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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited October 2017

    Regarding the comments tlfrank's mom made, I offer this definition:

    "Narcissistic personality disorder is a mental disorder in which people have an inflated sense of their own importance, a deep need for admiration and a lack of empathy for others."

    (from mayoclinic.org)

  • tlfrank
    tlfrank Member Posts: 199
    edited October 2017

    ShetlandPony - thank you for that. I've known this about her personality, but for some dumb reason, I thought this diagnosis would soften her a bit. I try to limit my exposure to her as much as possible. Awful when it's your mother in times like these.


  • TaRenee
    TaRenee Member Posts: 464
    edited October 2017

    Today I went to our central office and met with one of our superentendents. He was struggling with what to say and finally said “You look better than I thought you would look considering what you have been through.” Thanks? I mean, I know he meant well but that wasn’t the right thing either. What exactly am I supposed to look like

  • Cpeachymom
    Cpeachymom Member Posts: 518
    edited October 2017

    tlfrank- I'm sorry, I actually laughed when I read your post. I think our mothers should meet, I'm pretty sure they'd hit it off! It was so similar to the initial conversations with my mother (and many other conversations over the years). Not to offend, I also have a crazy mother and ShetlandPony nailed it! I said to my husband, "she diagnosed my mother and she's never even Met her!" 'm sorry , I know what it's like.




  • Tappermom383
    Tappermom383 Member Posts: 643
    edited October 2017

    So I was at an event yesterday (my husband's Rotary Club's annual auction) and a woman I know asked me how I was doing. I said I was doing pretty well. Another woman standing nearby asked me what was going on. I told her I had had breast cancer. Here was her response, made with a dismissive hand gesture: "Oh, they can take care of that easily."

    My response: "Yes, I had surgery and radiation treatments and now I'm on medication that is causing me some side effects. I certainly wouldn't say I was glad to have gone through this."

    "No," she replied. "But just look at those commercials for St. Jude's Hospital and look at those children and be glad you were so lucky."

    What? I'm the first the acknowledge that there are many people out there (including so many on this forum) who had a much tougher time than I did. But does that negate what I went through?

    I shouldn't let people get to me but she really upset me!

    MJ

  • runor
    runor Member Posts: 1,798
    edited October 2017

    Tappermom, that would get to me too. Yes, people have it worse. There are people who should seriously have their license to free speech revoked!

  • tlfrank
    tlfrank Member Posts: 199
    edited October 2017

    Tappermom, I probably would not have been so restrained in my reply to that insensitive woman. Some people may have it worse - however some people have it way better too. It's a relative to the individual, and for her to minimize it would have infuriated me.

  • gb2115
    gb2115 Member Posts: 1,894
    edited October 2017

    Tappermom, sorry that lady said that to you. She clearly couldn't relate to what you or any of us are going through. So many people truly think BC is a walk in the park and it's not. I also don't think the words easy and cancer should ever be in the same sentence! It's just not. And I don't think someone can really understand that unless they have actually gone through it.

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited October 2017

    Thank you all for your love and support! Of course, I knew I would get it here.

    MJ


  • solfeo
    solfeo Member Posts: 838
    edited October 2017
    It's hard to respond to these remarks in the moment because you're taken aback that they would say such a thing, and we don't want to cause a scene. I always think of the good comebacks later. I will think about it now so I have one armed and ready if I run into anyone like the "you're lucky to have breast cancer" lady. You do see a lot of that attitude that breast cancer is no big deal.

    That said, sometimes I feel like an imposter myself because I haven't had to suffer as much as some of our sisters, but what that does is give me very strong empathy for those who are living through a more challenging ordeal. It was horrible even without chemo, radiation or losing my hair, and I can put myself in the shoes of someone who wasn't as fortunate as I was. It very easily could have been me, and it still may be.

    It's not like my life went right back to normal either, because when you don't do all of the treatments you never stop worrying that you didn't do enough. I count my blessings every day, but I take nothing for granted.
  • Tappermom383
    Tappermom383 Member Posts: 643
    edited November 2017

    You’re so right, solfeo! And just today my DH chastised me for not remembering something he had told me. I reminded him AGAIN that my brain is just not working the way it used to. I didn’t have chemo but the anastrozole seems to be messing with my head.

    I like your “I count my blessings every day but I take nothing for granted” - so true!

    MJ

  • lala1
    lala1 Member Posts: 1,147
    edited November 2017

    People just don't understand that chemo is not the only thing that messes with the brain! Hormonal therapy does too. Just the other day I couldn't remember the term "static electricity". I finally had to describe it! It's very frustrating to say the least!


  • VL22
    VL22 Member Posts: 851
    edited November 2017

    My mother has said to me on more than one occasion since my diagnosis "getting old really sucks" (she's 67, hasn't worked in 20 years, has been retired in Florida for 3 and has no health issues) then proceeds to tell me a story she read about TNBC being super aggressive, lagging behind in research, doesn't matter if caught early etc etc. My husband was in the room for one of these and asked her"Are you stupid?" and before she could answer "you need to shut up." I do love him. She's been better behaved simce

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited November 2017

    I hear you, lala! I was in a meeting yesterday, typing notes on my iPad. I wanted to write “color” - heard the word in my head, typed a “c” but for the life of me could not figure out what came next. It stumped me for a good minute or two. FYI - I was an English major and editor of our local newspaper for 11 years. I’m a crackerjack speller (proud to say I won my high school spelling bee in 11th grade oh so many years ago!). It’s soooo frustrating!

    MJ


  • solfeo
    solfeo Member Posts: 838
    edited November 2017
    "My husband was in the room for one of these and asked her"Are you stupid?" and before she could answer "you need to shut up.""

    Where do I get a husband like that? Mine wouldn't even shut his own family down when they are doing/saying something inappropriate, let alone mine. Luckily I don't have too much trouble telling them all to STFU myself, whenever necessary.

    I also lose my words and do a lot more forgetting. I'll lose my train of thought in the middle of a conversation, and I have to just keep talking and hope it comes back to me before the other person notices.
  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited November 2017

    Could STFU be our response to these absurd/silly/inappropriate comments? LOL That sounds like the response I'd like to give.

  • ready2bedone
    ready2bedone Member Posts: 95
    edited November 2017

    Tlfrank - I think I have your mother's twin! Exactly like something mine would say. I finally set some serious boundaries with her a few years ago after she did some very unconscionable things and I went for an extended time not having contact with her for my own sanity. It was an awful couple of years but I learned basically that I can't trust her with my personal life and that she's never going to be the warm empathetic comforter that I would love her to be. So I tell her very little, and don't expect anything from her in return. For me, that helps. My siblings have all come to the same conclusion and about the only things we can discuss with safety with her are the weather and her dogs. Ironically, she seems quite happy with such shallow talk and for the focus to be on her anyway so we actually are all getting along better now than ever. Wish I learned that 50 years earlier!

    About the discussion of have vs had cancer, I have been wondering about this too! Someone asked me the week after my mastectomy if I am in remission now. I had no idea. So now I guess I will just say that I had the first of several surgeries and am beginning treatment so won't know for years.

  • tlfrank
    tlfrank Member Posts: 199
    edited November 2017

    ready2bedone - my mother is also a master at guilt manipulation. When this whole watching her dog subject came up she presented it like this: "Will you watch my dog for me while I'm on a cruise, or should I take him to Fernando's house and let him hide under the table for a week?" I'm totally serious. I've already resolved myself to have an "intervention" with her when she comes home. I'm just heading into radiation and I don't want to deal with her S*%! during this time.

    As far as have vs. had cancer....my boss summed it up nicely the other day. (She had a close friend who died after a 10 year battle with this monster) She said "I'll always be that elephant sitting over there in the corner of the room".


  • VL22
    VL22 Member Posts: 851
    edited November 2017

    tlfrank - that is true about cancer, but also makes me sad

  • ready2bedone
    ready2bedone Member Posts: 95
    edited November 2017

    Tlfrank - there's something about having to go through a major crisis that makes you truly appreciate those in your life who are supportive and helpful, and makes you decide you no longer need to put up with all the crazy #*&$ from toxic people in your life. In this regard, I am thankful for the rough things I've been through, traveling through life is a bit lighter without all the baggage!

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited November 2017

    So, I have read this thread for over 2 years and considered myself lucky, until this past week. Before then, the only stupid comment I got was from one of my "best friends." She visited me shortly after my first mastectomy. Not only did she stay for 3 hours, she told me, "Oh, you have to have reconstruction, men love breasts!" after I said that I wasn't doing reconstruction. I did end up having reconstruction, but only after I thoroughly researched and soul searched, not because of what men think! She is still my friend, but not as close as we once were. Then, this week in a staff meeting where we were discussing FERPA (privacy laws) as we have a new student with spina bifida, some of my more ignorant colleagues couldn't understand why we can't just tell everybody that he has SB. I tried to enlighten them by saying, "Well, as someone who has cancer, it might have a negative connotation." A colleague who violates privacy issues all the time, waves at me dismissively and says, "That's just in your head, Sherry." I responded by saying "No!" but then was cut off by her. The principal then changed the subject. I really wanted to say, so when you hear the word cancer, your reaction is positive? I hardly ever speak in staff mtgs. and rarely discuss anything about cancer at work, so this really ticked me off. Fortunately, a real friend came to check on me afterwards and understood. The "best friend" from above did not. When I mentioned that the next day, she said, "Well, you are sensitive about that." I looked her straight in the eye and said, "How about you get cancer and let's see how sensitive you are?"
    Think I am done with her.
  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    A very close friend whose was the caregiver for her adult (21 year old) son with cancer, gave me wise words about "had / have" cancer.

    She said "a cold will never just be a cold."

    I am not sure it is "had." The physical cancer may be gone but the cancer affects / effects never leave.

    Coach Vicky


  • TaRenee
    TaRenee Member Posts: 464
    edited November 2017

    I stopped by my old school to say hi and one of my coworkers from there said. “You look tired. I mean, you look good, but you really look tired.” I thought to myself, “No s#!+ Sherlock. I AM tired, but thanks for noticing how tired I look and letting me know!” I should have said it out loud, because then she tells me how her sister in law had BC and it spread and now it’s in her spine and her brain and she isn’t going to make it. WHY would you tell me that? WHY? I’m not freaked out enough as it is without people telling me how other friends and family have only months to live because of BC. Sigh. Today was just a day. Tears were shed

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited November 2017

    Why, oh why are people so insensitive? My sil proceeded to tell me all about someone with colon cancer and how when they opened him up he was full of cancer and died within 6 months. Right before my surgery! I learned after that to just say, "I don't want to hear that" if anyone else started a dead and dying story. I saw my twin pass from MBC, so I know full well the devastation of this disease, thank you. I don't need Joe blow to enlighten me.
  • rdeesides
    rdeesides Member Posts: 459
    edited November 2017

    I was explaining to a friend how my risk for recurrence was around 30% and that if it comes back it could be in the liver or spine etc and she said “Well anyone could get liver cancer, I could get liver cancer”. She thought she was being so positive.... I get really tired of the half glass full people. BC sucks, I dont need anyone to tell me it doesn’t

  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    Ignorance is bliss. Not too bright in my book

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited November 2017

    It makes me sad when my mom complains about how hard it is getting old.

    She's had no idea how hard it is for me to hear someone complain about getting old -when I'm not sure I'll live long to become old.

  • Lula73
    Lula73 Member Posts: 1,824
    edited November 2017

    so I was getting ready to leave for my stage 2 DIEP and one of my customers starts to tell me this story about someone they know...all I can think is “really? Really?!?!”. I let her talk and ended up pleasantly surprised...things didn’t look good for this man but he was able to overcome the odds and beat it. Why did she tell me the story? Because “you’re strong just like him and you’re going to beat it!” So nice the way it turned out when I just knew where it was going... glad I was wrong and an honor that I reminded her of that courageous man

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2017

    Kamelkitty, no clue where things are for you right now, I read your first post here about your husband trying to say "Hey felt the lump a year ago" earlier and tried to make you remember that he told you. Seriously, pissed me off. What an ass. Plus, all his negative comments on everything. Bringing the whole post forward because it was on page 57 maybe. What a jerk. Hmmmmm Whiskey Tango Foxtrot JERK.

    " This has been one of the more difficult things about getting breast cancer. I am embarrassed to say that all the stupid comments have come from my loved one. First, he insinuated that getting BC was my fault, it's because of my "lifestyle," I eat "rich" food, I chose to go into a stressful profession, live in a "stressful environment." After diagnosis, and as I was trying to mentally prepare for surgery, and explaining that the tumor was "very small," and without spreading to lymph nodes or other areas, he said that sometimes the doctors open you up, and it's all over place, and you just don't really know. Thank you, that was comforting. Now, I am 2-days post surgery. And he's telling me that I felt the lump a year or more ago (I didn't), and he tried to make me remember what I told him, and that he did feel it, too. "Don't you remember, don't you remember?" What is the point of telling me that now? How does that make me feel better? How?"

    Kamel hope you are doing well Hugs sassy

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2017

    I had to stop reading. Many of the comments were funny, but then way to many were hurtful. I hadn't been back to this page for a way to long of time.

    Then I had to figure out why. I have on my favs what I call "housekeeping" threads. They are technical threads working with pain, constipation etc. Then I have my social thread. Tight group. Mixed.

    I took a break for a number of months a bit ago, no relationship to here, relevance maybe later, maybe not.

    Just a few days ago I started looking at the general posting thing on the menu side. Made some posts. Then here.

    There used to be a bunch of us that looked for newbies and tried to help. We burned out, met'sd, died. For the survivors some are still helping. Some not.

    I guess there comes a phase when you just want to stop talking BC. But then it is so in the daily mind. Particularly, when other cancers come along or stuff.

    Truly the worst was the loss of my husband in 2010. But a weird thing happened after that my twin warned me about was being a single woman. There were so many weird reactions from women about me that I stepped back into isolation. I wasn't a flirt. I lived my life in uniforms i.e. catholic school and then a nurse. I wasn't provacative and had no clue how to be. I've had a BF for now 5+ years, but the weirdness about women. in the first years after Greg's death, floored me. Plus, the friends that left b/c Donnie wasn't Greg. So, there was isolation from making new friends and the old ones weren't there. I'm now used to it. So, is Donnie. A few have remained. I just wish there were more. Of course, the idiots that hadn't a cancer clue----gone. Anywhooses, this is the first I've talked of the weirdness that happened in the months after Greg died. Okay, Thanks, I'm good it's said, it's over. It was a hurtful thing I was carrying.

    Donnie and I are good. Thanks

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