Since I've last posted (my brain!!!)

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NessaEllen
NessaEllen Member Posts: 12
edited October 2017 in Stage IV/Metastatic Breast Cancer ONLY

oh my goodness, it's been a lot. Just a lot to handle. Heavy.


My original diagnosis was mets to the liver and lymph nodes. I was dxed with a reoccurrence, and chemo again. After the third reoccurrence, because it hadn't metastasized since my diagnosis, I was able to have my breasts removed.


An aside, I LOVE being flat (well flatish, I had large breasts and chubby so I toats have little dog ears) the drains though, ugh. The second one they pulled out I legitimately had a panic attack, like I couldn't breathe and everything went dark and swirly. The last two, a different day, and a different nurse got them :) she was so gentle that it wasn't a problem at all.


My latest reoccurrence is in my right side, my lymph nodes. Right beforehand, I was complaining of headaches and not normal headaches, these did not stop, just a consistent pressure on my head, never went away. My MRI a year ago was clear so they ordered another one. I have a small regular brain tumor on the right frontal lobe, and a HUGE gol ball sized cystic tumor on my cerebellum, near my brain stem. I met with a fantastic surgeon and he gave me about 1-3 months unless I had surgery, but obviously there are risks with brain surgery. I also got a radiologist in this time :) so I had a pretty sizable chunk removed from my cerebellum (a doctors words!) and that was about two months after my bilateral mastectomy 🙀 Recovery from that was pretty painful. I'd say that and my pectus surgery have been the worst. My port was definitely the best 😸


The small tumor on the fright frontal lobe, they're watching. It's too small to measure. I did radiology on the part they cut, to kind of seal it. Now I'm on Kadcyla for the right lymph nodes. I get another pet in a few weeks, and we shall see what's up.


So I'm 35 now, diagnosed at 34, and I'm kind of thinking it's cool, how rare I must be! I mean of course there are other people who've had similar procedures but the combination I've had, I bet the percentage is low at my age! That just always makes me giggle

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    NessaEllen,

    You've certainly been going through it, haven't you?? And at such a young age! Big hugs to you. Please keep us posted on how your PET goes and how you're feeling. We're all thinking of you!

    --The Mods

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  • Groovywilma
    Groovywilma Member Posts: 450
    edited September 2017

    Wow! That's a lot to be going through! Sending you lots of healing vibes! I was 36 when I got diagnosed stage IV. That was nearly 7 years ago. I hope things stabilize and you can enjoy family, friends, and all the good things in life! Take care!

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  • Iwillwinthisbattle
    Iwillwinthisbattle Member Posts: 1,076
    edited October 2017

    I love your sense of humor! I’ve always found that to be super important when dealing with this stage 4 cancer nonsense. I’m keeping you in my thoughts and prayers. Please keep us posted with updates

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