INSOMNIACS place to talk in the wee hours
Comments
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Thanks. Well I've been here all day so it helps you know. Otherwise I would have spent it by myself. Bothered my sister at work too much too. :
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Hi Mari thoughts?
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You said it better Sas! Didn't mean to call attention to myself. I guess I mucked that up! But I was trying to be light hearted. Hope Eeoyore understands
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Got back last week after a two week vacation in Colorado and Wyoming. Beautiful country. So different from the east coast. We got in at 11:00 pm and luggage wasn't on the carousel. Turned out it came back on an earlier flight. DS came in from Japan the next morning at 10:40. Spent a few days here before going to a conference in Orlando. I was surprised it was still going to happen.
Sas, glad you made it through Irma and that those of you with family in Florida that they made it through as well. Scary weather. I don't know how you deal with the thought of it year after year. How are the renovations going?
Bluebird, yes it is difficult to get medical people to listen to us. MY PCP poo-poos me. I had a reaction to a medicine my endocrinologist switched me to. Had just started seeing him. He listened to me and actually said you know your body and are aware of changes that happen to you. Took me off it and tweeked what I had been on. Was so pleased to hear a doctor say that.
Lover, glad your daughter listened to you and got into the class she was wanting. Hope it is going well for her. You can only do so much for others. They will ultimately do what they want to do and disregard any input from you. Sometimes you have to remove yourself from their drama for your own sanity. It can hurt to see them self destruct but don't let them drag you down with them. Has your dad had his surgery yet. He is in my prayers. How is your mom holding up through this? You are such a strong person. How is DD2 doing in high school? So glad those years are behind me.
Junie, how did Kirby make out with his surgery. He is such a cutie.
MammaRay, so glad to see you posting again. When my mom passed and I went through old photos, there were some I got rid of because I had no clue who the people were. I felt bad doing it because I thought I could be throwing away a picture of a relative I never met but at the same time thought my kids would pitch them once they got the pictures so I saved them the trouble. Knowing full well they would say the same thing I was saying, "Who the heck is this!"
Hootie hoo Patty! Hope you doing well.
Eeyore, hope the soup was good. How are you doing now?
Waving hi to those I missed.
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MammaRay, It's fine to limit your visitors and their time. You could put on a pretty shirt and receive them in bed. They used to make bed jackets that were meant for this. Back when the hospital kept you for a while. Another idea would be to have visiting hours like a hospital and tell people you're only available at that time. And ask them to call first in case it's a bad day. I knew someone who set up a voicemail and asked people to leave messages for her husband. She would play them for him when he felt up to listening. I'm glad you feel at peace. That's a gift.
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Mari????/ Your just fine whatever, in any circumstance, wherever, whenever, however.. we are memory impaired. Kinda... We are easy, for whatever......Then we eat chocolates and nuts.... Do you have any?
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Chocolate gives me a bad bad headache but I have walnuts for my cholesterol, however, they constipate me.
Why? Or Why me?
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I make it up with ice cream
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Well, I promised Sassy that I would check in today, and I still have half an hour. Haven't been to BCO since mid July, longest time away in 3-1/2 years.
But her hootie yahoo is because MO pronounced me officially in remission today!
With the caveat that this is still incurable, but treatable. I have finished 6 rounds of Xeloda, we did have to drop the 2nd week dosage by one pill because I was getting really bad hand foot syndrome. My fingers hurt, they're red & peeling, it's hard to write. The balls of my feet were sloughing off skin in chunks, and the tips of my toes can't even be touched. Walking is painful, especially when I wear socks with any texture or non-slip soles.
My dry eye has progressed to corneal inflammation, so drops constantly and ointment at night; but I still have blurry vision even with all that.
Nonetheless, as chemos go, Xeloda has been my easiest so far, and now I get to drop to a 2 week round instead of 3; in other words, one week on and one week off. The second week has been the hard part.
Mostly I just sleep a lot. Wake up, eat, take pills, go back to sleep until 5, wake up and eat, pills, sometimes sit with DH, then bed. Two of my sisters have been spending a few days at a time here with us, they kinda take care of me, then entertain DH with family stories. It's been good to reconnect. My baby sister is almost 60. Sheesh.
I promise I won't be a stranger, and I'll catch up tomorrow. Love to all.
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There is a party here? Chatty chipmunks!
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I wondered where you were!
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Sas - once I was riding my bike, age 14, and the pedal unscrewed and I fell and hit my head. I was unconscious and had a well hell what is the thing when you hit your head - concussion - but I was watching everyone in the neighboring yard and my house running toward me. Felt like I was faking it. If I didn't prove to have a real concussion I might still think it wasn't real.
Marijen - I got the play on words - Hawaii, not going so well in paradise of Hawaii for Eeyore. You're all right.
MamaRay - can you stay in bed and have combed hair and they hold court while you are going through this. Given a limited time to be with you and support you. Maybe a few people a day at your set time. Until you are back up and better after rads?
I was in bed but so much water retention from the inflammation of the prednisone conflict that I am having trouble getting comfortable. Will try again in a few. Lasix in the morning. Looks and feels like my stomach is a water balloon, a huge one. But I am better hives are calmed down, no more high anxiety and racing heart.
MamaRay - you have a good point on labeling photos while we can remember and see them. I always did that but in this age of computer, iPad and smartphone photos that never get printed there are lost years so to speak, Right now, at this second I fully regret not having the real photos of yesteryear. I will do better.
My daughter leaves Monday at first light. It is on my mind but nothing can be changed. For all the issues we have left unsaid, and it is best right now, I am quite sure I will fully miss her sitting in the corner reading, meandering through the house in the night to the bathroom, stopping by my chair to update me on her progress of getting back to her husband in the UK. And I will continually tell myself she will be back for a week or two in a year or two. And I will somehow get there.
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Kathy Year after year. Hurricanes are an acceptance thing of life in the area, In 2004 after the fourth hurricane that affected the state and all life here we were fatigued. But the massive news media wasn't here trying to make it political..
Renovations: Oh vey..........One tile has delayed the project by months. It's curing so slow. It means a difference b/c walking into the Bathroom it will be an eye catcher. If it was the opposite corner the project would have been done. Each day I look at the DAMN TILE. We are delayed b/c of one friggen tile. It's one of those things that women get and guys don't.
But I have my SAFE room. Donnie did a great job. It's reinforced with 2X4's then duroroc, then the granite.
Stocked the room in IRMA when we had four tornadoes in the area. I'm getting to the point I just want the project done. Except, that DAMN TILE. Donnie want's me to accept it as is, well I see progress
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Mari nada talking is good. In the early days of Insomniacs when it was just a night thread, I often came and talked to myself, when no one was here...........could be like now when everyone has gone to bed.
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Okay the bed is calling.. hope it's not a false call
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Me too! And it's usually a false alarm. Thanks for the fun! G
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Mari, my dear, do you sleep at all? I have been around. Just behind my computer...I mean phone. Reading. Just need to tune in to the right station. Hey I saw you were trying to get Shep and yourself in trouble on the other forum. Ha! You are naughty! But the crown for the naughtiest goes to you know who.
MammaRay, you know you can call me also. True peace is truly a gift. Ms. Wren has words of wisdom.
Oh Mag, so happy to see your post. You sound like you are going through the same thing as Shep.
Eeyore, oh my dear. Couldn't help yourself with those delicious tropical fruits, huh? Ay ya....so sorry you ended up in the hospital. Made lentil soup today as a matter of fact. Got the recipe from Junieb. I must say it turned out pretty good. Thanks again Junie!
Hi Kath, good to see you back. Please do share photos of your vacation. Dad has not had surgery yet. I am waiting for a call from another urologist. Need to ditch the current one. Didn't have a good first impression. Two of my sisters felt the same way about the guy when they went with Dad on the last appointment. He seems to care about $ than providing care. He wrote a few things on the progress note ( given to my sister by mistake) that were questionable. No vitals were taken yet there were numbers and on the chart note....hmmmm. Thank you for asking about the girls. DD is doing okay so far in junior college. Most of her friends go to school in the Bay or Southern California so she is a bit sad. DD2 told her " but you still have me here". DD2 is also doing ok in school. She is competitive and self-motivated. Hardly see her doing her homework though. The answer is always "I did them in class already". She is busy with extracurricular activities so she is keeping me busy too. Ha!
Ms. Sas, out of body experience....interesting. Can't say I have had the experience. I do have dreams/nightmares that I am trying to make sense.
Got to go shower and get ready for bed.
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Lover, I had to go back and see what I did. I'm so proud. Now I'm cracking up. Pink Grinches to all. GN.
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Tsk tsk tsk
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Crap, this site has logged me out 3 times and deleted my post in the process, so I am not gonna re-type it again. It is now 11:45 p.m. I'm gonna go to bed.
However, Kirby is home again, minus 2 testicles, but with beautiful pearly white teeth. The vet cleaned his teeth while he was under anesthesia. Yay!
Here he is on the bus on our trip home today.
The 2 Bibs I made yesterday.
And with that I am going to say goodnight before the site bumps me out for a 4th time.
Waving Hi to all. BBL
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BlueB, just read your post. Hugs.
Ms. Wren, Kath, and Shep...thank you for the advise. It is easier to turn my back if it was a character problem. With mental health, it's hard to
I have lost close to 10 lbs since end of July without even trying. BlueB, is stress really candy for the bad cells? I am working on being a party pooper.
Y'all should go to sleep, otherwise the drug companies that make sleeping pills will look bad. Oh wait....I think I am the only one awake.
Morning Feline. Shep will be up soon if she hasn't already.
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Princess has a birthday today. She is turning 3 years old! Time sure does fly, I still see her as that precious 9 week old kitten that I brought home from a shelter.
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STRESS - yes, candy for the cancer cells and for any health issue. I am told over and over to eliminate stress, health professionals say this, I read it, so I believe it. And that would mean to me that it makes the effect even worse since I believe it. Poo.
Daughter is taking some huge boxes to the UPS station to have them weighed and get costs. We will be shipping them later when they have the money to do that. But at least they will be packed, taped and stacked. Her father told her if she left anything at all for me to sort or pack it was going into HIS file, the huge blue garbage bin at the end of the driveway. She started packing right the next day. Though I had told her often enough for two months prior. She believed him and see the effect it had on her. Which links us to the STRESS belief above paragraph, right. HE STRESSED her out with his STRESSING THAT SHE HAD BETTER PACK OR ELSE and she believed him and packed right. hahaha
Hello Kirby and Princess!
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Mari, Fibro? Fibro did that to me. But very odd, Tramadol does that too me. It's a bit different type of pain. I haven't taken a tramadol for many months. Took one after hurricane prep. It reminded me off why I wasn't taking the.
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Mamma, I seriously dislike that phrase/ concept "Keep fighting". If we have done what we can to stop the cancer , and it overwhelms the body, then that's what happens.
It's like Houston. The water kept rising, It rose over the usual limits and barriers i.e. like drugs and rads for us.. Then went on for another two feet. Nothing was stopping that water. Hmm maybe the motorboats are like xeloda
The second phrase I don't like is "Don't Give Up". Right, I'm choosing this.
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I seriously hate the "journey" word. So! I am fortunate to be here today, nearly got t-boned by a speeder through a red light. No, Sas, not fibro, I don't fit the profile but thanks for caring. I think it's probably osteoarthritis run amuck, I'm better today. Arthritis.org is a great place. I'm working on it.
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Beautiful Princess!! and such a lucky cat to get adopted. Happy Bit=rthday to your Princess.
MammaRay you are so right about the photos.
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Princess wanted me to tell everyone thanks for the birthday wishes.
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Sweet
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