Getting results tomorrow, doctor asked me to bring someone
Hello! I like many have been reading these boards for a few weeks. I am 33, and was given a birads 5 after I found a lump in my left breast, as my doctor suspected it was nothing. She did however send me for an ultrasound for "precautionary"'reasons.I hadn't been prudent of checking myself, which I now regret. Thankfully I am not large chested and it is right on the side, so was easy to see.
The last few weeks have been a whirlwind of stress and tears. I had a core biopsy on Tuesday and my doctor called me this morning asking me to come see her tomorrow and recommending I bring someone with me. I assume that isn't due to good news. I know what birads 5 mean but I was still holding out hope.
My mom was a 7 year Breast cancer survivor (diagnosed at 58), then she suddenly passed away this past June. That was a shock and my family is still recovering from that. Right now I'm devestated and don't want to put my family through anything else. All I know is I have been told the tumor looks to be 1cm x 6mm x 8mm.
Any tips for handling the news
Comments
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I'm so sorry. I know how stressful this all is. Since you have a pretty good idea, make sure to write down any questions... I'd like to say do research so you know what you want to ask, but at the same time, I know how crazy that can make you feel. Do bring a good friend to help you write things down. Are you happy with that hospital and dr? That's important to think about too - before you go into panic mode.
Please keep us informed! Will be thinking about you!
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Also consider asking if you can record the consultation. Re-listening later can be very helpful.
Hope your results are must better than you suspect...
LisaAlissa
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Hi and welcome. Will you be seeing a breast surgeon tomorrow? That is the main doctor who will be looking after you initially.
Make sure to ask for a copy of the biopsy report. That will give a lot of useful information about the diagnosis.
The good news at this stage is that your lump appears to be small. Hold onto that thought until tomorrow.
Come back here after your appointment. This is the best place to get information and support (other than from your doctors).
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thank you all! Tomorrow I will just be meeting with my family practitioner to go over the results and discuss next steps. I have access to my report and results online, but I'm too worried to look. I figure I would just stress about it and Google it all night
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OR... you could look and report to us the findings and allow us to reassure you. HOnestly, I would want to know asap and I have found the women here helluva more knowledgeble than some Oncologists.
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ToughCookie - first of all my condolences on losing your mom. I'm sure this makes this all a lot harder for you.
It's a hard call. I can see the appeal of having a night of "blissful not knowing" in case it turns out that there is cancer.
Or. you could look at your report and use it to help make a list of questions to ask your GP tomorrow. If you need any treatment, he/she won't be able to answer a lot questions related to that - those answers would come from your breast surgeon and medical oncologist. However a family practitioner could likely answer more general questions about cancer, give referrals for trusted surgeons or oncologists, etc.
Tips for handling the news? When I got my diagnosis 2 months ago I took a lot of comfort in taking action, even small stuff. Here are some of the things I recommend based on what I did/wish I did in the first few days after I got my diagnosis:
- researching on line to find the best place to be treated. I don't know where you live but you could check out this website to look to see if any of these hospitals are near you: National Cancer Institute Cancer Centers (I'm assuming you're in the US)
- if you aren't aware already, get up to date on your health insurance plan. What doctors, surgeons, hospitals, etc. are in-network, what your copays and deductibles are, etc. (also a US thing mostly I believe)
- create a "play book" : a 3-ring binder with dividers and pockets. You could be getting a lot of info in the next few weeks. It really helped me to already have an organized place to keep it.
- get recommendations of oncologists and surgeons from people you trust, like friends who have been treated lately, your doctors, etc.
- do some things that you won't be able to do if you start chemo soon, such as schedule any dental work you need (including cleanings). I didn't think to get vaccinations for pneumonia and shingles which I would have done had I known (I'm older than you and already had shingles this year - you might not want those shots.)
- do some research on the diagnostic tests that you might have scheduled, like breast MRI, PET scan, etc. It's a lot less scary when you know exactly what the test is going to entail.
- make a good, long list of all the questions you have for the surgeon and oncologist. There is good advice on line about how to prepare for your first consultation. I visited a few sites and combined the info + added a lot of questions of my own.
Again, I'm a planner and list maker so that comforted me when I first got the news. Hope some of the suggestions are useful to you.
GOOD LUCK!
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I am so sorry you're going through this and my sincere sympathy on the loss of your Mom. I know how hard that is and my heart is with you.
Agatha gave great advice. I was briad 5 as well and odd are high, I believe about 90% for cancer with Birad 5. I was told my diagnosis over the phone and I can tell you while that was hard, it allowed me to then make a plan, make a list of questions, gather information and ask for referrals to surgeons and oncologists. I did see an oncologist before I decided what final tx to have by the surgeon. To me, this was critical and helpful in understanding the whole picture.
I saw 3 oncologists and 3 surgeons before I settled on the ones I selected. It was important to me to be comfortable asking questions and getting answers , so it was helpful to find not only the best of the best, but make sure they fit my personality .. if this is posiitvie you'll be spending a lot of time with this person so you'll want to feel comfortable with them, their office, their nurses etc.
I wish you luck tomorrow. Hoping for positive news for you. Keep us posted.
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Thank you! I live in Canada, so most things are covered by health care. I also have extended benefits through work I went and got my dental check-up last week planning for this, all is good there. I have also received a recommendation for an oncologist and surgeon.
All of the advice is appreciated!!
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I'll add a couple of other thoughts:
Remember that breast cancer is unfortunately pretty common. While that is a sucky truth, it also means that a lot is known about it and there are many options that have good success rates. And you are not alone!
Also - breast cancer is almost never a case where there is a rush to treat. Take your time to come to grips with the diagnosis, educate yourself, and make a plan with your providers. There's a lot to think about.
Finally - consider getting genetic testing since you're young and your mother had cancer, too. It could make some differences for your treatment plan.
I'm really sorry that this is happening to you. It's a lot. Take care of yourself. And breathe.
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Thank you NotVeryBrave. My doctor had advised if cancer I will be getting genetic testing. When my mother was diagnosed at 58 I asked about it then, but was told because there wasn't enough of a family link, neither of us qualified for the testing. My mom did have two aunts and a cousin with breast cancer (large family) but all near 60 and all alcoholics or heavy smokers, and none of her sisters. I am by far the healthiest (until now maybe) of women for two generations, and somehow dealt with this at 33. Who knew!
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Best of luck today, the uncertainty is so difficult.
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ToughCookie101,
My prayers go out to you on the passing of your mother and now having to face this yourself. AgathaNYC gave wonderful advice, but we know each person is different. Yes, you will need someone with you to hear what you may miss. The nurse called me to give me the news and she did ask if I had someone with me and I did because I was at work, but by the time she called, I had a gut feeling and just knew. The best part for me, if I can say that, was that it gave me time to digest the news and decide how I would tell my husband and sons. Once I told them, then I allowed my emotions to set in and I cried in private. Bevin mentioned how important it is to establish a relationship with the oncologist that you choose and this is essential. I am a lot like AgathaNYC in that, I am a pre-planner as well, but did not research until I had the appointment with the surgeon I chose and we determined a path to go. My boss is a retiring medical oncologist and along with advising me get a 2nd opinion, he also told me and educated patient will be the best patient. That is when I became a 'scholar'. :-) Your life may feel like it's spinning out of control now, but soon it will settle and you will wonder how you made it. Hang in there and keep us updated. We are all here to support each other.
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((((Hugs)))) Yes, to be honest, your doctor asking that you bring someone with you to get the results most likely means a breast cancer diagnosis. Believe or not, once you get the diagnosis and know what you're up against, things will get easier. It doesn't seem like now, but it truly will.
When a treatment plan is discussed, you'll feel more in control, which can go a long way to help make you feel better.
I'm so sorry about your mom. I can relate 100%. My mom was diagnosed at 42 with breast cancer and passed away from it at 56. I was 41 when diagnosed. I needed her so badly during my diagnosis/surgery/treatment and it was tough to go through it all without her. However, the support on these boards is WONDERFUL and helped greatly! Please post often as these ladies are always willing and able to offer advice, encouragement, and support.
I promise that you WILL get through this!!! It's scary, overwhelming, and all consuming....but we're here for you every step of the way!
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