December 2017 Radiation Group

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  • PVM
    PVM Member Posts: 136
    edited December 2017

    Paulette we are going to start radiation on the same day & i am sure it will go amazing for both of us as with all the other ladies on this thread. We shall kick some radiation butt with not too much burning. I am a bit nervous i wont like just like you Paulette as for me i am going to get the radiation under my arm as well due to having some positive lymph nodes. What scares the crap out of me is ending up with lymphedema as a result of the radiation however my radiologist says risks are low blah blah blah but then he is not the one being zapped & with less lymph nodes under his arm. Ladies i have heard that drinking at least 2 liters of water a day helps out as well with the skin, not sure if this is true or not but i am going to be trying anything to minimize the burn as well as aloe applying it to the burns. My radiologist told me as my skin is a bit tan not that i had sun this summer however i will end up with permanent dark spots from where i had radiation. I really like the idea of picking up scratch tickets, one for each day of radiation, i think i will definatly do this as well.

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited December 2017

    Just got a call and the machine is down since yesterday afternoon. They said they are hoping to have it fixed soon and asked if I could do an afternoon apt. I said yes, I want this done!!! I'm working from home so it's not a big deal. I just showered and don't want to put lotion on though. They also said they may cancel me for today since they are catching up with the yesterday afternoon people. Either way they are to call me. Fingers crossed I get in today. I HATE THIS!!!!

    My family says I'm a little OCD (they're probably right haha). I like a schedule and I'm a planner. And this is messing my head up big time hahaha

    Close my eyes, stress less, I'm on a beach and the wind and sun is on my face .......

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    Ellyn27 - my yoga teacher taught me to do alternate nostril breathing. Here's a little tutorial if you're interested: https://www.artofliving.org/us-en/yoga/breathing-t...

    It's a technique that I find relaxing during stressful times, however your beach scene sounds lovely.

    Best wishes to get this done sooner rather than later.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    gigibee; our path sounds about the same; IDC 2cm; lumpectomy 10/19 right; clear margins and nodes HR/PR+ HER-. Oddly enough I was 48 for the surgery; my bday was the day before your surgery (10/18) HAPPY 49 TO ME! ;-)

    Surgery 10/19; Rads Nov 28-Dec 27 - 20 sessions; will be leaving work in a few for my 6th session.

    I'll be on Tamoxifen as of Jan 1.

  • OCDAmy
    OCDAmy Member Posts: 873
    edited December 2017

    PVM, I also had 2 positive lymph nodes and am getting rads under my arm and upper chest. I am so worried about lymphadema! So far so good but I really don't want to have to deal with that on top of everything else. I am also worried about damage to my tissue exapander. After getting all these fills the last thing I want to happen is to lose it. I think I may be the only one on this thread that had a mastectomy.

  • Khunter
    Khunter Member Posts: 3
    edited December 2017

    I am completing the radiation mapping tomorrow morning...have been doing physical therapy for 2 weeks because my range of motion in my left arm wasn’t where it needed to be to begin radiation. I am a little nervous about radiation. Not sure why... finished chemo and had surgery... this should be a walk in the park.

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    I posted this in the November group....re-posting here just in case some have moved into this group.

    One of the lymph nodes in my armpit has become quite tender. Also, my pectoral muscle and breast are very achy. Any one else experiencing this? Today will be my last full breast treatment, will have 5 boosts beginning tomorrow. Eating protein at every meal, lathering on every substance known to man....trying to minimize these side effects but I feel like I'm starting to lose the battle.

  • JustABlip
    JustABlip Member Posts: 3
    edited December 2017

    Thanks to all - I appreciate the welcome and the great ideas on protein! I'm going shopping tonight to stock up on new food options.

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited December 2017

    My RADS appt for today got cancelled due to machine being broken. Normally I would be OK with this, but I was supposed to end Dec 22nd (Friday), but now they will add an appt to the end and I will have to go the day after Christmas, the 26th. I host Christmas day so having to go on the 26th in the morning just sucks. Hopefully it will be back up and running tomorrow. I guess there are worse things to whine about!!!

    Protein - yes, very important. I made a pot of split pea soup (my fav) and a bunch of hard boiled eggs to have on hand. I've been roasting veggies like crazy because I love them and it's great to reheat a few when I get hungry. Today I'm baking some fish for dinner to have with a big salad and sweet potato. I've been trying to make extra when I cook so there's leftovers.

  • Redheadhere
    Redheadhere Member Posts: 22
    edited December 2017

    Thank you everyone for welcoming me and for your support. My turn to give a shout out to those newer than me - WELCOME!

    Today was 3/20. I am doing a hypofractionated course due to insurance reasons. Love that someone else rules my medical treatment but unless I want to be homeless and broke, I guess that is the way it is. On the first and second day, I loved the feeling of raising my arm above my head to 'get into position'. Today the 'area' was very tight and it was painful to lift this arm. Also, the lump/scarring feels harder today. I am a certified massage therapist so am starting light massage to my 'area' to hopefully diminish this internal scarring. Plus I will continue to do my exercises.

    What I'm finding is, after wearing a sports bra 24/7 after the lumpectomy for a week, and now not wearing a bra is that my lumpectomy breast feels heavy and is uncomfortable. Who would have thought I would ever experience this with me barely filling out an A cup, ha.

    I've turned the corner in regard to my emotional state and this feels good. I think all the research was bogging me down. And now that I'm not doing research, my 3am witching hour has stopped and I'm sleeping pretty darn good. Every day I see a man who I believe is also going through radiation and he is so calm, nice, and caring. He says hello to me every day, asked about my situation on the first day, and when I saw him on the second day said good luck. I don't know why but this makes me cry, And in telling my hubby about him I also broke out in tears. One of these days I hope to reciprocate his kindness.

    I was also lost on my first visit. My second and third also, kidding, though I still had questions today. My radiation tech is a super cutie and very nice and I think this helps, hee hee.

    What about iron supplements? Has anyone taken these to help with fatigue symptoms?

    Stay strong everyone. Sending you all big healing hugs.

  • Jellybean68
    Jellybean68 Member Posts: 13
    edited December 2017

    Can I ask what the benefits of having lots of protein are? No ones mentioned that to me before, but if it helps I’m up for adding lots to my diet!

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited December 2017

    Jellybean - Radiation zaps not only the bad cancer cells but also the good cells. We eat protein to help the good cells heal, multiply and build up our immunity. I'm no doctor by any means, just going by what I've read here. Here's a good article I found online that explains: https://www.oncolink.org/support/nutrition-and-cancer/during-and-after-treatment/protein-needs-during-cancer-treatment

  • PauletteK
    PauletteK Member Posts: 2,205
    edited December 2017

    Jelly - you are funny! I believed the tech in that clinic are women, I haven’t seen a male tech. I’m praying for an uneventful 30 treatments, maybe I asked too much from God.

    Gigibee - I’m about the same age with you, but my DX is different from you, much higher risk, so I did chemo now I’m goiing for 30 radiation. I wouldn’t know what to suggest, go with your heart tells you.


  • OCDAmy
    OCDAmy Member Posts: 873
    edited December 2017

    today at rads there was a large family in the big waiting room and the little kids were playing with one of those mesh face masks people getting rads to their heads have to wear. It was so weird. The rads tech told me it was the man's last rads treatment and his family came to celebrate. I just thought how grateful I am that I don't have to wear that mask on my head/covering my face. You'd have to knock me out or I would have a full on panic attack .

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited December 2017

    Hello all. Today I had the first delay in my treatment: 40 minutes behind schedule because the computers were down. But it was rather sweet to see all the patients in the waiting room, many with their spouses. Seems like a few of us have been wiping away tears a bit this week.

    Ellyn, how mean of them to try to ruin your Christmas! We will have to make a point to toast to you on Christmas Eve and again on December 26 when you are done.

    Redhead I'm glad you came back!

    Tlfrank, my RO said to expect tighter pecs and that it is important to keep doing all of the assigned stretching exercises throughout rads and for four weeks after. See if that helps.

    And khunter, good luck! I did way too much reading in advance and it is SO much easier than I expected. You got this.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited December 2017

    question: is anyone using flexitouch pump during radiation? Anyone have lymphedema issue during radiation?

  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    I feel bad for all of you that have to endure changes in your schedule due to broken equipment and computer problems. Georgia--I love the idea of giving Ellyn a little shoutout on Christmas Eve. Her situation is really sucky😠 I usually try to find the positive side to every situation but this one bites the big one!

    I have felt a tighter sensation right where my bra would rub. Interestingly I ditched my bra weeks ago but it still feels like I am wearing (a very tight) one!

    Two more rads treatments to go. I am very much looking forward to closing the book on this chapter

  • gigibee
    gigibee Member Posts: 192
    edited December 2017

    @lifechoices...Nice to meet you even under these circumstances, I am glad you are well on your way through treatment!

    Wow, I am overwhelmed with all the responses and information/opinions. I am leaning toward the 6 week (30 sessions) with a boost at the end. I am hoping to be doing this in the prone position. I was staged for both yesterday, either way the boost will be delivered in the supine position so they needed to plan for both and decide which will work best. I should start next week and will be checking in here.

    Georgia1- I agree you are prob right and this will prob be the accepted treatment path as time goes on.

    Chronicpain I think you have valid points. I have time in my schedule to do the 6 weeks, and my insurance will allow so I will likely do that.

    Everyone who chimed in, I appreciate it!

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    image

    gigibee; nice to meet you too ;-)... yeah today #7...still no crazy SEs; just breast tenderness as if my cycle was about to come on (which I must mention); im not on any meds as of yet but somehow my cycle stopped ... not sure if this is a SE that I wasn't aware of; but I meet w/my RO today; I'll have to ask. I know that w/being on Tamox come Jan that was an SE, but hmmmm... maybe it stopped early...OR...maybe im just 49 and it was about to stop anyway (lol).

    But Im counting down; and tomorrow will be another week complete and before you know it I'll be ALL DONE!

    gigibee; as for the prone position, its not bad at all. I guess when I first heard of it I was like oh my thats gonna be uncomfortable; but oddly enough its not. I feel like now when I lay on the table its like one of the number beds; my body just molds in place. yesterday my appt was at 1:50; got there at 1:42; they shifted me maybe 2-3xs and I was in position...i counted as the machine loomed over my body; and i was dressed and back to work in 30min....#teamwinning!

    As for finding time in your schedule; it'll work out i promise! For all of this that's abnormal; I try to keep everything else normal (work, church, family, etc)... I was a bit tired the other day, but honestly I dont know if it was because of rads; or because I was just tired.

    I thank God that Ive been able to work everyday since my surgery (minus 4 days); I figured if He's working; then so am I!

    NONE of us would have planned this journey; wanted it...NO PARTS OF IT... but now that we're on it, we fight, we win and we celebrate life!

    I've attached the Morning Message for today; I think we all can use this! HAPPY THURSDAY ALL!

  • gigibee
    gigibee Member Posts: 192
    edited December 2017

    Sadly I felt the prone staging was relaxing and I told them I must not be living my best life if I consider this a relaxing environment!!!

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    gigibee; thats funny because I find it relaxing too. literally the other day when i was laying there; i was like im going to ignore the loom and take a nap. lol

  • PauletteK
    PauletteK Member Posts: 2,205
    edited December 2017

    Thank you for sharing Lifechoices, I found I can’t control my life as I said before, my life is control by God. I pray to God that please keep my SE minimal for my treatments and he took care of my chemo, it went pretty well. Now I’m going into radiation and I’m praying for minimal side effect again.


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    PauletteK; Im old enough to know that all that we ask MAY not be given...But Im also old enough to know that it doesn't hurt to submit our request to God and YES sometimes its yes; sometimes no...other times He may say 'not right now'. I've always been a prayerful warrior but my prayers are a bit more different these days, a bit more specific. Im such a controller and OMG; my OCD can be crazy sometimes, so for all things that I can control..I DO... for those that I can't HE DOES! and im totally ok w/that ... My prayers for you as you go through your rads. I'll keep you in mine as I continue to pray for 'less is more'...lessened SEs but more than enough for my healing!

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited December 2017

    Congrats to those finishing up, I'm jealous :)  And welcome to those starting. I find it interesting how treatments effect everyone differently. I don't know how they do their research on this stuff because there are so many variances involved.

    Well, the machine was still not working today but they called me last night and asked if I could go to the main hospital for the treatment (it's just across the street). I was more than happy to go. All the same people were there and all went well. They said if I don't hear from them to assume it's at the original location tomorrow.

    What's everyone having for dinner tonight? I need some fresh ideas for good proteins.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    Ellyn27; Dinner tonight will be late because I work; rads and then Im my church admin so I have some work to do at the church (then rehearsal @ 7pm)...where do I find the time. Im thinking I'll be heating chicken and finishing off my veggies.

    I dont eat alot of red meat so for protein Ive been doing Atkins shakes in the morning; about 23g or protein... i dont like to eat alot before my rads because I dont want to have to 'go to the bathroom'...lol; so ive been doing salads w/chicken or tuna for lunch (about 18g). Dinner last night (because chicken gets OLD quick); i had grilled turkey burger (just the burger, no bun) green beans and corn (about 9-12g)... i also try to get some almonds or nuts in as im sitting at my desk.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited December 2017

    Ellyn - we have left over steak last night, so I think I will have three strips of over cooked steak for dinner, some red/brown rice, vegetables. I usually have big lunch, but today I have radiation after lunch so I might need to have a lite lunch. 😐

    Lifechoices - I ask God for a lot of things since I Dx BC, I pray for all the pink sisters, when I feel lonely or scared I prays. I was a control person it goes with my job, I was a controller, I think God have shown me that who is the boss. My life has changed so much, my personality have changed also. Will need to do some soul searching so I know what to do next year.


  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    Dinner tonight is turkey chili with lots of beans. Beans & lentils are an excellent source of protein (which I often forget about!

  • OCDAmy
    OCDAmy Member Posts: 873
    edited December 2017

    We signed up for Home Chef and have a package delivered to our house every Wednesday with the fresh ingredients and recipes for three meals designed for two people. We started this when I was diagnosed and I love it. I enjoy cooking again and I don't need to decide "what is for dinner". The meals are really tasty and we don't ever have leftovers, it is just enough.

  • OCDAmy
    OCDAmy Member Posts: 873
    edited December 2017

    Well crap. My radiation machine is down today so no rads. Ugh! Now I will have to tack on another day, will this never end. I guess these machines breaking down is common?

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    OCDAmy well how about my appt at 230, it's 237 and I get told they are behind... 2ppl ahead of me. I'm like whaaaaatttt.... the tech asks if I have somewhere to be. I'm like yeah, on the rads table. Lololololo... but gotta love it. Oh well, at least I get to go home when I leave. They just don't know how getting in and out is a stress reliever. Patience... that's what I'll tell myself.

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