Lita57

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  • Kaption
    Kaption Member Posts: 3,192
    edited November 2017

    Hugs, Lita.


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  • cive
    cive Member Posts: 709
    edited November 2017

    Lita, sorry to hear your symptoms are returning/worsening.  Just a suggestion, if you have an Apple Ipod, you can listen to books on it.  I enjoy that for long car trips.

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  • AnimalCrackers
    AnimalCrackers Member Posts: 701
    edited November 2017

    Lita - thinking of you.  So glad that your MO is moving up the MRI.  Hope they can get you in before Thanksgiving.  Stay strong but be kind to yourself too.  

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  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited November 2017

    Lita,

    If it helps at all, when I was gossiping to my RO about brain mets, he said that he would feel confident about doing up to 40 brain mets with the Cyber Knife, if the patient wasn't keen on WBR.

    So, if your RO has a lower limit, tell him the folk at Roswell Park have a different opinion.

    That patch idea sounds good. Reducing the input to mono instead of stereo might cut you some slack.

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  • pajim
    pajim Member Posts: 2,785
    edited November 2017

    Hugs to you Lita. I'm sorry about the blind spot and dizziness.

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    Cant do the eye patch thing cuz the other eye has really blurred vision.

    Cant win

    L


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  • zarovka
    zarovka Member Posts: 3,607
    edited November 2017

    Lita - Praying for endless stores of peace and strength to get through this.

    >Z<

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    The big accomplishment today, folding a load of towels....and that's after dh gathered them all up, put them into washer and then loaded them into dryer and brought them back into the house.

    I SAT on my bed to fold everything, and I had to keep taking breaks because i was so short of breath just from folding hand towels, wash cloths and bath towels.

    Not good, not good at all.

    L


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  • artistatheart
    artistatheart Member Posts: 2,176
    edited November 2017

    I hope they approve the cyber knife Lita and get you some kind of relief. It is so difficult to lose a function we are so used to but eyesight has got to be the worst. I'm praying for you Lita and hope they get this figured out soon.

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  • Kandy
    Kandy Member Posts: 1,461
    edited November 2017

    Lita, still thinking and praying for you.

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  • momallthetime
    momallthetime Member Posts: 1,575
    edited November 2017

    Lita you do what you can babe, can you watch the reruns you like? listening is not the same as watching but at least you could catch up on the saga. Hoping for some relief for you soon.

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  • Southernsurvivor
    Southernsurvivor Member Posts: 632
    edited November 2017

    Thinking of you, Lita - sorry you are going through tough times right now. Praying for imminent relief for you.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited November 2017

    Thinking of you everyday, Lita. Praying for supernatural peace and comfort.

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited November 2017

    Can you get someone to give you a massage or manicure while you are at home? Isn't it crazy that no matter how sick you are..there is always laundry.

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  • PHOTOGIRL-62
    PHOTOGIRL-62 Member Posts: 285
    edited November 2017

    Thinking and praying for you Lita. You always make me laugh!

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2017

    Lita, still praying! Hoping you get some news to help out your situation! It’s hard for me to know exactly what to say, and I usually end up sticking my foot in my mouth. But I do think of you often and include you in my prayers. Am still praying for a turn around for you!

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited November 2017

    Hi Lita...popping in to say I'm thinking of you & so hope your upcoming MRI shows you're a candidate for cyber-knife...since other sisters have had success with it. I'm praying for healing & feeling better. Hoping for a Thanksgiving day with people & moments that make you happy. We'll be going to a nephew's home so that will make me happy! XOX


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  • zarovka
    zarovka Member Posts: 3,607
    edited November 2017

    Praying for a peaceful holiday surrounded by family and loving furry creatures.

    >Z<

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  • Lita57
    Lita57 Member Posts: 2,437
    edited November 2017

    Soonest they can see me for brain MRI is Dec 7. Better than nothing.

    New development: In the 19 mos since I've been fighting this beast, I have NEVER taken to my bed in the middle of the day, but today I did, sadly. Poopy thing is that I couldn't even sleep...only able to rest. Sometimes cancer just keeps you awake

    I am so weak these days. Back hurts, but manageable. What concerns me is it feels like it just won't support me anymore. Was told there was major spinal progression with last scan, so not surprising. I'm having nerve impingement pain in my legs...not liking that because it affects my sleep.

    DH and DD are going to have to make T'day dinner this year. I will supervise. There is NO WAY I can stand up for more than a couple of minutes at a time. I can sit at the kitchen table and chop vegetables, but that's about it.

    Hoping SOME of the brain mets have shrunk, but I don't know. ALL of my horrible original symptoms are back, and my strength/stamina are affected now. I can really feel the difference between who I was a month ago and now. This is NOT my body!!! I have this weird feeling of disassociation.

    Sigh....trying to hold it together and not get too weirded out. Having to use my rolling walker more and more these days too because I've almost passed out several times because of brain mets light-headedness.

    L


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  • IntoLight
    IntoLight Member Posts: 1,701
    edited November 2017

    Lita, you are so brave to be honest with us here, and I appreciate it more than you will ever know. Your spirit and honesty help me be more real with myself...thank you. I pray for you daily and pray Thanksgiving Day will be special for you.

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  • runor
    runor Member Posts: 1,798
    edited November 2017

    Lita, I check in here daily to see how you are doing. So many of us hold you near our hearts and pray for you. I pray that you are able to get some sleep. Hugz.

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  • illimae
    illimae Member Posts: 5,710
    edited November 2017

    Lita, thank you for updating, I just hate this but I'm glad to see you calm ahead of scans and engaged with holiday activities. Hoping for wonderful days ahead and a plan moving forward :)

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  • zarovka
    zarovka Member Posts: 3,607
    edited November 2017

    Lita - thanks for the update. Checking here daily. Hope that thanksgiving is a peaceful family affair that allows you to participate or rest as need.

    >Z<

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited November 2017

    Lita, I will be including you in a special prayer this Thanksgiving......

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2017

    Lita, I don’t understand why it is taking them so long to get you in! Can your MO intercede for an earlier date? I would be screaming at somebody. Prayers that somehow they get you in sooner. And I hope you are able to relax with your family a little tomorrow. Sending gentle cyber hugs your way

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  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2017

    Lita. Hoping you get to enjoy your time with your dh and dd tomorrow. Make great memories always! Thinking of you and praying for you!

    Babs

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  • bandwoman1234
    bandwoman1234 Member Posts: 5,542
    edited November 2017

    Lita, praying for you daily. You are an amazing warrior with such a fighting spirit. I hope you can enjoy Thanksgiving Day with your family.

    Love,

    Nancy

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited November 2017

    Lita, know I am carrying you in my heart. Hope you have a wonderful day tomorrow and have some fun instructing dh and dd in the fine arts of turkey day

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  • momallthetime
    momallthetime Member Posts: 1,575
    edited November 2017

    Lita they better prepare it all the way you always made it. Hope you get to enjoy it even if they prepared it, you've got so many ppl that love you. Take good care

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    Lita, praying for you, may God takes away all the pains from your body. Hope you enjoy thanksgiving with your family.


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