this and know that who they know is still underneath all this crap. I heard an analogy recently about those you surround yourself with are like a tree. So I only kept those who are my trunks/branches 'in the know'. Those who were leaves, I had to let go. This 'thing' takes so much energy, inner reflection, and also outer reflection it is overwhelming. We will all surface from this and somehow, somewhere relish in the strength and courage we exhibited.
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Scalgal - my session has Christmas, new year and Martin Luther King date all impacted so my last day for my radiation will be 1/22. I’m counting all my days hopefully it won’t extend.
Ok I need to start to count me Zap or else I won’t fit in! Hahaha
Got my #5 done, 20 more whole breast, 5 boosts to go. 🤞🤞🤞 for no SE, I started to use green tea today and I hope it works well.
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Hi Scaligirl and welcome! Not to be a downer, but brace yourself for being told you don't start treatments until after the holidays. I was hoping to start in mid-November, but by the time they did the initial mapping, got the treatment planned out and did a dry run, they decided I had to wait until the Monday after Thanksgiving to start since they were closed the holiday week Thursday and Friday. I guess because the research findings were all based on a daily, five days a week schedule they try not to have days off it it's avoidable.
You should also think about what time you want to go since they like the appointments to be the same time every day. In my case, since I work I gave them the preference of end of day, and all my treatment have been between 3:30 and 5:15.
Good luck and feel free to keep asking questions!
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Sonia, welcome to you as well. In case it's helpful I am re-posting the instructions I got from Johns Hopkins. Good luck!
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Hi everyone, I was hoping to be joining you all in the December radiation group, but I still haven't had my first appointment. Today they called me and said they are waiting until they physically have my pathology slides, which have not arrived yet. They are coming from one major Boston hospital to another. I was at work when they called so I didn't ask why. Do any of you know why they cannot use the pathology report? Thanks for any help.
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Hi Lewhy, after my biopsy and pathology was completed, I decided to switch to a different hospital. The new hospital told me they wanted the slides because they wanted to examine them. I guess they just want to be sure it was doneaccurately.
Good luck!
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Georgia1 Thanks, I didn't get very many instructions other than using a mild soap...
I hadn't thought about not shaving, is anyone continuing to shave?
Lewhy , have you seen a medical oncologist yet? or are you just waiting to see a radiation oncologist?
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Thank you OCD Amy, I guess I will just have to wait! I really wanted to get this over with or at least started in December
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Good evening everyone..and WELCOME to our new WARRIORS! OK, where to start:
1. #11 of 20 today, 5 more whole breast and 4 boost... still no SEs praise God!!! I meet with the RO tomorrow, thinking he'll once again say how fantastic my boob looks...hes right:)
2. The holidays halted my start date as well, I couldn't get Thanksgiving week because I'd have missed Thurs, Fri, Sat, Sun..the following Mon/Tues was taken so I was able to start that Wed.. this is my last full week of whole breast; continuing next Mon/Tues/Wed. I will have boost next Thurs, Fri..nothng Sat, Sun, Christmas...last 2 boost 26th and 27th.
3. I still count zaps. I almost missed some today because I was singing along with the Christmas music.
4. I did not get to see my grey haired lady today to compliment her beauty; hopefully I'll see her before the week is out... but I asked the techs if next week can I bring in some giveaways... she said Yes! So over the weekend I plan to get some pink/white candy canes and put HOPE tags on them for all that will be radding over Christmas. I'll fix up a cute basket and leave in the waiting area.
5. I shared this with my fella and he said, maybe you can see if they have group sessions..he said I think you would be good at uplifting someone right now..that made me smile. So I'll look into that.
6...lastly, I just want to say thank you ladies for your support, your strength. Scripture says it takes a village... in our case; we ARE the village and together WE WIN!
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