Stage 4 triple neg now her+ new primary

Options
embmom
embmom Member Posts: 115
edited September 2017 in Stage IV/Metastatic Breast Cancer ONLY

I just celebrated 5 years out from mets to the brain from triple negative cancer and almost 10 years out from original breast cancer, and today I find out I am her2positive with a new primary. After reading thru the forums for the her2+ group I just don't know if I can go thru this again. I have been fortunate to have had some really good years, have felt great and just recently expanded my business. I don't know if at 64 I can go thru taxoter again and a year of the herceptin. Reading thru the forums it looks like it is going to be a tough road and having done it all before I just don't know. I met with the surgeon today who is sending me back to the onc next week and is scheduling lots of scans to see if either of the cancers has spread. Just really bummed tonight.

· Share on FacebookShare on Twitter

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    embmom, we're so sorry to hear this unwelcome news. Hang in there! And please know that we're all here to support you. Wishing you well with treatment and the best of luck with test results!

    Hugs

    The Mods

    · Share on FacebookShare on Twitter
  • Elisgranny
    Elisgranny Member Posts: 9
    edited September 2017

    what was your primary diagnosis and when? I have inflammatory breast cancer Stage IV metastasized to my liver. There are very few of us out there I believ

    · Share on FacebookShare on Twitter
  • Elisgranny
    Elisgranny Member Posts: 9
    edited September 2017

    so sorry to hear your news. Turn it over to God.

    · Share on FacebookShare on Twitter
  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited September 2017

    embmom - I'm breaking the rules by responding in this forum, but I wanted to say that I'm sorry for your new diagnosis. Could you possibly just do Herceptin and/or Perjeta? The SE's are generally much more manageable and some people have really great responses.


    · Share on FacebookShare on Twitter
  • embmom
    embmom Member Posts: 115
    edited September 2017

    Notverybrave,

    I will see the onc on Wed. And he will let me know what we'll do. The breast surgeon,tho, told me that it would be the taxol or something similar and the herceptin. No carbo this time as I had it last time. I also have been reading about perjeta. My tumor is 2.5 cm so I am already stage 2 and from reading it seems like I might get that, too. Tues. I do scans all day to see if either of the cancers have spread. I have been Ned for 5 years! I can't believe my luck getting the 2 most aggressive cancers! At least this new one has more treatment options than the trip neg. this one is er- and pr+ her+".Thanks for responding! How are you doing?


    · Share on FacebookShare on Twitter
  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited September 2017

    Look at you, asking about me! I'm doing pretty good but ready to be off this cancer train. Guess you're never really off, huh?

    Good luck on Tuesday. Hoping for lots of boring, normal scans!


    · Share on FacebookShare on Twitter
  • MommyErin
    MommyErin Member Posts: 187
    edited September 2017

    So sorry you're in this situation! I did 6 rounds of TCHP starting in March and it wasn't fun by any means. My last was mid-July and I've been getting herceptin and perjeta infusions every three weeks since. They're a breeze! I drive myself to and from the appointments and have even gone to the gym the same day afterwards. Granted, I am 31, but really, they're not bad at all once the heavy duty chemo is off the table. Come over to the herceptin/perjeta thread and chat with us. Some have stoped at 4 THP infusions and then continued with the more manageable HP and saw additional shrinkage. The targeted therapies are definitely worth considering.

    https://community.breastcancer.org/forum/8/topics/...


    · Share on FacebookShare on Twitter

Categories