Would like your quotes about your fears for a new campaign

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  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2017

    It84, abeautiful picture of true joy!


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  • Adarodriguez
    Adarodriguez Member Posts: 1
    edited June 2017

    I have a lump in the middle of my upper chest. For many year it was a blackhead... but now it turn into this big hard lump that will not pop. The clinic that I worked at tried to numb it and drain it with a needle but it wouldn't drain. Now it's getting bigger very painful and red around it. I'm supper scared and was wondering.. what should I do? I guest I was just wanting for it to pop.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2017

    Couldn't it be a fat nodule? They can be hard, I had one on my head around a hair follicle.

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  • Scrbk101
    Scrbk101 Member Posts: 1
    edited June 2017

    hi .. my sister just passed away on April 10,2017 to tnbc. I am still in shock and would like some answers.. it's been the worst few months of my life.

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited June 2017

    Scrbk101, there is a forum for caregivers and family HERE that you could join to get some answers.


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  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2017

    So sorry to hear of your sister's passing.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2017

    We're so sorry to hear that you're sister passed away Scrbk101, this must be a really hard time for you and your family.

    We hope the community will be a source of support for you while you grieve.

    Sending you and your family our love,

    The Moderators.

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  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2017

    I'm so sorry to hear of your sister passing. Sendin gentle healing hugs and prayers for you and your family 🙏💜


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  • vrtameshrew
    vrtameshrew Member Posts: 2
    edited June 2017

    There is no "family and friends" for me and my kids; I always laugh when people write or say that tripe. There is no support or help although everyone says there is...what a joke...

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  • vrtameshrew
    vrtameshrew Member Posts: 2
    edited June 2017

    It's okay to be scared. Go forward always scared or otherwise..take care 'cause no one else will do it for you...

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  • molliefish
    molliefish Member Posts: 723
    edited June 2017
    • What scares you most about breast cancer?
    • How did you manage the fear?
    • How did your support system help ease your fears?


    I worry my daughter will have breast cancer too.. She turned 15 this week.

    I manage my fears by rationalizing that she is only half of my dna and by the time she's my age, I'm sure breast cancer, all cancers will be easily treatable

    We recognize that life is a gift, a finite precious gift, as a police officer all too often I've seen how quickly things can go bad... You can't live in fear, you walk past those fears toward the future full of promise.

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  • Becs511
    Becs511 Member Posts: 303
    edited June 2017

    What Scares Me The Most:

    I am scared the most by the current stastictis of being a young stage 4 de novo patient. I was diagnosed at 33 and am now 3 years post diagnosis. The current five year survival rate for women with Stage 4 breast cancer who were diagnosed younger than 49 is only 36%. I am terrified that I will not be alive to celebrate my 40th birthday, and that middle age for me will be 18-19 years old at best. - Rebecca

    image


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  • windingshores
    windingshores Member Posts: 704
    edited June 2017

    What scares me most is that my pathology results (grade 3, LVI) didn't match my low Oncotype, and after a few opinions, treatment was based on the Oncotype. Will they find, in time, that the Oncotype is not the best guide, and will I? They say the lymphatic invasion was local, but did cells get through?

    I have two kids with some special needs, now in mid-20's, but nowhere near ready to leave them.

    Little support, save a ride from the hospital after surgery. After mastectomies I walked to the grocery store and bought just a couple of items at a time so I could get them home. My cancer is completely off the minds of family and friends: as far as they are concerned, it's over.

    I don't think about it much  but sometimes, all of a sudden, it will hit me. What if I sign a lease for an apartment and it comes back and I need to be elsewhere? That car dealer is talking about a car that will last 10 years, and I wonder if I should get a cheaper one that will last 5. That kind of thing.

    Tai Chi is a help, and so is doing art.

    Sorry, no image, so I understand my post won't be helpful to the study.




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  • secondchancetoo
    secondchancetoo Member Posts: 50
    edited June 2017

    imagewow....my fears as a two time breast cancer survivor. I really thought I was done with all of this the first time! The second time was a true watershed moment when I knew that this disease could definitely take my life. Even though I am in my mid sixties, I am not ready to leave this planet yet.

    Some days I barely think of breast cancer, others, it's literally ALL I can think of. This disease is the mother of all terrorists in my book, because anyone who's ever had it knows it can always come back....years, even decades after it first strikes.

    I do feel that it has given me a new appreciation of the simple things in life, a beautiful spring day, the smiles on my children and grandchildrens faces. The love I see in my husbands eyes when I say something funny. Yeah, it's all worth hanging around for....for as long as this life will let me stay

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited June 2017

    A big fear is another woman will take my place with DH and live the life I thought we were going to.

    BC has been a rude awakening of who really cares about you and who doesn't so here's my quote.

    Some of those who you loved and cared for the most become strangers and some strangers seem to care the most.

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  • Sorella
    Sorella Member Posts: 107
    edited July 2017

    I am also afraid that it will return. That is my biggest fear. I have breast lymphedema and am on neutontin due to nerve pain which has persisted since my surgery over 9 months ago. I am afraid that I will never have a day without pain and intrusive thoughts.

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  • triplenegative
    triplenegative Member Posts: 3
    edited July 2017


    what scares me the most is my daughter getting this awful disease and of course mine returning you never know.

    How did I control my fear? medication still do, that is the new norm for me.

    How did support system help the most? Family, friends, doctors and group forums, huge support for me.

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  • rdeesides
    rdeesides Member Posts: 459
    edited July 2017

    Where do I begin! I mainly am scared for my 9 year old daughter who still needs me to put her to sleep at night. Who will put her to bed, quiet the nightmares and kiss the boo boos if I'm not here? Also, I'm scared for my finances. I am going to be laid off in 8 months. Will I be able to get through treatment before I lose my insurance? Will I have to move because I won't be able to afford my house anymore? I'm afraid of the unknown. Will it come back. Fear is my new normal.

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  • arby
    arby Member Posts: 126
    edited July 2017

    I've been living with BC since Aug 07 and have had 3 surgeries and the standard of care treatments due to 2 recurrences ('09, 2014). I'm getting along well physically and try to stay upbeat through journaling, family time, volunteer involvements, church activities, nurturing friendships, Bible study and prayer, GRANDKIDS, yard work, gardening, and just this summer joining a water exercise class. "You are braver than you think," Christopher Robin told Pooh. I overcame my fear of embarrassment by getting a long sleeve rash guard shirt, paddle board shorts and altering a sports bra to hold my silicon boobs in tight. I tell you, I feel younger and energetic and like a conqueror with my Lands End gear and a sassy "I can do this!" attitude. I encourage any of you to find a way to enjoy life, be creative with solutions and go for it! This is also complying with avoiding lots of sun exposure with the hormone inhibitor med that I'm on for another 2 years. We gotta think outside the box and adapt our clothes, our attitudes, our schedules, whatever! .

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  • 3bears
    3bears Member Posts: 254
    edited August 2017

    I was diagnosed with IDC in November 2016. I'm done with treatment but am getting ready for reconstruction. They are going to put tissue expanders in on September 7th. My biggest fear is recurrance. Or dying before my goal of 90. My faith in God is what causes me to stand today and every day. I know my life is in His hands no matter the day of my death. He knows all about me and what's happening and He is working something good out of it all. Even if it is my family knowing him through this. I have received comfort from my family and Christian friends who support me and pray for me. Also my online support group. I would have been lost without them. They make me feel so much less alone than I would have otherwise. image

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  • Outfield
    Outfield Member Posts: 1,109
    edited August 2017

    Do you still want fears?

    My biggest fear is that I will not be in my children's lives as they grow up.

    My second biggest fear is missing out on the rest of my life that I had been planning on: more traveling, furthering my career, spending time with old friends, holding grandchildren.

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    Thank you all for sharing your deepest fears/worries/concerns. It is not an easy place to go.

    We wanted to share our new Campaign information here, as well as the link, which relates to why we asked this of you.https://community.breastcancer.org/forum/114/topic...


    The new campaign from Breastcancer.org called Take the Fright Out of Breast Cancer™, is a national grassroots movement to turn Halloween into a holiday with a purpose. Our goal is to replace some of the fears around mammography, diagnosis, and treatment decisions with information that will help women reduce their risk of the disease or its recurrence and to teach them what they need to know about early detection and testing options.

    We know that we can never remove all of the fear around breast cancer, but we hope we can help ease the fears with awareness, information, and support. We also know that too many women are missing life-saving opportunities for early detection and aren't getting the best possible treatments. With unclear and inconsistent recommendations around screening and detection and with so much new information about treatments, women are often confused and anxious as they try to make important decisions for their health.

    As always, Breastcancer.orgis committed to replacing uncertainty with clarity, confusion with confidence, and fear with knowledge.

    This October, we're asking people to come together to 'take the fright out' by celebrating Halloween with a purpose. Our goal is to get your help sharing important information about breast cancer and the ways to protect breast health, all while raising funds for Breastcancer.org. Please help us continue providing critical information and support to everyone we serve — with or worried about breast cancer.

    The fundraising from Take the Fright Out of Breast CancerTM goes directly toward our existing digital programs and improvements we are making to our website that will provide a better and more personalized experience for our nearly 20 million annual visitors.

    Please visit www.TaketheFrightOut.com to learn how to get involved, and feel free to share your thoughts and ideas here (or PM our Moderators)!

    Thank you, thank you, on behalf of the BCO team and the many people we can help,

    The Mods

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2017

    Mods. It's great that you've worked out a new campaign around the theme of fright, but I'm surprised that you don't mention men with breast cancer as part of this event. Are you considering a seperate event for men, or when you mention women, do you mean women and men?


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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    Traveltext, we actually made some edits Thanks for your feedback.


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  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2017

    Thank you...

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