Lita57
Comments
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Lita, praying for you this morning for strength and endurance as you go through WBR. Your attitude is so amazing and infectious - you make us feel like we all can conquer this beast! Love seeing your sweet smile in the pic - you rock, girl!
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Good morning Lita! I will be standing with you while you attack those tumors! We will give Mr C the finger together! I love your feistyness!
Hugs and prayers
Claudia
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Dear Lita,
Praying for you today-May those radiant beams transform the cancer cells into healthy ones. May you feel surrounded by love and God's peace. Thanks for sharing your smile with us-I can't help but to smile back.
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Thanks so much for taking the time & energy to update us all. Those pins & needles were becoming a royal pain in the arse. Everything crossed for you! Keep going as best u can. You have a world of support here.
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With you in your pocket Lita as you take on this new challenge.
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Sending hugs and much love from the atheist's thread. Miss your humor and irreverence.
Trish
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Going to file my advance directive b4 I go in for whole brain rads this afternoon. Been told that some of the mets are hemorrhagic (bleeding) and the bleeding could get worse from radiation (rads inflame and can cause more swelling), so I need to have the directive on file for my own peace of mind.
Another busy day, so off I go after checking in.
Hugs,
Lita
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Thinking and praying for you today Lita!!! You are so strong! Hope those rays of sunshine bring you back to health!!!
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Thinking of you Lita. Hoping all went smoothly today. So impressed with your attitude. Awesome idea for sticky notes. Def can tell you took a fall but you still look wonderful.
After my rad I took the mask home to dss. They played Spiderman for quite a while with it.
Hugs
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With you Lita. Stay strong and report back soon.
>Z<
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Thinking of you Lita, praying everything went well today. Hoping you feel some comfort that we are all with you spiritually. Hugs.
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Lovely Lita. Thinking of you today.
Stefanie
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Lita, I echo many others who initially approached this site with some trepidation, and you were the first to embrace us.
Your posts have touched me, educated me, shared your deep warmth and wisdom with me, and made me flat laugh out loud. You can turn a phrase in a story! I am so happy you did a 180 turn, and mustered what we down South call "piss and vinegar", picked up your gloves, and decided to hop back into the ring and serve it to Husband #2.
Sending you invisible rays of positivity, strength, prayers, and love, joining with so many others, as we surround you with our hearts outstretched to you.
Let someone else do the damn weeding! (I know, I know... it's so damn tempting to yank out that flagrant offender over there.)
Carrie
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Lita! I threw away my mask in January. I hope you can do the same soon. Just feel our positive thoughts.
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Lita, thinking of you so much. Know that you are surrounded by the energy of so many caring women! We hold you in our hearts and know that anyone who would wear those glasses (oy, those glasses!) has everything under control. Grace, peace, healing and love be with you as you head into this next stretch of treatment. Love and hugs also to your hurting family. I look forward to your updates.
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Lita - thinking of you. In your pocket today!
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Okay, so I had rad Tx #1 today, and I can STILL READ the street signs and post on the computer, ha ha!
Bob, the wonderful radiation tech, said I shouldn't feel any brain deficits for a while, possibly not even until the sessions are completed. Bless, his heart, his crossed his fingers in front of me and said he hoped I'd just SAIL thru this without hardly any problems. He did say I'd have hair loss, radiation burns, and some headaches which I can handle with Tylenol. (They don't want me using aspirin, Alleve or ibuprofen as it could cause even more bleeding.)
The REAL neurological deficit stuff can take weeks to develop as the radiation continues to burn away at the healthy brain cells well after the sessions are over.
Sadly, my Alzheimer's medicine wasn't ready when we went to the clinic this afternoon. Apparently, they still have to special order it even tho the Dr called it in yesterday.
They told me to take a bit more of the Decadron steroids to help with any inflammation the rads may cause, so I just cut ONE pill in half, taking 2 mgs. I NEED my sleep, ladies!
The dr also called in a Rx for Ambien for sleep, but I've heard bad things about it, so I think I'll just stick to my CBD tincture to get some sleep. I'll have to go to the MM dispensary and get some more 'cuz I'm doubling down on that. Dr. says it's perfectly okay to take CBDs because - unlike regular marijuana THCs - they're non-psychoactive and they might actually HELP protect my brain from the traumatic injury that rads cause. But I'll see what the pharmacist says when I get the Alzheimer's stuff. I don't want any weird drug interactions.
Many thanks for your continued prayers, and peace, love, and light to you all, my dear sisters.
Lita
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Lita, thanks for taking the time to check in. So thrilled that it went well for you today. I bet you will just sail through this like there's nothing to it. You are definitely a trooper and a great inspiration to all of us. I hope you get plenty of rest tonight. Lifting you up in prayer
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Lita - you are amazing! Thanks for updating us. So glad your first tx went well. Hope you get some much needed rest tonight. We are here for you. Sending you love and support.
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Lita, I've been gone just a couple days and you already started WBR?!! Fantastic!!! No going gently into that good night- we'd rather stay and fight!! Im thrilled that you have the energy and can summon up the hope to go through all of this!! And thanks, its a real service to give everyone a head's up about what it entails to do it, and what risks you are facing for memory loss and cognitive problems that may develop afterwards.
I remember there was a nun study on Alzheimer's- inspired by the fact that its a homogenous group with generally good reporting and compliance. They found a much larger number of nuns died with clear Alzheimer's evident upon autopsy of the brain, however the women did not show overt signs of Alzherimers, or much less severe symptoms than would normally be expected for the degree of brain impairment, while they lived. They concluded that one reason was because they kept a much simpler daily routine, which involve a lot of repetitive activities, done to a schedule every day. Apparently this made things much easier for the brain to find a way to connect the dots of the schedule and keep things going. So, your ideas with the white boards and notes to yourself, keep a written schedule and to-do list in plain sight, check on it frequently throughout the day, give yourself a lot of slack for a long long time in recovery. Try to clear your schedule just as much as possible, and maybe meditate or take mindfulness breaks throughout the day. Are you a music fan? Alzheimer patients always remember their favorite songs from the old days, its only the short-term memory that goes- although WBR is a different thing altogether and may not show that way. Maybe keep a diary just to be able to show your doctor what and how you are doing.
Wonderful, I am so happy and excited for you!! Will be joining the chorus at 7PM Sunday...
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Lita - Thinking of you. You are taking such good care of yourself, doing this so intelligently under excellent care. I think you can expect good outcomes on all fronts.
>Z<
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Dear Lita, so good to hear from you and thanks for updating us, but you get some rest, lady, you deserve it! You're off to a good start, so keep it going. Love, hugs and support. -Barbara
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Thinking of you you Lita and so glad you checked in today. Sounds like as usual you have the bull by the horns and wrangling that 2nd husband into submission. We are all standing in your personal little corner here with best wishes, prayers and anything else you might need.
Kandy, Awesome job starting this thread!
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Thanks for the update! I hope things go smoothly! Prayers and positive energy coming your way!
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Lita as always you amaze me. So glad today went well. You have sooooo many of us with you as you take your treatment. Hang in and keep tough!
Babs
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Thinking of you and your loving family. Holding you in prayer❤️
Love Chelle.
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wow lita! What a whirlwind of a few days!! I like cure-ious' recommendation for a simple life - I'm trying to adopt all of those things myself. I am sending all the positive vibes I can muster for no hemorrhagic conversion of husband number 2. We have had quite enough of him already - hes such an a$$hole.
Also praying you can keep your wits and especially your eyesight through this, so you can continue to read and appreciate how many of us are surrounding you with love peace joy and good energy. We are in your pocket, in the xrt room with you, we follow you everywhere. Just sorry we were a little late in your garden to catch you from your fall. But we won't let that happen again. Rise up. Rise up. You are a mighty woman
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Good morning Lita! Of course you are going to kick Mr C's butt! Of that I have no doubt!
One thing I would like to recommend to you are games. They recommend them to Alzheimer's patients to help with cognition. There is a definite difference in the progression for those who participate in games and stay mentally active, compared to those who do not. Also, if you don't want to strain your eyes, try audio books. I have a few and if you would like I could send them to you.
Stay strong fair lady! Gentle hugs!
Claudia
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Lita,
I have been quietly following for months and have greatly admired you. I pray for you several times a day.
Mary
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Glad it all went well. So good to hear from you.
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