Lita57

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    jean, some people don't even bring that much home per year after taxes.


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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2017

    Lita - I just browsed your CA photos, thank you for taking us there.

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2017

    I’m so worried about prescriptions! Also on a fixed income and right now my insurance is covering me on my meds but if they change, I’m worried the insurance company won’t cover them! I already have one prescription for my colitis that runs $1200 a month! And insurance does not cover it at all and there is no help from the manufacturer. I’m at a place where any more and I’m going to lose my home of 40 years

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  • zarovka
    zarovka Member Posts: 3,607
    edited November 2017

    I hear you gracie.

    >Z<

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  • Openmind
    Openmind Member Posts: 17
    edited November 2017

    GracieM2007, I don't know if it's something you've looked into already or not - but have you priced your colitis medication via GoodRX (www.GoodRx.com) or another discount card program? These prescription prices and the greed associated with them are simply out of control. No one should be in the position of losing their home simply because they are sick.



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  • jaycee49
    jaycee49 Member Posts: 1,277
    edited November 2017

    Gracie,

    I just set up a new grant with the PAN Foundation. They happen to have money for MBC right now, a rare thing. They may also have funds for colitis. There are a few other foundations that help with co-pays. My second grant came from Patient Advocate Foundation. This current grant is a renewal of the first from PAN. PAN is slightly easier to deal with but they have to have funds available. You can go to their website and see what's what. I copied in the criteria for the PAN Foundation below. Your doctor's office should help you with this.

    https://panfoundation.org/index.php/en/

    Eligibility Criteria

    1. The patient must be getting treatment for the disease named in the assistance program to which he or she is applying.
    2. The patient must have Medicare health insurance that covers his or her qualifying medication or product.
    3. The patient's medication or product must be listed on PAN's list of covered medications.
    4. The patient's income must fall at or below 500% of the Federal Poverty Level.
    5. The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
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  • jaycee49
    jaycee49 Member Posts: 1,277
    edited November 2017

    PAF (Patient Advocate Foundation)

    http://www.patientadvocate.org/help.php?p=905

    Eligibility Criteria

    • Patient should be insured and insurance must cover the medication for which patient seeks assistance.
    • Patient must have a confirmed diagnosis of Metastatic Breast Cancer.
    • Patient must reside and receive treatment in the United States.
    • Patient's income must fall below 400% of the Federal Poverty Guideline (FPG) with consideration of the Cost of Living Index(COLI) and the number in the household.
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  • jaycee49
    jaycee49 Member Posts: 1,277
    edited November 2017

    PAF is out if money for MBC right now but they do have some for BC

    Eligibility Criteria

    • Patient should be insured and insurance must cover the medication for which patient seeks assistance.
    • Patient must have a confirmed diagnosis of Breast Cancer.
    • Patient must reside and receive treatment in the United States.
    • Patient's income must fall below 400% of the Federal Poverty Guideline (FPG) with consideration of the Cost of Living Index(COLI) and the number in the household.
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  • jaycee49
    jaycee49 Member Posts: 1,277
    edited November 2017

    Gracie, I got lots of hits when I Googled "colitis medication assistance." Be careful with the ones marked as ads. These foundations MAKE money.

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  • jaycee49
    jaycee49 Member Posts: 1,277
    edited November 2017

    Lita, sorry for mucking up your thread with all this stuff but I do a lot of research on funding meds and others might as well benefit. I hope those on other mets threads find it here. The difference between PAN and PAF (wish they'd be more creative with their names) is that PAN requires you to have Medicare drug insurance. PAF just requires any drug insurance. Sorry, Gracie. Looks like PAF requires your insurance to cover the drug. It just covers co-pays. And neither covers colitis. I hope some other foundation does. There are a ton of them out there. It takes time to find them, though.

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2017

    Thanks for the information on foundations for help! Didn’t ever think about that!!

    Lita, me too, sorry for filling up your thread

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    it's cool. It helps me, too, to know where to look for help with rx's.

    L


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  • Bliss58
    Bliss58 Member Posts: 1,154
    edited November 2017

    Yes, thanks for the info about Rx assistance. I don't think the drug companies even pay for all their R&D. They depend a lot on NIH too, which we taxpayers are already paying for!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2017

    OUr economy is based IMHO on medical care, insurance and prescription drugs. So we are the foundation of it all. And when the patients go down from the weight of costs, what happens to the economy?

    Lita - how are you doing. I watch your thread though I am pretty quiet.

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    Bluebird, i'm not doing so hot. I posted on steam room for anger. I won't repeat it here.

    Need some prayers to bolster me up. I feel drained and defeated....damn brain mets.

    I'm losing my eyesight. Not sure if it's defecits from rads, tumor growth or both. Scans later in month.

    Feel like crap.

    L

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  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2017

    Lita I'm sooo sorry you feel so defeated. I'm praying that the rads you had start kicking in and soon!

    Babs

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited November 2017

    Lita, I am lifting you up in prayer. You have been through so much lately. On top of all the treatments, you went on that wonderful trip. Your body needs time to recover some of the strength that those experiences have taken from you. I hope and pray that hope that you soon begin to see some positive results from your treatments.

    Hugs and prayers from, Lynne


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  • annoyingboob
    annoyingboob Member Posts: 558
    edited November 2017

    Sorry you are feeling low. Here is a pic of my dog eating a marshmallow to help you crack a smileimage

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  • zarovka
    zarovka Member Posts: 3,607
    edited November 2017

    Hi Marshmallow.

    Lita - Your strength and attitude and honesty have lit up my days since I first started reading your posts. I appreciate it so much your ability to articulate what is going on and what it's like for you. Please keep it coming the good and ugly. You are in my prayers ... praying for that you find strength and peace to deal with the road ahead. May I find it as well.

    >Z<

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  • Kaption
    Kaption Member Posts: 3,192
    edited November 2017

    Holding you close, Lita.


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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited November 2017

    Lita, is there someone close by that can give you a little TLC? Like a head/shoulder and hand massage or a foot bath with a pedicure? Just assumed your DH is working and you are alone. You seem to be an extrovert and need your social life right now - even if friends come to you and hang out. Praying for better days. Hate to see you suffer emotionally and physically. F****ing sucks.

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  • AnimalCrackers
    AnimalCrackers Member Posts: 701
    edited November 2017

    Spunky Lita, you are force to be reckoned with.  Even with your vision problems you continue to post here.  We all love to hear from you  - as Z wrote "keep it coming - the good and the ugly."  We are all here for you.  ((((HUGS)))

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2017

    Lita, you are always in my prayers. Will offer up Mass for you today

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    thanks 4 the kind words.

    Throwing vegs and meat in the crock pot and watching PBS cooking shows. Hope i can eat tonight. Everything tastes SO metallic, its gross, even with mouth rinsing.

    Raining here 2day, so I cant go out and and sit or walk. DH has bad cold. Hope I dont get it. Washing hands and keeping him at arms length.

    Phew!


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  • Wiegp22
    Wiegp22 Member Posts: 268
    edited November 2017

    lita57,

    Hope you can eat nutrition is good for you, I know wbr makes you tired I still have another week of treatments and am exhausted ,hopefully things will getting better for us,.


    Paula

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  • Vargadoll
    Vargadoll Member Posts: 2,028
    edited November 2017

    Lita- lifting you up! Sending love from the Blue Ridge Mountains!

    imageimage

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  • Nkb
    Nkb Member Posts: 1,436
    edited November 2017

    Lita57-does any food appeal to you at all? Maybe you can fortify something that appeals in a smoothie-or just eat whatever appeals to get some calories in. Small bites of a few things could work.

    Vargadoll-gorgeous pictures!

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  • oriole
    oriole Member Posts: 72
    edited November 2017

    Lita, have you tried using plastic forks and spoons? When I was on taxol, my nurse navigator told me to use plastic and it helped and some foods tasted ok. Thinking of you and your family.

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  • Maire67
    Maire67 Member Posts: 768
    edited November 2017

    Lita. Hoping the sun comes back soon so you can get outside. Hope you can eat something. Crock pots are great

    Sending prayers to you. Maire

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  • bigbhome
    bigbhome Member Posts: 840
    edited November 2017

    Lita, I hope you start feeling better soon. You are such a huge force in our lives! I am holding you close to my heart and praying for you.

    Claudia

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