Does Likelihood of Lymphedema Go Down Over Time?

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  • GoKale4320
    GoKale4320 Member Posts: 599
    edited October 2017

    Thanks everyone for your response on different gloves and sleeves. I have some shopping to do!

  • 2yorkies
    2yorkies Member Posts: 24
    edited October 2017

    Special K- just wondering why you use bilateral compression. Did you have bilateral alnd??

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2017

    2yorkies - I had bilateral SNB at the time of BMX, 2 nodes removed from the left, 1 from the right. ALND surgery five weeks later on the right removed another 11 nodes from levels 1&2. I developed lymphedema bi-laterally after a body-wide swelling event during chemo, but my lymphedema is more advanced on the right. I am one of the small percentage that developed lymphedema from both SNB and ALND

  • 2yorkies
    2yorkies Member Posts: 24
    edited October 2017

    Thanks Special K! I am sorry you have had so many challenges..i really do appreciate the time you take on this forum to share your knowledge!☺

  • ksusan
    ksusan Member Posts: 4,505
    edited October 2017

    Here's the article I knew I'd read somewhere:

    http://www.medscape.com/viewarticle/869873?src=wnl...
    Requires a free membership. Here's the key info:


    "The time course for developing lymphedema depends on the type of breast cancer treatment, but the risk peaks between 24 and 36 months post therapy, regardless of treatment type, according to new research.

    "Receipt of radiation therapy (RT) is also a key to the timing.

    "Lymphedema develops earlier in patients who receive radiation, especially those receiving regional lymph node radiation," said the study's lead author, Susan McDuff, MD, PhD, a resident in radiation oncology at the Massachusetts General Hospital (MGH) Cancer Center in Boston."...

    "The timing of the risk appears to be the most significant within the first 2 to 3 years after treatment," summarized Dr McDuff."


  • Jojobird
    Jojobird Member Posts: 203
    edited October 2017

    Thank you to everyone, I really appreciate the information about long-term risk and gloves/sleeves.

    I'm heading out of country next month and will be taking two, 3-hour plane trips. My PT, our HMO's regional lymphedema specialist, stated that there is no need for compression if I currently have no lymphedema symptoms (which I don't). But from what I read here it seems like everyone else is wearing them during flights. There are so many mixed messages!

    Is there a standard of care when it comes to flying?

  • ksusan
    ksusan Member Posts: 4,505
    edited October 2017

    There's one Australian study that says sleeves aren't needed for flights under 4.5 hours, which is what my PT tells me as well (possibly based on this study, but also clinical observation). If I'm doing more than one flight in a day, even if each is under 4.5, I wear sleeves and gauntlets.

    You may be asking, what's magic about 4.5 hours? Is that a statistical cut-off point? No, it's the longest non-stop domestic flight in Australia.

  • dsteaparty
    dsteaparty Member Posts: 28
    edited October 2017

    I am new here so please excuse the dumb question. Would it hurt me to just wear a compression sleeve on a flight? Why not always wear one? I am so confused by another layer of insanity I have to worry about due to my diagnosis. The idea that they do not know what causes it is maddening.


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