Starting chemotherapy March 2017
Comments
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Scrafgal - Woot woot! Congratulations!!!!! Glad to hear you made it to the other side of FAC. Your signature shows Taxol as well. Will you be getting that next. When will you start? Hopefully you'll have plenty of time to rest and recover from FAC. Sending prayers to all of you affected by the storm. Stay safe down there!
MommyErin - You're so right about life getting back to normal post chemo. I have to say that it does change a bit when you start radiation, mostly because it's a pain having to go there every day. I hope you can get to MD Anderson and get your radiation treatments going. Keep us posted.
AliceAgnes - I hope your surgery went well. Did you end up with an AND? Sending healing thoughts!
I'm officially halfway through my radiation treatments. So far, the only SE is that my skin feels a bit "sunburned", so I can't complain. I'm going to start using the aloe plant that I've been growing for the last two years. Hopefully that will help.
<<Hugs>> to all of you!
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Soxfan7
Thank you! I did Taxol first,back starting back in March. So I am DONE with chemo!!! I just rest up to get my TE removed and replaced with my implant. PS wants to wait 8 weeks given my early issues with FAC. Fine with me. I need rest. The stress of the flooding and tornados left the whole city exhausted. My street flooded but home was fine. The water receded and on my side of town it looks pretty good. I was able to get my treatment after all!!! Thanks for your prayers all around. Hope you rads continues with minimal side effects.
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Soxfan75
Thank you! I did Taxol first,back starting back in March. So I am DONE with chemo!!! I just rest up to get my TE removed and replaced with my implant. PS wants to wait 8 weeks given my early issues with FAC. Fine with me. I need rest. The stress of the flooding and tornados left the whole city exhausted. My street flooded but home was fine. The water receded and on my side of town it looks pretty good. I was able to get my treatment after all!!! Thanks for your prayers all around. Hope you rads continues with minimal side effects.
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MommyErin
Houston's airports are open on a limited basis. My guess is that this will be full scake next week. Many main highways are looking good now...even better next week. My area is clear, as is mine. The issue is that docs, nurses and staff live all over and are impacted! They have only a skeleton crew on site now. Hopefully they have called you but don't hesitate to send them a not through MyMDAnderson. They respond promptly
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Scrafgal--what great news! I feel the same way about being done with chemo. Glad your life wasn't further complicated by significant hurricane damage, too. The rest of the country is rooting for all of you in Houston.
SoxFan--My surgeon just called this morning with pathological results. My largest breast tumor had shrunk to about 3/4", half its pre-chemo size. She took out 20 nodes from layers 1 and 2 because she was unable to locate the one that had tested positive for cancer and was clipped. She said she was glad she did because two of the twenty removed nodes showed traces of cancer. She assured me that radiation to the axillary node area should eliminate any other possible traces. I meet with my oncologist on September 11 to discuss radiation and hormone therapy. My Herceptin infusions will continue through March 2018.
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Continue to do well in Houston, Alice,Agnes, thank you! Hope you are doing well from surgery and planning next steps. I meet with my P.S. this week. My final implant exchange surgery is Nov 2. I also will start on an AI. Need to discuss with my MO regarding timing. I think that I am start taking the AI after the surgery.
Hope everyone is doing well!
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Scrafgal- So glad to hear you're do t with chemo and that you and your home were safe from the hurricane!
Soxfan75- So glad to hear you're having minimal SEs! I know for most women radiation SEs are pretty mild, but then you read the horror stories...
AliceAgnes- Glad they caught the remaining cancer in your nodes so they can treat it!
My radiation has been pushed back due to Harvey, so I start on Thursday this week. I'm so ready to get going with it! I've also started taking letrozole(femara) and am getting ovary suppression shots until I have my ovaries removed later this year. Anyone have cording issues from surgery? Mine's pretty bad according to the PT I saw yesterday, but her massage did wonders! I'm a little stressed about the move to Houston, but staying positive otherwise. Hope you all are doing well
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mommy Erin ...I had awful cording after lumpectomy , but PT did wonders. It took time and patience so stick with it.
Ladies, it's nice to hear that everyone is moving onwards . I went back to work , so have been missing on this board. So tired at work ! I was putting in full days but then coming home and crashing . Just had my implant exchange five days ago --at home healing now , lot of pain at the suture site, but glad to have done one more step on this interminably long long journey .
My prayers are with everyone in Houston; hope everything goes well in Houston !!
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Talk about coming home and crashing--I did that after getting my surgical drains removed today. And I didn't even realize I was tired until they were out!
Probably my main discomfort since surgery has resulted from going bra-less. Without the support of a bra, I developed a rash beneath my right breast where skin rubbed against skin. I got some relief by wrapping an ace bandage around my middle to stop that skin-on-skin contact. Doctor says my surgical wound has healed well. I still am a little low in my red blood cell count from the chemo that ended on July 10, but the doctor is not concerned. He said it will bounce back soon enough.
My next scheduled appointments will be with a lymphedema specialist (no problems yet but I did lose 20 lymph nodes) and a radiation oncologist. My medical oncologist guesses that I will need 7 weeks of radiation for the chest wall and axillary node area.
I keep all of you in thought and prayer and hope for the best for all of us. I eagerly follow each of your posts even if I don't always respond to them.
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It's amazing how we all started chemo at the same time and even though we're all finished, we're all at very different stages of our journey.
MommyErin - I did have some cording after surgery, but the PT took care of it in 3 or 4 sessions. How did your first couple of radiation treatments go?
Tara17 - Yay on the final implant surgery! I know it's not the end of this nightmare, but hopefully it's almost the end of all the poking and prodding.
AliceAgnes - Getting the surgical drains removed is the BEST feeling! I'm glad you're healing well and I hope your radiation goes smoothly.
Scrafgal - I'm glad you have the next step in your sights, although I think I would be really anxious to get it done and over with as soon as possible.
I've completed 25 of 28 rads and can't wait for it to be over. My skin is so brown/red and painful, and nothing seems to be helping at this point. It's not blistering yet (thankfully), but it looks like it could at any moment. I didn't even think my skin could get that dark. Luckily I haven't really felt fatigued or had any other side effects, but I think the one I do have is enough to handle.
On a lighter note, my daughters (10 and 6) and I ran the CelebratePink 5k yesterday to support a local breast cancer organization that helps women with BC in my area. Two weeks ago they had a lemonade stand and raised $150 for the organization. They got to hand over the check yesterday and I couldn't have been more proud of them. My oldest got first place in the Under 14 category for fastest time (29:24) and since it was my youngest's first 5K, she was a little slower but still did amazing. I hope we have many more years of running 5ks together.
I just want you all to know that I'm thinking of you and sending you nothing but positive energy.
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Special K, congratulations to your two daughters on their work in behalf of all of us! Be sure to thank them for me.
I read with interest the results from your radiation treatments. I meet with my RO for the first time on Thursday, but my MO thinks he'll recommend 35 sessions. If I experience little or no fatigue, I'm thinking I'll return to a part-time job I had before all this cancer stuff began last March.
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AliceAgnes - I'll be sure to tell them.
35 sessions? That's a lot. Hopefully you won't feel any fatigue and you'll be able to return to your job. Is it a desk job or more physically demanding? I've found that my skin is pretty tight, which makes my range of motion limited. Thankfully I have a desk job, but I can't imagine what it would be like if I had use my arm more. Good luck with your meeting on Thursday!
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Soxfan, the meeting with Dr. T was great. He spent an hour with me summarizing my case while illustrating all his explanations with a diagram he drew on a giant sheet of paper. Some things I thought I already understood were made clearer than ever.
I will have 30 sessions in all. On Tuesday I will go for mapping, and radiation will begin after my surgeon sees me one more time. I should be able to return to my desk job soon. Post-surgery healing has gone well and the exercises have pretty well restored my range of motion. I feel blessed!
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That's fantastic, AliceAgnes! I pray that everything continues to go well for you. I'll be curious to hear what they recommend you to put on your skin during radiation. I used aloe (directly from my aloe plant) and a cream called My Girls, which contains Calendula and was recommended by my RO. I didn't fare so well as the skin under my armpit is now peeling and raw. It's pretty uncomfortable. I've read emu oil is good to use, but maybe your RO will suggest something else. Keep me posted!
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Soxfan, we can now list my RO among those who prefer that nothing be applied to the skin during radiation. He believes that the natural sloughing-off of damaged skin is a part of the total cancer cure. But I do think he treats all of his patients on a case-by-case basis. I had indicated earlier that I have a fair tolerance for pain (rating myself as a :-I on that line of cartoon faces they show you on a line going from 1 to 10). Another patient of his is using the green tea treatment. He says that if skin problems do need to be treated, they have a variety of creams and lotions on hand and he will just give me one of them on an as-needed basis.
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AliceAgnes - I've been using Aquafor (recommended by my RO) at night on the really raw area under my armpit and it really does bring some relief. It doesn't burn when I apply it, unlike some of the other stuff I've tried. The downside is that it's like Vaseline, so it's really greasy.
How did your mapping go? Gotta love those tattoos. When I was first diagnosed, I used to joke that I went 42 years without a tattoo and my first tattoo was going to be a nipple. That makes for a great story, but then the radiation techs had to mess it all up with their little "dot" tattoos. Now I can't tell anyone that my first tattoo was a nipple.
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Haha, Soxfan, you're way ahead of me on the subject of tattoos. I have never, ever pondered about "my first tattoo."
The mapping went pretty smoothly overall. However, my "good arm"--the one on the non-surgical side--did not like being stretched out above my head for that long. I get bursitis in that shoulder from time to time. (Today I experienced a little pain just reaching for an object on a high shelf.) They told me just to take whatever over-the-counter med I usually take for arthritis or bursitis flare-ups. So from now on I will take Tylenol before going for my rads. My first session is next week Tuesday at 1pm.
I was introduced to Aquaphor while still on chemo. Although I didn't lose any nails, the skin on each side of my thumbnails cracked pretty badly, so I was given Aquaphor to heal those cracks. It worked. I decided to keep Aquaphor on hand for other skin issues that keep turning up from time to time, especially on my arms where I sometimes get rashes for unknown reasons. They are also where I have numerous old mosquito bites from years past. The bites are now just white spots on my olive-colored skin, but from time to time they start itching all over again as if the mosquito bites were fresh. I know, I know--I am a freak of nature.
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AliceAgnes - Luckily the actual radiation treatments are much shorter than the mapping. Hopefully, your arm will be able to hold up for the few minutes that it takes.
I just realized that we have an almost identical diagnosis, but you did neoadjuvant TCHP, while I did adjuvant therapy. I wonder why? Did they tell you they wanted to shrink your tumor before surgery? At 1cm, I wouldn't think they would need to shrink it especially if you're having a mastectomy anyway. Did it have to do with the location?
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Perhaps it was because I also had DCIS in the same breast, and my cancer was multicentric. "Our findings suggest that multifocal/multicentric disease may be associated with worse outcomes versus unifocal disease regardless of type of surgery. This suggests a more biologically aggressive cancer and may be an important consideration when managing these patients," according to this link:
https://www.ncbi.nlm.nih.gov/pubmed/25597248
I think the aggressiveness of my cancer was a factor in how it was treated.
The tumor shrank to about half its original size. It started at 1.7 cm. My medical oncologist did remind me after surgery that a total response to the chemo, rather than the partial response I had, would have been ideal.
I know the DCIS already diagnosed in my right breast, along with the triple-positive status of the cancer in my left, make another occurrence of breast cancer likely for me down the road. I just hope to catch it in an earlier stage next time. I had not been doing annual mammograms, but I sure will do them now!
On another topic entirely, I noticed when grocery shopping yesterday that it is impossible to buy any kind of bread that does not have soybean oil in it. I left with some Wasa crackers instead. I wonder if I should go ahead and buy a good multigrain bread even with the soybean oil in it? I am a sandwich addict.
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AliceAgnes - That explanation makes sense.
I've never heard of soybean being an issue. I really have to do more research on nutrition after a cancer diagnosis. I know some of the basics, but there's so much to it.
I hope you and all of the ladies on here are doing well!
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Greetings!
Okay...It has been too long since I have posted. I think that I needed a complete break from all things cancer and chemo for a bit. So, I've simply been trying to catch up with things since I am well enough, after ending chemo a little over 6 weeks ago....mundane things but important things like getting a flu shot, getting my teeth cleaned and watching the Astros advance toward the World Series. I am feeling pretty good these days and looking forward to the final exchange surgery on Nov. 2. Soxfan, it did seem like a long time to wait, but now, not so much. I needed the time to rest up and take care of a few things before the surgery. I hope to travel for Turkey day and then return to work (finally). I started on Tamoxifen a couple of weeks ago. So far, so good. I will stop it next week and then resume it sometime after the surgery. My surgeon wants me off of it two weeks before the surgery.
I also planned a Christmas/New Year's vacation with my sister! We need it! We will relax in New Mexico!!
Hope everyone is doing well!
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Greetings!
I just wanted to say that I miss our conversations. I know that we are all in different places now, regarding treatment. However, I really treasure this entire community. I miss you all.
I had my final implant exchange surgery on Nov 2 and will return to work after Thanksgiving. I am doing well overall. I hope the same is true for each of you!
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Dear scrafgal —i just logged on today after some time. I needed to take a break from thinking about cancer —i fininshed m final implant about two months ago. I returned to work about six weeks ago . Work has been very tough. My boss has been acting as though i went on a six month vacation; some exact words “we all bent over backwards to give you your personal time “. So dealing with insensitivity at work and the workload expected of me has been stressful ! I am so grateful for this community of women who wil understand all that i am saying and indeed the insensitivity that i face from some people makes me reflect on the support here i have recd with so much gratitude . Besides that i can say i am in a better place mentally and physically and looking to the future with hope .
am still getting herpcetin whcih will go on till febriary . And then i want to do nipple reconsutrction as well.
I am so glad you are doing well! Feels like a million years ago that i was anxiety stricken before my mastectomy —you and Limonia wrote wonderful notes that helped.
I would love to hear everyone else’s updates and hope to hear that everyone is moving forwards with life.
Hugs to all
Tara
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Tara,
It is great to hear from you!
I am sorry to hear about your work situation. However, you have been through a lot during that last few months, and emerged victoriously on the other side of some tough treatments. I hope you are feeling good about your progress on that front! That is way more important than work, even though you can't really say that at work!
I am heading off to Chicago to visit with family for Thanksgiving! I will start work next week, and hope for a smooth transition!
Take care, and stay strong!
I will check back periodically!
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scrafgal — u r absolutely right . I have let the ugly situation at work affect me too much —mainly Because I feel dependent on my job for my health insurance and consequently the costs of my ongoing care and herceptin treatments . But u r right, feeling good about my progress in my care front is way more important than work!
I hope you had a wonderful thanksgiving and I hope you have a great transition back to work!
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soxfan —you mentioned you wanted to research nutrition. A good book I have read is the anti cancer life. My oncologist mentioned it to me and i enjoyed reading tha book
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Its been too long for me , logging in here.
Belated Merry Christmas and a happy new year to all you lovely ladies.
Hope you are all doing well and adjusting to our new normal in life.
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It's been a while for me too. Kimburke...Happy New,Year to you and all!
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just logged in to see if anyone had checked in for a new year update. 2017 seemed like a long year —and Yet here we are in 2018 , moving forward. Hair is coming back, nails are growing out . Wish you all a wonderful 2018! Nice to see you old friends kimburke and scrafgal—sending You love and hugs!
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Ladies,
The other day, I just popped into the March 2018 Chemo group's thread to wish them well! Hope all of you are doing well...much better than one year ago, I hope, for all!
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