Lung mets give me insight

Options
Nilelady2016
Nilelady2016 Member Posts: 57

Post a reply

6 hours ago Nilelady2016 wrote:

hi

Planning to reach home in 2nd wk of sept. Meanwhile need to learn how to cope with symptoms and awareness so i would like you to help me out

1. I started to experience pain in right lung when taking deep breath dr here said it is gases n not related to ca. It comes and goes not fixed.

2. Oxygen level is ok but feel short of breath dr said it is anxiety n not from ca. He said if ca oxygen will drop. Is that true!!

3. Cough had stopped for e week and came back again. Dr say it is infection although i have no fever

4. Did any of you fo esr and c reactive protine tests. Mine is high! Any relation to ca!

5. Always tired and lack of sleep how common is this.

What else should i expect look for. I am in a project in africa n really dont trust drs here.

6. How common is hoaresness , pelgum, in ca

7. How fast does symptoms progress. I have been miss diagnosed since end of may 201

Comments

  • Nilelady2016
    Nilelady2016 Member Posts: 57
    edited September 2017

    any help pleas

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited September 2017

    Hi, I have lung mets but none of the symptoms you described. A doctor should be able to help you, maybe you have fluid build up? they can drain it.

    Are you on chemo now? Being tired is a big part of our lives now.



  • Bestbird
    Bestbird Member Posts: 2,818
    edited September 2017

    Please consider obtaining a second opinion as well as a chest CT scan. I had similar symptoms and was misdiagnosed for 4 years, until another doctor ordered a CT scan and lung mets were identified.

    I hope your situation will turn out differently.


  • KarenBinETN
    KarenBinETN Member Posts: 3
    edited September 2017

    Nilelady, I would also suggest a Chest CT scan. I had a worsening cough from Nov. 2016 until May 2017 when finally got chest X-ray. Up until May, I and doctors thought cough was allergies. Turned out BC had moved to lungs and told "too many spots to count." Started Chemo (docataxel, perception & prejeta) shortly after and on it since. Good news, my tumors are shrinking. Get a second opinion.


  • Nilelady2016
    Nilelady2016 Member Posts: 57
    edited September 2017

    To ask

    Those with lung CA. or pleural effussion what is the degree of shortness of breath that you experience

    Ever since diagnosis i became very inactive afraid to walk as i feel chest tightness and rapid heart beat as well sudden episodes of shortness of breath

    Doctors insist this is not ca or pleural effussion related and say typical anxiety

    I am not convinced because they say i should be gasping for air and i only feel tightness

  • HLB
    HLB Member Posts: 1,760
    edited September 2017

    I would get another opinion and also get some anxiety meds. When I get anxiety I get short of breath, like I cannot get a deep breath. I can actually make my ribs sore trying to breathe. Also lots of yawning and sighing.

  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited September 2017

    Hi Nilelady,

    I tend to agree with your doctors regarding anxiety. I had pleural effusion with a great deal of fluid in my right lung (almost 3 litres). I had increasing shortness of breath on exertion (as the fluid increased it got worse) but never experienced tightness in my chest or a rapid heart beat. In fact, despite the pleural effusion I continued to walk my dog several times a day with no issues.

    Keep moving. Being sedentary is not necessary or helpful for your overall well being.

  • Nilelady2016
    Nilelady2016 Member Posts: 57
    edited September 2017

    hi all

    Where can i find in this web site a topic about lymphangatic carcinomatosis

    This is what the dr said i have

  • cive
    cive Member Posts: 709
    edited September 2017

    Don't know that you can!  However here is a link to a Wikipedia article that describes it.  Your spelling is incorrect for the lymphangitic, why you may not have found it.

     wikipedia article

  • CanaLoon
    CanaLoon Member Posts: 30
    edited September 2017

    Im so glad to have found all of you. After 17 years of being BC "cancer free" I was diagnosed in June with mets in both lungs and a few mets in my ribs. I too have trouble with trying to determine when shortness of breath is just "normal" or whether the pleural effusion has built up to the point that it needs draining. I've had four drains (a litre each time). My chest gets tight and I slow right down. Im on a trial of Letrazole and Robocib and while I think they are working, there are just some side effects that I haven't adjusted too yet. Yes, get a second opinion. Yes to taking whatever meds (anxiety, depression, sleeping pills) help. Move as much as you can. The more I feel like I'm in charge (whether its an illusion or not) the better I feel. Some days that's hard to do, it's so much easier to just go with the flow, not ask questions, or put up with .... whatever. But when I push back I almost always feel better, which helps with the next time. Posting questions here is a great example of a way to "take control", there's some awfully good advice to use and follow.

  • emilyirel
    emilyirel Member Posts: 13
    edited September 2017

    I was diagnosed with lung mets today. Have had tight chest, a hard cough and shortness of breath... will find out treatment and prognosis next week. I'm getting into the community to see what i might learn. I guess we can support each other..

  • cive
    cive Member Posts: 709
    edited September 2017

    CanaLoon and emily, The woman that I knew that had a pleural effusion took about a year for the fluid to be totally resolved.  She was on Ibrance a close relative to robociclib.  I myself was on femara alone and drained the fluid with catheters until I the two membranes stuck together.  I was putting out a liter a week on one side and somewhat less on the other.  There is a lung mets thread that while not all that active, you might peruse for information that maybe pertinent to you.  I'm now on Ibrance and faslodex after progression to my liver.

  • Nilelady2016
    Nilelady2016 Member Posts: 57
    edited September 2017

    i am experiencing extreme shortness of breath and started using a wheel chair because i suffer when walking

    I have numbness and heaviness in my legs due to lack of mobility


    Any one having such experience


Categories