Am I the only ILC Triple Negative Breast Cancer person here

Hi Numb! Yes, it's true that this type of cancer is not common. Do you know CinderellaNC? Looks like she has triple negative ILC too, as you can read in the following topic: Topic: Any triple negative ILC out there?

The Mods

Hi,

I have been diagnosed with ILC (Pleomorphic), triple negative. My tumor is about 4 cm; the care plan includes neoadjuvant chemo (ACT, 4x, followed by 12x Taxol, with possible Carboplatin). I just had the port placed today; the chemo starts next week.

I'm very sad and scared.

Eve

hey lightseeker... I’m in that boat with you. You never want to be interesting from a medical standpoint, but here we are.

I did neoadjuvant chemo under a phase II clinical trial. AC - T but with Doxil (doxorubicin, but sort of an extended release version, and not as rough) and carboplatin. I had a big palpable mass that resolved nicely on clinical exam during chemo. So everyone was very happy. But the pre op MRI showed a lot of tumor left, and ln involvement, so off I went for the unilateral mx with axillary dissection.

I got disenrolled from the clinical trial because of the disappointing response to chemo - they were looking for PCR. So I got transferred to another oncologist and we rechecked hormone receptor status just to be sure. I’m meeting with her again next week, and depending on HER-2 results, we’ll make a plan for adjuvant chemo. She doesn’t want to do the Taxol, she wants something more aggressive.

I’m also sad and scared at times. I started Wellbutrin, and it has helped. Now, even when I’m low, I see a way forward- I lost that perspective fo a while. Trying to work out getting some therapy as well.

I hope you are doing well.

Eve, congratulations and welcome to nursing! That’s a great accomplishment.